Hello everyone,
My name is Liz and I am the mother of an 11 month old son who was
born with a brain injury. I would like to share my story in the hope
that it will help others who are suffering with a brain injury. I am
so very grateful that someone shared their story with me and led us
on the road to recovery.
My son Liam was born last July. Due to an undiagnosed condition
called Vasa Previa, Liam lost over 55% of his blood when my water
broke. Following an emergency C section 20 minutes later, it took
over 13 minutes to rescucitate him. His apgars were
0 0 0 2. He was in bad shape and was transferred to Cornell Medical
Center for head cooling. He had massive seizures, couldn't regulate
temperature….etc. etc. Miraculously he survived and came home to
us although doctors were not optimistic about his future. The next
few weeks confirmed my fears, that Liam was in fact brain damaged.
He slept almost 24 hours per day, his muscle tone changed from
extremely low (he was like a rag doll) to high…his legs were getting
very stiff. He hardly ate, gagged and choked when he did and his
eyes moved very slowly. I started to see a change in the shape of
his head…which I later learned were his skull plates collapsing due
to his brain not growing properly. His left pupil was also much
bigger than his right. I knew my son was brain damaged.
Desperate I began to research alternative treatments since
conventional medicine offered us no help. First, we took Liam to
China for umbilical stem cell therapy at 3 weeks of age. Following
treatment, Liam was more alert etc. and we did see a lot of
benefits but we still had a way to go. In the following weeks he
started painful back arching, he still had difficulty with
temperature regulation, his legs turned purple from inadequate blood
flow. He was posturing, and his thumbs were fixed in his fists. His
left side was affected more than his right. He would barely move
his left arm and leg and his left eye drooped slightly.
When Liam was a few months old, we were told about a neurologist in
Florida who uses vasodilation therapy to treat a variety of
neurological conditions including: Stroke, Brain Injury, Cerebral
Palsy, Autism, ADHD..etc. The basis of the therapy is that blood
vessels in certain individuals are constricted and consequently
there is inadequate blood and oxygen to certain parts of the brain.
(which also explains why hyperbaric therapy has been beneficial for
many of these patients). It is visualized by Doppler ultrasound and
SPECT CT. Vasodilators open these vessels and establish proper
blood flow within the brain.
.
We were skeptical but I kept hearing about these amazing stories
of patients recovering from his treatment. Over 2000 patients have
been treated and they have documented success…video, news stories
etc. Athletes, politicians and people from all over the world have
gone there. After a phone consultation, we boarded a flight to
begin treatment. I thank God everyday that we did.
I was amazed how easy the treatment is…just giving him a medication
a few times a week. Within 4 days of starting, Liam brought his
left hand to his mouth and over the next several months the deficits
on his left side have disappeared. His head is now normal….he began
walking at 9.5 months and you would not be able to tell there is
anything different about him from another child his age. This is a
baby who doctors thought would be severely impaired. At 2 months he
was entered into early intervention and physical therapy with gross
motor skill deficits…..he is no longer receiving therapy because
they don't feel he needs it anymore. His doctors, physical
therapists and everyone who knows him is in awe. His pediatrician
called him a medical miracle.
I can't begin to tell you what an impact this treatment has made in
our lives and the lives of many. This doctor is ahead of his time.
The neurological community is now starting to recognize the
potential benefit of vasodilation but it will take them many years
to catch up to his work...he's been doing it for many years.
If you would like more info, please contact me. I don't think I
can give his info on the site as it may seem like advertising. I
assure you I have no affiliation or financial interest in this
treatment. Only want to share what has helped us so very much.
Feel free to e-mail me lshayward@...
Liz Hayward