I know this is a touchy subject and some people don't agree with me.
We just got home from the hospital again and 1 day later went back.
baby percy has been on oxygen and his whole brain except for his stem
and cerebellum is dead. A very sad day for me. When they told me in
the beginning it was bad I knew it was but didn't realize it was that
bad! It has taken about a week but I have decided that if he goes into
respritory or cardiac arrest, I do not want resesitation. My family is
angry with me. They don't understand that his sats and vitals almost
always are good. He may not go through arrest for years! But if he
dies, I don't want them to bring him back. He is somewhat in pain
sometimes and it hurts me. Has anyone else decided the same thing....I
kind of feel like a monster...