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Thank you so much for you reply and the ffort you put into it. You are right in that this is something we have thought about for al long time. The doctors have been talking about it for several yers in fact but said it had to wait till Mtt turned 12. He will 12 in Aug, but they surpries my daughter this week by saying that an appointment could be made to talk
to the surgen in the next few weeks. I know she is going to have this done, agree to the idea of waiting till winter is over.
to the surgen in the next few weeks. I know she is going to have this done, agree to the idea of waiting till winter is over.
Matt is on 3 meds and still has adays when he has up to 7 or 8 seizuries a day. Then on the flip side some times a week or more will go by with out more than a few blank stares. According to test his brain has almost constant seizurie ativity going on even though most does not come through. What we see is like the tip of an ice burg. This on 3 meds.
----- Original Message ----
From: Terry Hill <radiantyou@...>
To: BrainInjuredChild@yahoogroups.com
Sent: Thursday, January 24, 2008 12:00:40 AM
Subject: Re: [B.I.Child] VNS Theraphy
Here's what I found about VNS...
From someone who's just finding out about this
therapy... it's benefits sound wonderful. I see why
there is hesitation as it includes surgery and an
implanted device in the neck. Wow! What a heavy
decision to make.
I have no idea how long and what you've tried in the
process but if I was just finding out about possible
therapies for my son, I would exhaust everything else
before surgery. Maybe you have and I'm sure your are
not just finding out. I just say that because that's
the only perspective I can give - if my son had
symptoms and I was just searching therapies.
I've had great success with cleansing and nourishing
the body. Along those lines, I would be looking for
ways to activate that nerve naturally. Through my
iridologist, Paul Leatham, I have learned cleansing
the body and building the systems (like the nervous
system) is the best source of long lasting health. We
did just that with my son's autism. Nerves played a
big part - full body and concentrated in the brain.
We followed the iridologist's program and my son is no
longer autisic.
There is also a wonderful Chinese therapy called
Cupping. Glass cups are placed on the body, a suction
is made and the cups are moved along the body to
activate organs and systems. Once activated, they
cleanse and rebuild. I've heard of great success with
this therapy and it's easy to learn to do.
I can be way off base here. I'd like you to know
there is so much more out there. So many types of
therapies. If you've done that work and feel good
about your decision, I support you. If you feel you
are up to looking more, I support you too.
I know us moms go thru every thing and do it again 10
times more. My most important advise is listen to
your mom instinct. Whatever, where ever it is sending
you, feel confident about it and go forward happily.
Love, Terry
From: Terry Hill <radiantyou@...>
To: BrainInjuredChild@yahoogroups.com
Sent: Thursday, January 24, 2008 12:00:40 AM
Subject: Re: [B.I.Child] VNS Theraphy
Here's what I found about VNS...
From someone who's just finding out about this
therapy... it's benefits sound wonderful. I see why
there is hesitation as it includes surgery and an
implanted device in the neck. Wow! What a heavy
decision to make.
I have no idea how long and what you've tried in the
process but if I was just finding out about possible
therapies for my son, I would exhaust everything else
before surgery. Maybe you have and I'm sure your are
not just finding out. I just say that because that's
the only perspective I can give - if my son had
symptoms and I was just searching therapies.
I've had great success with cleansing and nourishing
the body. Along those lines, I would be looking for
ways to activate that nerve naturally. Through my
iridologist, Paul Leatham, I have learned cleansing
the body and building the systems (like the nervous
system) is the best source of long lasting health. We
did just that with my son's autism. Nerves played a
big part - full body and concentrated in the brain.
We followed the iridologist's program and my son is no
longer autisic.
There is also a wonderful Chinese therapy called
Cupping. Glass cups are placed on the body, a suction
is made and the cups are moved along the body to
activate organs and systems. Once activated, they
cleanse and rebuild. I've heard of great success with
this therapy and it's easy to learn to do.
I can be way off base here. I'd like you to know
there is so much more out there. So many types of
therapies. If you've done that work and feel good
about your decision, I support you. If you feel you
are up to looking more, I support you too.
I know us moms go thru every thing and do it again 10
times more. My most important advise is listen to
your mom instinct. Whatever, where ever it is sending
you, feel confident about it and go forward happily.
Love, Terry
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