Dear members,

My sincere apologies in posting this email in different groups.. it might be off topic for many of you, but I hoping to get some help from someone in the group for my son.

It will be very helpful to me if you can email me offline your replies to my email id nkmeena@... (nkmeena at  yahoo dot com ) since I am posting this email in different groups and that way,I will not miss your reply

Thanks in advance,

Ok.This is regarding Sleep apnea, Oral device etc.

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Looks like my 9 year old son, Athish needs an oral device(Rapid maxillary extension Device) ,eventually to increase the passage way in his trachea. This is another option given to us instead of CPAP machine for his sleep apnea. His sleep apnea is quite severe and which is one of the reasons to cause his frequent seizures and for his current heart problems(both Syncope and Tachydardia,which is very uncommon in Kids) . Our regular pediatric ENT  who recommended this for Athish  is not aware of any Local Oral surgeon who could do this procedure for Pediatrics .. There is research for this device which can help sleep apnea but he is not aware who can and who does this procedure.

 

Does anyone know of an Oral surgeon in the bay area,california  or anywhere in the world?.I am willing to take my son anywhere in the world to fix this problem. Any help is highly appreciated..

 

This is actually very important for my son, because it's is  life and death situation. Please do give me any input you have related to this. 

His sleep apnea is no way obstructing his sleep pattern (so medication or supplements are not going to help in his case)
He can sleep very well, but he wakes quite frequently in his sleep cycles(for eg. a sleep apnea patient would normally wake up 1 in a hour or a cycel,whereas Athish does 12 in 1 cycle, which is quite significant). So it's actually the air ,he breathes in is the problem. His lungs are functioning well, but he is not getting enough oxygen,since there is obstruction closer to his trachea.With lack of Oxygen, you can imagine the consequences.

 

Hoping to receive some help from someone in the group. For the device for any other alternatives.

Thanks a lot for taking your time in reading my lengthy email. and I am hoping to get some help

 

Mom to Athish( 9 yr old with Brain damage at birth, Spastic Cerebral palsy, Developmental delayed,non verbal)