----- Original Message -----

From: isis feral

To: BayCanaryGrapevine@yahoogroups.com

Sent: Sunday, December 21, 2008 8:52 PM

Subject: Re: [BayCanaryGrapevine] mold exposure

I also depend on the ICanBreathe Honeycomb mask, and echo the advice not to put it in the wind. Charcoal picks up everything, so it could easily end up getting contaminating by the first truck that passes through the neighborhood, or a neighbor's laundry fumes. I sometimes hang my mask next to my air filter and that helps me when there's a light, surface contaminant on it. ICanBreathe also sells a little filter insert, which I believe is cotton, to be placed between the charcoal and the face. I've not had much luck with it (kept falling out, since I use two charcoal filters and it just got too thick), but it might be worth a try to keep from reacting to the charcoal. I may sew it directly into the mask and try it that way eventually... I'm loving all the sharing that's been going on here. Y'all are inspiring! Isis --- On Sun, 12/21/08, Betty <desertfoxie@yahoo.com> wrote: From: Betty <desertfoxie@yahoo.com> Subject: Re: [BayCanaryGrapevine] mold exposure To: BayCanaryGrapevine@yahoogroups.com Date: Sunday, December 21, 2008, 11:18 AM Sue,   It sounds like you already have a lot of knowledge.  For what it's worth I think you are on the right track and just keep on keeping on.  We all need reminders now and again, especially with our damaged brains.  We don't always think of what we need when we need it.   I can imagine how sick you were from the ozonator exposure.  I ozonated a closet once and still had trouble accessing it after about a week.  But that was the exception.  Usually I can access whatever I ozonate within 2 days.   Tri-salts (I actually use Alka Gold - never am without it). Alka Seltzer "Gold" is not toxic at all.  I know soooo many MCS people who use it.  My EI doc I told you about told me to use it, and I've been using it since 1993.  Would never be without it.  It balances the pH in your system, so when you are in a reaction it makes you feel better pretty much right away. Many of my reactions are respiratory with resultant severe fatigue, so always having Alka Gold available on my person is critical to my well-being.   Re your mask, I wouldn't hang it in the air, but try putting it in a small space (like a drawer that is fully outgassed or make your own little box out of Denny Foil) with bags of zeolite rock, which I think you can still get from NEEDS, but if not just Google it.  That way the filters will outgas without picking up anything in the air and thus possibly making the mask unusable.   The Detox baths are located in Wellness Against All Odds, pages 132-133.  I can send them to you in a PDF if you wish.  I've done that wrap mentioned too and the cloth compress - too messy for me.  The bath is messy too, but at least it is just the tub and towel. Just be careful if you do the bath not to overdo it.  If you are feeling faint, get out immediately.  Also I always drink about 16 ounces of water when I'm in the tub.  That should keep you from feeling faint, but when I first started these ions ago, I did get that faint feeling.  I always make my baths as hot as I can stand them - or as hot as my water heater will allow :) :)    What is ACV?     Betty   "A time comes when silence is betrayal."       Dr. Martin Luther King  From: "scbozzo@sbcglobal.net" <scbozzo@sbcglobal.net> To: BayCanaryGrapevine@yahoogroups.com Sent: Sunday, December 21, 2008 9:50:44 AM Subject: Re: [BayCanaryGrapevine] mold exposure Dear Betty,   I have an icanbreathe mask, but I am reactive to the charcoal, so I've never worn it.  I sometimes have to ride public transportation for long distances, so I want to experiment with face masks.  I react to the charcoal when I first get a new filter for my IQ Air tower, but that goes away.  So I was thinking of airing my icanbreathe mask in the wind or something like that...   I was thinking of trying the full-face respirator in the cabinets, after all.  I probably need to buy a small lamp to put inside the cupboards, so I'll have visibility with that "helmet" on!  These cupboards have been a lot of trouble.  First I ozonated them and ozonated my lungs terribly and increased my lung infection(s) terribly.  (It was an honest mistake -- 2 cupboards were connected, and I didn't know it, and the additional one got filled with ozone, and I didn't realize it and didn't air it out...)   I use tri-salts for mineral loss from sauna sweating.  Do they help with detoxing as well?  (I use them from Sherry Rogers's book on sauna use, Detoxify or Die!)   Since you mentioned them in your post, last night I did my dry skin brushing, my epsom salt foot soak, and my castor oil "belly rub."  I usually do those on sauna night, and am 'too tired' to do them on the other night.  Thanks for the inspiration!  (The foot soak and belly rub are more effective when your skin is hot from the sauna.)  But they did help last night -- that's the first I felt noticeably better since my exposure.   I made up the castor oil "belly rub" for myself, heating my belly by the friction of rubbing, because I didn't want to use the toxic saran wrap, nor the possibly bacteria-laden flannel, nor the heating pad, of those castor oil packs.  It sounds like, from what you wrote, that Sherry Rogers has come up with her own alternative to that, as well!  I love Sherry Rogers, and don't see people using her name.  Where does she talk about the castor oil remedy that you mention (which book)?  I have a lot more books of hers yet to explore -- I can't read much now with the brain infection...   I am allergic to ACV, to the bad bacteria in it.  (Just like I have to overcook meat very much, or else I'll get nauseous and sick from the remaining bacterial load.  I can't eat fish at all -- they have much more bacteria than meat.)  I suspect our fish and meat could be one way that we get these chronic infections.. .   I've seen Alka Seltzer Gold before -- it's not too toxic?   Thank you for more great info.  I'm keeping these emails in my "lyme education" folder!   Warmly, Sue             Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Recent Activity Visit Your Group Yahoo! Health Early Detection Know the symptoms of breast cancer. Sell Online Start selling with our award-winning e-commerce tools. Dog Fanatics on Yahoo! Groups Find people who are crazy about dogs. .

----- Original Message -----

From: Sequoia6

To: BayCanaryGrapevine@yahoogroups.com

Sent: Sunday, December 21, 2008 11:40 AM

Subject: Re: [BayCanaryGrapevine] Probiotics

On Dec 20, 2008, Dave wrote:  <<Wow you really are using a bunch of them! I haven't heard of BioKULT or Dr. Ohhira's product--will have to look into it...Thanks for mentioning them...>>

*****************************************************

Hi Dave,

Here are a couple of links for info on Dr. Ohhira's probiotics.

Over the decades, I have tried many probiotics.  Dr. Ohhira's are the best I have found (the "Original Formula" is what my gut loves).  We are all different, so each has to find what works best.  Dr. Ohhira's Probiotics 12 Plus are high quality. Here are the links:

Dr. Ohhira's Protiobiotics 12 Plus:  http://www.essentialformulas.com

and http://www.essentialformulas.com/index.cgim?template=about_us for more detailed info on the Probiotics.

Dr Ohhira is a Japanese microbiologist, very highly respected in Japan.  The "ingredients" he uses to culture and grow the gut-friendly bacteria are organic, GMO-free.  

A couple of weeks ago, Ward Bond PhD had a 20 minute "documentary" on the details of Dr. Ohhira's Probiotics company, on his program "Nutritional Living".  It was interesting.  I taped it on video.  I am trying to figure out how to convert it to DVD (digital).  Once I do, if anyone has the knowledge of how to post it on YouTube, please let me know.  Or, I can send the DVD to that person, and perhaps they can do it.  I don't know much about the latest Audio-Visual te! chnology .

Doug Kaufmann of "Know the Cause" ( http://www.knowthecause.com ), Richard Becker DO of "Your Health" ( http://www.bioinnovations.net ) both have M-F hour long broadcasts on holistic healing, and both have had respected MDs, DOs, DCs, Certified Clinical Nutritionists, etc. on their broadcasts, and all have recommended Dr, Ohhira's Probiotics.  (I tried Dr. Becker's Probiotic product, but found the Dr. Ohhira superior.)  Doug Kaugmann's site has a lot of free info and videos on mold, as well as holistic approaches to many health challenges.

Also, Frank Jordan (http://www.nsc24.com) recommends Probiotics as well, and his company has now developed their own formula of Probiotics combined with BetaGlucan. I have such good results with Dr. Ohhira's Probiotics, I haven't been motivated to try the NSC24 probiotics.  But, I do take the NCS24 BetaGlucan and have noticed a huge improvement in my overall health. He also sends out free samples of his immune system strengthening Beta Glucan, and doesn't even charge for shipping.

Frank Jordan is an independent researcher (i.e., funds his own research so has to loyalty to Big Pharma) has done some ground-breaking research on the functioning of the immune system.  His website has a link to articles on his research, which anyone can access.  Or, you can call, and they will send them out.  If this link still works, here is Frank Jordan speaking with Doug Kaufmann on BetaGlucan:

http://www.knowthecause.com/Links/FrankJordanSponsorofKTC/tabid/118/Default.aspx

Feel free to email me directly, if you have any questions on my "gut" experience and Dr. O! hhira's Probiotics.

Jenny (Sequoia)

good radio show, lots at the Extras link below

The California Report 5:50am, 6:50am & 8:50am    KQED.ORG
should be archived after 2 pm

Mon, December 22, 2008 -- Morning
                The California Report
                                                                                                                                                           Host: Rachael Myrow

                                                                                                                                                             Chemicals at Home: Are Phthalate Alternatives Any Safer?
                                                                                                                                                                                                Next month, California will ban certain chemicals in children's toys and other kids' products that are thought to pose health risks. A similar federal ban takes effect in February. The substances are called phthalates, and they're used to make plastic soft and flexible. So what will be used in place of phthalates and how safe are these substitutes?
                                                                                                                        Reporters:
                                                                     * Sarah Varney
                  For more information:

                                        *                                       Web Extras: Phthalates timeline, toy test results and tips for responsible toy disposal

-- 

----- Original Message -----

From: muzician789

To: BayCanaryGrapevine@yahoogroups.com

Sent: Saturday, December 20, 2008 9:08 PM

Subject: [BayCanaryGrapevine] Re: troubled gut

Hi Sue,

Wow you really are using a bunch of them! I haven't heard of BioKULT
or Dr. Ohhira's product--will have to look into it...Thanks for
mentioning them...I have used Jarro-dophilus EPS for the past 2 years
and recently started Sustenex. I have a good feeling about both. I
just ordered some MutaFlor from Germany (this one is pricey) but have
not received it yet.

You seem to get specific guidance on supplements from your
dreams...impressive.

I am more or less in the dark about the Chinese herbs (they are the
kind that you boil and use the tea)--it's whatever my herbalist
prescribed. I have a written prescription in Chinese, which I could
scan and email to you, that is, if you can read Chinese! However, it
is formulated for my specific condition (and might not be right for
you), and he tends to vary the formulas often--to adjust to my
condition.

Peace,
Dave

--- In BayCanaryGrapevine@yahoogroups.com, "Sue" <scbozzo@...> wrote:
>
> Dave,
>
> I get great replies on this yahoo group. Thank you.
>
> Since you mentioned it, I double-checked to make sure that both my
> probiotics are enteric-coated. They are. But my saccharomyces
> boullardii is not.
>
> I had heard BioKULT (something like that) which the GAPS doctor
uses
> for autistic kids, is a good probiotic. I have not tried it.
>
> I heard from someone on this group about Dr. Ohhira's product,
which
> has worked best for them.
>
> I have not explored, as you are doing.
>
> The one discovery I made is that my probiotic is much more potent
if
> bought from the refrigerated section at Whole Foods, rather than
from
> vitacost.com, where it dies in the heat on the way here. The night
I
> first tried the refrigerated version, my body felt a deep
relaxation
> and calm. I first judge a product by whether I feel a positive
> response the first times I use it. The contrast is less clear
after
> that.
>
> I have stopped the lyme antibiotics for the moment. I am using
> Enhansa, a curcumin product with 7-8 times more absorption, the
first
> glutathione-related product that I can tolerate. Yasko, a famous
> doctor for autistic children, uses curcumin and Boswellia in
> combination. My doctor had prescribed Ketotifen, another drug used
> in autism, which staunches gut reactivity with 6-12 months of
> treatment. I opted to try Boswellia instead, an herb rather than a
> pharmaceutical, and it does relieve that additional gut engorgement
> and pressure that I had been feeling! It is an anti-inflammatory,
> that staunches the inflammatory response of the gut to allergic
foods
> (and to candida allergy, I would guess).
>
> I also started Pau D'Arco, because my dreams suggested it, and my
> body is tolerating it well, and it took away my newest, least
> tolerable symptom of raw brain inflammation.
>
> I also found a low-dose HCl product, since my dreams mentioned that.
>
> Well, there's a lot I'm exploring right at the moment, as I wait
for
> my 2 doctor appts. in January.
>
> Which Chinese herbs have you found helpful, for various digestive
> issues, particularly when difficulties arise?
>
> Kind greetings,
> Sue
>
> --- In BayCanaryGrapevine@yahoogroups.com, "muzician789" <dave@>
> wrote:
> >
> > Hi Sue,
> >
> > One approach that I did not see you mention is probiotics. I had
> > taken various products over the years, but none ever had any
> effect.
> > Until I tried an 'enteric-coated' pro-biotic, and I noticed some
> > relief with my symptoms--my digestion was smoother, less
bloating,
> > less congestion. The impact was not dramatic, but any benefit is
> rare
> > in my case, so I take notice. I am also experimenting with
> different
> > brands of enteric-coated probiotics, because I know that it's
> totally
> > a trial and error process--some people I know get zero benefit
from
> > the probiotic that helps me--while one person swears by a product
> > that did nothing for me. I guess everyone's gut terrain is
> different,
> > and requires different strains of organisms to restore the
balance.
> I
> > think the enteric-coating is important because many of the
> organisms
> > are killed by the stomach acid. It's also important to check the
> > label--some products include strains of streptococus (as strange
as
> > that sounds), which is of dubious value.
> >
> > I never knew about the high dose vitamin C IVs or I would have
> tried
> > them in the past. I do find Chinese herbs to be helpful when my
> > digestion gets really fouled up--a good herbalist is probably key-
-
> I
> > like Dr. Tsao in Newark, CA (acupuncture can help as well, but
the
> > herbs seem more effective in a jam to deal with a 'flare-up'). I
> > think the Chinese herbs are generally helpful in smoothing my
> > digestion, but the impact is more noticeable when I get into
> trouble.
> >
> > I believe that dreams can bring important messages, but in my own
> > case, they are often confusing. I am glad that my dreams aren't
> > telling me to get these procedures done! I also grapple with the
> > conventional wisdom that 'everyone over 50 should have a
> colonoscopy'-
> > -I guess I should have at least 1 colonoscopy for the cancer
> > prevention/detection benefit, but I doubt it will do anything for
> my
> > digestion.
> >
> > I sincerely hope that you find something that brings relief and
> > restores some balance.
> >
> > Dave
> >
> > --- In BayCanaryGrapevine@yahoogroups.com, <scbozzo@> wrote:
> > >
> > > Hi Betty,
> > >
> > > I was aware of the difference between gastroenterology's use of
> the
> > word and
> > > the dictionary definition.
> > >
> > > If Dr. Gordon or Dr. Hass advises me to have an
> > endoscopy/colonoscopy, I
> > > will. Otherwise, it sounds too invasive for a very fragile gi
> > tract.
> > >
> > > I felt deeply heartened and encouraged by your reply -- both
with
> > what you
> > > said about the length of time involved in recovery and an
> eventual
> > new
> > > treatment that makes the difference. I also want to say -- I
> don't
> > think it
> > > is said enough -- that I am impressed and inspired by the work
> you
> > did to
> > > heal yourself, and by your success. It takes so much
persistence
> > and
> > > effort. I really admire it. It's like a 24/7 caretaking job!!
> > >
> > > I am allergic to vit. C, from taking it daily for a year,
though
> I
> > seemed
> > > sensitive to it from the start.
> > >
> > > It is helpful to hear what your EI doctor thinks of
> pharmaceuticals.
> > >
> > > Does anyone have experience with Elson Hass in San Rafael? He
is
> > part of
> > > Liz Lipski's expert circle, and she's an expert on digestive
> > disorders, so I
> > > thought he might help me. He takes MediCare, which is a
critical
> > factor.
> > >
> > > Warm greetings,
> > > Sue
> > >
> > > --- In BayCanaryGrapevine@yahoogroups.com, Betty <desertfoxie@>
> > > wrote:
> > >
> > > Hi Sue,
> > >
> > > I can see where you would be confused by the dictionary
> terminology.
> > > Just FYI, in the medical profession, if the word "endoscopy" is
> used
> > > by itself it generally refers to the procedure where they stick
a
> > > camera down your nose/throat. There are other terms however for
> > > exploring the intestines which would be as you described and
> there
> > is
> > > another one called capsule endoscopy and then a new procedure
> > > colonography. Colonography isn't as invasive, but it also
doesn't
> > > allow for a biopsy and treatment if they fine something that
> needs
> > to
> > > be treated. So if your dream only said endoscopy, it could have
> been
> > > referring to any of these. You can look them up on the Internet
to
> > > see what each procedure entails. Maybe this will help you in
your
> > > decision making process.
> > >
> > > I'm really sorry to hear about your intestinal problems. It
must
> be
> > > a horrid nightmare. I know someone else who has these very
severe
> > > food allergies. She can only eat organic food grown from one
farm.
> > > The others, even though organic, make her sick. And she has
only a
> > > few foods she can eat.
> > >
> > > When I went off sugar, I went cold turkey off ALL forms of
sugar.
> > > The only fruit I could eat were blackberries, blueberries, and
> > > raspberries that had not been sweetened.
> > >
> > > I've heard excellent things about Dr. G. (assume that is Eric
> > > Gordon). He does other alternative types of healing, including I
> > > believe energy balancing. I've also had energy balancing but
with
> a
> > > different doctor.
> > >
> > > It's very discouraging to be so sick, but don't give up because
> you
> > > never know when you are going to find that one thing that
you've
> not
> > > tried that will make the difference. My very first EI doc was
> > > great, and he told me to just remember that I didn't get sick
> > > overnight - it was cumulative and that I wouldn't get better
> > > overnight either. In the scheme of things sometimes even 12
months
> > > can be considered overnight.
> > >
> > > Regarding your question about has anyone healed their leaky
gut,
> the
> > > answer is "yes." I did. I started by doing large doses of IV Vit
> > > C. That helped tremendously. Then I moved onto other things,
such
> > > as Chinese herbs (yuck), coffee enemas, herbal colon cleanses,
> > herbal
> > > parasite cleanses, saunas, energy balancing with Dr. Rochlitz of
> > > Sedona, AZ. I even did high colonics coupled with saunas, but
only
> > > after I had already healed my gut to a great degree with Vit.
C.
> IVs
> > > I tried it once before healing my gut and got very, very sick
for
> > two
> > > days, becuse with leaky gut you will actually push the toxins
out
> > > into the blood stream since your gut is leaking. We had this
> > > discussion a few weeks ago, but I don't know if you were on the
> list
> > > yet or not. I never once did pharmaceuticals - my EI doctor was
a
> > > purist and wouldn't hear of it. He said they all just make you
> worse
> > > after you go off of them and you wind up having to treat again
and
> > > again. He
> > > also had EI and had nearly died years and years earlier from an
> > > exposure in the ER when he was practicing there.
> > >
> > > Anyway, I sincerely hope that you get some help soon and
improve
> so
> > > you can feel hopeful. I know how terribly discouraging it is
> because
> > > I was very sick for about four years befor I even knew what I
had
> > and
> > > found a doctor who knew what the heck he was talking about.
> > >
> > > Betty
> > >
> > >
> > >
> > > ________________________________
> > > From: Sue <scbozzo@>
> > > To: BayCanaryGrapevine@yahoogroups.com
> > > Sent: Thursday, December 18, 2008 2:00:52 PM
> > > Subject: [BayCanaryGrapevine] Re:endoscopy
> > >
> > >
> > > Hi Betty,
> > >
> > > If you look endoscopy up in the dictionary, it refers to both
> > > procedures. (I looked it up in the dictionary, because my dream
> told
> > > me to get one, and I didn't know what an endoscopy was!) A
> > > colonoscopy is a "colon endoscopy."
> > >
> > > I have been on a rare foods 4-day rotation diet for 12 months
> now. I
> > > am still allergic to everything I ate BEFORE last year, and I
am
> now
> > > also allergic to everything that I have been eating THIS year.
> > > Originally, my worst allergies were ANY gluten (including
> > > infinitismal amounts), rice, milk/dairy, corn, egg, nightshade,
> the
> > > celery family, soy. I avoid those. I never eat gluten or rice or
> > > dairy. Now, I think I'm allergic to the rare foods as well.
Though
> > > there are smaller allergies and bigger allergies.
> > >
> > > My candida is getting worse, too, I believe. I never eat
straight
> > > sugar, molasses or honey. I had to take out agave nectar, too. I
> > > had to take out fruit.
> > >
> > > This is my biggest issue. Horrible food allergy, horrible
candida,
> > > horrible gut inflammation. I believe the increasing engorgement
is
> > > the worsening food allergies/inflammat ion.
> > >
> > > I took Boswellia for the first time yesterday. I only moderately
> > > noticed it during the day, because I was still eating food. But
> > > during those 12 food-free hours overnight, I noticed my gut
> > > engorgement reduce significantly. Boswellia is an anti-
> inflammatory
> > > that is used with autistic children to help heal their ravaged
> guts.
> > > The only down-side is that I experience significant anxiety
with
> the
> > > Boswellia. I was trying to avoid the pharmaceutical anti-
> > > inflammatories (including Ketotifen, a new autistic drug for
> > stopping
> > > gut inflammation/ reactivity) .
> > >
> > > I write all this to see if anyone has healed their ravaged gut -
-
> > has
> > > staunched the reactivity naturally or with pharmaceuticals or
> > > otherwise -- has healed up the leakiness. This is what I need
to
> do
> > > I think. I become allergic to my treatment medications (for
lyme
> and
> > > infections and candida, etc.) over time, because of this ravaged
> > > gut, "leaky gut".
> > >
> > > My current plan is to see Dr. G (lyme specialist in Santa Rosa)
> and
> > > Dr. E.H. (digestive specialist, also very alternative, in San
> > Rafael).
> > >
> > > Kind greetings,
> > > Sue
> > >
> > > Recent ActivityVisit Your Group
> > > Yahoo! Health
> > > Asthma Triggers
> > > How you can
> > > identify them.
> > > Share Photos
> > > Put your favorite
> > > photos and
> > > more online.
> > > 10 Day Club
> > > on Yahoo! Groups
> > > Share the benefits
> > > of a high fiber diet.
> > > .
> > >
> > > --- End forwarded message ---
> > >
> >
>

----- Original Message -----

From: Betty

To: BayCanaryGrapevine@yahoogroups.com

Sent: Saturday, December 20, 2008 6:04 PM

Subject: Re: [BayCanaryGrapevine] mold exposure

Sue,

 

I have a few suggestions.  Do you have an icanbreathe mask?  I use mine with 2 filters, but unfortunately you have to figure out a way to get a good seal since you need both of your hands to do the Denny Foil.  These are excellent masks if you can tolerate charcoal filters.  Also, I had a mold exposure to some outside mold when cleaning out old moldy leaves this summer.  I found that that my hydroxycobolamin B12 helped to get me back out of the moldy head CNS response - as I call it. If you don't have any, you need a prescription and need to get it from a compounding pharmacy.  That doesn't help you immediately if you do not have it.  However, you could try doing a couple of things.  An enema - just plain purified water and warm it a bit. Also, do some tri-salts or Alka Seltzer Gold.  Also, you could do a detox bath of 1 cup or Epsom Salts for about 20 minutes.  Skin brush and shower afterwared.  Or a good one to raise the PH is 1/3 to 1/2 cup of apple cider vinegar.  I'm about to do one to see if I can get rid of this virus.  Tonight I'm doing one that Sherry Rogers recommends rubbing a mixuter of 1/2 olive oil and 1/2 castor oil all over - get into a hot bath for about 20 mins, then cover up with cotton blankets (be sure head is covered too) for about an hour and then shower it off.  This one may be too much for your system though, but just throwing it out to you.

 

I hope some of this helps you.
 

 Betty

 

"A time comes when silence is betrayal."

      Dr. Martin Luther King 

---

From: Sue <scbozzo@sbcglobal.net>
To: BayCanaryGrapevine@yahoogroups.com
Sent: Saturday, December 20, 2008 5:44:38 PM
Subject: [BayCanaryGrapevine] mold exposure

What do people do, when they have a toxic exposure, to try to flush it
out and stop the reaction?

I am denny-foiling moldy cabinets, and have not had any big reactions
to it until today. I've started on a new section, and it is clearly
much more of a problem than the previous section. I am working on
whether there's a mask I can wear (my mold respirator is way too big --
I have to crawl inside the cupboards, and it's dark in there -- I
don't think I could wear my full-face respirator (nor a half-face
one).) But, mask issue aside, I have been sick for hours now, and
it's not my sauna day (I can only do that every other day), and I'm
wondering if people have particular effective flushing techniques?

I feel sort of ignorant for asking, since I've been learning about
detox techniques for a long time, but I don't usually have exposures
like this myself.

Thanks,
Sue

Hi Sue,

Wow you really are using a bunch of them! I haven't heard of BioKULT
or Dr. Ohhira's product--will have to look into it...Thanks for
mentioning them...I have used Jarro-dophilus EPS for the past 2 years
and recently started Sustenex. I have a good feeling about both. I
just ordered some MutaFlor from Germany (this one is pricey) but have
not received it yet.

You seem to get specific guidance on supplements from your
dreams...impressive.

I am more or less in the dark about the Chinese herbs (they are the
kind that you boil and use the tea)--it's whatever my herbalist
prescribed. I have a written prescription in Chinese, which I could
scan and email to you, that is, if you can read Chinese! However, it
is formulated for my specific condition (and might not be right for
you), and he tends to vary the formulas often--to adjust to my
condition.

Peace,
Dave


--- In BayCanaryGrapevine@yahoogroups.com, "Sue" <scbozzo@...> wrote:
>
> Dave,
>
> I get great replies on this yahoo group.  Thank you.
>
> Since you mentioned it, I double-checked to make sure that both my
> probiotics are enteric-coated.  They are.  But my saccharomyces
> boullardii is not.
>
> I had heard BioKULT (something like that) which the GAPS doctor
uses
> for autistic kids, is a good probiotic.  I have not tried it.
>
> I heard from someone on this group about Dr. Ohhira's product,
which
> has worked best for them.
>
> I have not explored, as you are doing.
>
> The one discovery I made is that my probiotic is much more potent
if
> bought from the refrigerated section at Whole Foods, rather than
from
> vitacost.com, where it dies in the heat on the way here.  The night
I
> first tried the refrigerated version, my body felt a deep
relaxation
> and calm.  I first judge a product by whether I feel a positive
> response the first times I use it.  The contrast is less clear
after
> that.
>
> I have stopped the lyme antibiotics for the moment.  I am using
> Enhansa, a curcumin product with 7-8 times more absorption, the
first
> glutathione-related product that I can tolerate.  Yasko, a famous
> doctor for autistic children, uses curcumin and Boswellia in
> combination.  My doctor had prescribed Ketotifen, another drug used
> in autism, which staunches gut reactivity with 6-12 months of
> treatment.  I opted to try Boswellia instead, an herb rather than a
> pharmaceutical, and it does relieve that additional gut engorgement
> and pressure that I had been feeling!  It is an anti-inflammatory,
> that staunches the inflammatory response of the gut to allergic
foods
> (and to candida allergy, I would guess).
>
> I also started Pau D'Arco, because my dreams suggested it, and my
> body is tolerating it well, and it took away my newest, least
> tolerable symptom of raw brain inflammation.
>
> I also found a low-dose HCl product, since my dreams mentioned that.
>
> Well, there's a lot I'm exploring right at the moment, as I wait
for
> my 2 doctor appts. in January.
>
> Which Chinese herbs have you found helpful, for various digestive
> issues, particularly when difficulties arise?
>
> Kind greetings,
> Sue
>
> --- In BayCanaryGrapevine@yahoogroups.com, "muzician789" <dave@>
> wrote:
> >
> > Hi Sue,
> >
> > One approach that I did not see you mention is probiotics. I had
> > taken various products over the years, but none ever had any
> effect.
> > Until I tried an 'enteric-coated' pro-biotic, and I noticed some
> > relief with my symptoms--my digestion was smoother, less
bloating,
> > less congestion. The impact was not dramatic, but any benefit is
> rare
> > in my case, so I take notice. I am also experimenting with
> different
> > brands of enteric-coated probiotics, because I know that it's
> totally
> > a trial and error process--some people I know get zero benefit
from
> > the probiotic that helps me--while one person swears by a product
> > that did nothing for me. I guess everyone's gut terrain is
> different,
> > and requires different strains of organisms to restore the
balance.
> I
> > think the enteric-coating is important because many of the
> organisms
> > are killed by the stomach acid. It's also important to check the
> > label--some products include strains of streptococus (as strange
as
> > that sounds), which is of dubious value.
> >
> > I never knew about the high dose vitamin C IVs or I would have
> tried
> > them in the past. I do find Chinese herbs to be helpful when my
> > digestion gets really fouled up--a good herbalist is probably key-
-
> I
> > like Dr. Tsao in Newark, CA (acupuncture can help as well, but
the
> > herbs seem more effective in a jam to deal with a 'flare-up'). I
> > think the Chinese herbs are generally helpful in smoothing my
> > digestion, but the impact is more noticeable when I get into
> trouble.
> >
> > I believe that dreams can bring important messages, but in my own
> > case, they are often confusing. I am glad that my dreams aren't
> > telling me to get these procedures done! I also grapple with the
> > conventional wisdom that 'everyone over 50 should have a
> colonoscopy'-
> > -I guess I should have at least 1 colonoscopy for the cancer
> > prevention/detection benefit, but I doubt it will do anything for
> my
> > digestion.
> >
> > I sincerely hope that you find something that brings relief and
> > restores some balance.
> >
> > Dave
> >
> > --- In BayCanaryGrapevine@yahoogroups.com, <scbozzo@> wrote:
> > >
> > > Hi Betty,
> > >
> > > I was aware of the difference between gastroenterology's use of
> the
> > word and
> > > the dictionary definition.
> > >
> > > If Dr. Gordon or Dr. Hass advises me to have an
> > endoscopy/colonoscopy, I
> > > will.  Otherwise, it sounds too invasive for a very fragile gi
> > tract.
> > >
> > > I felt deeply heartened and encouraged by your reply -- both
with
> > what you
> > > said about the length of time involved in recovery and an
> eventual
> > new
> > > treatment that makes the difference.  I also want to say -- I
> don't
> > think it
> > > is said enough -- that I am impressed and inspired by the work
> you
> > did to
> > > heal yourself, and by your success.  It takes so much
persistence
> > and
> > > effort.  I really admire it.  It's like a 24/7 caretaking job!!
> > >
> > > I am allergic to vit. C, from taking it daily for a year,
though
> I
> > seemed
> > > sensitive to it from the start.
> > >
> > > It is helpful to hear what your EI doctor thinks of
> pharmaceuticals.
> > >
> > > Does anyone have experience with Elson Hass in San Rafael?  He
is
> > part of
> > > Liz Lipski's expert circle, and she's an expert on digestive
> > disorders, so I
> > > thought he might help me.  He takes MediCare, which is a
critical
> > factor.
> > >
> > > Warm greetings,
> > > Sue
> > >
> > > --- In BayCanaryGrapevine@yahoogroups.com, Betty <desertfoxie@>
> > > wrote:
> > >
> > > Hi Sue,
> > >
> > > I can see where you would be confused by the dictionary
> terminology.
> > > Just FYI, in the medical profession, if the word "endoscopy" is
> used
> > > by itself it generally refers to the procedure where they stick
a
> > > camera down your nose/throat. There are other terms however for
> > > exploring the intestines which would be as you described and
> there
> > is
> > > another one called capsule endoscopy and then a new procedure
> > > colonography. Colonography isn't as invasive, but it also
doesn't
> > > allow for a biopsy and treatment if they fine something that
> needs
> > to
> > > be treated. So if your dream only said endoscopy, it could have
> been
> > > referring to any of these. You can look them up on the Internet
to
> > > see what each procedure entails. Maybe this will help you in
your
> > > decision making process.
> > >
> > > I'm really sorry to hear about your intestinal problems. It
must
> be
> > > a horrid nightmare. I know someone else who has these very
severe
> > > food allergies. She can only eat organic food grown from one
farm.
> > > The others, even though organic, make her sick. And she has
only a
> > > few foods she can eat.
> > >
> > > When I went off sugar, I went cold turkey off ALL forms of
sugar.
> > > The only fruit I could eat were blackberries, blueberries, and
> > > raspberries that had not been sweetened.
> > >
> > > I've heard excellent things about Dr. G. (assume that is Eric
> > > Gordon). He does other alternative types of healing, including I
> > > believe energy balancing. I've also had energy balancing but
with
> a
> > > different doctor.
> > >
> > > It's very discouraging to be so sick, but don't give up because
> you
> > > never know when you are going to find that one thing that
you've
> not
> > > tried that will make the difference. My very first EI doc was
> > > great, and he told me to just remember that I didn't get sick
> > > overnight - it was cumulative and that I wouldn't get better
> > > overnight either. In the scheme of things sometimes even 12
months
> > > can be considered overnight.
> > >
> > > Regarding your question about has anyone healed their leaky
gut,
> the
> > > answer is "yes." I did. I started by doing large doses of IV Vit
> > > C. That helped tremendously. Then I moved onto other things,
such
> > > as Chinese herbs (yuck), coffee enemas, herbal colon cleanses,
> > herbal
> > > parasite cleanses, saunas, energy balancing with Dr. Rochlitz of
> > > Sedona, AZ. I even did high colonics coupled with saunas, but
only
> > > after I had already healed my gut to a great degree with Vit.
C.
> IVs
> > > I tried it once before healing my gut and got very, very sick
for
> > two
> > > days, becuse with leaky gut you will actually push the toxins
out
> > > into the blood stream since your gut is leaking. We had this
> > > discussion a few weeks ago, but I don't know if you were on the
> list
> > > yet or not. I never once did pharmaceuticals - my EI doctor was
a
> > > purist and wouldn't hear of it. He said they all just make you
> worse
> > > after you go off of them and you wind up having to treat again
and
> > > again. He
> > >  also had EI and had nearly died years and years earlier from an
> > > exposure in the ER when he was practicing there.
> > >
> > > Anyway, I sincerely hope that you get some help soon and
improve
> so
> > > you can feel hopeful. I know how terribly discouraging it is
> because
> > > I was very sick for about four years befor I even knew what I
had
> > and
> > > found a doctor who knew what the heck he was talking about.
> > >
> > > Betty
> > >
> > >
> > >
> > > ________________________________
> > > From: Sue <scbozzo@>
> > > To: BayCanaryGrapevine@yahoogroups.com
> > > Sent: Thursday, December 18, 2008 2:00:52 PM
> > > Subject: [BayCanaryGrapevine] Re:endoscopy
> > >
> > >
> > > Hi Betty,
> > >
> > > If you look endoscopy up in the dictionary, it refers to both
> > > procedures. (I looked it up in the dictionary, because my dream
> told
> > > me to get one, and I didn't know what an endoscopy was!) A
> > > colonoscopy is a "colon endoscopy."
> > >
> > > I have been on a rare foods 4-day rotation diet for 12 months
> now. I
> > > am still allergic to everything I ate BEFORE last year, and I
am
> now
> > > also allergic to everything that I have been eating THIS year.
> > > Originally, my worst allergies were ANY gluten (including
> > > infinitismal amounts), rice, milk/dairy, corn, egg, nightshade,
> the
> > > celery family, soy. I avoid those. I never eat gluten or rice or
> > > dairy. Now, I think I'm allergic to the rare foods as well.
Though
> > > there are smaller allergies and bigger allergies.
> > >
> > > My candida is getting worse, too, I believe. I never eat
straight
> > > sugar, molasses or honey. I had to take out agave nectar, too. I
> > > had to take out fruit.
> > >
> > > This is my biggest issue. Horrible food allergy, horrible
candida,
> > > horrible gut inflammation. I believe the increasing engorgement
is
> > > the worsening food allergies/inflammat ion.
> > >
> > > I took Boswellia for the first time yesterday. I only moderately
> > > noticed it during the day, because I was still eating food. But
> > > during those 12 food-free hours overnight, I noticed my gut
> > > engorgement reduce significantly. Boswellia is an anti-
> inflammatory
> > > that is used with autistic children to help heal their ravaged
> guts.
> > > The only down-side is that I experience significant anxiety
with
> the
> > > Boswellia. I was trying to avoid the pharmaceutical anti-
> > > inflammatories (including Ketotifen, a new autistic drug for
> > stopping
> > > gut inflammation/ reactivity) .
> > >
> > > I write all this to see if anyone has healed their ravaged gut -
-
> > has
> > > staunched the reactivity naturally or with pharmaceuticals or
> > > otherwise -- has healed up the leakiness. This is what I need
to
> do
> > > I think. I become allergic to my treatment medications (for
lyme
> and
> > > infections and candida, etc.) over time, because of this ravaged
> > > gut, "leaky gut".
> > >
> > > My current plan is to see Dr. G (lyme specialist in Santa Rosa)
> and
> > > Dr. E.H. (digestive specialist, also very alternative, in San
> > Rafael).
> > >
> > > Kind greetings,
> > > Sue
> > >
> > > Recent ActivityVisit Your Group
> > > Yahoo! Health
> > > Asthma Triggers
> > > How you can
> > > identify them.
> > > Share Photos
> > > Put your favorite
> > > photos and
> > > more online.
> > > 10 Day Club
> > > on Yahoo! Groups
> > > Share the benefits
> > > of a high fiber diet.
> > > .
> > >
> > > --- End forwarded message ---
> > >
> >
>

What do people do, when they have a toxic exposure, to try to flush it
out and stop the reaction?

I am denny-foiling moldy cabinets, and have not had any big reactions
to it until today.  I've started on a new section, and it is clearly
much more of a problem than the previous section.  I am working on
whether there's a mask I can wear (my mold respirator is way too big --
  I have to crawl inside the cupboards, and it's dark in there -- I
don't think I could wear my full-face respirator (nor a half-face
one).)  But, mask issue aside, I have been sick for hours now, and
it's not my sauna day (I can only do that every other day), and I'm
wondering if people have particular effective flushing techniques?

I feel sort of ignorant for asking, since I've been learning about
detox techniques for a long time, but I don't usually have exposures
like this myself.

Thanks,
Sue

Hi Betty,

I had forgotten about that factor -- that IV's bypass the gut --
thank you for that insight.  I do wonder if I could, in fact,
tolerate the vit. C IV.

I'm tiring out for the day, so will sign off.

Healing wishes for the sore throat!

Sue



--- In BayCanaryGrapevine@yahoogroups.com, Betty <desertfoxie@...>
wrote:
>
> Hi Sue,
>
> Thanks for your kind words.  I'm kind of sick right now with a sore
throat so I'm going to just make a short comment regarding Vit. C
IVs.   Even though you are allergic/reactive to vitamin C doesn't
mean you cannot do IVs.  I've know many people who've had problems
taking vit C (many different types) and yet they can still do IVs. 
The difference is that it doesn't go through your gut.  You might
want to discuss that aspect with Dr. Gordon when you see him.  I
think he does IVs, but I'm not sure.  The thing about leaky gut if it
is severe enough you may very well become allergic to vitamins just
like anything else because they leak into the blood stream, but also
some vit. c is hard on the gut for some people.  That's why often
doctors don't put someone with leaky gut on too many vitamins until
the gut is better.  With an IV, the C (or Meyer's cocktail) bypasses
the gut and acts as an anti-inflammatory carrying those properties
>  throughout the body and helps to heal the gut.
>
> Happy Holidays!
>
>  Betty
>
>
>
>
>

Dave,

I get great replies on this yahoo group.  Thank you.

Since you mentioned it, I double-checked to make sure that both my
probiotics are enteric-coated.  They are.  But my saccharomyces
boullardii is not.

I had heard BioKULT (something like that) which the GAPS doctor uses
for autistic kids, is a good probiotic.  I have not tried it.

I heard from someone on this group about Dr. Ohhira's product, which
has worked best for them.

I have not explored, as you are doing.

The one discovery I made is that my probiotic is much more potent if
bought from the refrigerated section at Whole Foods, rather than from
vitacost.com, where it dies in the heat on the way here.  The night I
first tried the refrigerated version, my body felt a deep relaxation
and calm.  I first judge a product by whether I feel a positive
response the first times I use it.  The contrast is less clear after
that.

I have stopped the lyme antibiotics for the moment.  I am using
Enhansa, a curcumin product with 7-8 times more absorption, the first
glutathione-related product that I can tolerate.  Yasko, a famous
doctor for autistic children, uses curcumin and Boswellia in
combination.  My doctor had prescribed Ketotifen, another drug used
in autism, which staunches gut reactivity with 6-12 months of
treatment.  I opted to try Boswellia instead, an herb rather than a
pharmaceutical, and it does relieve that additional gut engorgement
and pressure that I had been feeling!  It is an anti-inflammatory,
that staunches the inflammatory response of the gut to allergic foods
(and to candida allergy, I would guess).

I also started Pau D'Arco, because my dreams suggested it, and my
body is tolerating it well, and it took away my newest, least
tolerable symptom of raw brain inflammation.

I also found a low-dose HCl product, since my dreams mentioned that.

Well, there's a lot I'm exploring right at the moment, as I wait for
my 2 doctor appts. in January.

Which Chinese herbs have you found helpful, for various digestive
issues, particularly when difficulties arise?

Kind greetings,
Sue

--- In BayCanaryGrapevine@yahoogroups.com, "muzician789" <dave@...>
wrote:
>
> Hi Sue,
>
> One approach that I did not see you mention is probiotics. I had
> taken various products over the years, but none ever had any
effect.
> Until I tried an 'enteric-coated' pro-biotic, and I noticed some
> relief with my symptoms--my digestion was smoother, less bloating,
> less congestion. The impact was not dramatic, but any benefit is
rare
> in my case, so I take notice. I am also experimenting with
different
> brands of enteric-coated probiotics, because I know that it's
totally
> a trial and error process--some people I know get zero benefit from
> the probiotic that helps me--while one person swears by a product
> that did nothing for me. I guess everyone's gut terrain is
different,
> and requires different strains of organisms to restore the balance.
I
> think the enteric-coating is important because many of the
organisms
> are killed by the stomach acid. It's also important to check the
> label--some products include strains of streptococus (as strange as
> that sounds), which is of dubious value.
>
> I never knew about the high dose vitamin C IVs or I would have
tried
> them in the past. I do find Chinese herbs to be helpful when my
> digestion gets really fouled up--a good herbalist is probably key--
I
> like Dr. Tsao in Newark, CA (acupuncture can help as well, but the
> herbs seem more effective in a jam to deal with a 'flare-up'). I
> think the Chinese herbs are generally helpful in smoothing my
> digestion, but the impact is more noticeable when I get into
trouble.
>
> I believe that dreams can bring important messages, but in my own
> case, they are often confusing. I am glad that my dreams aren't
> telling me to get these procedures done! I also grapple with the
> conventional wisdom that 'everyone over 50 should have a
colonoscopy'-
> -I guess I should have at least 1 colonoscopy for the cancer
> prevention/detection benefit, but I doubt it will do anything for
my
> digestion.
>
> I sincerely hope that you find something that brings relief and
> restores some balance.
>
> Dave
>
> --- In BayCanaryGrapevine@yahoogroups.com, <scbozzo@> wrote:
> >
> > Hi Betty,
> >
> > I was aware of the difference between gastroenterology's use of
the
> word and
> > the dictionary definition.
> >
> > If Dr. Gordon or Dr. Hass advises me to have an
> endoscopy/colonoscopy, I
> > will.  Otherwise, it sounds too invasive for a very fragile gi
> tract.
> >
> > I felt deeply heartened and encouraged by your reply -- both with
> what you
> > said about the length of time involved in recovery and an
eventual
> new
> > treatment that makes the difference.  I also want to say -- I
don't
> think it
> > is said enough -- that I am impressed and inspired by the work
you
> did to
> > heal yourself, and by your success.  It takes so much persistence
> and
> > effort.  I really admire it.  It's like a 24/7 caretaking job!!
> >
> > I am allergic to vit. C, from taking it daily for a year, though
I
> seemed
> > sensitive to it from the start.
> >
> > It is helpful to hear what your EI doctor thinks of
pharmaceuticals.
> >
> > Does anyone have experience with Elson Hass in San Rafael?  He is
> part of
> > Liz Lipski's expert circle, and she's an expert on digestive
> disorders, so I
> > thought he might help me.  He takes MediCare, which is a critical
> factor.
> >
> > Warm greetings,
> > Sue
> >
> > --- In BayCanaryGrapevine@yahoogroups.com, Betty <desertfoxie@>
> > wrote:
> >
> > Hi Sue,
> >
> > I can see where you would be confused by the dictionary
terminology.
> > Just FYI, in the medical profession, if the word "endoscopy" is
used
> > by itself it generally refers to the procedure where they stick a
> > camera down your nose/throat. There are other terms however for
> > exploring the intestines which would be as you described and
there
> is
> > another one called capsule endoscopy and then a new procedure
> > colonography. Colonography isn't as invasive, but it also doesn't
> > allow for a biopsy and treatment if they fine something that
needs
> to
> > be treated. So if your dream only said endoscopy, it could have
been
> > referring to any of these. You can look them up on the Internet to
> > see what each procedure entails. Maybe this will help you in your
> > decision making process.
> >
> > I'm really sorry to hear about your intestinal problems. It must
be
> > a horrid nightmare. I know someone else who has these very severe
> > food allergies. She can only eat organic food grown from one farm.
> > The others, even though organic, make her sick. And she has only a
> > few foods she can eat.
> >
> > When I went off sugar, I went cold turkey off ALL forms of sugar.
> > The only fruit I could eat were blackberries, blueberries, and
> > raspberries that had not been sweetened.
> >
> > I've heard excellent things about Dr. G. (assume that is Eric
> > Gordon). He does other alternative types of healing, including I
> > believe energy balancing. I've also had energy balancing but with
a
> > different doctor.
> >
> > It's very discouraging to be so sick, but don't give up because
you
> > never know when you are going to find that one thing that you've
not
> > tried that will make the difference. My very first EI doc was
> > great, and he told me to just remember that I didn't get sick
> > overnight - it was cumulative and that I wouldn't get better
> > overnight either. In the scheme of things sometimes even 12 months
> > can be considered overnight.
> >
> > Regarding your question about has anyone healed their leaky gut,
the
> > answer is "yes." I did. I started by doing large doses of IV Vit
> > C. That helped tremendously. Then I moved onto other things, such
> > as Chinese herbs (yuck), coffee enemas, herbal colon cleanses,
> herbal
> > parasite cleanses, saunas, energy balancing with Dr. Rochlitz of
> > Sedona, AZ. I even did high colonics coupled with saunas, but only
> > after I had already healed my gut to a great degree with Vit. C.
IVs
> > I tried it once before healing my gut and got very, very sick for
> two
> > days, becuse with leaky gut you will actually push the toxins out
> > into the blood stream since your gut is leaking. We had this
> > discussion a few weeks ago, but I don't know if you were on the
list
> > yet or not. I never once did pharmaceuticals - my EI doctor was a
> > purist and wouldn't hear of it. He said they all just make you
worse
> > after you go off of them and you wind up having to treat again and
> > again. He
> >  also had EI and had nearly died years and years earlier from an
> > exposure in the ER when he was practicing there.
> >
> > Anyway, I sincerely hope that you get some help soon and improve
so
> > you can feel hopeful. I know how terribly discouraging it is
because
> > I was very sick for about four years befor I even knew what I had
> and
> > found a doctor who knew what the heck he was talking about.
> >
> > Betty
> >
> >
> >
> > ________________________________
> > From: Sue <scbozzo@>
> > To: BayCanaryGrapevine@yahoogroups.com
> > Sent: Thursday, December 18, 2008 2:00:52 PM
> > Subject: [BayCanaryGrapevine] Re:endoscopy
> >
> >
> > Hi Betty,
> >
> > If you look endoscopy up in the dictionary, it refers to both
> > procedures. (I looked it up in the dictionary, because my dream
told
> > me to get one, and I didn't know what an endoscopy was!) A
> > colonoscopy is a "colon endoscopy."
> >
> > I have been on a rare foods 4-day rotation diet for 12 months
now. I
> > am still allergic to everything I ate BEFORE last year, and I am
now
> > also allergic to everything that I have been eating THIS year.
> > Originally, my worst allergies were ANY gluten (including
> > infinitismal amounts), rice, milk/dairy, corn, egg, nightshade,
the
> > celery family, soy. I avoid those. I never eat gluten or rice or
> > dairy. Now, I think I'm allergic to the rare foods as well. Though
> > there are smaller allergies and bigger allergies.
> >
> > My candida is getting worse, too, I believe. I never eat straight
> > sugar, molasses or honey. I had to take out agave nectar, too. I
> > had to take out fruit.
> >
> > This is my biggest issue. Horrible food allergy, horrible candida,
> > horrible gut inflammation. I believe the increasing engorgement is
> > the worsening food allergies/inflammat ion.
> >
> > I took Boswellia for the first time yesterday. I only moderately
> > noticed it during the day, because I was still eating food. But
> > during those 12 food-free hours overnight, I noticed my gut
> > engorgement reduce significantly. Boswellia is an anti-
inflammatory
> > that is used with autistic children to help heal their ravaged
guts.
> > The only down-side is that I experience significant anxiety with
the
> > Boswellia. I was trying to avoid the pharmaceutical anti-
> > inflammatories (including Ketotifen, a new autistic drug for
> stopping
> > gut inflammation/ reactivity) .
> >
> > I write all this to see if anyone has healed their ravaged gut --
> has
> > staunched the reactivity naturally or with pharmaceuticals or
> > otherwise -- has healed up the leakiness. This is what I need to
do
> > I think. I become allergic to my treatment medications (for lyme
and
> > infections and candida, etc.) over time, because of this ravaged
> > gut, "leaky gut".
> >
> > My current plan is to see Dr. G (lyme specialist in Santa Rosa)
and
> > Dr. E.H. (digestive specialist, also very alternative, in San
> Rafael).
> >
> > Kind greetings,
> > Sue
> >
> > Recent ActivityVisit Your Group
> > Yahoo! Health
> > Asthma Triggers
> > How you can
> > identify them.
> > Share Photos
> > Put your favorite
> > photos and
> > more online.
> > 10 Day Club
> > on Yahoo! Groups
> > Share the benefits
> > of a high fiber diet.
> > .
> >
> > --- End forwarded message ---
> >
>

Hi Sue,

One approach that I did not see you mention is probiotics. I had
taken various products over the years, but none ever had any effect.
Until I tried an 'enteric-coated' pro-biotic, and I noticed some
relief with my symptoms--my digestion was smoother, less bloating,
less congestion. The impact was not dramatic, but any benefit is rare
in my case, so I take notice. I am also experimenting with different
brands of enteric-coated probiotics, because I know that it's totally
a trial and error process--some people I know get zero benefit from
the probiotic that helps me--while one person swears by a product
that did nothing for me. I guess everyone's gut terrain is different,
and requires different strains of organisms to restore the balance. I
think the enteric-coating is important because many of the organisms
are killed by the stomach acid. It's also important to check the
label--some products include strains of streptococus (as strange as
that sounds), which is of dubious value.

I never knew about the high dose vitamin C IVs or I would have tried
them in the past. I do find Chinese herbs to be helpful when my
digestion gets really fouled up--a good herbalist is probably key--I
like Dr. Tsao in Newark, CA (acupuncture can help as well, but the
herbs seem more effective in a jam to deal with a 'flare-up'). I
think the Chinese herbs are generally helpful in smoothing my
digestion, but the impact is more noticeable when I get into trouble.

I believe that dreams can bring important messages, but in my own
case, they are often confusing. I am glad that my dreams aren't
telling me to get these procedures done! I also grapple with the
conventional wisdom that 'everyone over 50 should have a colonoscopy'-
-I guess I should have at least 1 colonoscopy for the cancer
prevention/detection benefit, but I doubt it will do anything for my
digestion.

I sincerely hope that you find something that brings relief and
restores some balance.

Dave

--- In BayCanaryGrapevine@yahoogroups.com, <scbozzo@...> wrote:
>
> Hi Betty,
>
> I was aware of the difference between gastroenterology's use of the
word and
> the dictionary definition.
>
> If Dr. Gordon or Dr. Hass advises me to have an
endoscopy/colonoscopy, I
> will.  Otherwise, it sounds too invasive for a very fragile gi
tract.
>
> I felt deeply heartened and encouraged by your reply -- both with
what you
> said about the length of time involved in recovery and an eventual
new
> treatment that makes the difference.  I also want to say -- I don't
think it
> is said enough -- that I am impressed and inspired by the work you
did to
> heal yourself, and by your success.  It takes so much persistence
and
> effort.  I really admire it.  It's like a 24/7 caretaking job!!
>
> I am allergic to vit. C, from taking it daily for a year, though I
seemed
> sensitive to it from the start.
>
> It is helpful to hear what your EI doctor thinks of pharmaceuticals.
>
> Does anyone have experience with Elson Hass in San Rafael?  He is
part of
> Liz Lipski's expert circle, and she's an expert on digestive
disorders, so I
> thought he might help me.  He takes MediCare, which is a critical
factor.
>
> Warm greetings,
> Sue
>
> --- In BayCanaryGrapevine@yahoogroups.com, Betty <desertfoxie@>
> wrote:
>
> Hi Sue,
>
> I can see where you would be confused by the dictionary terminology.
> Just FYI, in the medical profession, if the word "endoscopy" is used
> by itself it generally refers to the procedure where they stick a
> camera down your nose/throat. There are other terms however for
> exploring the intestines which would be as you described and there
is
> another one called capsule endoscopy and then a new procedure
> colonography. Colonography isn't as invasive, but it also doesn't
> allow for a biopsy and treatment if they fine something that needs
to
> be treated. So if your dream only said endoscopy, it could have been
> referring to any of these. You can look them up on the Internet to
> see what each procedure entails. Maybe this will help you in your
> decision making process.
>
> I'm really sorry to hear about your intestinal problems. It must be
> a horrid nightmare. I know someone else who has these very severe
> food allergies. She can only eat organic food grown from one farm.
> The others, even though organic, make her sick. And she has only a
> few foods she can eat.
>
> When I went off sugar, I went cold turkey off ALL forms of sugar.
> The only fruit I could eat were blackberries, blueberries, and
> raspberries that had not been sweetened.
>
> I've heard excellent things about Dr. G. (assume that is Eric
> Gordon). He does other alternative types of healing, including I
> believe energy balancing. I've also had energy balancing but with a
> different doctor.
>
> It's very discouraging to be so sick, but don't give up because you
> never know when you are going to find that one thing that you've not
> tried that will make the difference. My very first EI doc was
> great, and he told me to just remember that I didn't get sick
> overnight - it was cumulative and that I wouldn't get better
> overnight either. In the scheme of things sometimes even 12 months
> can be considered overnight.
>
> Regarding your question about has anyone healed their leaky gut, the
> answer is "yes." I did. I started by doing large doses of IV Vit
> C. That helped tremendously. Then I moved onto other things, such
> as Chinese herbs (yuck), coffee enemas, herbal colon cleanses,
herbal
> parasite cleanses, saunas, energy balancing with Dr. Rochlitz of
> Sedona, AZ. I even did high colonics coupled with saunas, but only
> after I had already healed my gut to a great degree with Vit. C. IVs
> I tried it once before healing my gut and got very, very sick for
two
> days, becuse with leaky gut you will actually push the toxins out
> into the blood stream since your gut is leaking. We had this
> discussion a few weeks ago, but I don't know if you were on the list
> yet or not. I never once did pharmaceuticals - my EI doctor was a
> purist and wouldn't hear of it. He said they all just make you worse
> after you go off of them and you wind up having to treat again and
> again. He
>  also had EI and had nearly died years and years earlier from an
> exposure in the ER when he was practicing there.
>
> Anyway, I sincerely hope that you get some help soon and improve so
> you can feel hopeful. I know how terribly discouraging it is because
> I was very sick for about four years befor I even knew what I had
and
> found a doctor who knew what the heck he was talking about.
>
> Betty
>
>
>
> ________________________________
> From: Sue <scbozzo@>
> To: BayCanaryGrapevine@yahoogroups.com
> Sent: Thursday, December 18, 2008 2:00:52 PM
> Subject: [BayCanaryGrapevine] Re:endoscopy
>
>
> Hi Betty,
>
> If you look endoscopy up in the dictionary, it refers to both
> procedures. (I looked it up in the dictionary, because my dream told
> me to get one, and I didn't know what an endoscopy was!) A
> colonoscopy is a "colon endoscopy."
>
> I have been on a rare foods 4-day rotation diet for 12 months now. I
> am still allergic to everything I ate BEFORE last year, and I am now
> also allergic to everything that I have been eating THIS year.
> Originally, my worst allergies were ANY gluten (including
> infinitismal amounts), rice, milk/dairy, corn, egg, nightshade, the
> celery family, soy. I avoid those. I never eat gluten or rice or
> dairy. Now, I think I'm allergic to the rare foods as well. Though
> there are smaller allergies and bigger allergies.
>
> My candida is getting worse, too, I believe. I never eat straight
> sugar, molasses or honey. I had to take out agave nectar, too. I
> had to take out fruit.
>
> This is my biggest issue. Horrible food allergy, horrible candida,
> horrible gut inflammation. I believe the increasing engorgement is
> the worsening food allergies/inflammat ion.
>
> I took Boswellia for the first time yesterday. I only moderately
> noticed it during the day, because I was still eating food. But
> during those 12 food-free hours overnight, I noticed my gut
> engorgement reduce significantly. Boswellia is an anti-inflammatory
> that is used with autistic children to help heal their ravaged guts.
> The only down-side is that I experience significant anxiety with the
> Boswellia. I was trying to avoid the pharmaceutical anti-
> inflammatories (including Ketotifen, a new autistic drug for
stopping
> gut inflammation/ reactivity) .
>
> I write all this to see if anyone has healed their ravaged gut --
has
> staunched the reactivity naturally or with pharmaceuticals or
> otherwise -- has healed up the leakiness. This is what I need to do
> I think. I become allergic to my treatment medications (for lyme and
> infections and candida, etc.) over time, because of this ravaged
> gut, "leaky gut".
>
> My current plan is to see Dr. G (lyme specialist in Santa Rosa) and
> Dr. E.H. (digestive specialist, also very alternative, in San
Rafael).
>
> Kind greetings,
> Sue
>
> Recent ActivityVisit Your Group
> Yahoo! Health
> Asthma Triggers
> How you can
> identify them.
> Share Photos
> Put your favorite
> photos and
> more online.
> 10 Day Club
> on Yahoo! Groups
> Share the benefits
> of a high fiber diet.
> .
>
> --- End forwarded message ---
>

Hi Betty,

I was aware of the difference between gastroenterology's use of the word and
the dictionary definition.

If Dr. Gordon or Dr. Hass advises me to have an endoscopy/colonoscopy, I
will.  Otherwise, it sounds too invasive for a very fragile gi tract.

I felt deeply heartened and encouraged by your reply -- both with what you
said about the length of time involved in recovery and an eventual new
treatment that makes the difference.  I also want to say -- I don't think it
is said enough -- that I am impressed and inspired by the work you did to
heal yourself, and by your success.  It takes so much persistence and
effort.  I really admire it.  It's like a 24/7 caretaking job!!

I am allergic to vit. C, from taking it daily for a year, though I seemed
sensitive to it from the start.

It is helpful to hear what your EI doctor thinks of pharmaceuticals.

Does anyone have experience with Elson Hass in San Rafael?  He is part of
Liz Lipski's expert circle, and she's an expert on digestive disorders, so I
thought he might help me.  He takes MediCare, which is a critical factor.

Warm greetings,
Sue

--- In BayCanaryGrapevine@yahoogroups.com, Betty <desertfoxie@...>
wrote:

Hi Sue,

I can see where you would be confused by the dictionary terminology.
Just FYI, in the medical profession, if the word "endoscopy" is used
by itself it generally refers to the procedure where they stick a
camera down your nose/throat. There are other terms however for
exploring the intestines which would be as you described and there is
another one called capsule endoscopy and then a new procedure
colonography. Colonography isn't as invasive, but it also doesn't
allow for a biopsy and treatment if they fine something that needs to
be treated. So if your dream only said endoscopy, it could have been
referring to any of these. You can look them up on the Internet to
see what each procedure entails. Maybe this will help you in your
decision making process.

I'm really sorry to hear about your intestinal problems. It must be
a horrid nightmare. I know someone else who has these very severe
food allergies. She can only eat organic food grown from one farm.
The others, even though organic, make her sick. And she has only a
few foods she can eat.

When I went off sugar, I went cold turkey off ALL forms of sugar.
The only fruit I could eat were blackberries, blueberries, and
raspberries that had not been sweetened.

I've heard excellent things about Dr. G. (assume that is Eric
Gordon). He does other alternative types of healing, including I
believe energy balancing. I've also had energy balancing but with a
different doctor.

It's very discouraging to be so sick, but don't give up because you
never know when you are going to find that one thing that you've not
tried that will make the difference. My very first EI doc was
great, and he told me to just remember that I didn't get sick
overnight - it was cumulative and that I wouldn't get better
overnight either. In the scheme of things sometimes even 12 months
can be considered overnight.

Regarding your question about has anyone healed their leaky gut, the
answer is "yes." I did. I started by doing large doses of IV Vit
C. That helped tremendously. Then I moved onto other things, such
as Chinese herbs (yuck), coffee enemas, herbal colon cleanses, herbal
parasite cleanses, saunas, energy balancing with Dr. Rochlitz of
Sedona, AZ. I even did high colonics coupled with saunas, but only
after I had already healed my gut to a great degree with Vit. C. IVs
I tried it once before healing my gut and got very, very sick for two
days, becuse with leaky gut you will actually push the toxins out
into the blood stream since your gut is leaking. We had this
discussion a few weeks ago, but I don't know if you were on the list
yet or not. I never once did pharmaceuticals - my EI doctor was a
purist and wouldn't hear of it. He said they all just make you worse
after you go off of them and you wind up having to treat again and
again. He
  also had EI and had nearly died years and years earlier from an
exposure in the ER when he was practicing there.

Anyway, I sincerely hope that you get some help soon and improve so
you can feel hopeful. I know how terribly discouraging it is because
I was very sick for about four years befor I even knew what I had and
found a doctor who knew what the heck he was talking about.

Betty



________________________________
From: Sue <scbozzo@...>
To: BayCanaryGrapevine@yahoogroups.com
Sent: Thursday, December 18, 2008 2:00:52 PM
Subject: [BayCanaryGrapevine] Re:endoscopy


Hi Betty,

If you look endoscopy up in the dictionary, it refers to both
procedures. (I looked it up in the dictionary, because my dream told
me to get one, and I didn't know what an endoscopy was!) A
colonoscopy is a "colon endoscopy."

I have been on a rare foods 4-day rotation diet for 12 months now. I
am still allergic to everything I ate BEFORE last year, and I am now
also allergic to everything that I have been eating THIS year.
Originally, my worst allergies were ANY gluten (including
infinitismal amounts), rice, milk/dairy, corn, egg, nightshade, the
celery family, soy. I avoid those. I never eat gluten or rice or
dairy. Now, I think I'm allergic to the rare foods as well. Though
there are smaller allergies and bigger allergies.

My candida is getting worse, too, I believe. I never eat straight
sugar, molasses or honey. I had to take out agave nectar, too. I
had to take out fruit.

This is my biggest issue. Horrible food allergy, horrible candida,
horrible gut inflammation. I believe the increasing engorgement is
the worsening food allergies/inflammat ion.

I took Boswellia for the first time yesterday. I only moderately
noticed it during the day, because I was still eating food. But
during those 12 food-free hours overnight, I noticed my gut
engorgement reduce significantly. Boswellia is an anti-inflammatory
that is used with autistic children to help heal their ravaged guts.
The only down-side is that I experience significant anxiety with the
Boswellia. I was trying to avoid the pharmaceutical anti-
inflammatories (including Ketotifen, a new autistic drug for stopping
gut inflammation/ reactivity) .

I write all this to see if anyone has healed their ravaged gut -- has
staunched the reactivity naturally or with pharmaceuticals or
otherwise -- has healed up the leakiness. This is what I need to do
I think. I become allergic to my treatment medications (for lyme and
infections and candida, etc.) over time, because of this ravaged
gut, "leaky gut".

My current plan is to see Dr. G (lyme specialist in Santa Rosa) and
Dr. E.H. (digestive specialist, also very alternative, in San Rafael).

Kind greetings,
Sue

Recent ActivityVisit Your Group
Yahoo! Health
Asthma Triggers
How you can
identify them.
Share Photos
Put your favorite
photos and
more online.
10 Day Club
on Yahoo! Groups
Share the benefits
of a high fiber diet.
.

--- End forwarded message ---

Hi Betty,

If you look endoscopy up in the dictionary, it refers to both
procedures.  (I looked it up in the dictionary, because my dream told
me to get one, and I didn't know what an endoscopy was!)  A
colonoscopy is a "colon endoscopy."

I have been on a rare foods 4-day rotation diet for 12 months now.  I
am still allergic to everything I ate BEFORE last year, and I am now
also allergic to everything that I have been eating THIS year.
Originally, my worst allergies were ANY gluten (including
infinitismal amounts), rice, milk/dairy, corn, egg, nightshade, the
celery family, soy.  I avoid those.  I never eat gluten or rice or
dairy.  Now, I think I'm allergic to the rare foods as well.  Though
there are smaller allergies and bigger allergies.

My candida is getting worse, too, I believe.  I never eat straight
sugar, molasses or honey.  I had to take out agave nectar, too.  I
had to take out fruit.

This is my biggest issue.  Horrible food allergy, horrible candida,
horrible gut inflammation.  I believe the increasing engorgement is
the worsening food allergies/inflammation.

I took Boswellia for the first time yesterday.  I only moderately
noticed it during the day, because I was still eating food.  But
during those 12 food-free hours overnight, I noticed my gut
engorgement reduce significantly.  Boswellia is an anti-inflammatory
that is used with autistic children to help heal their ravaged guts.
The only down-side is that I experience significant anxiety with the
Boswellia.  I was trying to avoid the pharmaceutical anti-
inflammatories (including Ketotifen, a new autistic drug for stopping
gut inflammation/reactivity).

I write all this to see if anyone has healed their ravaged gut -- has
staunched the reactivity naturally or with pharmaceuticals or
otherwise -- has healed up the leakiness.  This is what I need to do
I think.  I become allergic to my treatment medications (for lyme and
infections and candida, etc.) over time, because of this ravaged
gut, "leaky gut".

My current plan is to see Dr. G (lyme specialist in Santa Rosa) and
Dr. E.H. (digestive specialist, also very alternative, in San Rafael).

Kind greetings,
Sue

--- In BayCanaryGrapevine@yahoogroups.com, Betty <desertfoxie@...>
wrote:
>
> Sue,
>
> I think you may be confusing endoscopy with colonoscopy.  There
is extremely little risk with endoscopy.  However, I still do not
recommend it as an exploratory procedure.  There are many things you
can do for your gut without undergoing a $1,000 procedure, such as
reducing grain and sugar intake and doing vitamin C IVs.  I had a
tremendous number of viral infections in my gut and candida that was
off the charts - outrageously off the charts and just watching my
diet helped tremendously - elimianting elimiante all grains, sugar,
and dairy.  Without knowing you personally, I would recommend this as
it was helped many improved to the point that you can then do other
things.  I've writen on this before to this group.  I know that I
improved significantly after doing this.  I agree that taking toxin
binders and supplements is not a good idea. 
>
> However, there are risks with colonoscopy. The risk of perforation
with colonoscopy is rare.  The greater risk is sedation and
radiation. 
>
> With endoscopy, which I have had done, you DO NOT need to do an
intestine cleansing first.  There is no prep procedure, except
that you have to have an empty stomach, so no food can be consumed
the previous 12 hours or so.  However, with a colonoscopy there is a
strict prep procedure that includes eliminating all fecal matter.
>  
>  Betty
>  
> "A time comes when silence is betrayal."
>       Dr. Martin Luther King 
>
>
>
>
> ________________________________
> From: "scbozzo@..." <scbozzo@...>
> To: BayCanaryGrapevine@yahoogroups.com
> Sent: Wednesday, December 17, 2008 6:43:54 PM
> Subject: [BayCanaryGrapevine] Re:endoscopy
>
>
> Max,
>  
> Your feedback about endoscopies was very helpful to me.
>  
> Why that did not cross my mind, I don't know.
>  
> I am aware of the possibility of perforation of the gut with the
instrument (yuck).  (Years ago I did medical transcription for a
week, through a temp agency, for a ge doctor, and one of the things I
typed for him was a document about a patient whose colon he had
perforated.  Ugh.)
>  
> But what I didn't think ahead enough about, was the upset that this
procedure will cause to my already very ill terrain.  I wonder about
that.  I have a very engorged gut, likely having to do with allergies
to everything I put in my mouth, food-wise or medication-wise
(inflammation) , adding to that probable multiple infections in my
gut, adding to that rampant candida.  These are all educated
guesses.  But, it's very sick down there.  And I have never taken one
of the toxin binders that others take, for this reason.  I don't want
food nutrients or supplements binding to the toxin binders, or other
essential things, because my terrain is already so fragile and off. 
So, hmm, whether I want to take a laxative that will blow my entire
intestinal tract clean in order to do this endoscopy -- I wonder
about it now.  And then the harm/upset caused by that long-tubed
camera, as well.
>  
> Thanks for the insight.
>  
> Sue
>  
>  
>