SAVE NATURAL MEDICINES, INCLUDING VITAMINS
Subject: April 30, 2007 Deadline
FYI, maybe they will even consider a prescription to buy organic
produce??? Vance
Sent: Saturday, April 07, 2007 12:51 PM
Subject: Fwd: April 30, 2007 Deadline
Where America goes, Howard follows - Pay Attention! 'Modality' becomes
'Medicine', 'Therapy' becomes 'treatment', Vitamins become 'Untested
drugs', and suddenly you're "practicing medicine without a licence".
~~B.
Begin forwarded message:From: Anna
> Date: 8 April 2007 5:40:00 AM
> To: undisclosed-recipients: ;
> Subject: April 30, 2007 Deadline
>
> Hi Everyone,
> (this is a bit long but please read it - take the time - it's worth it)
> The FDA is very close to eliminating alternative medicine, herbs,
> herbal treatments and therapies and over the counter vitamins. If
> their proposed change in guidelines goes through, you could need a
> prescription just for vitamins. Your "Doc" can be arrested or put out
> of business because he/she isn't a medical doctor even though he/she
> is an alternative medical professional. Imagine the natural food
> stores without a supplements section and no way to get them.
>
> Public comments are only open until April 30 before they make their
> rulings. This organization is trying to get 5 Million people to send
> comments to the FDA to let them know that we value our alternative
> medical therapies, medicines and supplements, support those in the
> field of alternative medicine and that we will not go quietly into the
> night.
>
> How can you help?? Simply go to this website and scroll down - you'll
> see a place to fill in your info. You can read and edit what will be
> sent to the FDA in your name. We have to share this info in order to
> maintain our freedom of choice in regard to our own health.
>
> Copy and paste the link if you can't click on it.
> http://www.democracyinaction.org/dia/organizationsORG/
> healthfreedomusa/campaign.jsp?campaign_KEY=7185
>
> Use this link if the other one is too long.
> http://tinyurl. com/2u7ghc
>
> I've sent info out to a lot of you about CAM (Complementary and
> Alternative Medicine) before. Here is a link to familiarize yourself
> with NCCAM - the government's website on CAM.
> http://nccam.nih.gov/health/whatiscam/
>
> Don't be fooled by its educational demeanor - read this statement
> carefully:
> NCCAM is the Federal Government's lead agency for scientific research
> on CAM . NCCAM's mission is to explore complementary and alternative
> healing practices in the context of rigorous science, train CAM
> researchers, and disseminate authoritative information to the public
> and professionals.
> __________
> Big pharmaceutical companies have been pressuring the federal
> government to find a way to eliminate natural supplements for a long
> long time....and now they have an opportunity to achieve their goal.
>
> NCCAM has been researching and now the goal is simple:
> through a "Guidance" about the regulation of "CAM" the FDA
> hopes to serve the interests of Big Pharma by eliminating all CAM
> practices
> and products. ALL of them - including vitamins purchased without a
> prescription.
>
> Here's how this game is played:
>
> 1. By using the term "Medicine" rather than "Modality" for CAM
> practices, the
> FDA sets the stage so that anyone who is not a licensed physician is
> breaking
> the law by using these modalities since they are therefore 'practicing
> medicine without a license'.
>
>
> 2. By using the term "treatment" rather than "therapy", the FDA limits
> those
> who can perform these practices to licensed physicians and, again,
> anyone who
> is not a licensed physician is breaking the law by using these
> modalities
> since only licensed practitioners can treat. So people using these
> modalities are
> therefore 'practicing medicine without a license'.
>
>
> 3. By using the terms "Medicine" and "treatment" instead of
> "Modalities" and
> "therapy", all substances, including vitamins, minerals, herbs,
> co-factors,
> etc., automatically become untested drugs since they are being used to
> prevent,
> treat, mitigate or cure disease states. Such use can only legally take
> place
> with FDA approved drugs.
> ____________________
>
> OK - you get the point! Please go to that website and make your voice
> heard.
> Share this with others as you feel appropriate.
>
> Peace - Anna
Many thanks to Michael S. for filling in for me last month. It was the first meeting I missed in over 3 years. Felt weird not being there
The next meeting of the SF Fibromyalgia and CFIDS Self-Help and Advocacy Group is this Sat, Apr 7th, 2-4 pm.
FORMAT OF THE MEETING During the first part of the meeting, we'll have workshops (details below). In the second part we'll have a discussion about the following topic.
Topic for this month is:
Handling Vacations and Other Special Events
Various times of the year are often the occasion for special events. Summer is a time for vacations and events like weddings and graduations. The period between Thanksgiving and New Year’s is often filled with special celebrations.
What have you found helpful in managing situations that pull you 'outside the energy envelope'?
NEWCOMERS
Please arrive about 15 minutes before the meeting so that I can go over the meeting format and rules w/ you. Please allow extra to find the room.
FUTURE MEETINGS (the 1st Saturday of every month, 2:00-4:00): Workshop topic: May 5th - Bringing Meaning to Chronic Illness June 2nd - The Importance of Advocacy
DESCRIPTION OF WORKSHOPS In the first part of the group we'll have workshops. Each group member will have an allotted amount of time, about 4 to 9 minutes depending upon how many people are present. Each person has a choice of the following: 1. sharing without feedback - The person will share without interruptions or comments for the entire allotted time. 2. sharing and receiving feedback - The sharing portion is, again, without interruptions or comments. You can also ask the group any questions you may have. OR 3. requesting information or advice - A group member can use his/her entire allotted time asking for and receiving information.
Whatever you decide, remember that you must be done within the allotted time - this includes time for feedback. The point is to give each person the opportunity to have the entire group help him/her. If there is time,the person who has shared may choose to received questions and supportive comments.
Unless the person says otherwise, please do NOT interrupt anyone who is sharing. Only give feedback if the person requests it, and then stick to the kind of feedback requested. Under no circumstances do you criticize or offer advice, unless the person specifically asks for it. Unfortunately, many of us do not have places where we can truly be heard. This group provides a forum for doing this - without being given unwanted advice, without being dismissed, without being criticized, and without being invalidated.
DO NOT GIVE ADVICE UNLESS IT'S ASKED FOR This group provides a safe place for us to be truly listened to without being told what to do. If you start your feedback by saying things like: "Have you tried..." "You could..." "You should..." then you are probably giving advice. Please remember that the feedback portion is for the benefit of the person asking for it.
This group is for people with FM,CFIDS, and/or chronic myofascial pain - or those who think they may have one of these disorders. Friends and family are also welcome.
Providers are welcomed as observers for the purpose of creating a better understand about the impact of these illnesses on our lives. Please inform the group facilitator that you are a provider BEFORE the meeting starts. During the workshop portion of the meeting providers can give a brief introduction about what kind of health care professional they are, and why they want to observe the meeting. Providers are not allowed to come to the meeting to market their services.
The information we share at these meetings is **confidential**. By attending this meeting, you agree to not share information about members with those outside of the group. (Disclaimer: I cannot guarantee that all members will abide by this rule.)
LOCATION Davies Campus of the California Pacific Medical Center, at Castro St. and Duboce St. Rm B2/3. Enter the North tower, take the elevator to level B.
Parking in the garage is free. Take a ticket when you enter and insert it into the slot when you leave. Sometimes you won't receive a card when you enter. In either case, you won't be charged. Public transportation: N, J,22, 24, 6, 7, 66, 71. Wheelchair accessible.
This is a ***FRAGRANCE FREE*** meeting. And please DO NOT come to the meeting if you are CONTAGIOUS.
Please make an effort to be on time to the meeting, as late arrivals can be disruptive, especially to those who are sharing. It's better that you come to the meeting late, than not at all, but please make a concerted effort to come on time.
To receive meeting notices, get on the group's email list by send a blank email to SFFSSG-subscribe@yahoogroups.com. You will receive an email with a link that you will need to click in order to confirm your subscription. You can also get on the email list by going to http://health.groups.yahoo.com/group/SFFSSG/. If you are planning to go to meetings, I strongly suggest that you get on the email list so that you can receive important notices. While meeting times and location will probably be the same every month, they are subject to change. While meeting times and location will probably be the same every month, they are subject to change. If, and only if, you don't have email, call Cosi 415 564 2275 or Deborah 415 332 5279.
Please note that SFFSSG is an email newsletter, ***NOT*** an email discussion group. This email list will only have administrative messages to the group. If you're interested in an email discussion group for the Bay Area, check out http://health.groups.yahoo.com/group/CEFSFB .
Questions, comments, suggestions: Email hosnar@... or if you don't have email, call phone contacts. Please don't be offended if I take a while to respond to emails or not at all. I get A LOT of inquiries and I'm doing the best I can. Again, my email discussion group is a great place to get info about the Bay Area.
Sharon P. aka knotty girl
Our SUPER FABULOUS team of volunteers: Cathy - publicity, Cosi-phone contact, Deborah - phone contact and healthcare provider info, Jim - contact list/healthcare provider info, Sally - treasurer/advocacy, Sarah - healthcare provider info/literature, me -everything else
***--From CFIDS Self-Help: Materials for Alumni/On-going Groups by Bruce Campbell. Campbell also offers a free on-line course, and sometimes an in-person course. Phone: 650/856-2109. Email:CFIDS_Self_Help@... Website: www.cfidsselfhelp.org.
Dear North Oakland, Greater Mosswood, Temescal Neighbors:
Re: City Applied Weed Killer on Volunteer Plantings 3/31/07 on 40th St!
Please Call 434-5113 Today (leave a message). Please ask them to stop and to (e-)mail you proof that they have stopped applying weed killers. This is an officially adopted spot.
These weed killers unnecessarily expose workers, neighbors and VOLUNTEERS from your neighborhood to extreme health risk.
There are many neighbors and myself on 40th Street "Hill" median from Broadway to the end of 40th closest to Piedmont who have been seeding, planting and watering this median for over a year. Many of us have been working each weekend on this project. Many $100's of your neighbors' dollars have already been spent on interesting plants and seeds donated (more were purchased for this median even today) and planted
and there is much more about to go in. The volunteer development of this piece of land is in it's early stages. It will not look like much for several years. I have developed other medians over the years and it is vitally important that you call the City and make sure that they immediately and forever stop the use of any weed killers in these medians where neighbors and yourselves and your children are exposed. City workers and urban beautification volunteers are exposed, as well. These killer toxic chemicals are BANNED by law in all Oakland Public Parks already. They need to be banned NOW in all Street median applications especially in spots that have been officially adopted, as in this one (Dan Haggerty is the official adopter).
Please call and write Zachary Wald in Jane Brunner's (both are excellent and love our tree planting efforts and support same) office, Sandra Steen and Cookie Robles Wong (very helpful
workers in the Adopt-A-Spot program) and ask them to please make sure for real, verified in writing, that all weed killer application will stop on all of 40th Street medians from Telegraph through Broadway to the end of 40th St. nearest Piedmont--FOREVER. Oakland Public Works Department at 615-5566, Adopt-A-Spot 434-5113 or 238-7630, Ron Dellum's Office: 238-3141 and anyone else you can think of.
Thank you very much!
Sincerely,
Frank Snapp North Oakland
PS: Attached is a draft petition to end all application of all toxics to all medians adopted in the Adopt-A-Spot program in the City of Oakland, CA. Please advise me as writing petitions is not my forte. Thank you much. :) FS
Date: Sat, 24 Mar 2007 16:38:50 -0700 Subject: Radio show on MCS Sun From: Barri Boone <unmaid43@...> To: "CripTrip@..." <CripTrip@...>, BayCanaryGrapevine Moderator <BayCanaryGrapevine-owner@yahoogroups.com>, SCLyme <SCLyme@yahoogroups.com>, "Charles R.Stone" <megalith@...>
-----------
Date: Fri, 23 Mar 2007 18:29:08 +0000 From: Alb"cyndi@..." ert Donnay Subject: [IMMUNE] Radio call-in show this Sunday 3/25: Dr. Albert Robbins interviews Albert Donnay on MCS, MUSES, etc
Dr. Albert Robbins has invited me to be his guest on his Environmental Health Hour radio program. The show will air this Sunday 3/25/07 from
5-6pm (Eastern Time).
You can listen via WNN, the Health & Wealth Network, at http://www.wwnnradio.com/ (just click the "listen live" link in the upper right corner) and you can call in via an 800# if you have questions or comments. (I don't know the # but Dr. Robbins will announce it.)
We'll be talking about MCS, Multi-Sensory Sensitivity (aka MUSES Syndrome), carbon monoxide poisoning, Edgar Allan Poe, and whatever else you call in to ask about!
- - - Albert Donnay, MHS www.mcsrr.org
ps. please forward this message to any other lists that you think may be interested.
Good news that we are getting more coverage. All our work for years is paying off in terms of media paying attention. I have spent extensive time with 2 media people within the past couple months, plus a psychologist who contacted East Bay Pesticide Alert (www.eastbaypesticidealert.org if you want a lot of important info on pesticide dangers and alternatives) having begun to understand that kids being diagnosed up the wazoo with "behavioral problems" and then pumped up with pharmaceuticals are kids reacting to chemicals and then being dosed with more. She is a writer, and she says she'd like to do some writing for EBPA in her position as psychologist, to help debunk the very approaches now taken for granted.
Fourteen solid years I've been doing community organizing around pesticides (had been doing more general promotion of organics since '85) and over the many years trying to help people see how pesticide poisoning so often morphs into a general MCS, and in the past year I feel like I've been seeing lightbulbs going off all over the place. But what Jill says about friends and family not getting that essential oils can make many of us as sick, at least in acute symptoms, as petrochemically-derived scents, is so true and so discouraging.
Maybe in terms of quality of life for those of us in this world trying to exist as much as we can in the rest of the world in whatever manner, it is as important on the personal level that we try to help people in our circles understand. I've seen some change with a dear friend, but still she is using problem products stuck on the idea that if they are sold at the healthfood store they are okay. She means well but has trouble "hearing" me. It's the relationships with friends and loved ones that can be hardest, I've found.
Still, having finally been okay'd for a parking placard specifically by my new doctor because of MCS (based on limb-shaking that I can experience when exposed, as well as blurry vision at those times), while amazingly she understood that this was important, it still took her a very long time to actually do it once I'd brought in the DMV paperwork, after she'd okay'd it. I expect it to change my life, and my kids' lives, in a small, yet dramatic way. I also expect to be up against a lot of harassment when using it, so I'm trying to brace myself for that since when I'm not actually wearing my mask, I look perfectly healthy to most people.
I'm sure everyone on this list knows what that's like. There are the days some of us can get out and about and are just thankful not to be in bed shivering and shaking, ready to puke, and there are the days at home to make up for those excusions. But during them we can look healthy to others, even when the nausea is horrid and our temperatures are crashing.
One thing I've been tracking pretty carefully of late is something which I would encourage others to consider doing, just like some people are monitoring blood sugar going wacky related to hormone-disrupting herbicides, for instance (yeah, me for that one, too) or blood pressure, I have been taking my temperature often, especially when out and about. I have been using a safety 1st (kids' aisle at stores) simple digital thermometer I can tolerate (under $10 and it gives a reading within about 10 seconds... I've tried it against the ones at the clinic... it's accurate within a couple tenths of a degree). I have had low-thyroid problems since I was first pesticide-poisoned in Sonoma (wine grapes, oats and hay). After years of all sorts of help (naturopathy, herbs, supplements, constitutional homeopathy, acupuncture, chinese herbs), my baseline temperature is finally back up to 98.1. But when I am exposed to chemicals (which happens on a very regular basis as there is still so much I cannot control) it tanks, often back down to 96. Even if not exposed to anything significantly bad to me for another full day or more, it can take 1-1/2 days to get back up to around 98. And my blood sugar levels jump up. Basically, I see it as my hormonal system tanking when I get hit, and there is the acute affect on top of the chronic effects. It's like my thermal regulation system is shot.
I'm curious to hear whether anyone on this list has monitored any of this stuff.
Subject: April's Alternative Medicine, article on fragrances by Jill Sverdlove
Dear Friends --
In April's issue of Alternative Medicine, you'll find an article by Jill Sverdlove. Should you get the magazine and wish to thank the editors for printing it, you may also want to consider some of these points expressed by Jill. They are from a message she wrote to one of her groups . . . and to me. Jill wrote:
So I finally just saw my Scent article in Alternative Medicine. Whole Foods is now carrying the April issue.
Because I hadn't seen the final version with their edits, although I was overall pleased with how it came out and the fact that it came out at all (!), there are a few things that I thought should be addressed - and hopefully people who are sensitive will write in and point some of these things out.
1) They added a line that people who are sensitive to scents "can't go to supermarkets or department stores." I had written that some can't even leave their homes because scent use is so ubiquitous and harmful to some people. I mentioned the problem of neighbor's dryer vents and how that makes it difficult to even be in neighborhoods. I think it's important for people to realize just how much lives can be impacted by scent use - not merely "oh we can't go shopping anymore!"
2) They didn't include my line about how essential oils and incense are typically not tolerated by sensitive people and that it's a problem even with holistic doctors who often use both. I understand we have to take baby steps with educating the public, but I am already finding that friends can't figure out that all the essential oils in their "natural" products can make people sick, too.
3) This one isn't a big deal and I understand why they cut it - but they took out the description of what happens scientifically when we inhale scents. I talked about the limbic systems and how exposures can cause immediate mood changes, like a whiff of perfume can make someone depressed or irritable. I thought it was important in terms of understanding how most reactions are invisible and affect behavior.
4) They changed the title - not sure if what they put on the cover is even clear ("Is Your Scent-sitivity Making You Sick?") but still - hey - it's on the cover!!
5) I had originally put in the OxyBall as a detergent alternative but finally found out from the manufacturer that they do have icky stuff in it so I asked them to pull it from the article - but it's still in there as an option. Oops.
6) The chemicals in fragrances, and "What you can do" is no longer in the article but instead is online and they just have a note to go online to see that info. Again, I understand because of space, although there is so much artwork that I thought it still could have been in the side bars.
So - of course I'm too close to the piece that it's hard to be objective and I'd love to hear feedback. And if anyone does read it, it would be great to see letters to the editor both acknowledging the importance of this information to increase support for people who are suffering from others' scents, and also perhaps mentioning that it goes beyond the inability to go to the supermarket but literally drastically changes people's lives...and that essential oils can often be problematic, too...
Jill
I've yet to lay my hands on a copy . . . but soon it will come to my Naturals store. Congratulations, Jill, and thank you for writing the article.
The American With Disabilities Act (ADA) applies to everyone regardless of age.
It is unclear from your message whether you realize that SSDI has nothing to do with the ADA. It does not; therefore, you can request reasonable accommodation. I must tell you that every single senior housing I have looked at is toxic. They use time-released air fresheners or plug-ins in the hallways, apartments, etc. Getting accommodation for your MCS is not going to be easy in senior housing.
If you need any further information regarding accommodation, you can email me privately. I'm not a lawyer, but have worked in the law for a number of years and have dealt with this accommodation issue repeatedly for a long time now.
Betty
Frances Hailman
<fhailman@...> wrote:
Urgent Question: When I turned 65, I was told by an SSDI worker that my official status shifted from "disabled" to "aged" and I was therefore no longer eligible for SSDI work incentives. Does anyone know about my status with ADA and reasonable accommodation? I am applying for senior housing (due to drug/criminal activity where I now live), and will likely need reasonable accommodation for my MCS. Any information or suggestions would be greatly appreciated. Thank you. Frances
Hailman fhailman@sbcglobal.net
Urgent Question:
When I turned 65, I was told by an SSDI worker that my official status
shifted from "disabled" to "aged" and I was therefore no longer
eligible for SSDI work incentives.
Does anyone know about my status with ADA and reasonable accommodation?
I am applying for senior housing (due to drug/criminal activity where
I now live), and will likely need reasonable accommodation for my MCS.
Any information or suggestions would be greatly appreciated. Thank you.
Frances Hailman
fhailman@...
I have a used Black and Decker Toaster Over that might be good for an MCS
person. It is
outgassed and from a fragrance-free home.
It is 15" Wide x 8" Tall x 10" Deep and is an off-white color.
I don't tolerate it because there is a slight
burning smell when it is on. It is located in Cupertino, CA. Email me
(k2books@...) if
you are interested in taking it. Thank you in advance.
-Kristine
Date: Sun, 11 Mar 2007 21:01:59 -0800 Subject: FW: Question re Social Security and natural meds From: Barri Boone <unmaid43@...> To: BayCanaryGrapevine Moderator <BayCanaryGrapevine-owner@yahoogroups.com>, "immune@..." <immune@...>, SCLyme <SCLyme@yahoogroups.com>, "CripTrip@..." <CripTrip@...>
Howdy,
I'm being reviewed by Social Security because they have determined that my part-time Homecare gross income was over their ceiling, the SGA (substantial gainful employment). When you work, they subtract your "allowed" work-related expenses (IWRE) like medical expenses related to your disability. BUT it seems they may not accept all or most of my natural supplements indicated
by my doctor. They accept most pharmaceuticals, but consider natural meds "alternative" and not "necessary" according to their rules. It also seems that the determination as to what is acceptable IWRE is decided on a case by case basis locally.
So--I'm asking if anyone knows about cases like this, what happens when you appeal, and how they rule on this across the country. Seems odd, that in the 21st century they finally accept MCS, respiratory illnesses, etc. as a legit disability, but discount that the costly treatment, which necessarily is non-pharmeuticeutical --is not legit!
I would appreciate hearing about any resources or experiences to help with this.
Subject: Proposed power plant may pollute Hayward From: "Joanne L Gardiner, Broker" Date: Sun, March 11, 2007 12:20 am To: "Joanne Gardiner"
To Hayward residents and business associates, I am sending you a news article I just received. I have highlighted critical points. The proposed power plant in Hayward is getting close to reality unless you and I and other responsible residents stand up to the City Council and the California Energy Commission. After you read this article, I have some additional information.
Proposed power plant may pollute Hayward By Matt O'Brien, STAFF WRITER Inside Bay Area Article
03/10/2007
HAYWARD — Supporters of a proposed Hayward power plant expect to achieve an important victory this spring when the Bay Area Air Quality Management District releases a report that says the project meets environmental standards.
But that doesn't mean the gas-burning Eastshore Energy Center won't pollute Hayward's air.
Brian Lusher, an air district engineer, revealed this week that the Eastshore plant will meet all of the agency's "rules and regulations" because the plant developer, Texas-based Tierra Energy, can make up for the pollution it creates by buying credits to reduce pollution elsewhere.
"We're a regional agency so we try to take into account the regional effects," Lusher said.
Lusher's brief comments, revealed only after intense grilling by a Hayward city councilman during a crowded Tuesday hearing, marked the first time most
Hayward residents knew anything about the credit program.
According to documents obtained Friday from the California Energy Commission, the commission's executive director, B.B. Blevins, has allowed Tierra to keep details of its proposed credit exchange confidential because the information is a potential "trade secret" that, if revealed, could damage the company's comparative advantage over rival developers.
Blevins, in a Dec. 21 letter to Tierra attorney Jane Luckhardt, wrote that it was "reasonable" and in the "public interest" for Tierra to keep the information classified.
But, he continued, it should only remain confidential "until that point when public participation in review of your proposed offsets becomes necessary."
Whether that public discussion has begun yet has been a point of contention in Hayward.
Officially, according to the Blevins' letter, it begins when the regional air quality district
releases a preliminary determination on whether the Eastshore project complies with environmental standards. That report is scheduled to be released in April.
But as Hayward residents prepare for their fourth public hearing on the plant this year — one energy commission meeting in January, one Hayward Planning Commission hearing in February and two Hayward City Council hearings this month — some residents and local officials still feel left in the dark about the true impacts the plant is likely to have on the area.
Michael Toth, who lives less than a mile downwind from the Clawiter Road site where Tierra wants to build the plant, said the credit exchange means his neighborhood will bear an unfair level of pollution.
"The purchase of credit essentially allows a company to move pollution from one part of the Bay Area to another," Toth said. "I don't think the laws in this state have recognized the problems that can be created as an abuse
of the credit system."
Gerard Clum, president of Life Chiropractic College West, located directly across the railroad tracks from the site, is also skeptical.
"I think the biggest thing from where I sit is with the particulate matter discharge," Clum said. "(Credits) are fine for the region, but it doesn't do much for Hayward."
The Hayward City Council is scheduled to vote on the proposed power plant on Tuesday. The majority appears strongly opposed to it and likely to shoot it down. But the council has been tasked to look mostly at land-use and zoning issues, not environmental concerns.
Greg Trewitt, a Tierra vice president and engineer, said credits will play an important role in the project's compliance, as it does with power plant projects throughout the state.
Trewitt said the chief concern Tierra must address is with fine particulate matter, which, unlike other problem pollutants, is typically a bigger
problem during the winter. Eastshore will be a peaker plant, designed especially for summer periods of peak energy demand.
But Hayward and most of the surrounding region is already in a "nonattainment" status for particulate matter, meaning the pollution is already at levels considered unacceptable, according to the air district. Anything added to that mix must be mitigated.
Trewitt said that along with buying credits, the company is looking at paying for some kind of "fireplace retrofit" program for local residents.
The City Council will vote at 8 p.m. Tuesday at City Hall, Council Chambers, 777 B St., Hayward.
State law gives responsibility over studying and regulating power plant emissions to the regional air district and the state energy commission. The commission, not local leaders, has final authority on whether Tierra gets a license to build the plant.
The energy commission has scheduled a five-hour
"issue resolution workshop" beginning at 3 p.m. March 19, also at City Hall, in Room 2A.
And the developer, Tierra Energy, is holding a community meeting at 7 p.m. April 16 at Life Chiropractic College West, 25001 Industrial Blvd., Hayward.
All three meetings are open to the public.
Matt O'Brien can be reached at (510) 293-2473 or mattobrien(AT)dailyreviewonline.com.
I hope you will attend these meetings and also write the city council before next Tuesday. I have a page on my web site with the Mayor's and council members contact information: http://www.joannegardiner.com/ProposedPowerPlantinHayward.html
It is also essential to email your concerns to the California Energy Commission at: PAO(AT)energy.state.ca.us since that agency is the final decision maker. The following link is to the California Energy Commission's
Public Adviser's Office contact page: http://www.energy.ca.gov/public_adviser/index.html
This is such a critical issue I hope you will act on it now and send emails to Hayward's Mayor and Councilmembers and also to the Energy Commission. Please do not put off writing them.
After sending your emails, please forward this letter to all the people you know who live in Hayward, do business in Hayward, or might be concerned about the wind blowing contaminated air to their area.
Best regards, Joanne -- Joanne L. Gardiner, Broker, e-PRO Realtor® Advantage Realty - 510-429-4800 Website: http://www.JoanneGardiner.com
"None of us will ever accomplish anything excellent or commanding except when he listens to this whisper which is heard by him alone." -- Ralph Waldo Emerson
(Yahoo Groups has been bouncing messages lately. If this happens to you, sorry, and please try again. Yahoo has been having a lot more technical issues in the last few weeks than usual.)
This is one message that bounced:
> ----- Original Message ----- > From: <beneficialbug@...> > To: <BayCanaryGrapevine@yahoogroups.com> > Sent: Sunday, March 04, 2007 11:36 PM > Subject: Fw: A GLASS OF WATER, A MOTHER'S WORST FEAR > > > > Digging through old emails to dig up some things we need to access for > East > > Bay Pesticide Alert's work, I came across this
which I thought people on > > this list might find useful. > > > > Max Ventura > > > > From several years ago: > > > > > > > > > > A GLASS OF WATER, A MOTHER'S WORST FEAR > > > > > > > > Date: 020211 > > > > From: http://www.washingtonpost.com/ > > > > > > > > IN HAMPTON ROADS, STUDIES OF MISCARRIAGES CAUSE CONCERN, > > > > SPARK LAWSUITS > > > > > > > > By Anita Huslin, Washington Post Staff Writer, February 10, 2002 > > > > > > > > Annette Spaven already had three children when she found out she was > > > > pregnant again four years ago. > > > > > > > > She and her husband were surprised but pleased by the prospect
of > > > > welcoming another child into their Chesapeake, Va., home. So when she > > > > suffered a miscarriage in the first trimester, they tried again. > > > > > > > > Six months later, she lost another baby. > > > > > > > > "I wondered if something was wrong with me," said Spaven, 38. > > > > > > > > About the same time, two women on her block had miscarriages. Across > > > > town, a woman gave birth to a boy who died shortly after birth. For > > > > more than a decade, they and others wondered why they'd suddenly lost > > > > their pregnancies. > > > > > > > > Today, many are also wondering something else: Might they have lost > > > > their babies simply because they drank tap water while they were > > > >
pregnant? It's a question that has roiled this booming port community > > > > ever since residents became aware of controversy surrounding chemicals > > > > in the public drinking supply. Now, 25 women are suing the city, and > > > > nearly 170 more have filed their intentions to do so. > > > > > > > > Fueling their fears are a growing number of studies that link birth > > > > defects and miscarriages to chemicals that are produced when chlorine, > > > > used to purify drinking water, mixes with organic matter, such as > > > > fertilizer in surface water. > > > > > > > > Chemical and water industry officials maintain that the body of > > > > scientific evidence linking so-called chlorination byproducts to > > > > adverse birth effects is inconclusive. > >
> > > > > > "To have liability, in our opinion, you have to prove there's a cause > > > > and an effect," Chesapeake city attorney Ronald Hallman said. "I > > > > haven't seen any study that has proven a causal connection." > > > > > > > > In a statement last month, the Environmental Protection Agency called > > > > the issue of chlorination byproducts in drinking water "an important > > > > health concern." The federal agency will be proposing new water > > > > quality reporting requirements for utilities this summer and plans to > > > > fund further research. > > > > > > > > Meanwhile, however, millions of Americans are unaware of what their > > > > water utilities know: The levels of chlorination byproducts in their > > > > drinking
water often spike higher than the EPA's allowable annual > > > > average. > > > > > > > > This happens as well throughout the Washington area, utility records > > > > show, though the EPA does not require the information to be included > > > > in regular water quality reports from utilities. > > > > > > > > Chesapeake residents learned about the problem only when the city's > > > > public health director issued a bulletin about it. And then more > > > > stories from women like Spaven started to come out. And so did the > > > > lawyers. > > > > > > > > Now, the Hampton Roads city has become a test case for the nation. > > > > Water utility operators across the country, including the Washington > > > > Suburban Sanitary Commission, are
watching to see what becomes of the > > > > lawsuits. > > > > > > > > The women are alleging that the city did not adequately warn them > > > > about potentially harmful levels of toxins in their water, sometimes > > > > nearly 10 times higher than the danger level identified in the largest > > > > public health study to date. > > > > > > > > Chesapeake documents obtained by the women's attorneys show that the > > > > city had seen significant spikes in chlorination byproducts since the > > > > early 1980s. > > > > > > > > No comprehensive study of the city's miscarriage or birth defect > > > > rates has ever been done, so it is impossible to draw a comparison > > > > between the period when the byproducts were spiking and
when they were > > > > not. Nationally, about one in six women suffer miscarriage, according > > > > to federal statistics. The first 25 women suing all suffered > > > > miscarriages in the mid- to late 1990s. The 168 other cases date to > > > > the 1980s. Altogether, attorneys are seeking nearly $1 billion in > > > > damages. > > > > > > > > "I just hope that . . . people will pay attention to what's going on > > > > in their cities," Spaven said. "No one should have to go through what > > > > we have." > > > > > > > > First Reports > > > > > > > > Nancy Welch, the director of the Chesapeake Public Health Department, > > > > hadn't even heard of chlorination byproducts or the term > > > > "trihalomethanes" - also
known as THMs - before the city's public > > > > utilities director came to her office one day in early February 1998 > > > > with a problem. > > > > > > > > The city was preparing to tear down two purifying towers at its water > > > > processing plant to make way for a system that would help solve > > > > chronic water quality problems. > > > > > > > > Seated near the mouth of the Chesapeake Bay, the city for > > > > yearsstruggled to manage the salt that rises with the tides. Until it > > > > built the two towers, it had also quietly grappled with the problem of > > > > THMs. Now, it was going to tear down the towers. Once that happened, > > > > chlorine byproduct levels could rise precipitously, perhaps even > > > > exceeding EPA limits,
utility director Amar Dwarkanath said. > > > > > > > > The city planned to ask for a waiver of EPA water quality standards, > > > > at least during this phase of construction, but it would need a letter > > > > from Welch supporting the request. > > > > > > > > And there was one more thing. > > > > > > > > Dwarkanath gave Welch a copy of a report that was about to be > > > > published in the medical journal Epidemiology. > > > > > > > > It was a study done in California, where Department of Health > > > > Services researchers followed more than 5,000 pregnant women. They > > > > found that those who drank five or more glasses of tap water a day > > > > containing 75 or more parts per billion of chlorination byproducts > > > > were
65 percent more likely to suffer a miscarriage. Pregnant women > > > > are generally advised by their doctors to drink at least eight eight- > > > > ounce glasses of a water to avoid dehydration. And now Chesapeake was > > > > facing the very real possibility that its tap water would become awash > > > > with consistently high THMs, possibly even for months. > > > > > > > > Welch examined the research closely, then called some colleagues for > > > > advice. Half said they would inform the public; half said they > > > > wouldn't. > > > > > > > > On March 24, 1998,Welch wrote a letter to Dwarkanath with her > > > > conclusions, suggesting that the city ensure that pregnant women who > > > > got their water from the Chesapeake plant use bottled water.
On March > > > > 31, 1998, she sent a public health bulletin to family practitioners, > > > > OB-GYNs, internists and the media, urging pregnant women who drink > > > > five or more glasses of water a day to drink primarily bottled water > > > > and to boil their tap water for a minute or install a tap filter. > > > > > > > > Almost immediately, the phones started ringing. Worried pregnant > > > > women called, and so did those who had lost babies, wondering aloud if > > > > the water might have been the reason. > > > > > > > > Welch could not answer all of their questions. But, she said, she > > > > believed the California study raised enough questions to warrant > > > > warning the public about THMs. But there are many reasons miscarriages > >
> > occur, she pointed out, and it's often difficult to pinpoint one. > > > > > > > > "When there's a limited amount of research, you go with what you > > > > have," she said. "I'll never apologize for informing the public." > > > > > > > > But to determine whether THMs absolutely cause miscarriage or birth > > > > defects, she said, "you've got to do more research . . . and that > > > > takes time." > > > > > > > > After a few weeks, Welch's phones quieted down and things at the > > > > Chesapeake public health department got back to normal. > > > > > > > > But in the community, people were sharing stories. Stories like those > > > > told by Marcy Shaffer, now 38, who lived in Chesapeake and gave birth > > > > to Peter
just before Christmas in 1997. > > > > > > > > He was born with just a bundle of nerve endings in his half-formed > > > > skull. He lived for a couple of hours, long enough for her to wrap him > > > > in a white blanket and for her family to say their goodbyes. > > > > > > > > About the time of Spaven's miscarriages, two neighbors across the > > > > street also lost their babies. After carrying her baby for 8 1/2 > > > > months, Shelley Rapada, now 22, gave birth to Haley Renee in the > > > > spring of 1998, then buried her in a tiny ivory- colored casket at the > > > > foot of her grandmother's grave. Her best friend, Michelle Rapada, now > > > > 21, suffered two miscarriages that fall. > > > > > > > > In conversations during lunch breaks,
after church or over coffee > > > > with a neighbor, more accounts were circulating. It would not be long > > > > before someone would try to piece it all together. > > > > > > > > Legal Implications > > > > > > > > The cases started coming to Louis Napoleon "Mike" Joynes in the same > > > > way that most business arrives at his firm. > > > > > > > > The Joynes & Gaides law office sits at a busy intersection near the > > > > edge of Chesapeake, and the increasing traffic in what is the fastest- > > > > growing city in Virginia provides at least one new customer a week. > > > > > > > > It was one of these clients, an auto accident victim, who mentioned > > > > his wife's miscarriage to Joynes and asked: Could that have
had > > > > something to do with the city water? > > > > > > > > Joynes, who had not paid close attention to the public health > > > > bulletin, said he'd look into it. > > > > > > > > So he called up a colleague at Willcox & Savage, an old Virginia blue > > > > blood firm with several lawyers who focus on environmental law. They > > > > were familiar with THMs and the issues associated with them, so they > > > > began researching the city's water situation. > > > > > > > > "What we discovered was that the levels of THMs in Chesapeake were > > > > some of the highest we'd ever heard of - 700, 800 parts per billion," > > > > said Gary Bryant, who specializes in environmental litigation. > > > > > > > > He had spoken to some
experts in environmental health who were > > > > familiar with the research on the issue and their response was the > > > > same: "They were pretty much shocked by this," Bryant said. "All of > > > > the scientific reports showing health impacts from THMs involved > > > > levels much lower than what we were seeing here." > > > > > > > > But little of that information has reached the public anywhere. In > > > > Montgomery County, officials recently started asking questions about > > > > THMs at a special hearing called after utility data obtained by > > > > Environmental Working Group, a chemical industry watchdog, revealed > > > > THM spikes in water supplied by WSSC. > > > > > > > > Officials at WSSC, which provides water and sewer services to 1.6 > > >
> million residents in the Washington area, acknowledged that the spikes > > > > were a concern but noted that the utility continues to meet EPA water > > > > quality standards. > > > > > > > > The Chlorine Chemistry Council, a national trade group, maintains > > > > that the research to date "has been inadequate to definitively > > > > demonstrate an association" between THMs and birth defects, > > > > miscarriages and stillbirths. > > > > > > > > In Chesapeake, lawyers wondered just how many women could have been > > > > affected. In July 2000, Joynes & Gaides started running television and > > > > radio ads seeking women who had suffered miscarriages or delivered > > > > babies with birth defects. > > > > > > > > And the phones
started ringing again. > > > > > > > > 'All This Pain' > > > > > > > > Annette Spaven was one of the hundreds of women who called. The ads > > > > didn't say anything about Chesapeake water, but she wondered if that > > > > was behind it all. > > > > > > > > She had grown up in Chesapeake, then moved away after getting > > > > married. In 1993, after moving back to Chesapeake, the couple had > > > > their third and, they thought, last child. When Spaven unexpectedly > > > > became pregnant in 1997, something wasn't right. > > > > > > > > She started cramping and bleeding one morning, so she went to the > > > > hospital, where doctors ordered an ultrasound. The results showed > > > > simply a mass of tissue growing in her
womb, with none of the early > > > > signs of a baby that they would have expected. > > > > > > > > Hours later, she suffered a miscarriage. > > > > > > > > Later that year, she got pregnant again. This time, she said, she > > > > worked very hard to make sure she did everything right, including > > > > drinking more than the recommended eight glasses of water a day. When > > > > she had cravings, she ate ice - lots of it - from the ice-maker in her > > > > freezer. > > > > > > > > In early 1998, she miscarried again. > > > > > > > > "That was it for me," she said. "I wasn't going to try again." > > > > > > > > Then, when the television ads came out, she started wondering and > > > > turned to the
Internet for answers. What she found infuriated her. > > > > > > > > "I couldn't believe it. I'd sit there every night and tell my > > > > husband, 'Look at this stuff.' All these people, all this pain." > > > > > > > > The first lawsuit was filed last April, and a hearing date has been > > > > scheduled for September. City attorneys are trying to block the case > > > > by arguing that the plaintiff filed her lawsuit more than two years > > > > after her miscarriage, too late for what the law requires. > > > > > > > > A court date for Spaven's case has not yet been set. In some ways, > > > > she said, she believes the outcome of her case is unimportant. When > > > > you've lost two pregnancies, nothing will change that. But her story > > > > and
those of other women should be heard, she said, to warn the public > > > > about these once-obscure chlorination byproducts. > > > > > > > > "You just take for granted . . . that you never have to second-guess > > > > what's in your water," she said. > > > > > > > > In January 1999, Spaven moved to Virginia Beach. Ten months later, > > > > she delivered Kerrigan, a healthy baby girl. > > > > > > > > * * * > > > > > > > > (C) 2002 The Washington Post Company
Subject: SMOG created by chemicals in home. Say, you don't really think so do you?????
Dear Friends --
Yeah, I'm just kidding around w/that subject line. But the subject is very serious. How long before our representatives and senators wake up to the poisoning of America? Starting with our developing fetuses and then our newborns and carrying on to seriously affect our elderly if one looks at the increase in asthma rates among that demographic. Hook 'em right out of the oven on those petrochemical derivatives with flavored pacifiers, scented diapers and wipes, and all sorts of other scented baby products. Call them flavors and fool the parents. Good grief! And then, remember to wring one's hands over the MYSTERY ASTHMA EPIDEMIC. (Or "mystery" disease of your choice.)
Many of you will realize that southern California's Air Resources Board released a report in March 2003 stating that commonly used chemicals are a smog source second to tail pipe emissions. For those who missed that report, please take a minute to drop into Mindfully.org and check it out.
The California story acknowledges perfumes, not just scented aerosol products . . . The most telling line in the California story, for me, is this:
"It's the same stuff that comes out of a tailpipe or a smokestack," said Jerry Martin, a spokesman for the California Air Resources Board. "We're talking hundreds of different kinds of products, stuff everyone uses. It's almost one secret area of emissions that you don't hear about and no one talks about."
Goodness only knows how many times you've seen this from me, but I think it is important enough to include the lead part of the article here. I hope you copy it onto your computer for future use in your own area, for your jobs, your healthcare facilities, trying to educate your doctors, school officials, workplace management teams, places of worship, government entities. This is such important info . . .
Chemicals in Home a Big Smog Source
GARY POLAKOVIC / LA Times 9mar03 http://www.mindfully.org/Air/2003/Home-Chemicals-Smog9mar03.htm
[E]ven before the chemicals escape into
the environment, they contribute to indoor
air pollution, which typically is more
dangerous than smog because the
chemicals concentrate nearer to people.
Cleansers, cosmetics and other products pump 100 tons of pollutants daily into the Southland's air, ranking second to tailpipe emissions, studies show.
Ordinary household products such as cleansers, cosmetics and paints are now the Los Angeles region's second-leading source of air pollution, after auto tailpipe emissions, air quality officials say.
Regulators have long known that smog-forming chemicals escape with every squirt of antiperspirant, each bubble of detergent and every spritz of aerosol hair spray. And they have been controlling some products' emissions for years, with mixed success. But new research shows that products common in kitchens, bathrooms and garages contribute more to Southern California's smog problem than previously thought.
"It's the same stuff that comes out of a tailpipe or a smokestack," said Jerry Martin, a spokesman for the California Air Resources Board. "We're talking hundreds of different kinds of products, stuff everyone uses. It's almost one secret area of emissions that you don't hear about and no one talks about."
The offending items include detergents, cleaning compounds, glues, polishes, floor finishes, cosmetics, perfume, antiperspirants, rubbing alcohol, room fresheners, car wax, paint and lawn care products.
On a typical day, about 108 tons of smog-forming fumes are emitted from such products used in houses and small businesses in Los Angeles, Orange, Riverside and San Bernardino counties. The South Coast Air Quality Management District released those estimates last month as part of a new comprehensive plan to cut smog and haze in the region. ...
Now for one in, via a sharp-eyed individual. This story is still available online . . .
Cars and power plants are the prime culprits behind Ohio's smog problems.
But the state's latest effort to clear the unhealthful haze from summer skies focuses on such products as hair sprays, deodorants, furniture polish, glass cleaners and even urinal cakes.
Estimates indicate that these products release about 100 tons of smog-forming chemicals into Ohio's air every day.
Throw in cars and mowers, gas stations, dry cleaners and paint, and the amount grows by more than tenfold, says the Lake Michigan Air Directors Consortium, which offers technical assistance on air-pollution issues to officials in Ohio, Illinois, Indiana, Michigan and Wisconsin.
Smog can damage lungs, spurring asthma attacks and worsening lung diseases.
Faced with a federal mandate to reduce smog, environmental agencies in Ohio and several other states are thinking about ordering manufacturers to cut back on these chemicals.
"Consumer products are a significant contributor to smog," said Christopher Recchia, director of the Ozone Transport Commission, which helped draft proposed product limits for 12 eastern and northeastern states and its home base of Washington, D.C.
A manufacturers group, the Consumer Specialty Products Association, said that although it won't object to the Ohio Environmental Protection Agency's plan, the proposed rules won't significantly clean the air.
"You're not going to see much difference," said D. Douglas Fratz, the association's vice president of scientific and technical affairs. "We are actually a very tiny percent of (smog) generation."
Mike Koerber, director of the Lake Michigan Air Directors Consortium, said the new limits would reduce product pollutants to about 81 tons per day.
The chemicals, called "volatile organic compounds," along with nitrogen oxides released by cars, power plants and factories, form smog when they are cooked in the air on hot, stagnant days.
Nitrogen oxide released by factories and power plants in Ohio has dropped from a daily average of 1,015 tons in 2002 to 697 tons in 2005, the most recent year for which figures are available.
But in 2004, the U.S. EPA declared that 33 Ohio counties failed a new health standard for smog and gave Ohio until June 2009 to pass.
The Ohio EPA has since asked the U.S. EPA to take 20 counties, including Franklin, Delaware, Fairfield, Knox, Licking and Madison, off the list.
Officials said new cars that pollute less and the reduction in powerplant emissions have helped reduce smog in central Ohio and elsewhere.
And they say that a reduction in chemicals in consumer products would help keep Columbus under the smog limit and reduce unhealthful levels in Cincinnati and Cleveland.
Washington, D.C., and states including New York, New Jersey, Pennsylvania and Virginia have proposed the same product limits, which California already enforces.
"We will ultimately be the first (state) to go ahead and implement this, other than California," said Bill Spires, a manager in the Ohio EPA's air-pollution control division.
Ohio's proposed rules, available for public comment through Monday, would make manufacturers reduce or eliminate smog-forming chemicals by January 2008.
Many of the proposed cutbacks are aimed at aerosol products - everything from glues and engine degreasers to insecticides and hair sprays.
Koerber said the cuts would be more effective when combined with Ohio's other plans to require cleaner paints and gasoline.
"You need to package all of these reductions together," he said.
Fratz said many products sold in Ohio already meet California's standards.
"To a large degree, they are going to get the benefits of these reductions whether they adopt it or not," he said.
Ohio EPA spokeswoman Heidi Griesmer said the proposed rules would cover products sold here but not in California.
Until then, "The rest of the U.S. isn't necessarily getting the cleanest products," Griesmer said.
Included are the following products, but please go to the site of the Dispatch to see the percentage of reduction of smog-forming chemicals and do notice that fragrances in general are not listed although products that have synthetic scents in them are. How long before it is acknowledged that perfumed products pollute? When will it be understood that one should look beyond "aerosol" and look at "FRAGRANCE" . . . and for that matter, their twin, "FLAVORS"? -- barb
Air fresheners (aerosol)
Carburetor and choke cleaners
Engine degreasers
Fabric protectants
Furniture polishes
Hair sprays
Hair mousses
Insecticides (crawling bugs)
Insecticides (flying bugs)
Nail-polish removers
Antiperspirants (aerosol)
Deodorants (aerosol)
Sources: Federal Register, Ohio Environmental Protection Agency
At least it is a start for Ohio and something beats nothing. ETC.
Many thanks to Deborah T. for stepping up to be one of our phone contacts. Also, please note that descriptions of the meeting topics are now available at our Yahoo group website, http://health.groups.yahoo.com/group/SFFSSG .
The next meeting of the SF Fibromyalgia and CFIDS Self-Help and Advocacy Group is this Sat, Mar 3rd, 2-4 pm.
FORMAT OF THE MEETING During the first part of the meeting, we'll have workshops (details below). In the second part we'll have a discussion about the following topic.
Topic for this month is:
Advice to a New Patient
Imagine a newly-diagnosed CFIDS or fibromyalgia patient comes to you for advice. She asks what three or four things you have found the most helpful in coping with the illness. What would you tell him/her?
NEWCOMERS
Please arrive about 15 minutes before the meeting so that I can go over the meeting format and rules w/ you. Please allow extra to find the room.
FUTURE MEETINGS (the 1st Saturday of every month, 2:00-4:00): Workshop topic: Apr 7th - Handling Vacations and other Special Events May 5th - Bringing Meaning to Chronic Illness June 2nd - The Importance of Advocacy
DESCRIPTION OF WORKSHOPS In the first part of the group we'll have workshops. Each group member will have an allotted amount of time, about 4 to 9 minutes depending upon how many people are present. Each person has a choice of the following: 1. sharing without feedback - The person will share without interruptions or comments for the entire allotted time. 2. sharing and receiving feedback - The sharing portion is, again, without interruptions or comments. You can also ask the group any questions you may have. OR 3. requesting information or advice - A group member can use his/her entire allotted time asking for and receiving information.
Whatever you decide, remember that you must be done within the allotted time - this includes time for feedback. The point is to give each person the opportunity to have the entire group help him/her. If there is time,the person who has shared may choose to received questions and supportive comments.
Unless the person says otherwise, please do NOT interrupt anyone who is sharing. Only give feedback if the person requests it, and then stick to the kind of feedback requested. Under no circumstances do you criticize or offer advice, unless the person specifically asks for it. Unfortunately, many of us do not have places where we can truly be heard. This group provides a forum for doing this - without being given unwanted advice, without being dismissed, without being criticized, and without being invalidated.
DO NOT GIVE ADVICE UNLESS IT'S ASKED FOR This group provides a safe place for us to be truly listened to without being told what to do. If you start your feedback by saying things like: "Have you tried..." "You could..." "You should..." then you are probably giving advice. Please remember that the feedback portion is for the benefit of the person asking for it.
This group is for people with FM,CFIDS, and/or chronic myofascial pain - or those who think they may have one of these disorders. Friends and family are also welcome.
Providers are welcomed as observers for the purpose of creating a better understand about the impact of these illnesses on our lives. Please inform the group facilitator that you are a provider BEFORE the meeting starts. During the workshop portion of the meeting providers can give a brief introduction about what kind of health care professional they are, and why they want to observe the meeting. Providers are not allowed to come to the meeting to market their services.
The information we share at these meetings is **confidential**. By attending this meeting, you agree to not share information about members with those outside of the group. (Disclaimer: I cannot guarantee that all members will abide by this rule.)
LOCATION Davies Campus of the California Pacific Medical Center, at Castro St. and Duboce St. Rm B2/3. Enter the North tower, take the elevator to level B.
Parking in the garage is free. Take a ticket when you enter and insert it into the slot when you leave. Sometimes you won't receive a card when you enter. In either case, you won't be charged. Public transportation: N, J,22, 24, 6, 7, 66, 71. Wheelchair accessible.
This is a ***FRAGRANCE FREE*** meeting. And please DO NOT come to the meeting if you are CONTAGIOUS.
Please make an effort to be on time to the meeting, as late arrivals can be disruptive, especially to those who are sharing. It's better that you come to the meeting late, than not at all, but please make a concerted effort to come on time.
To receive meeting notices, get on the group's email list by send a blank email to SFFSSG-subscribe@yahoogroups.com. You will receive an email with a link that you will need to click in order to confirm your subscription. You can also get on the email list by going to http://health.groups.yahoo.com/group/SFFSSG/. If you are planning to go to meetings, I strongly suggest that you get on the email list so that you can receive important notices. While meeting times and location will probably be the same every month, they are subject to change. While meeting times and location will probably be the same every month, they are subject to change. If, and only if, you don't have email, call Cosi 415 564 2275 or Deborah 415 332 5279.
Please note that SFFSSG is an email newsletter, ***NOT*** an email discussion group. This email list will only have administrative messages to the group. If you're interested in an email discussion group for the Bay Area, check out www.topica.com/lists/CEFSFB .
Questions, comments, suggestions: Email hosnar@... or if you don't have email, call phone contacts. Please don't be offended if I take a while to respond to emails or not at all. I get A LOT of inquiries and I'm doing the best I can. Again, my email discussion group is a great place to get info about the Bay Area.
Sharon P. aka knotty girl
Our SUPER FABULOUS team of volunteers: Cathy - publicity, Cosi-phone contact, Deborah - phone contact and healthcare provider info, Janet -advocacy/healthcare provider info, Jim - contact list/healthcare provider info, Sally - treasurer/advocacy, Sarah - healthcare provider info, me -everything else
***--From CFIDS Self-Help: Materials for Alumni/On-going Groups by Bruce Campbell. Campbell also offers a free on-line course, and sometimes an in-person course. Phone: 650/856-2109. Email:CFIDS_Self_Help@... Website: www.cfidsselfhelp.org.
People with Multiple Chemical Sensitivities for a study Reply to: comm-284559795@... Date: 2007-02-25, 3:32PM
Hi, we are a group of Stanford Students looking to complete a short study of a person with Multiple Chemical Sensitivities. We would be observing your lifestyle and helping to target needs that you might have in coping with your illness, and watching for solutions you've found. We would likely need to follow you for a few hours while you do normal daily activities, and then ask you a few questions.
If you are interested, please contact Capra at 503-407-4714
Subject: Toxins in Cosmetics given o.k. in March O Magazine! We need YOUR help!
Dear Friends --
This alert in from a fellow EHNer . . .
I was appalled to read in the March "O" Magazine (Oprah's) that a study on all kinds of cosmetics had been done via contacting environmental toxicologists, dermatologists, etc., etc. and they concluded that cosmetics of all kinds -- including perfume (!) -- were not toxic to humans!!
I cannot get to O on my old computer. I'll have to look for the article today. Hope you all can also find a copy. Somewhere.
I've already contacted folks I believe may be excellent at writing rebuttals to this, and now I'm informing all of you with my "broad brush." I hope some of you who are seriously afflicted by fragrances can take the time and energy to let Oprah know that it doesn't matter what people connected with the industry tells us about the safety of cosmetics, independent research indicates otherwise.
Including EHN's FDA petition w/analyses: 99P-1340, which is still open and accepting letters to <fdadockets@...> Simply reference 99P-1340 in the subject line and write your reactions to fragrances. Do not include any personal identifying insurance numbers or your social security number. Full petition 99P-1340, replete with analyses, see: http://www.ehnca.org/FDApetition/bkgrinfo.htm
Fragrances have been shown to be harmful to the public from fetal development to old age, to the aquatic and wildlife downstream, to the development of smog with their CO2 emissions. That from the 1980s on, we've had research explain the harms of fragrances derived from petrochemicals. Heavens, in 1986, Congress was told that fragrances should be studied for their neurotoxic effects. Despite the early warnings about fragrances causing asthma for users and nonusers, for fragrances causing problems for the nervous systems, for harmful effects to the respiratory and cardiovascular system, etc., there has been little research independent of the industry's and their repeated assurances that their products are safe.
The problem is, as I see it, we've a huge disconnect between the industry telling us how damned safe all their petrochemically derived flavors and fragrances are while the medical industry wrings its collective hands over the "mystery" "epidemic" of various and sundry diseases, all of which started taking off in the 1970s when the major push happened in the fragrance industry taking it over into the petrochemical industry. OF course, along with that move was the development of petrochemically derived drugs. Those industries flourish. Public health tanks. While the major decision makers at CDC (remember they leave off the P for PREVENTION!), the FDA or the EPA won't give a rat's tutu about it. And now, we have, according to the email above, Oprah's O Magazine telling us that cosmetics, including perfumes were not toxic to humans.
And just so we are on the same page, by definition, my American Heritage dictionary explains TOXIC thusly:
Capable of causing injury or death, especially by chemical means; poisonous.
And because there have been deaths and considerable injury because of perfumes, I find them to definitely be toxic to humans, as well as life downstream.
IF you want more info, there's Betty's site, http://www.fpinva.org and the one I've donated to EHN at http://www.ehnca.org . . . especially, EHN's section of Fragrance Info http://users.lmi.net/~wilworks/ehnlinx/f.htm#Fragrance
Also, before it is blocked, you can go to this old GreenPeace UK site and print out a copy for your records. The Chemical Home has been closed, but I've just gotten it again through the WayBack Machine. That URL is:
Read the article, then please, if you are feeling up to it, please take the time to respond. Oprah should hear from us. The already fragranced poisoned.
FYI - even if you don't watch Law & Order, you might want to tomorrow night......See below.
Don R Paladin <sunergos@...> wrote:
To: wsmcsn@yahoogroups.com From: Don R Paladin <sunergos@...> Date: Mon, 5 Feb 2007 08:46:46 -0800 Subject: [WSMCSN] Fw: Your Work Made Television!
----- Forwarded Message ----- From: Stacey Gonzalez <sgonzalez@chej.org> To: <sunergos@juno.com> Date: Mon, 5 Feb 2007 06:20:44 -0800 (PST) Subject: Your Work Made Television! Message-ID: <4219733.1170685244461.JavaMail.root@localhost>
Dear Friends, Your work has made national television! Tune in to NBC tomorrow night, Tuesday, February 6th, at 10 pm EST to watch Law and Order: SVU.
This new episode, "Loophole" is a fictional story based on the CHEERS study, which each of you contributed to halting in its tracks. In the episode, a fictional chemical company tests several children and their families with a dangerous organophosphate pesticide. The show will deal with such issues as environmental injustices, inadequate pesticide regulation, and the lack of regulation and public awareness on the long term health impacts of toxic exposures.
Without each of you taking action and contributing to the national outcry to ban testing
pesticides on pregnant women and children, the immoral actions of EPA and pesticide companies would still be putting our most vulnerable at risk. Thank you for your great work.
In solidarity, Stacey Gonzalez Center for Health, Environment and Justice
In that section, there's plenty of information indicating years of knowledge about fragrance chemicals and asthma such as:
"Effects of Odors in Asthma"
Chang Shim, MD and M. Henry Williams, Jr., MD,
Pulmonary Division, Department of Medicine,
Albert Einstein College of Medicine, Bronx NY,
The American Journal of Medicine, Volume 80, January 1986.
In that study they "carefully distinguished between unpleasant emotional reaction to the odors and respiratory symptoms." In conclusion they wrote: "From a practical standpoint, sensitive asthmatic patients should be advised to eliminate odors from their environment as much as possible. They usually have done so on their own."
We have. But, in a scented workplace, in healthcare facilities . . . anywhere, we must breathe the air polluted by the superfluous fragrance chemicals used by others. -- barb http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=3079951&dopt=Abstract
Those who have visited that section on EHN's site have also seen the Cal Berkeley report that Dean Edell just made the news with tonight!
Air Resources Board and the University of California, Berkeley
*Household cleaners and air fresheners emit toxic pollutants
May 25, 2006, 12:33, Reviewed by: Dr. Priya Saxena
"Their results indicate that we need to look beyond the directly emitted compounds."
By UC Berkeley, When used indoors under certain conditions, many common household
cleaners and air fresheners emit toxic pollutants at levels that may lead to health risks,
according to a new study by researchers at the University of California, Berkeley, and
We all can keep ignoring the elephant in the room, or we all can describe one part of it and not know just what we are looking at (or feeling blindfolded) but the fact remains the elephant is in the room. And while we continue to ignore it, we are allowing the flavors and fragrance industry to continue spreading its poisons far and wide, which are quite definitely making people sick. The reasons are many. The mere fact that there has been little research -- until recently -- should heighten our desire to look seriously at petrochemical-derived fragrances for the role they play in asthma. (And other diseases, for that matter; but here, we deal with asthma.)
Since the 1970s, when the making of fragrances really took off as a petrochemical industry product, fragrances have spread in use. Not only have the numbers of fragrances products increased just in perfumes, but because they've been so much cheaper to make, and became more stable, they have been added to a greater variety of products. (Mother Nature always throws a curve with production . . . too hot, too wet, too dry, too cold; plus people factors such as wars, treaties and other trade agreements can throw a monkey wrench into supply and demand of nature's products.) So, as fragrances were cheaper to make and more stable, there was a natural proliferation of scents. But not only as perfumes. Fragrances are a major part of the household and janitorial cleaning and maintenace products business, which incudes such diverse items as pesticides, cleaners, detergents, and environmental enhancements like scented candles, air "fresheners" various sprays to mask odors, etc. There was a marketing push, the likes of which has only been met by the push for pharmaceuticals. The petrochemical industry has indeed been busy with it's derivatives. In essence (pun intended!) the industry has made products that make people sick and then has made products to help them over the hump of the latest illness.
But who wants to look at the idea of PREVENTION? Apparently only the already perfume-poisoned people. Alas, there just isn't the big money in preventive measures. Even the Dean Edell report tonight pussyfooted around the issue of simply purchasing safer alternatives.
Anyway, following are some numbers you may want to feast your eyes upon . . . and this is JUST perfumes. Look at the increase in only perfumes. Look at that jump in the 1970s when they really launched into making perfumes with petrochemical derivatives. Perfumes for men and women.
There is also a market geared to kids, but I don't have those figures. And there had been reports about fragrances targeting not just kids, but also African-Americans and Hispanics . . . these three demographics tend to be the ones leading the charts on Asthma. (Available through EHN under Statistics at http://users.lmi.net/~wilworks/ehnlinx/s.htm#Statistics
Go figger!
--
And then, one last comment before I again retire from the computer for a while . . .
The following is from a timeline of what we knew when about fragrances, which I created based upon info from the industry.
Let us look at the proliferation of perfumed products, based on information from The Fragrance Foundation®, Inc.
*1940 - 1950: 19 fragrances were introduced for women, four for men
*1950 - 1960: 30 fragrances introduced for women, six for men
*1960 - 1970: 46 fragrances introduced for women, 31 for men
*1970 - 1980: 197 fragrances introduced for women and 90 for men.
My tallies for the years 1980 - 1989 and 1990 - 1999 are based on the info provided by The Fragrance Foundation®, Inc.
*1980 - 1989: 281 fragrances introduced for women, 181 for men.
*1990 - 1999: 636 fragrances introduced for women, 309 for men.
*2000 -
Fragrance launches sources:
1940 - 2001 -- http://www.fragrance.org/launches1940_content.html . . . now, through the Wayback Machine at http://web.archive.org/web/20021228213050/http://www.fragrance.org/launches1940_content.html
2001 -- [Launches by name] http://www.fragrance.org/launches2001_content.html . . .
2006 - 260 women's perfumes launched in 2006 - 106 men's perfumes from http://www.fragrance.org/news.html
2007 -- Already, by Feb. 1, 2007 11 women's scents and one scent for men.
AND JUST CHECKING THE NIGHT OF VALENTINE'S DAY, Feb 14, 2007, there are now 50 women's scents and 22 men's scents released. See http://www.fragrance.org/news.html
Folks, I'd really like to see you all be able to do something with the info on fragrances even though I have not been able to spark the attention of various Asthma groups in the past . . . and certainly not the FDA nor the USA's American Lung Association. (Canada ALA does have good info on fragrances available. See EHN's section on Fragrance Info, above.)
barb wilkie
www.ehnca.org
==
-- barb and Connie of EHN
topic: fragrances including fabric softeners
archived on "Your Health Matters"
http://www.healthylife.net
It IS the combinations of chemicals,
states UC Professor Tyrone Hayes
in Oakland Tribune article about pesticides.
It IS the environment states
Breast Cancer Action and Breast Cancer Fund
in an Oakland Tribune article about breast cancer.
It IS the combination of fragrance chemicals,
as well as individual petrochemically derived chemicals,
state Betty Bridges, RN (FPIN) and Barb Wilkie (EHN)
since petitioning the FDA May 11, 1999.
Write to the FDA . . . tell them to protect your health
Forwarded...
Thank-you for your support of recognition of MCS as a physiological
condition. We ask for your help in one final show of support. Our
letters petitioning for recognition of MCS to the AMA, CDC, NIEHS, and
WHO have all been received by the agencies. We would now like to ask
the community to respond by contacting each agency to show your
support and ask for recognition by telephone, fax, mail, or e-mail.
Nothing will get attention like lots of calls. If you are willing and
able to help, I've provided all the contact information and a sample
script below for your convenience. I've tried to include "free" ways
to contact the organizations as much as possible via 800 numbers and
e-mail, however if you are able a printed letter would have some
impact as well. Thank you in advance for your support. We are still
accepting signatures for the accompanying community petition as well.
See www.mcs-america.org for more information. Permission granted to
forward this message.
Our petition Copies as Mailed:
www.mcs-america.org/FAMA.pdf
www.mcs-america.org/CDCL.pdf
www.mcs-america.org/CDCWA.pdf
www.mcs-america.org/NIEHS.pdf
www.mcs-america.org/WHO.pdf
Sample Script:
"Hi, my name is xxx and I'm calling in regards to the petition you
recently received from MCS America. I wanted to voice my support for
MCS recognition as a physical condition and ask what your plans are to
accommodated this request."
Contact Information:
Dr. William G. Plested, III, MD, President
Board of Trustees
American Medical Association
515 N. State Street
Chicago, IL 60610
312-464-5000
800-621-8335
http://webapps.ama-assn.org/contactus/contactusMain.do;jsessionid=212B6AAF3BD0FE\
F22DE7B04857CA232D
Dr. Julie Louise Gerberding, M.D., M.P.H., Director
Centers for Disease Control and Prevention
1600 Clifton Road
Atlanta, GA 30333
1-404-639-7000
1-800-311-3435
http://www.cdc.gov/netinfo.htm
Donald E. Shriber, JD, MPH, Director, CDC Washington
CDC Washington
200 Independence Avenue, SW, Room 746G
Washington, DC 20201
Phone: 202-690-8598
Fax: 202-690-7519
David A. Schwartz, M.D., Director
National Institute of Environmental Health Sciences
P.O. Box 12233, Research Triangle Park
NC 27709-2233
Phone: 1-919-541-3201
FAX: 1-919-541-2260
webcenter@...
Dr. Margaret Chan, Director-General
WHO Liaison Office in Washington
1889 F Street, N.W., Room 369
Washington, D.C. 20006
United States of America
Telephone: 1-202-974-3299
Facsimile: 1-202-974-3789
World Headquarters Office
Avenue Appia 20
1211 Geneva 27
Switzerland
Telephone: (+ 41 22) 791 21 11
Facsimile (fax): (+ 41 22) 791 3111
info@...
Daniel Epstein (Washington D.C., USA)
WHO Regional Office for the Americas
1-202-974-3459
epsteind@...
Thank You!
Bonita Poulin
Canadian Coordinator
GLOBAL RECOGNITION CAMPAIGN
Multiple Chemical Sensitivity
and other Chemically Induced Illnesses, Diseases & Injury
affecting civilians and military personnel
www.mcs-global.org
More coordinators needed!
[Non-text portions of this message have been removed]
--- End forwarded message ---
I have long used the phrase "secondhand scent" to describe what we face. Since "secondhand smoke" is a concept so well-understood by so many now, capitalizing on the concept already understood seems to be doing the trick in more easily getting people to understand that one person can have a negative impact on many people surrounding her/ him. Recently I put out that phrase to a man who works for a non-profit which pitches environmental issues as stories for media outlets. He got it immediately and I encouraged him to run with that phrase. I would encourage all of us to use it when we think it fits.
N.H. Smoking ban is only first step. A Telegraph Column By Joe Konopka
Published: Sunday, February 11, 2007
So then, a new law creating a smoking ban in New Hampshire is a virtual certainty under the Democratic-controlled legislature. That’ll make a lot of people happy, but why not take it one step further?
Now that passage is a foregone conclusion, it’s only logical to start working on the next phase, which is scent control. For those who don’t know, this is a smoldering problem.
For too long now, individuals who pollute the air with fragrance have discriminated against chemical-sensitive people. These victims need relief. The anti-smoking law is the starting point; it sets the precedent.
Surely, if the government can protect people from tobacco smoke, it can do the same for those who suffer from fragrance harassment. That’s only fair, isn’t it?
Consider for a moment the grief through which chemical-sensitive people go. The sickness from exposure to scents sometimes lasts for days. These effects can be so debilitating that the medical establishment is finally taking multiple-chemical sensitivity seriously. It had previously considered the condition a mental disorder. Now, it’s been recognized and established as an illness under the Americans with Disabilities Act.
Allergic reactions, migraines and asthma attacks can be triggered by chemical compositions in scented products. Indeed, the Asthma Society of Canada has listed perfumes as a symptom trigger for asthma. Some studies indicate scents can trigger asthma attacks in 72 percent of sufferers.
Certainly, the problem is being addressed in other vicinities. Halifax, Nova Scotia, is the leader in these efforts. In 2000 it banned the use of all scents from public buildings. Shortly thereafter, Gary Falkenham, a 17-year-old high-school student at the time, almost went to jail after an aroma-sensitive teacher complained that he’d repeatedly flouted the policy by wearing copious amounts of Dippity Doo hair gel and Aqua Velva deodorant.
Constable Scott Manning, the RCMP officer investigating criminal charges warned him, “If her [the teacher’s] reaction was severe enough, you could actually even look at an assault charge.”
The teenager was stunned. However, charges were dropped after the story became national news in Canada.
Regardless, in OttawaCity, Ottawa, similar action is being debated. Hospitals in St. John’s, Newfoundland, are also taking steps to ban scented products.
In the United States, the city counsel of Berkley, Calif., is working out the verbiage of a policy to help people who have multiple-chemical sensitivities. The city’s Commission on Disability stated some people may be “seriously harmed” by scented products. That’s important. This is one of the cutting-edge areas of the country in which smoking bans first originated.
Undoubtedly, some people still may wonder about medical evidence for chemical sensitivity. After all, there’s no direct proof that scented products cause the problems observed in victims. No one can point to a person and say for sure that a specific scented product triggered his or her asthma or allergic attack. The evidence is all statistical and circumstantial, but that’s no longer a disqualifier.
Claims against second-hand tobacco smoke are based on the same type of evidence. Anyone at the Cancer Society can tell you that evidence of its dangers is statistical. No one has ever provided empirical evidence conclusively proving that the death of any one individual was directly caused by second-hand smoke.
Instead, evidence was derived from studies of non-smokers who contracted smoking-related illness while extensively in the presence of someone who did smoke. With no other causation, the conclusion that second-hand smoke is to blame is based on scientific probability. Thus, in all fairness, that standard should be applied to chemical sensitivity.
Unfortunately, some of the same people who ardently pursue a smoking ban are dubious about chemical sensitivity. That may be attributable to the probability that they’re perfume abusers. It’s not so easy accepting responsibility for a health risk when it’s one’s own behavioral preference that must be eliminated.
Nevertheless, how would you like to be the person who goes into a restaurant and gets sick because a perfume abuser is in denial about chemical sensitivity? What about service industry employees who suffer from reactions to fragrance? Shouldn’t they be given the same consideration as those whom we protect from tobacco smoke?
Government should also protect those who walk by perfume counters, those who are victimized by odors of supermarket cleaning-supply isles, those office workers who are forced to tolerate the perfume abuse of their co-workers, and restaurant personnel who must endure combined odors. Aren’t these people entitled to equal protection under the law?
Thanks to the precedent set by the anti-smoking bill and ADA recognition, that’s now possible. This is an opportunity to rid the state of odorous concoctions before ADA lawsuits do so.
Let’s face the truth. Many airborne elements have the same carcinogenic properties as tobacco smoke. Yet, none spark condemnation more vociferously than tobacco smoke. Why?
Although supporters won’t admit it, I suspect the real reason tobacco smoke is being banned is because it stinks. Then again, if ban proponents really are driven by health concerns, why not be consistent and clear the air completely?
Joe Konopka is a technical writer who lives in Hudson. He can be reached at stonewillow@....
N.H. Smoking ban is only first step. A Telegraph Column By Joe Konopka
Published: Sunday, February 11, 2007
So then, a new law creating a smoking ban in New Hampshire is a virtual certainty under the Democratic-controlled legislature. That’ll make a lot of people happy, but why not take it one step further?
Now that passage is a foregone conclusion, it’s only logical to start working on the next phase, which is scent control. For those who don’t know, this is a smoldering problem.
For too long now, individuals who
pollute the air with fragrance have discriminated against chemical-sensitive people. These victims need relief. The anti-smoking law is the starting point; it sets the precedent.
Surely, if the government can protect people from tobacco smoke, it can do the same for those who suffer from fragrance harassment. That’s only fair, isn’t it?
Consider for a moment the grief through which chemical-sensitive people go. The sickness from exposure to scents sometimes lasts for days. These effects can be so debilitating that the medical establishment is finally taking multiple-chemical sensitivity seriously. It had previously considered the condition a mental disorder. Now, it’s been recognized and established as an illness under the Americans with Disabilities Act.
Allergic reactions, migraines and asthma attacks can be triggered by chemical compositions in scented
products. Indeed, the Asthma Society of Canada has listed perfumes as a symptom trigger for asthma. Some studies indicate scents can trigger asthma attacks in 72 percent of sufferers.
Certainly, the problem is being addressed in other vicinities. Halifax, Nova Scotia, is the leader in these efforts. In 2000 it banned the use of all scents from public buildings. Shortly thereafter, Gary Falkenham, a 17-year-old high-school student at the time, almost went to jail after an aroma-sensitive teacher complained that he’d repeatedly flouted the policy by wearing copious amounts of Dippity Doo hair gel and Aqua Velva deodorant.
Constable Scott Manning, the RCMP officer investigating criminal charges warned him, “If her [the teacher’s] reaction was severe enough, you could actually even look at an assault charge.”
The teenager was stunned. However, charges were
dropped after the story became national news in Canada.
Regardless, in OttawaCity, Ottawa, similar action is being debated. Hospitals in St. John’s, Newfoundland, are also taking steps to ban scented products.
In the United States, the city counsel of Berkley, Calif., is working out the verbiage of a policy to help people who have multiple-chemical sensitivities. The city’s Commission on Disability stated some people may be “seriously harmed” by scented products. That’s important. This is one
of the cutting-edge areas of the country in which smoking bans first originated.
Undoubtedly, some people still may wonder about medical evidence for chemical sensitivity. After all, there’s no direct proof that scented products cause the problems observed in victims. No one can point to a person and say for sure that a specific scented product triggered his or her asthma or allergic attack. The evidence is all statistical and circumstantial, but that’s no longer a disqualifier.
Claims against second-hand tobacco smoke are based on the same type of evidence. Anyone at the Cancer Society can tell you that evidence of its dangers is statistical. No one has ever provided empirical evidence conclusively proving that the death of any one individual was directly caused by second-hand smoke.
Instead, evidence was derived from studies of non-smokers who contracted smoking-related illness while extensively in the presence of someone who did smoke. With no
other causation, the conclusion that second-hand smoke is to blame is based on scientific probability. Thus, in all fairness, that standard should be applied to chemical sensitivity.
Unfortunately, some of the same people who ardently pursue a smoking ban are dubious about chemical sensitivity. That may be attributable to the probability that they’re perfume abusers. It’s not so easy accepting responsibility for a health risk when it’s one’s own behavioral preference that must be eliminated.
Nevertheless, how would you like to be the person who goes into a restaurant and gets sick because a perfume abuser is in denial about chemical sensitivity? What about service industry employees who suffer from reactions to fragrance? Shouldn’t they be given the same consideration as those whom we protect from tobacco smoke?
Government should also protect those who walk by perfume counters, those who are victimized by odors of supermarket cleaning-supply isles,
those office workers who are forced to tolerate the perfume abuse of their co-workers, and restaurant personnel who must endure combined odors. Aren’t these people entitled to equal protection under the law?
Thanks to the precedent set by the anti-smoking bill and ADA recognition, that’s now possible. This is an opportunity to rid the state of odorous concoctions before ADA lawsuits do so.
Let’s face the truth. Many airborne elements have the same carcinogenic properties as tobacco smoke. Yet, none spark condemnation more vociferously than tobacco smoke. Why?
Although supporters won’t admit it, I suspect the real reason tobacco smoke is being banned is because it stinks. Then again, if ban proponents really are driven by health concerns, why not be consistent and clear the air completely?
Joe Konopka is a technical
writer who lives in Hudson. He can be reached at stonewillow@....
Toni Temple of Ohio Network For the Chemically Injured has asked me to help her spread the word regarding this project. Please see the recent news releases below for information regarding this research project and how you might be able to get low cost testing done.
Please distribute this information to others who may have an interest.
Betty
FOR IMMEDIATE RELEASE
…NEWS FROM ONFCI
For Further Information Contact:
Toni Temple (440) 845-1888
AFFORDABLE TESTING
FOR LEAD & OTHER HEAVY METALS
AVAILABLE DURING RESEARCH
PROJECT
Cleveland, OH - The Environmental Quality Institute of the University of North Carolina at Asheville (EQI), Thermo Scientific NITON Analyzers, and the Ohio Network for the Chemically Injured (ONFCI), have joined forces to create an educational program in which the public will have an opportunity to participate and take advantage of low cost testing beginning in February, 2007.
This nationwide program will make it possible to have things such as soil samples, wood, children’s jewelry and lunchboxes, extracted teeth and plastics (including PVC) tested for $20 per sample.Each sample will be simultaneously analyzed for all of the 26 heavy metals using NITON X-ray fluorescence
technology.Arrangements can be made to have your intact sample returned.The Detect and Protect order form provides further details.
One of the objectives of the research is to understand the link between the existence of heavy metals in various media and health problems.Identification of the sources of the heavy metals appearing in the media can result in reduction or elimination of unnecessary exposures and can prevent unnecessary diseases or further injuries.
Toxicologist Dr. Jack D. Thrasher says, “Some heavy metals can
be safe at low levels yet pose serious health risks at higher levels.Elevated levels of copper and zinc can cause anemia, liver and kidney damage, decreased levels of good cholesterol, and skin disorders.”Thrasher further stated, “While many people are now aware that mercury and lead can cause damage to the nervous system, few know that hexavalent chromium is highly carcinogenic and deserves a word of caution.”Dr. Thrasher is on the advisory board of ONFCI, a not-for-profit organization.
For further information and to download a copy of the testing order form, go to the “Detect and Protect Project” link on our website at www.ohionetwork.org or call
(440) 845-1888.A copy of the application can also be obtained by sending a self-addressed stamped envelope to ONFCI, P.O. Box 29290, Parma, Ohio44129.An ABC news
segment showing the heavy metal detection equipment being used to test children’s jewelry can be found at www.abc2news.com/video/invest/06-11-20-lead-kids.swf .
From: "Ecology Center" To: Sent: Friday, February 02, 2007 2:41 PM Subject: West Berkeley Air Meeting
> Attend a community meeting next Wednesday, February 7th to discuss > Pacific Steel Casting Company's emissions from their plant in West > Berkeley. Please come with your concerns and questions! > > Wednesday, February 7, 2007 > > Community Meeting on Pacific Steel Casting > > Let the Berkeley Mayor and City Council know you want a stop to > Pacific Steel Casting's pollution! Our community deserves clean air & > environmental justice. It is important for residents to show up and > express their concerns about the ongoing pollution and violations at > PSC. If you smell the odor from PSC,
call to complain: 800-334-ODOR > and come to this meeting! Members of the West Berkeley Alliance for > Clean Air and Safe Jobs ( http://www.westberkeleyalliance.org/ ) > will be on hand. Other invitees include representatives from the Bay > Area Air Quality Management District, and Pacific Steel. > > Time: 7pm. > Location: West Berkeley Senior Center, 1900 6th St., @ Hearst, Berkeley. > Info: 415-248-5010. > > > -- > Beck Cowles > Information Program Manager > > Ecology Center > 2530 San Pablo Ave > Berkeley, CA 94702 > www.ecologycenter.org > 510-548-2220 x233 > > The Ecology Center is a membership organization providing > environmental information and direct services to promote sustainable > living and a healthy, socially just world. Please support this > community resource for the environment by becoming a
member or > making a donation. Support our work on-line at > http://www.ecologycenter.org/donate > >
Hi all,
Finally, some training for some medical people (see below).
Also, anyone here have information you might pass on about Ponesterase,
which is an enzyme people can be missing? When there it should help
metabolize toxins?
Thanks,
Maxina Ventura
----- Original Message -----
From: "Barbara Wilkie" <wilworks@...>
To: <wilworks@...>
Sent: Monday, January 29, 2007 12:07 PM
Subject: Fragrance Free! Creating a Safe Health Care Environment"
> With Janet Brown's permission, this may be shared far and wide . . .
>
> Best wishes,
> barb wilkie
> EHN president emerita
> www.ehnca.org
> ============
>
> NEWS FOR NURSES
>
> (And Other Health Professionals)
>
> NEW ONLINE COURSE FOR CE CREDIT FROM MNA:
> "Fragrance Free! Creating a Safe Health Care Environment"
>
> Course Description: Chemical fragrances may seem like a natural part
> of modern American life, but in fact, they are anything but natural.
> These petroleum-based products, many of which contain known
> carcinogens, are produced with virtually no regulation by the FDA,
> and their widespread use is turning the modern health care
> environment-and the rest of the world-into Chemical Soup. Fragrance
> Free! looks at the hidden costs of chemical fragrance use in the
> health care industry, including the growth of allergies
> and potentially debilitating conditions such as chemical sensitivity.
>
> The course discusses how to recognize the beginnings of chemical
> sensitivity, while offering alternatives to fragranced produces and common
> sense steps to reduce chemical fragrances in the health care environment.
>
> Introduction: Though we seldom give them much thought, fragrances pervade
> our lives. We wear perfumes and colognes to make ourselves more
appealing.
> We wash our clothes in scented detergents and household cleaning products
> are full of smell-pine and lemon, just to name two. But what goes into
> them? It turns out that most of these fragrances are synthetic chemicals,
> introduced into our environment with only minimal safety testing. Many of
> the ingredients of these chemical fragrances are known to have negative
> health effects. Respiratory and nervous system illnesses rise right along
> with the use of chemical fragrances.
>
> Learning Objectives: The goal of this program is to ensure a safe and
> therapeutic environment for both patient and nurse to interact in. The
> elimination of fragrance is a choice the nurse can make to help ensure a
> healthier environment for both patients and workers. On completion of
this
> program, you should be able to:
>
> 1. Identify the most common chemicals used in fragrance products
> 2. Identify adverse reactions to scented and fragrance products
> 3. Define the concept of the "Chemical Soup" in the air we breathe
> at
> work and at home
> 4. Describe steps that can be taken to reduce reactions in
> chemically
> sensitive people
>
> Accreditation: This online continuing nursing education activity is
> provided by the Massachusetts Nurses Association, which is accredited as a
> provider of continuing nursing education by the American Nurses
> Credentialing Center's Commission on Accreditation.
>
> Program Requirements: To successfully complete this program and receive
> contact hours, you must read the entire program, take and pass the
> Post-Test, and complete the Program Evaluation. To pass the Post-Test, you
> must achieve a score of 80% or above.
>
> Eligibility: Anyone can take the credit and convert to their disciplined
> area of study. (For example, LPNs are using it). The credits are good
> throughout the nation.
>
> NOTE: Congratulations to our own TIP Board member, Chris Pontus, M.S.,
> COHN-S, CCM, Health Educator with the Massachusetts Nurses Association,
for
> her hard work on preparing this course!
>
> TO ACCESS THE COURSE: To register go to http://www.courseserver.com/mna/
> and click on "REGISTER". The subscription code for members is mna001,
> non-Members is mna002, and students is mna003. Fill out all of the fields
> in the form and press submit. This information is also listed on the
> Massachusetts Nurses Association (MNA) website at
> www.massnurses.org/ce/onlineCE.htm For more information, contact the
> Division of Health and Safety at 781-830-5723.
> UPDATE: INDOOR ENVIRONMENTAL QUALITY -
> ACCESSIBILITY POLICIES FOR PUBLIC FACILITIES
>
> In cooperation with the RI Commission on Disabilities, TIP introduced
> legislation in 2006 to require the RI Dept. of Health to establish minimum
> accessibility standards for indoor environmental quality in public
buildings
> and necessary services. It would include fragrance-free policies,
cleaning
> products, pest control, low VOC materials, in hospitals, nursing homes,
> schools, day care, etc. Although the bill did not pass last year, we were
> able to obtain support for a Resolution addressing some of our concerns.
> Also, the RI Dept. of Health representative at the hearings mentioned an
> educational campaign as an option. We intend to follow up on that - if we
> can cooperate with DOH and others to inform health care professionals and
> the public about household chemicals and indoor air concerns, it would be
a
> great blessing! Our Hispanic Health Education initiative, below, has been
> the first step in a broader campaign for that purpose.
>
> HISPANIC/LATINO HEALTH EDUCATION INITIATIVE
>
> A Collaborative Effort to Provide Information to Spanish Speakers on
Toxics
> in Everyday Life & Healthier Alternatives
>
> Background: There is a lack of information and materials being provided
in
> Spanish to Rhode Islanders about the many toxic chemicals in everyday life
> and products and on healthier alternatives. Those who are not fluent in
> English are thus unaware of many factors that can affect their health and
> that of their families - and how to protect themselves.
>
> Strategy: At this time, we do not have available bilingual resource
people
> familiar with the concerns and information needed to carry out health
> education on this topic. Also, we believe that those already working in
the
> Hispanic community, especially those providing health-related services,
are
> the best persons to carry out this additional outreach. Therefore, it
> is
> our aim to provide to these workers the information and training they need
> to add toxics education to their programs. For this purpose we will:
>
> 1.Translate into Spanish or find through our research informational
> materials in Spanish about toxic chemicals in everyday life and products
and
> healthier alternatives - including cosmetics, cleaners and pesticides.
> Health problems connected with these substances, such as asthma, learning
> disabilities, allergies and cancer will be covered by the articles chosen.
>
> 2.Establish a relationship with several organizations providing health
> education and other services to Hispanics in RI and arrange to offer
> training for individuals working with them to offer toxics information as
> part of their programs. 3. Bring resource people from Massachusetts to
> assist with the training, and provide the RI organizations with the
> materials to use in their follow-up with their constituencies.
>
> Partners: We have called the RI DOH Office of Minority Health about this
> project, and they sent us a list of Minority Health Promotion Centers,
> highlighting those that serve significant numbers of Hispanics. We
> contacted the latter. Interest in receiving and offering this
environmental
> health information was expressed at Center for Hispanic Policy & Advocacy
> (CHISPA), Progreso Latino, Genesis Center and Women's & Infants Hospital
> (which does extensive training of various health professionals as well as
> educating Spanish-speaking clients). We are gratified by the response so
> far, and believe that several more organizations will become involved. We
> have already distributed some materials through these partners. We
> have
> spoken with people in several Massachusetts organizations that give
> presentations (some to Hispanics) on such topics as green cleaning, the
> Campaign for Safe Cosmetics, and pesticide concerns - including MA Clean
> Water Action, MA Breast Cancer Coalition & the Regional Environmental
> Council in Worcester. Indications are that they are willing to help us
with
> the proposed training in RI, subject to scheduling convenience and
personnel
> availability.
>
> Resources & Training: Interested health professionals, especially health
> educators and nurses, are invited to keep informed on the progress of this
> project and to receive resource materials when available. We expect to
form
> an ad hoc advisory group to help us determine details such as which
articles
> to translate, and the time, place and program for the training event.
>
>
> FOR FURTHER INFORMATION ON THESE PROJECTS, CONTACT LIBERTY GOODWIN, TIP
> DIRECTOR, AT: TEL. 401-351-9193, OR E-MAIL: liberty@...
>
> Janet Brown
> Partner Coordinator
> Hospitals for a Healthy Environment
> PO Box 3366
> Amherst, MA 01004
> 413/253-0254
> janet.brown@...
> www.h2e-online.org
>
> Janet Brown is a member of the Green Guide for Health Care (GGHC) Steering
> Committee. For more information, visit www.gghc.org.
> --
> --
> It IS the combinations of chemicals,
> states UC Professor Tyrone Hayes
> in Oakland Tribune article about pesticides.
>
> It IS the environment states
> Breast Cancer Action and Breast Cancer Fund
> in an Oakland Tribune article about breast cancer.
>
> It IS the combination of fragrance chemicals,
> as well as individual petrochemically derived chemicals,
> state Betty Bridges, RN (FPIN) and Barb Wilkie (EHN)
> since petitioning the FDA May 11, 1999.
> Write to the FDA . . . tell them to protect your health
> by regulating the flavors and fragrance industry.
> Put Docket Number 99P-1340 on your subject line.
> E-mail FDA Dockets at fdadockets@...
>
>
Here's a humorous little message by creative Berkeley locals on how they feel about pesticides, GMOs, and artificial additives in food... Check it out: www.mouthrevolution.com
Wednesday, January 31, 5:00 p.m.
Lindsay Wildlife Museum
1931 First Ave., Walnut Creek [map]
$10 | wenspeakerseriesjan07.eventbrite.com/
The Bay Area Women’s Environmental Network presents Sonya Lunder of the Environmental Working Group for a conversation about the links between cosmetics and cancer. Lunder will discuss harmful chemicals found in personal-care products and the steps that can be taken to remove them. Space is limited.
I have had really good luck with Ester-C with Bioflavonoids. I used Country Life for a long time, but started buying a lot of my vitamins on the Internet from VitaCost because they are so much cheaper. They don't have Country life so now I am getting Ester-C by Nutraceutical Sciences Institute. When I asked Dr. Shaw what was better (Ester-C or Buffered), he said it didn't matter, whichever I tolerated and liked. Ester-C is non-acidic just like buffered C.
Betty
K Kopp <k2books@...> wrote:
Hello Betty,
I have only been using the NutriBiotic Vitamin C 1000 mg with a pH of 2.1 . I am finishing off the bottle first before I buy the buffered one.
I have not tried any buffered Vit C yet. Thanks, Kristine
__________________________________________________________ We won't tell. Get more on shows you hate to love (and love to hate): Yahoo! TV's Guilty Pleasures list. http://tv.yahoo.com/collections/265
Hello Betty,
I have only been using the NutriBiotic Vitamin C
1000 mg with a pH of 2.1 . I am finishing off
the bottle first before I buy the buffered one.
I have not tried any buffered Vit C yet.
Thanks,
Kristine
--- BayCanaryGrapevine@yahoogroups.com wrote:
>
________________________________________________________________________________\
____
We won't tell. Get more on shows you hate to love
(and love to hate): Yahoo! TV's Guilty Pleasures list.
http://tv.yahoo.com/collections/265
February, 2007 will mark the third year we have endured chloraminated water. Although we all wish that the SFPUC would have done the right thing by admitting chloramination was a mistake, they instead chose to try to cover up their lack of due diligance in the performance of their duties by adding a chemical to our drinking water that has not been tested for human consumption. One could call it "chloramine gate". Citizens Concerned About Chloramine(CCAC) is not surprised at the way the SFPUC has handled this situiation, so we are continuing to work at higher levels of government. In late January,we are going to meet with Ira Ruskin to help draft another Assembly Bill dealing with chloramine.
Our website continues to improve and attract people from more
states. There are now chloramine groups in New York and Vermont. If you have not looked at the website, www.chloramine.org, in a while, I suggest you check it out again. We now have pictures of a chloramine rash that was only cured by rinsing it with bottled spring water. We have the "before" and "after" photos of this rash.
For those of you who live near enough to come to one of our meetings, here is our current calendar:
Pacifica meetings will be held on January 9 and Febuary 13,(Tuesdays) at 7PM at the main library at Palmetto and Hilton in Pacifica. One of the things we will be deciding is whether we want to change our meeting day to Wednesday. Please let me know if this would be more convenient to any of you. Thanks. I have made arrangements with the library to view "highlights" of SFPUC meetings we have attended. Refreshments are always served.
General CCAC meetings will be held on Wednesday, January 10 at 7PM at the Heritage Bake of Commerce
at 369 S.San Antonio Rd., Palo Alto, 94022, and on Tuesday, January 30 at 7PM at the Foster City Clubhouse, 763 Comet Dr.
This will be another busy year for us and we could really use more help. We especially need a Recording Secretary to write up agendas and minutes of our general meetings and a Corresponding Secretary to work with Denise in writing letters and sending information packets to elected officials, scientists and interested groups and individuals. You would not have to attend every meeting as most of the work can be done on the phone or by e-mail. We could also use someone who is good at fundraising or grant writing as we spend a lot of money for photocopies, envelopes, postage, etc.
Please contact me by email at lindacor@... or Denise by phone at (650) 328-0424 if you are interested in helping us. THANK YOU!