Hi all
I was reminded today that I have been neglecting this group...sorry!
Life gets in the way sometimes...I will attempt to do better!
Just a reminder that the next support group meeting is Jan 18th-it's a
Thursday again-so mark your calendars!
I hope everyone had a wonderful holiday season!
heather
ASA Applauds President Bush's Signing of Combating Autism Act Landmark bill provides nearly $1 billion for autism research and education
Bethesda, MD (12/19/2006) -- The Autism Society of America (ASA) sends its heartfelt thanks to President George W. Bush for signing S. 843, the Combating Autism Act, today. This critical legislation authorizes almost $1 billion through 2011 in federal funding for autism-related research, early detection and intervention.
After signing the Act, the President issued the following statement: "For the millions of Americans whose lives are affected by autism, today is a day of hope. The Combating Autism Act of 2006 will increase public awareness about this disorder and provide enhanced federal support for autism research and treatment. By creating a national
education program for doctors and the public about autism, this legislation will help more people recognize the symptoms of autism. This will lead to early identification and intervention, which is critical for children with autism. I am proud to sign this bill into law and confident that it will serve as an important foundation for our Nation's efforts to find a cure for autism. president bush signs combating autism act"
ASA President and CEO Lee Grossman expressed his gratitude to the President and all the members of Congress taking leadership on this effort. "This is only the beginning of ASA's commitment to ensure federal for autism is spent wisely and, in the most effective way," commented Grossman. "Now, we hope that Congress will get to work on a comprehensive services bill for individuals with autism, including reforming Medicaid-funding waivers, employment incentives, housing improvements,
job training and so much more."
ASA will work actively on the Hill in the 110th Congress to ensure further legislation for autism services, education, and environmental health.
S. 843, authored by Senators Santorum and Dodd, first passed unanimously in the Senate on August 3, 2006. The U.S. House passed an amended version on December 6, 2006. Key provisions of the bill include:
* Developing and implementing a strategic plan for research related to autism spectrum disorders;
* Reauthorizing Autism Centers of Excellence and providing funds to the centers for coordination of services and information for patients;
* Supporting basic and clinical research into the fields of developmental neurobiology, genetics, epigenetics, pharmacology, nutrition, immunology, endocrinology, gastroenterology, psychopharmacology, and toxicology;
* Improving coordination of the various federal, State, and
local supports and services available to persons with autism and families affected by autism;
* Increasing the number of providers that can screen, diagnosis and provide interventions to persons with autism; and,
* Promoting research to determine evidence-based best practices for diagnosis, early detection, prevention, intervention and possible/potential cure for autism spectrum disorders.
About Autism
Autism is a complex developmental disability that affects an individual in the areas of social interaction and communication. Autism is a spectrum disorder that affects each individual differently and to varying degrees of severity. As many as 1.5 million Americans - children and adults - are thought to have autism today.
About ASA
ASA is the oldest and largest grassroots organization within the autism community. Today, more than 100,000 members and supporters
are connected through a working network of nearly 200 chapters nationwide. ASA is dedicated to increasing public awareness about autism and the day-to- day issues faced by individuals with autism, their families and the professionals with whom they interact.
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From:BCautism@yahoogroups.com [mailto:BCautism@yahoogroups.com] On Behalf Of Heather Wheaton Sent: Tuesday, December 19, 2006
8:41 AM To:BCautism@yahoogroups.com Subject: [BCautism] our last
meeting
Hi All
For those of you who missed the Dec meeting, here is what we
did:
We had GF/CF food that everyone sampled. Recipes are
listed below if you want to try them.
We discussed an article about Autism from Scientific
American Magazine. www.sciam.com
We discussed ways to deal with our families during the
holidays, including brainstorming ideas about birthdays and opening presents.
Suggestions included opening presents after a party and sending pics of child
with gifts to the purchaser, having other kids help open gifts, not buying as
many gifts.
Basically we just talked about what was going on in our
lives...we missed those of you who couldn't attend. Hopefully you can make the
next meeting which will be Thursday, January 18, 2007.
Cut chicken breasts into 1 inch cubes. Cut each bacon slice
into thirds. Wrap each chicken cube with bacon and secure with a wooden pick.
Stir together brown sugar and chili powder. Dredge wrapped chicken in mixture.
Coat a rack and boiler pan with nonstick cooking spray. Place chicken wrap on
rack in broiler pan. Bake for 30-35 minutes or until bacon is crisp.
Cut Out Sugar Cookies
Ingredients
2 ½
cups GF flour mix
2
tsp Xanthan Gum
1
Cup Sugar
1
Cup CF Margarine
1
Egg
1
tsp baking powder
2
tsp Fruit juice
1
TBL vanilla
Combine
all ingredients and beat until well mixed. Wrap in plastic wrap or seal in a
plastic bag and chill until firm. Roll out the dough, half at a time, on a
floured surface. Cut out with cookie cutters of your choice and place 1"
apart on an ungreased sheet. Bake 6-10 minutes at 425 degrees until slightly
brown around the edges.
GF Chocolate Chip Cookies
Ingredients
1 ½
cups Garbanzo and fava bean flour
½
cup sweet sorghum flour
¼
cup arrowroot
1
tsp baking soda
1
tsp baking powder
2
tsp xanthan gum
1
tsp sea salt
½
cup sugar
½
cup brown sugar
1
cup CF margarine
2
eggs (I actually use ¾ cup applesauce)
1
tsp vanilla
12
oz chocolate chips
Combine
first 7 ingredients in a small bowl. Set aside
Cream
sugars and margarine until well blended. Beat in eggs (or applesauce) Add
Vanilla. Gradually add flour mixture and mix well. Stir in chips.
Drop
by rounded teaspoon on an ungreased baking sheet. Bake 8-10 minutes in a 375
degree oven. Cool on wire rack.
Puppy Chow
Ingredients
½
cup peanut butter
½
cup c/f margarine
6
oz gf/cf chocolate chips
10
cups Rice or Corn Crunch’Ems cereal
2
cups powdered sugar
Melt
peanut butter, margarine, and chocolate chips in a saucepan over medium heat.
Pour over cereal, being sure that all cereal is coated.
Put
2 cups powdered sugar in a large paper bag. Put cereal in bag and shake gently
until all cereal is coated. Pour out on wax paper to cool.
Vanilla Cookies
Ingredients
½ cup
powdered sugar
1/3 cup
granulated sugar
1/3 cup
margarine or shortening
1 egg
½
teaspoon salt
2
teaspoons vanilla
1 ½ cups
flour (gluten free)
1
teaspoon xanthan gum
1 ½ tsp
baking powder
1
tablespoon water (if necessary)
Preheat
oven to 325 degrees
Cream
together the sugars, shortening, egg, vanilla, and salt. Add flour, xanthan gum
and baking powder. Beat until the dough comes together-if necessary add the
water-and continue to mix until you can gather the dough into a ball. The dough
should have the consistency of very fresh play dough.
Roll the
dough into very small balls and flatten to a wafer with the bottom of a sugar
dipped glass or cookie stamp. Bake for 15 minutes until cookies are golden
brown.
For those of you who missed the Dec meeting, here is what we did:
We had GF/CF food that everyone sampled. Recipes are listed below if you want to try them.
We discussed an article about Autism from Scientific American Magazine. www.sciam.com
We discussed ways to deal with our families during the holidays, including brainstorming ideas about birthdays and opening presents. Suggestions included opening presents after a party and sending pics of child with gifts to the purchaser, having other kids help open gifts, not buying as many gifts.
Basically we just talked about what was going on in our lives...we missed those of you who couldn't attend. Hopefully you can make the next meeting which will be Thursday, January 18, 2007.
Cut chicken breasts into 1 inch cubes. Cut each bacon slice into thirds. Wrap each chicken cube with bacon and secure with a wooden pick. Stir together brown sugar and chili powder. Dredge wrapped chicken in mixture. Coat a rack and boiler pan with nonstick cooking spray. Place chicken wrap on rack in broiler pan. Bake for 30-35 minutes or until bacon is crisp.
Cut Out Sugar Cookies
Ingredients
2 ½ cups GF flour mix
2 tsp Xanthan Gum
1 Cup Sugar
1 Cup CF Margarine
1 Egg
1 tsp baking powder
2 tsp Fruit juice
1 TBL vanilla
Combine all ingredients and beat until well mixed. Wrap in plastic wrap or seal in a plastic bag and chill until firm. Roll out the dough, half at a time, on a floured surface. Cut out with cookie cutters of your choice and place 1" apart on an ungreased sheet. Bake 6-10 minutes at 425 degrees until slightly brown around the edges.
GF Chocolate Chip Cookies
Ingredients
1 ½ cups Garbanzo and fava bean flour
½ cup sweet sorghum flour
¼ cup arrowroot
1 tsp baking soda
1 tsp baking powder
2 tsp xanthan gum
1 tsp sea salt
½ cup sugar
½ cup brown sugar
1 cup CF margarine
2 eggs (I actually use ¾ cup applesauce)
1 tsp vanilla
12 oz chocolate chips
Combine first 7 ingredients in a small bowl. Set aside
Cream sugars and margarine until well blended. Beat in eggs (or applesauce) Add Vanilla. Gradually add flour mixture and mix well. Stir in chips.
Drop by rounded teaspoon on an ungreased baking sheet. Bake 8-10 minutes in a 375 degree oven. Cool on wire rack.
Puppy Chow
Ingredients
½ cup peanut butter
½ cup c/f margarine
6 oz gf/cf chocolate chips
10 cups Rice or Corn Crunch’Ems cereal
2 cups powdered sugar
Melt peanut butter, margarine, and chocolate chips in a saucepan over medium heat. Pour over cereal, being sure that all cereal is coated.
Put 2 cups powdered sugar in a large paper bag. Put cereal in bag and shake gently until all cereal is coated. Pour out on wax paper to cool.
Vanilla Cookies
Ingredients
½ cup powdered sugar
1/3 cup granulated sugar
1/3 cup margarine or shortening
1 egg
½ teaspoon salt
2 teaspoons vanilla
1 ½ cups flour (gluten free)
1 teaspoon xanthan gum
1 ½ tsp baking powder
1 tablespoon water (if necessary)
Preheat oven to 325 degrees
Cream together the sugars, shortening, egg, vanilla, and salt. Add flour, xanthan gum and baking powder. Beat until the dough comes together-if necessary add the water-and continue to mix until you can gather the dough into a ball. The dough should have the consistency of very fresh play dough.
Roll the dough into very small balls and flatten to a wafer with the bottom of a sugar dipped glass or cookie stamp. Bake for 15 minutes until cookies are golden brown.
The Autism Spectrum Disorder Support group will meet on Thursday, December 14th at Doris Klaussen Developmental Center from 6:00 to 7:30 pm. All adults who are interested in obtaining information, education and support regarding this disorder are welcome to attend. The support group is designed to assist parents with children diagnosed with this disorder. For additional information and to RSVP, please call Shannon at 964-2136, ext 231. The group is sponsored by the CISD School Social Workers.
Please bring your child/families favorite snack (and recipe) as this will be a Holiday Recipe Sharing activity. We will compile these recipes and distribute at the January meeting.
We will have childcare set up for the meeting. Please RSVP to let me know how many children we will need to plan for. This will be on a first come, first serve basis and space may be limited. It is very important that you RSVP to Shannon Porter @ 964-2136 extension 231or porters@..., by Wednesday, December 13th, if this service is needed!
Cyd passed this article along to me, while I don't do the Body Ecology Diet with my kids, it is interesting to see their viewpoint on whole grains. Enjoy!
Body Ecology Diet
...recovering your health, rebuilding your immunity.
Most of the mainstream focus with carbs has been on how they affect your weight. However, there are more reasons than weight for deciding which carbs to include in your diet.
The fact is, just like the controversy over "good" and "bad" fats, we see certain carbs as good or bad and it's the type of carbs that matters the most.
Low carb diets had been "in" for years until recently, and so by now maybe you consider yourself an expert on why they aren't good for you. Yet most people still consume a high carb diet, and current market research is showing that the low-carb craze has passed.
Your morning bowl of cereal could be harming your health!
At Body Ecology we take a different slant on the carb issue, and I'd like to share this with you. So lets quickly review what you probably already know and then I'll explain some things I hope you will find fascinating, as I do.
Carbohydrates are made up of sugars, both simple and complex. Refined sugars digest immediately (and therefore the term, "sugar high".) Because digestion of refined sugars is so immediate (and there are no balancing minerals) your blood almost immediately becomes too acidic.
That burst of energy that feels so great is soon followed by a "sugar low" … your energy slides way downhill and can even bottom out completely. Roller coaster rides like this affect your behavior, your power to think and focus, your emotions and even your willpower and ability to accomplish. Is it worth it?
For me, it's not. My energy is too precious and I try to protect and actually increase it each day.
Why Not To Eat High-Carb Grains, Grain-Based Products AND Even Whole Grains
Grains, breads, flour products and pasta can actually damage your digestive system and feed pathogenic bacteria and yeast.
Flour products are mucus-forming and are basically "glue-like" in your intestines. Since most of the beneficial fiber has been removed from flour products like cookies, donuts, pasta and today's modern bread, they move slowly through your digestive system. With their sticky, glue-like consistency, they literally "gum up" your intestines.
These foods are also very dehydrating. Besides causing constipation, they help you create a toxic environment that is attractive to pathogenic microorganisms like yeast. Please note, I said, "help you create," because it is you doing the choosing and the eating.
While sugar and flour are the most damaging to your colon, even the unrefined "whole" grains that we've been told are "healthy" can wreak havoc on your health.
Whole grains like wheat, barley, rye, oatmeal, spelt and rice are acid-forming. They have a lot of sugar in them. Pathogens (yeast, viruses and parasites) find them to be very sweet foods and thrive on them. The Body Ecology Diet is an antifungal diet, so these grains are strictly avoided if you have a yeast or fungal infection (and it is believed that eight out of ten Americans do have a fungal infection.)
But there's another problem with most grains. Wheat, barley, rye, oats and spelt all contain gluten. (Rice is gluten free.). Today 1 out of every 133 Americans has a negative reaction to these gluten grains and are said to be "gluten intolerant." Even worse is a condition called celiac sprue.
The Body Ecology Diet is totally gluten-free. It is perfect for anyone with gluten intolerance or Celiac including the millions of children with autism.
Are millions of people in the US really gluten intolerant or do they simply lack "grain loving" microflora that can digest gluten foods? Are they lacking digestive enzymes to digest grains? Are the grain-based foods they are eating the wrong foods? The Body Ecology Diet helps answer these questions and solve these problems while still providing you many fiber-rich foods.
It All Starts With Your Inner Ecosystem Just as the Earth has ecosystems that regulate survival and balance, our bodies have an inner ecosystem - and our inner ecosystem must be healthy if we want to thrive, not just survive.
A healthy human intestinal ecosystem (inner ecosystem) is made up of the friendly microorganisms (microflora) that reside in our intestines and keep us healthy and strong. These microflora work to protect us by digesting our foods, strengthening our immune systems, guarding us from parasites and other pathogens in our foods. They literally make vitamins (Bs and K) right down inside us, and they do so much more.
Unfortunately, many people take drugs and lead overly-stressful lifestyles. They eat high- sugar foods and foods that are processed and fried. They take in the wrong kind of fats and oils and the animal proteins are overcooked.
With deficient amounts of digestive enzymes they still try to digest all of these foods, yet most don't yet understand the role of the inner ecosystem and have not made any effort to establish or maintain one. Most people live with "gut dysbiosis" that makes us intolerant to most grains.
Healthy Carbs … The Body Ecology Way
On the Body Ecology system of health and healing there are four grain-like seeds that are encouraged: millet, quinoa ( keen-wa), amaranth and buckwheat.
These seeds are very ancient foods used by man for thousands of years. In fact, buckwheat (not related to wheat at all) and amaranth are thought to have been cultivated about 6000 years ago.
Quinoa was revered by the Incas who are said to have been the greatest agriculturists of all times. Millet is an ancient grain brought to America by African slaves. They are amazing foods and are gluten-free, high in protein and high in fiber. While these grains may not yet be familiar to you, they are readily available in health food stores and some supermarkets.
The grain-like seed amaranth is very palatable, easy to good, versatile and can be a healthy part of your diet.
Here is some more essential details on each:
Amaranth - contains B vitamins, calcium, iron and Vitamin C. Amaranth may help lower cholesterol.
Buckwheat - rich in flavonoids like rutin and a good source of magnesium, buckwheat is good for your cardiovascular system. It's a valuable food for those with diabetes, as it can be helpful for regulating blood sugar.
Millet - a good source of manganese, phosphorus, and magnesium, millet is beneficial for your heart.
Quinoa - a good source of manganese, magnesium, iron, copper, phosphorous, and riboflavin (B2). Quinoa may be helpful if you have migraines, diabetes or atherosclerosis.
Millet, quinoa and amaranth are alkaline-forming, while buckwheat is acid-forming. Acid-forming is not necessarily "bad." Please don't think good or bad when it comes to acid and alkaline, think balance.
Ideally a Body Ecology meal might have about 20% acid-forming foods like animal proteins or buckwheat combined with 80% alkaline-forming foods like vegetables, ocean vegetables and cultured vegetables. However, at times when you are too toxic and very acidic, meals that are 100% alkaline-forming will work best for you.
Overall Benefits of Body Ecology Grains These seed-like grains are very nutrient-dense and act as antioxidants. Besides being a significant source of proteins and minerals they contain B vitamins. They help your body make serotonin which makes you feel happier while providing a calming, soothing effect on your nervous system.
This is one of the reasons we recommend a dinner meal consisting of these grain-like seeds combined with a wide variety of vegetables, ocean vegetables and cultured vegetables. These foods are all easily digested and will help make you feel sleepy at bedtime.
Did you know that eating grain-like seeds (and even whole grains that are properly digested) can help balance your hormones? They contain fiber to help sweep excess environmental estrogens (xeno-estrogens) from your intestines so they can't be reabsorbed. One of the many roles of beneficial microflora is to also help regulate hormones in the gut.
Preparing Grains It is always recommended that you soak any grains or grain-like seeds for a minimum of 8 hours. 24 hours is even better. Grains have phytic acid in them (as do nuts, beans and other seeds) that makes them difficult to break down in your digestive system. Since most people have weak digestive systems, eating grains without soaking them could cause symptoms of digestive upset. And as you are already learning, improper digestion leads to a toxic body.
Trouble Digesting Grains? As mentioned above, poor digestion of grains and gluten intolerance is common when your inner ecosystem lacks the "grain-loving" microflora to digest them. Understanding the value of fermented foods, I found a product that would help solve this problem…and it is now a staple in my own kitchen.
BE Wholegrain Liquid is a wonderful probiotic liquid (to be taken like a supplement, not like a beverage that you drink in full) made with a variety of whole grains that are fermented with friendly bacteria and the beneficial yeast Sacchromyces Boulardii. Buckwheat, millet - and even wheat, oats and rice - are fermented together to make this wonderful product.
In BE Wholegrain, the hard-to-digest protein structure of the grains is broken down for you so you can receive the benefits of the grains and the probiotics.
BE Wholegrain Liquid provides the "grain loving" microflora that help you digest gluten, plus it provides you with probiotics that are essential to a healthy immune system.
IMPORTANT NOTE: I also often put a few spoonfuls of a fermented liquid like BE Wholegrain into my grains (and grain-like seeds) when I soak them. I let them soak longer than usual (36 - 48 hours). The microflora in the soaking water softens the grains even more. You'll find your grains and grain-like seeds even easier to digest this way. You might want to try this if your digestion is very sensitive or if you are introducing the grain-like seeds to your baby.
Even though some of the ingredients in the BE Wholegrain contain gluten prior to fermenting, fermentation breaks apart the gluten. Many people find that they greatly benefit from the BE Wholegrain since the microflora have altered the grains, restructuring the gluten protein to make it more digestible.
After about ten days on this probiotic liquid you may also find yourself tolerating all grains better than ever before...even those grains containing gluten. I personally find one must be on fermented beverages and cultured veggies to really benefit from eating grain foods for as long as they live. Otherwise true grains should be avoided in your diet.
Besides being a great digestive aid, BE Wholegrain Liquid is also rich in B vitamins and therefore has a calming effect on you. We often combine it with sparkling mineral water and stevia for a healthy alternative to soda pop. It is very popular with our children in our BEDROK group.
When to Add Other Grains Back into Your Diet Once your inner ecosystem is healed, you may want to start adding whole grains back into your diet.
I recommend avoiding wheat products for good, however. Hopefully, you won't even want them. Today's wheat is nothing like the ancient wheat of long ago. No one seems to do well on it. If this seems impossible because you and your family are practically living off wheat-based foods right now, try a short-term experiment. Go ten days without it and see how you feel. Then add it in and decide if it's right for you.
Make sure to prepare all grains properly as note above, in order to aid your digestion. And include fermented foods and drinks to give your inner ecosystem the boost it needs to keep you in balance!
A FINAL NOTE: Are Vegetables Carbohydrates?
At Body Ecology we don't think vegetables should be in the same category as grains or seeds. They need to be in their own separate category simply called "vegetables."
We do define them as starchy or non-starchy, however. We also label them as coming from the ocean or grown on land. Yes, vegetables do contain some sugars, but they are alkaline-forming in the body and contain lots of important vitamins and minerals.
Certain veggies like beets and sweet potatoes become very sweet when baked. (They are not so sweet if eaten raw.) Since the Body Ecology diet is an antifungal diet, we avoid the very sweet vegetables if they are cooked until the inner ecosystem is well-established and the beneficial microflora are thriving inside your intestines. The microflora then consume the sugar.
We also always include fermented foods, like cultured veggies, to help digest all the natural sugars in that meal. You won't find a more well-thought-out or complete way of eating than The Body Ecology Diet.
NEW YORK, Dec. 6 /PRNewswire/ -- Leadership of Autism Speaks and Cure Autism Now, nonprofit organizations dedicated to increasing awareness of autism and raising money to fund autism research, today applauded the passage in the United States House of Representatives of the Combating Autism Act (S. 843). The bill authorizes nearly 1 billion dollars over the next five years to combat autism through research, screening, early detection and early intervention. The new legislation will increase federal spending on autism by at least 50 percent. It includes provisions relating to the diagnosis and treatment of persons with Autism Spectrum Disorders, and expands and intensifies biomedical research on autism, including an essential focus on possible environmental causes. Autism is now diagnosed in 1 in 166 children according to the Centers for Disease Control.
"This bill is a federal declaration of war on the epidemic of autism," said Jon Shestack, co-founder of Cure Autism Now. "It creates a congressionally mandated roadmap for a federal assault on autism, including requirements for strategic planning, budget transparency, Congressional oversight, and a substantial role for parents of children with autism in the federal decision-making process."
"By passing this landmark single-disease legislation, the House has recognized the daily plight of the thousands of families struggling every day with autism, and has once and for all acknowledged autism as a national healthcare crisis," said Bob Wright, co-founder of Autism Speaks and chairman and CEO of NBC Universal. "We now must get the bill to the President's desk as soon as possible."
The Senate bill was sponsored by Senators Rick Santorum (R-PA) and Christopher Dodd (D-CT). The House version was brought to the House floor by Congressman Joe Barton (R-TX), Chair of the House Committee on Energy and Commerce. A companion bill was originally introduced in the House of Representatives by Congresswomen Mary Bono (R-CA) and Diana DeGette (D-CO). The bill has the support of all major autism advocacy groups.
The bill was originally passed in the Senate in August 2006. The House version differs slightly from the Senate version, directing funds for research to the Secretary of Health and Human Services, rather than directly to the National Institutes of Health. Senate passage of the revised bill is expected swiftly.
About Autism
Autism is a complex brain disorder that inhibits a person's ability to communicate and develop social relationships, and is often accompanied by extreme behavioral challenges. Autism Spectrum Disorders are diagnosed in one in 166 children in the United States, affecting four times as many boys as girls. The diagnosis of autism has increased tenfold in the last decade. The Centers for Disease Control and Prevention have called autism a national public health crisis whose cause and cure remain unknown.
In regards to the bringing your favorite treat and recipe, if there
is anything gf/cf that you would like to try, let me know and I will
see if I can make it. Most foods can be converted, but I don't know
what other kids like to eat=)
heather
--- In BCautism@yahoogroups.com, "Cindy" <cyd.deane@...> wrote:
>
> Hello all! Here are the notes from our last meeting:
>
> We discussed toy ideas and online sites to check out for the
holiday
> gift giving season.
>
> Here are some suggested sites:
>
> www.specialneedstoys.com
> www.specialkidszone.com (Achievement Products - 1-800-373-4699)
> www.arktherapeuticservices.com
> www.autismgear.com
> www.discoverytoysinc.com (Also talk with Shannon Haywood from our
> group - she is a distributor and you can order from her)
>
> OUR NEXT MEETING IS....
>
> DECEMBER 14, 6:00 P.M.
>
> Bring your favorite treat and recipe - this will be a fun
holiday
> meeting! We will have a little time with just the adults, then
join
> with the kids - please remember to let Shannon Porter know if you
> will need childcare!
>
> Cyd
>
Seriously, it is always nice to hear that an idea works for a student. Thank
you for the positive feedback. I use a chart for Grey (Grey is neuro typical
but he gets the full behavioral treatment - poor kid) at home and it helps us a
lot. I am lucky that I don't have to use pictures anymore (I used to draw them
myself and that was a sight). Grey earns nickels. I hope to make him a
millionaire by the time I retire so he can support me in my old age. He
currently has more cash than his mother at any given time - nickels add up!
Tresia Gillett
Teacher Consultant for students with Autism Spectrum Disorder
gillettt@...
441-1868
________________________________
From: BCautism@yahoogroups.com on behalf of Porter, Shannon
Sent: Tue 11/28/2006 8:33 PM
To: BCautism@yahoogroups.com; BCautism@yahoogroups.com
Subject: RE: [BCautism] Behavior Chart
She is a genius. The guru! Seriously though, she has been a great help and
educator to me as well!
Shannon L. Porter, L.M.S.W.
School Social Worker
________________________________
From: BCautism@yahoogroups.com on behalf of Gillett, Tresia
Sent: Tue 11/28/2006 6:41 PM
To: BCautism@yahoogroups.com
Subject: RE: [BCautism] Behavior Chart
That Tresia must be a genius!
Tresia Gillett
Teacher Consultant for students with Autism Spectrum Disorder
gillettt@... <mailto:gillettt@...>
441-1868
________________________________
From: BCautism@yahoogroups.com on behalf of kimprater@...
Sent: Tue 11/28/2006 11:34 AM
To: BCautism@yahoogroups.com; sheri.marvin@...
Subject: [BCautism] Behavior Chart
Hi Everyone,
We have been struggling with daily activities with Emily and Christy at home. I
have been feeling that I have to constantly threaten Emily to get her to do
something. For instance threaten that she won't go on the school field trip if
she doesn't brush her teeth. Emily loves to brush her teeth, so I knew it was
just a matter of how I asked her. After talking with Tresia at her school
conference, which I was so thankful she was there!, we decided creating a
visual/chart for Emily will help. Mind you, Tresia has been telling me this for
years, but I finally got to a place where I needed it! Now I work with Emily to
accomplish her task to get stickers on the chart and do not have to threaten to
remove fun activities or punish her. It has helped and of course her sister has
her own chart too! Attached is Emily's weekday chart. I created it on Microsoft
Publisher so I could easily add pictures.
Kim
From: BCautism@yahoogroups.com on behalf of kimprater@... Sent: Tue 11/28/2006 11:34 AM To: BCautism@yahoogroups.com; sheri.marvin@... Subject: [BCautism] Behavior Chart
Hi Everyone,
We have been struggling with daily activities with Emily and Christy at home. I have been feeling that I have to constantly threaten Emily to get her to do something. For instance threaten that she won't go on the school field trip if she doesn't brush her teeth. Emily loves to brush her teeth, so I knew it was just a matter of how I asked her. After talking with Tresia at her school conference, which I was so thankful she was there!, we decided creating a visual/chart for Emily will help. Mind you, Tresia has been telling me this for years, but I finally got to a place where I needed it! Now I work with Emily to accomplish her task to get stickers on the chart and do not have to threaten to remove fun activities or punish her. It has helped and of course her sister has her own chart too! Attached is Emily's weekday chart. I created it on Microsoft Publisher so I could easily add pictures.
That Tresia must be a genius!
Tresia Gillett
Teacher Consultant for students with Autism Spectrum Disorder
gillettt@...
441-1868
________________________________
From: BCautism@yahoogroups.com on behalf of kimprater@...
Sent: Tue 11/28/2006 11:34 AM
To: BCautism@yahoogroups.com; sheri.marvin@...
Subject: [BCautism] Behavior Chart
Hi Everyone,
We have been struggling with daily activities with Emily and Christy at home. I
have been feeling that I have to constantly threaten Emily to get her to do
something. For instance threaten that she won't go on the school field trip if
she doesn't brush her teeth. Emily loves to brush her teeth, so I knew it was
just a matter of how I asked her. After talking with Tresia at her school
conference, which I was so thankful she was there!, we decided creating a
visual/chart for Emily will help. Mind you, Tresia has been telling me this for
years, but I finally got to a place where I needed it! Now I work with Emily to
accomplish her task to get stickers on the chart and do not have to threaten to
remove fun activities or punish her. It has helped and of course her sister has
her own chart too! Attached is Emily's weekday chart. I created it on Microsoft
Publisher so I could easily add pictures.
Kim
We have been struggling with daily activities with Emily and Christy at home. I have been feeling that I have to constantly threaten Emily to get her to do something. For instance threaten that she won't go on the school field trip if she doesn't brush her teeth. Emily loves to brush her teeth, so I knew it was just a matter of how I asked her. After talking with Tresia at her school conference, which I was so thankful she was there!, we decided creating a visual/chart for Emily will help. Mind you, Tresia has been telling me this for years, but I finally got to a place where I needed it! Now I work with Emily to accomplish her task to get stickers on the chart and do not have to threaten to remove fun activities or punish her. It has helped and of course her sister has her own chart too! Attached is Emily's weekday chart. I created it on Microsoft Publisher so I could easily add pictures.
We have been struggling with daily activities with Emily and Christy at home. I have been feeling that I have to constantly threaten Emily to get her to do something. For instance threaten that she won't go on the school field trip if she doesn't brush her teeth. Emily loves to brush her teeth, so I knew it was just a matter of how I asked her. After talking with Tresia at her school conference, which I was so thankful she was there!, we decided creating a visual/chart for Emily will help. Mind you, Tresia has been telling me this for years, but I finally got to a place where I needed it! Now I work with Emily to accomplish her task to get stickers on the chart and do not have to threaten to remove fun activities or punish her. It has helped and of course her sister has her own chart too! Attached is Emily's weekday chart. I created it on Microsoft Publisher so I could easily add pictures.
Just a reminder:
The next local Autism Society of America meeting is Dec 5, 2006.
Social hour begins at 6:15 and the meeting starts at 6:30pm.
Topic:
Discussing Legal Issues
If you need directions or want child care for the meeting, please let
me know!
heather
A Terrible Mystery New clues and new questions in the hunt for a cause.
By Mary Carmichael Newsweek
Nov. 27, 2006 issue - Thomas Insel spent years training as a psychiatrist in the 1970s, and in all that time he saw not one child with autism. In 1985, curiosity sent him searching; it took several phone calls to find a single patient. His only prior exposure to the disorder was a lecture in which Bruno Bettelheim "explained that it was due to evil mothers." The '70s were, he says, "an era of psychiatry that had no science."
Today's psychiatry has science—and it is science—and increasingly, it is offering hope for patients with autism. As director of the National Institute of Mental Health, Insel now heads an agency that funds autism research all over the nation and also conducts projects of its own. Thanks to revolutions in neuroscience and genetics, scientists are starting to unravel the shroud of mystery that has hung over autism since it was first described in 1943. But with each new discovery, more questions arise.
That includes the most fundamental question of all: what is autism? Although the basic symptoms are well defined, researchers are now trying to categorize the secondary ones, a suite so varied that Insel's colleagues have started referring to the disease as "autisms." Some children with the disorder never speak. Others "are so fluent that you can't shut them up," says Sarah Spence, a pediatric neurologist at the NIMH. About 20 percent of kids with autism hit early developmental milestones but regress around 15 to 18 months; the rest don't make it that far. What binds them all together is largely unclear.
But autism is known to be highly heritable, and last month, in what was viewed as a major breakthrough, Vanderbilt University's Pat Levitt identified the first common gene that plays a role. The MET gene helps build the brain in utero and in childhood. A faulty variant appears in 47 percent of the population, the vast majority of whom are healthy—but a child who carries that variant also carries more than double the risk of the disease. Another, rarer gene, also implicated in brain development, was identified in August, and mutations on almost every chromosome have been suggested as possible culprits, including some implicated in rare disorders related to autism, such as Rett's Disorder and Fragile X. "There are perhaps hundreds of different causes, and I think the field is finally coming to grips with that," says UCLA neurogeneticist Dan Geschwind.
The NIMH is also newly interested in environmental factors that might set off the disorder in patients who are already genetically prone to it. U.S. scientists recently teamed up with counterparts in Denmark and Norway to screen samples of blood and amniotic fluid for possible toxins. And research is underway to see if viruses might be involved.
Scientists have also recently found several regions of the brain that differ from the norm in patients with autism, but none of them appears to be the sole problem. The key to the disorder likely lies not in one region but in the way the brain is wired. Some researchers pin the problem on defects in the brain's decentralized "mirror neuron" network, which allows healthy people to feel empathy. Other work shows that distant parts of the autistic brain are connected by too few fibers, while areas close to each other are connected by too many, tangled in thickets of "white matter."
The ultimate goal of all the research is to find not just a cause but a cure. Early behavioral therapy can produce stunning results, and parents have embraced it—the intensive clinic at UCLA has an 18-month waiting list. Still, says Insel, "it's hard to imagine that with a disease this disabling there's been nothing but behavioral treatments." Although few drug companies conducted promising trials this year, researchers are studying the antibiotic minocycline, the maternal hormone oxytocin, the drug Ecstasy, and a host of other candidates. The NIMH has also just begun a trial of chelation, a process that draws heavy metals out of the body. The therapy is popular among parents who maintain that mercury from vaccines prior to 1999 plays a role in autism—despite scientists' assurances that it doesn't. "The hypothesis is difficult to support," says Susan Swedo, the NIMH's chief of pediatrics and developmental neuropsychology. "But the anecdotal evidence is overwhelming. If this works, I want to know why." Thousands of scientists, parents and patients do too.
Hello all! Here are the notes from our last meeting:
We discussed toy ideas and online sites to check out for the holiday
gift giving season.
Here are some suggested sites:
www.specialneedstoys.com
www.specialkidszone.com (Achievement Products - 1-800-373-4699)
www.arktherapeuticservices.com
www.autismgear.com
www.discoverytoysinc.com (Also talk with Shannon Haywood from our
group - she is a distributor and you can order from her)
OUR NEXT MEETING IS....
DECEMBER 14, 6:00 P.M.
Bring your favorite treat and recipe - this will be a fun holiday
meeting! We will have a little time with just the adults, then join
with the kids - please remember to let Shannon Porter know if you
will need childcare!
Cyd
Reviewing An Activity Book for Teaching Autistic Children
_Bonnie Sayers_
(http://www.bellaonline.com/about/AutismSpectrumDisorders)
Winter vacation is around the corner and most likely your child who
is on
the low functioning end of the autism spectrum is not going to be
busily
playing with their new toys they received as holiday gifts. The
focus of their
attention could be directed at the box or wrapping paper.
I first learned of this book, Recipe Handbook Of Easy To Use
Activities For
Teaching Autistic Children And Children With Autism Spectrum
Disorders And
Other Learning Disabilities while at the _Los Angeles CAN Resource
Fair_
(http://www.bellaonline.com/articles/art42519.asp<BR>) written by
Barbara Bazeghi
and available through _Reach Publications.
_
(http://img.photobucket.com/albums/v606/autismfamily/recipehandbookfo
rautisticchildren.jpg)
I had mentioned this would be suitable for summer vacation use and
now
adding my recommendation after purchasing this spiral bound book
comprised of 142
pages that sells for $29.95 via paypal. There are 87 activities,
ideas and
methods. This handbook will simplify daily planning and includes a
progress
chart.
I first brought the book with me in September to a meeting I had
with the
AAC and SLP at my son Matthew's classroom. We stayed in the back of
the
classroom observing my son and coming up with ways to integrate the
communication
device known as the Cheap Talk into his daily schedule. This device
is on loan
from Los Angeles Unified School District (LAUSD). The Augmentative
and
Alternative Communication Specialist (AAC) and the Speech Language
Pathologist
(SLP) both wrote down the name and details of ordering this book.
They were
impressed with the simplicity and usefulness of this workbook, for
both parents
and professionals.
When the class went outside for recess the teacher joined us and we
discussed the overlays and programming of the device. My higher
functioning son
Nicholas is the one who spoke into the device for the levels with
the key words.
This is when I showed the teacher the book, Recipe Handbook Of Easy
To Use
Activities For Teaching Autistic Children And Children With Autism
Spectrum
Disorders And Other Learning Disabilities and gave her the brochure
for it with
details.
In October we had an emergency IEP meeting that I requested to
update
Matthew's Behavior Support Plan. The previous behavior outlined was
scratching the
aide, but he has escaped from his classroom several times and ended
up at the
gate to leave the premises, warranting a new _Behavior Support
Plan_
(http://www.bellaonline.com/articles/art34699.asp)
I mentioned at the IEP meeting that I felt the Antecedent to the
behavior of
leaving the classroom had to do with Matthew relying on an adult to
prompt
him through his work, and no one really promoting independent work.
At this
point I then brought out the book and showed two pages I had marked
that show a
slant board with a student doing similar matching type work as
Matthew, but
independently.
The teacher happened to mention that she did purchase the book and
felt it
to be a good tool to consult with her daily planning. I prefer
visual supports
within the context of a book with this being a prime example of
easy to
follow guidelines in how to teach a child with a variety of
activities.
Not only does the handbook show you the product you will be making
or
buying, it also gives lists at the end of where each product is
available with the
website, address and phone number. These indexes are known as the
Book List
Index, Inclusion Activities, Methods Section, Supplies Index and
Catalog Index.
The activities are broken into steps - Objectives, Materials and
Ideas for
use. The accompanying figures are self explanatory and will help
guide and
assist families into having their child trace and cut using
stencils, letter
writing, ink stamping numbers, letters and shape formation,
magnetic letters,
categorizing, spelling with objects, word match to picture, name
and match
using PCS, shapes dot to dot and our favorite that was already
being utilized -
Color Shape Bingo by _Trend Enterprises_
(http://www.trendenterprises.com/) .
(http://img.photobucket.com/albums/v606/autismfamily/slantboardbookex
ample.jpg)
For the professionals there are some supplies and examples to
assist you
through this plan of activities - a filing system for your activity
packets, dot
to dot pictures, grids for picture communication symbols (PCS),
instructions
for making choice cards, sample letters for inclusion to parents of
classmates, temper tanstrums and toilet training suggestions and
making a photo book
for a field trip.
This is an easy to use handbook/guidebook for any parent or
professional to
follow along and implement any of these activities. The student
profiled is
Allison who is now twelve and started with the author, Barbara
Bazeghi when
she was six years old, nonverbal in Kindergarten.
(http://img.pho
tobucket.com/albums/v606/autismfamily/inkstampingnumberspagefromautis
mboo.jpg)
Recipe Handbook Of Easy To Use Activities For Teaching Autistic
Children And
Children With Autism Spectrum Disorders And Other Learning
Disabilities is
available at www.reachpublications.com for $29.95 plus tax for
California
residents.
This is a book I suggest parents purchase to work on over the
holiday break
and for vacations and weekends. Therapists can gain insight into
teaching
techniques and teachers can incorporate some of these activities
into their
daily planning.
A superb book that fits into any budget and is the most useful one
I have
come across for my nonverbal son to help him learn basic skills and
be
productive at home.
Here is a resource for teaching that is not related to this book -
_Teaching Components include Work Systems and Visual Strategies_
(http://www.cesa7.k12.wi.us/SPED/autism/structure/str12.htm)
Autism Books as Holiday Gifts for Relatives
_Bonnie Sayers_ (http://www.bellaonline.com/about/AutismSpectrumDisorders)
Books make such a great gift for birthdays and holidays. The
holiday season
is a good time to promote autism awareness by finding suitable
books to help
family members and relatives learn about autism at their own pace.
Ideally if your child is nonverbal you would want to encourage
learning by
perusing the books from parents and professionals on communication
issues and
the many options that have been explored.
Along the same lines it makes sense to get the father a book that
has been
written by another father that has already walked down this path.
There are
also books by professionals discussing their clients and therapists
covering
their areas of expertise.
_
Running with Walker_
(http://www.amazon.com/exec/obidos/ASIN/1843107554/autismspectrd-
20) by Robert Hughes tells of the Hughes family living in Chicago,
which consists of Robert, his wife Ellen and their two sons, Walker
and Davy.
The prologue begins with a Christmas party in 1997. The picture
shows Walker
jumping in midair, a similar pose my son Matthew was caught doing
at summer
camp.
I liked how the reader is drawn right into the holiday season as
Robert
reminisces about holiday parties. Their experience spotlights how a
family tries
to give one son the holiday season as the other child melts down
due to the
sensory overload. Parents can gain insight from Robert's
descriptive words and
easily relate to the trauma of the holiday season.
" Though we knew Walker wanted to be there and was thrilled to see
his
family, he was too sad or frustrated, too angry or strangely
panicked to handle
it."
This would make a good gift for a father, brother or grandfather.
_A
Father's Memoir_ (http://www.bellaonline.com/articles/art27416.asp)
is another good
pick for a gift for the male relative. They can read the book over
the
holiday vacation ready to start the new year armed with new
knowledge.
_
The Case of the Prank that Stank_
(http://www.amazon.com/exec/obidos/ASIN/159514014X/autismspectrd-
20) is a Wright & Wong mystery, the first book in
this series about B. Orville Wright. He is in middle school along
with his best
friend Agatha, who keeps the bullies away from Orville, who also
happens to
have Asperger's syndrome.
This is a chapter book geared to tweens and older. It would be
ideal for the
sibling of a child on the spectrum, as well as relatives in the
same age
bracket. I would also recommend this to babysitters, respite
workers, teachers
and assistants. It makes a perfect stocking stuffer.
_What Adults with Disabilities Wish All Parents Knew_
(http://www.amazon.com/exec/obidos/ASIN/0071422692/autismspectrd-
20) offers insights from
advocates for the disabled and families through essays written on
the topics they
wished their own parents had read or been told while growing up.
This book is suitable for the Mothers and Grandmothers of the child
on the
spectrum or any other disability. Each essay ends with a short
biography of
the author and their family achievements.
It would also be suitable for newly diagnosed families and their
relatives
to learn and understand the issues they are about to face and
prepare for them.
_Autism Through A Sister's Eyes_
(http://www.amazon.com/exec/obidos/ASIN/1885477716/autismspectrd-
20) is a book that would be beneficial to female
siblings and classmates of a child with autism or asperger syndrome.
Emily is two
years younger than her brother Daniel. She writes about her
feelings, making
friends, understanding and learning about high functioning autism
and
asperger's syndrome.
This book is also good for teachers, assistants and babysitters. It
is a
quick read that includes a glossary and discussion questions for
parents and
children. Those on the spectrum who are higher functioning would
benefit from
reading this book to see how a younger sibling grasps autism. I
really enjoyed
reading through this book.
_My Friend with Autism_
(http://www.amazon.com/exec/obidos/ASIN/1885477899/autismspectrd-
20) is a book that could be given to a sibling, younger
relative or classmates.
The teacher and assistants can benefit from perusing the book as
there are
several pages of notes for adults explaining the details of the
books
contents. Each page shows examples of a child with autism having
issues with their
senses, playing and communicating.
There is also a list of behavior that might be construed to be
autism and
ten quick strategies for helping an autistic child. A recommended
reading list
is at the last page.
The book could be utilized in the classroom setting such as a
preschool, a
library reading, and social skills groups. It would be useful for
babysitters
and assistants in the classroom, as well as the general education
setting and
school office personnel.
_1001 Great Ideas for Teaching and Raising Children with Autism
Spectrum
Disorders_
(http://www.amazon.com/exec/obidos/ASIN/1932565191/autismspectrd-
20)
is a wonderful resource for parents and teachers alike.
This is written by Veronica Zysk, Managing Editor of Autism
Aspergers Digest
Magazine along with Ellen Notbohm, parent, author and columnist.
There are
seven chapters, glossary and index that cover sensory integration
strategies,
daily living skills, social skills, educational strategies and
special
education law.
This book is recommended for all those who work and live with
someone on the
autism spectrum. Read it over the holiday and start implementing
the
strategies.
_Educational Autism Tips for Families_
(http://www.bellaonline.com/ebooks/ebook131) 71 page resourceful
ebook for families entering the school system
with a recent autism diagnosis. Find out what issues take place over
the course
of a school day and meet these challenges head on.
_Top Five Medical Books for your home_
(http://www.bellaonline.com/articles/art38557.asp)
_Autism Booklets for your home library_
(http://www.bellaonline.com/articles/art43025.asp)
This email is intended only for the use of the
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that any review, copying or distribution of this email and its attachments, if
any, is strictly prohibited. If you have received this email in error,
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From: Spectrum
Training Systems [mailto:Spectrum_Training_Systems@...] Sent: Friday, November 17, 2006
1:31 PM To: Porter, Shannon Subject:Columbus Autism Training - Social
Relationships, Adolescents
"Social Relationships and Adolescent
Issues on the Autism Spectrum"
A block of rooms has been reserved for $89+ tax per night.
Please call the hotel and make reservations soon. Rooms are limited.
Special Parent Price! 2 Days: $160
1 Day: $95
To ensure receipt of our emails, please add us to your
Address Book.
(Spectrum_Training_Systems@...) Thank you!
Feb. 8 - Adolescent Issues on the Autism Spectrum
With Chantal
Sicile-Kira: Adolescence is a time of positive growth as well as
challenges. This session will provide practical strategies for teaching
teenagers of all ability levels the necessary life skills of self-care,
self-regulation, self-advocacy, and self-esteem. What and how to explain
about puberty, relationship boundaries and sexuality will be discussed, as will
common adolescent concerns such as bullying and masturbation. Areas to be
emphasized include: individualized transition plans, focusing on the student's
strengths, developing work/career skills, preparing for college, different
types of employment structures, employer needs and the use of mentors. Chantal Sicile-Kira is the
author of "Autism Spectrum Disorders," which won the 2005 ASA
Outstanding Literary Work of the Year and the recently published
"Adolescents on the Autism Spectrum."
Feb. 9 - Building Social Relationships
With Dr. Scott Bellini:
This engaging workshop will provide an overview of a social skill instructional
model developed by Dr. Bellini. The workshop will provide research on
social-emotional functioning as well as practical and effective strategies for
teaching social interaction skills to children and adolescents with autism
spectrum disorders (ASD). The model provides a systematic and comprehensive
framework to guide parents and practitioners in the development and
implementation of effective social skills programming. Dr. Bellini is the author of
the recently published "Building Social Relationships."
OK, I went to the site and found awesome charts and got excited
again...only to really realize that part (all?)of the problem with
charting is...ME! (Actually all of us) I get really excited about
them and get B.J. excited and even Ed (a little) and we start in a
great mode of behavior charting and rewards only to have all of us
forget about it in a week or so. Does anyone have any advice for
me? It seems to work (for a while) and I don't know if it is really
all me or that B.J. just doesn't stay interested or what. Being a
graphic designer, I've even created different charts myself for B.J.
in a theme he likes, only to not keep up with them.
If anyone has any advice, I would surely love to listen! thanks!
Cyd
In BCautism@yahoogroups.com, "Gillett, Tresia" <GillettT@...> wrote:
>
> That is a great website. I forwarded it to many people. Thanks.
Tresia
>
>
> -----Original Message-----
> From: BCautism@yahoogroups.com [mailto:BCautism@yahoogroups.com] On
> Behalf Of Heather Wheaton
> Sent: Tuesday, October 24, 2006 1:34 PM
> To: BCautism@yahoogroups.com
> Subject: [BCautism] Check out FreeBehaviorCharts.com
>
>
>
> > _Click here: FreeBehaviorCharts.com - Free behavior charts for
the
> > children in your life! They can be used at school or at home!_
> > (http://www.freebehaviorcharts.com/)
> >
> >
>
>
>
>
> Yahoo! Groups Links
>
I have to apologize to everyone for not getting the meeting notes up
from the last meeting. In addition, I haven't done the book list
either!! I keep planning on it and keep having something come up!
Now, as I am ready to do the notes and the book list...I CAN'T FIND
THEM!!!! I will continue looking and hopefully will find them before
our meeting this Thursday and will make a copy for everyone.
Again - sorry!
Cyd
The Autism Spectrum Disorder Support group will meet on Thursday, November 16th at Doris Klaussen Developmental Center from 6:00 to 7:30 pm. All adults who are interested in obtaining information, education and support regarding this disorder are welcome to attend. The support group is designed to assist parents with children diagnosed with this disorder. For additional information and to RSVP, please call Shannon at 964-2136, ext 231. The group is sponsored by the CISD School Social Workers.
We will have childcare set up for the meeting. Please RSVP to let me know how many children we will need to plan for. This will be on a first come, first serve basis and space may be limited. It is very important that you RSVP to Shannon Porter @ 964-2136 extension 231or
porters@..., by Monday, November 13th, if this service is needed!
This email is intended only for the use of the
addressee(s) named herein. It may contain leagally privileged and
confidential information. If you are not the inteneded recipient, or an
authorized representative of the intended recipient, you are hereby notified that
any review, copying or distribution of this email and its attachments, if any,
is strictly prohibited. If you have received this email in error, please
immediately notify the sender by return email and delete this email from your
system. Thank you.
From:BCautism@yahoogroups.com [mailto:BCautism@yahoogroups.com] On Behalf Of star_mama2004 Sent: Friday, November 10, 2006
9:48 AM To:BCautism@yahoogroups.com Subject: [BCautism] Will there be
a support group meeting in November?
I
had conflicts in both September and October, but I am hoping to make it to a
support group meeting. Is there another one planned soon?
*Connor's Friends*
*November 15
6-8 p.m.*
Connor's Friends is a special night for children with autism and
their families to explore the Grand Rapids Children's Museum. The Museum
will be modified to benefit our guests that night. Space is limited, so
please call (616) 235-4726 ext. 212 for reservations and for more
information.
Mom to the rescue
Anita Hawkshaw gives parents of autistic kids a break
FLINT
THE FLINT JOURNAL FIRST EDITION
Monday, November 06, 2006
By Rose Mary Reiz
rreiz@... â?¢ 810.766.6353
Anita Hawkshaw wants to make life easier for other parents of
autistic
children, so she's starting at the, ahem, bottom.
Hawkshaw has helped start a diaper bank to provide free diapers and
Pull-ups
to area families coping with autism.
"Children with autism often are not potty trained until they reach
the ages
of 7, 8 or 9, if they are potty-trained at all," said Hawkshaw, a
Fenton
Township mother whose 8-year-old son, Dominic, is autistic.
"As a parent, you spend your time and money on therapy, special
diets,
medical bills and medicine, and on top of that, you're still buying
diapers year
after year. It's just one more thing to worry about."
Four years ago, Hawkshaw was still struggling unsuccessfully to
toilet-train
4-year-old Dominic when her sister called to say that her son, a
year younger
than Dominic, was potty-trained.
"I tried to be happy for her, but I just cried," Hawkshaw said.
Until the age of 6, Dominic had digestive problems that caused
chronic
diarrhea, a condition that made toilet training impossible.
"We went to specialist after specialist to try to find out what was
wrong. In
the meantime, I was getting flack from school, like I was a bad
mother for
not potty-training my kid. Everyone has advice, but they're not
living in your
shoes. The things they say cut like a knife."
It wasn't the first time Hawkshaw would feel like a failure for
having a
child most people don't understand.
Dominic was diagnosed with autism at age 3. He was lively and
affectionate
but still wasn't talking or maintaining eye contact with others. He
had been
treated for seizures.
Looking back, Hawkshaw knows that she didn't take time to grieve for
herself
or her son after his diagnosis.
"When you find out your child is autistic, it's like your dreams for
him are
totally destroyed. But I put my feelings on hold and went into 'mom
mode.' My
only concern was, 'What do I need to do to help my son?'"
Hawkshaw learned all she could about autism, a neurological disorder
that
affects communication, social skills and behavior. She helped form a
Grand Blanc
support group for parents of autistic children.
The Autism Support Group of Genesee County consists of about 100
parents. The
group holds monthly meetings to provide education and support and
to plan
events that raise awareness about the disorder.
At age 6, Dominic finally outgrew his digestive problems and was
toilet
trained. He now is talking, and attends special education classes at
Torrey Hill
Intermediate School. He plays soccer on a team for children with
special
needs.
He is happy and cuddly, loves his Gameboy and enjoys playing with
his younger
brother, Adam, 4.
But challenges remain. In addition to autism, Dominic has been
diagnosed with
attention deficit disorder and takes medication to prevent
seizures. He has
problems with sleeplessness and sleepwalking. His parents keep a
baby monitor
in his room, and his mother often is up with him most of the
night.
"Having a kid with autism is like having 10 kids in one," said
Hawkshaw, who
for years focused on Dominic while ignoring her health.
As a result, her migraine headaches worsened, she sank into a
depression and
developed fibromyalgia, a condition that causes chronic pain and
fatigue.
With treatment, she is feeling better. She is majoring in social
work at the
University of Michigan-Flint, where she takes a few classes at a
time.
"I've learned that when I'm tired, I need to stop," Hawkshaw
said. "Now I
tell other parents, 'While you're taking care of your child, be sure
to take
care of yourself, too.'"
Hawkshaw hopes that the diaper bank, which was adopted as a special
project
by the autism support group, will give parents one less thing to
worry about.
"I got the idea when a parent in our group said that she was
spending $50 a
month for diapers, with no end in sight. Some parents have more than
one
autistic child, and what they have to spend is incredible."
Parents of autistic children who cannot afford diapers or are
ineligible for
other aid may apply for free diapers by contacting Hawkshaw or the
support
group.
A small donation from the group helped start the project, but
Hawkshaw said
she is depending on donations from the community to keep it going.
"We need money to buy diapers, coupons for diapers or diapers and
Pull-ups in
sizes 4 and up that parents no longer need," she said. "We want to
be fully
stocked so that we don't have to turn anyone away."
For more information about the Autism Support Group of Genesee
County, visit
www.geneseeautism.org. For details on the diaper bank, contact Anita
Hawkshaw
at (810) 714-3678 or samiam121169@...
(http://sabersfun.tripod.com/)
_Click here: Sabersfun!_ (http://sabersfun.tripod.com/)
"truly wonderful, the mind of a child is"
Yoda
"A son is a boy that bears a striking resemblance
to a dream come true"
L. N. Mallory
--- End forwarded message ---
:
_
Previously this site had all the external links posted under each
subject. I am now placing them into one article for each subject for easy
organization and access for all.
_ABA Consultants and Service Providers_
(http://rsaffran.tripod.com/consultants.html) - Their list or
organizations will train the staff, not the child.
They also include related services for playgroups and social skills
training. These listings are for USA, Canada, Africa, Asia, Europe, UK,
Central and South America. A very detailed and extensive listing with the
countries marked in Red.
_Behavior Management Strategies_
(http://www.bbbautism.com/behavior_management_strategies.htm) - a
great article that covers in easy to comprehend strategies the ABCs of
behavior.
_Behavior Prevention Program_
(http://cecp.air.org/preventionstrategies/behaviorprevention.htm) -
Prevention Strategies that Work, covering the implementation and supporting
enhancements. This includes tutoring and social skills.
_Cambridge Center for Behavior Studies_
(http://www.behavior.org/autism/index.cfm) - a wealth of
information from verbal behavior, behavioral safety,
behavior and philosophy and much more pertaining to autism.
_Certificate in Behavioral Intervention in Autism, UMass Online_
(http://continuinged.uml.edu/online/Current_Semsearch_detail.cfm?
coursenum=47.561&secnum=-031) - an introduction to Behavioral Intervention
in Autism. Designed to provide professionals in psychology, education,
child care, and human services with an understanding of effective
intervention in autism and related developmental disorders.
_National Association of School Psychologists_
(http://www.nasponline.org/families/index.aspx) - this is the
families section with information on autism, bullies, name calling and
teasing and self-control skills. There is also a section for teachers and a
publications catalog for professionals to peruse through.
_Endless Potential_ (http://www.endlesspotential.org/) -
consultation services in the State of Alabama and will travel to other
states.
They sell a software package as well.
_Hand Biting_
(http://missourifamilies.org/FEATURES/parentingarticles/parenting1.ht
m) - this explains why children may do this and tips on how to stop
this behavior.
_Intro to Challenging Behavior_
(http://education.umn.edu/ceed/projects/preschoolbehavior/strategies/
genintro.htm) - University of Minnesota Early Childhood Project, that
includes examples and covers preschool aged children.
_Neurobehavioral Unit (NBU) at Kennedy Krieger Institute in
Baltimore, Maryland_ (http://www.kennedykrieger.org/kki_cp.jsp?pid=1573) -
An overall of the
clinical program that includes a pdf screening form.
_Online course for behavioral studies_
(http://www.universalclass.com/i/crn/5190.htm) - this course is
taught by a Pediatric Behavioral Specialist. You
can get CEU credit, take at your own pace.
_Positive Behavior Intervention and Supports_
(http://www.pbis.org/newsletter.htm) - access to newsletters, tips
for educators, support in high schools, family involvement and how to
prepare for an FBA meeting.
_Positive Behavior Support Modules_
(http://www.onlineacademy.org/acad/products/preview.html) - this is
through Online Academy. You can preview excerpts
from the presentations.
_Shutdowns and stress_
(http://www.shutdownsandstressinautism.com/StressinAutism.pdf) -
this is in pdf format in 10 pages. Charts and graphs on what
triggers shutdown in kids, behaviors and stress, plus educating
teachers.
_What is a Functional Behavior Assessment?_
(http://www.concordspedpac.org/FBA.html) - key questions you want
answered in your report that includes
examples of behavior support plans.
_What Works Brief_ (http://www.csefel.uiuc.edu/whatworks.html) -
University of Illinois Parent Collaborative, Preventing Challenging
Behaviors.
Posted on Mon, Oct. 30, 2006
(http://www.reprintbuyer.com/mags/knightridder/reprints.html)
Supporters push Congress to pass autism bill
ANABELLE GARAY
Associated Press
RICHARDSON, Texas - Jeremy Hammer seemed like many other
preschoolers with
his knack for repeating dialogue from the "SpongeBob SquarePants"
movies. Yet,
Jeremy couldn't say "Mom" or "Dad" until the age of 3.
It was then that he was diagnosed with autism, a brain disorder that
can
interfere with a person's ability to communicate with others, cause
developmental disabilities and is characterized by repetitive
behaviors.
"We did feel something was wrong before," said his mother Kristi
Hammer, of
Plano. "From the time we brought him home from the hospital, he
cried 50
percent of the time."
Kristi Hammer, her husband Kevin, and older son, John Michael, were
among
some 80 parents, grandparents and children who demonstrated Monday
outside a
political fundraiser attended by House Speaker Dennis Hastert to
push Congress
toward passing the Combating Autism Act.
The bill, which was approved by the Senate in August, would set up
a
strategic plan for addressing autism and allocate $900 million for
fighting the
disorder, demonstrators said.
Supporters of the bill contend Rep. Joe Barton, R-Ennis, chairman of
the
House Energy and Commerce Committee, has let the bill languish in a
subcommittee
and kept it from being considered by the rest of the House.
For about two hours, dozens stood outside the fundraiser urging
Hastert,
R-Ill., to compel Barton to let the bill out of committee. Every 14
minutes, the
peaceful protesters held a moment of silence, many of them holding
signs with
framed pictures of their autistic children.
Hastert, who attended the luncheon fundraiser for U.S. Rep. Sam
Johnson,
R-Texas, said he planned to meet with supporters of the autism bill
in
Washington. He added that the NIH bill would tackle research for
other diseases that
also merit attention.
Barton also has said he would like to instead focus on his National
Institutes of Health Reform Act, which would increase funding for
the agency that
oversees the nation's research, each year.
"Putting millions more dollars into the hands of the people who
actually deal
with autism at the National Institutes of Health and the Centers
for Disease
Control cannot fail to do an enormous amount of good," Larry Neal,
deputy
staff director at the House Committee on Energy and Commerce, said
in a
statement.
But supporters of the autism bill say the NIH measure doesn't
include
provisions specifically aimed at fighting autism.
None of the politicians at the fundraiser met with the protesters.
Demonstrators say autism has become so prevalent, it's an epidemic.
At least one of every 166 school-aged children suffer from autism,
according
to Centers for Disease Control and Prevention estimates. Boys are
three to
four times more likely to have autism than girls.
"If you don't know someone with autism today, you will," Kristi
Hammer said.
Neal said in his statement that Barton hopes to reach a compromise
and work
to pass legislation in November.
(
Writers Invited to Submit Stories for "A Cup of Comfort for Parents
of Children with Autism"
From Lisa Jo Rudy
Are you the parent of a child on the autism spectrum? Do you have a
hidden desire to write your story? If so, the creators of the _Cup of
Comfort _
(http://www.cupofcomfort.com/share.htm) books want YOU! Here's what they
want to see:
For this inspirational volume, we seek personal anecdotal stories
(not prescriptive articles) about the unique aspects of parenting a child
with autism and related disorders (Asperger syndrome, Rett's disorder,
disintegrative disorder, pervasive developmental disorder). Possible themes
include but are not limited to: impact on other members of family; creative
solutions to everyday challenges; breakthroughs; effective treatments;
silver linings; tender moments; helpful support; unexpected positive
outcomes; blessings large and small; reasons for hope; adult children with
autism
The deadline for this project is November 15, 2006 -- so get your
muse in motion!
Wednesday October 25, 2006
That is a great website. I forwarded it to many people. Thanks. Tresia
-----Original Message-----
From: BCautism@yahoogroups.com [mailto:BCautism@yahoogroups.com] On
Behalf Of Heather Wheaton
Sent: Tuesday, October 24, 2006 1:34 PM
To: BCautism@yahoogroups.com
Subject: [BCautism] Check out FreeBehaviorCharts.com
> _Click here: FreeBehaviorCharts.com - Free behavior charts for the
> children in your life! They can be used at school or at home!_
> (http://www.freebehaviorcharts.com/)
>
>
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