My daughter was on cellcept, I can't recall exactly but I believe it was one of those with many precautions on it about when to take it and what to not take...
2662
Art Brown
astrochief2004
Jan 30, 2013 7:00 pm
Hi everyone.... I've been "lurking" awhile, since finding this site in October when I was first diagnosed with AIHA.......I am a 64 year old male. My...
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Jennifer
thmarine1
Jan 30, 2013 7:26 pm
Hi Art, This is a crazy disease but we and our loved ones have all found ways to manage. I will add you to my prayer list! Take care. Sent from my iPhone...
2664
JoAnn Green
joannb57
Jan 30, 2013 7:42 pm
Hi Art This group is great for sharing. You've had quite the work-up! I too have the CAD as part of my AIHA. Winters are rough. My dr said there may be a time...
2665
Jessica Vanlandingham
landjfamily5
Jan 30, 2013 8:04 pm
Glad you have joined us! We all can in some way, shape or form relate. As rare as this AIHA is we need this to learn from each others experience and...
2666
Wiley Smith
susanandwiley
Jan 31, 2013 3:05 am
Hi Art, Your story sounds so familiar. I also have Cold Aglutination and am diagnosed with Lupus to boot. My brother has anti cardio Lipin Antibodies but...
2667
Wiley Smith
susanandwiley
Jan 31, 2013 6:54 am
I had an enlarged spleen for 20 years and then it reduced in size after I started taking iodine. I don't know whether there is a connection but 2 weeks after...
2668
Wiley Smith
susanandwiley
Jan 31, 2013 7:03 am
I tried it for a while it did not seem to make a huge difference in the AIHA but I did find that taking it with a spoon of olive oil and chasing it with water ...
2669
Kathy VanNess
snowbound22ny
Jan 31, 2013 1:00 pm
hi all yesterday marked my husbands 3rd month on this adventure with this disiese we say the hemo dr he has been off preision for 2 weeks all the levels are...
2670
Autoimmune_Hemolytic_...
Feb 2, 2013 5:08 am
File : Dear fellow YahooGroup member.pdf Description : HealthShare International Support Network...
2671
Art Brown
astrochief2004
Feb 3, 2013 10:25 pm
Thanks everyone for your responses. I'm still learning how to deal with this and of course it is the middle of winter here in N. Illinois. One interesting...
2672
carmelcrunch4
Feb 14, 2013 1:03 am
Hi everyone I all is doing the best they can. I have the letter after o not working on my kybrd giggle. anyway I have a question. sorry for the letter missing....
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michelle bayliss
melissamiche...
Feb 15, 2013 12:53 am
Hmmm, my son takes 5 mgs every other day. He's been on that dose for about a year and a half. Coombs test was still a 2+ in December. His sic days we have to...
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Julianne Fontenoy
pjenf
Feb 15, 2013 1:10 am
There are other drugs besides prednisone and other treatments that might work for you. Most people cannot or should not be on prednisone long term, so your...
2675
Jessica Vanlandingham
landjfamily5
Feb 15, 2013 5:36 pm
I agree with Julianne,  I had a second opinion for my Daughter and was switching doctors all at the same time (her doctor retired) It was a milestone for...
2676
carmelcrunch4
Feb 16, 2013 8:26 pm
Hi , I have not been out to get a new kybrd yet to much snow lol remember the letter after o is not working and the letter will make sense lol Thank you ,...
Hi Haily, There was a time when it was difficult for me to walk 20 feet because of the pain. I think sometimes the medications we take play havoc with our...
File : Dear fellow YahooGroup member.pdf Description : HealthShare International Support Network...
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Beverly H
beverlyhanse...
Mar 2, 2013 2:57 am
My mom has AHA, but today I write you concerning my daughter. Bonnie is my daughter. I need a petition signed. Please look at these videos. ...
2683
carmelcrunch4
Mar 3, 2013 5:32 pm
First of all let me stand beside you and say this is just a horrible injust. as a mother of two secial needs boys not as grossly involved but involved. Sorry...
2684
Beverly H
beverlyhanse...
Mar 4, 2013 12:29 pm
Thank you for your kind words. Yes, very familiar with wrights law. I am attending a conference on the 15th in Redding. We are in Oregon. Oregon Disability...
