HI, I know that i have just recently joined this group but I need you all to be very honest with me. As you know I am 18, I have recently decieded to stop...
I think that if i was a bit older i wouldn't mind having this as much. I never got to go to a dance or the prom, not to mention all the dates my friends went...
Finally, some good news. I went home from the hospital yesterday after six weeks. I am in the process of trying to taper off the steroids again. Last time it...
Cherilyn Just words of love and support I still test positive for antibodies but my blood is fine. Positive thinking, and a lot of yoga :) It's totally...
I have had AIHA for about three or maybe it's four years now. I am starting to think that when i get stressed my count drops. I'm a senior in high school and...
Well, I was a big disappointment on the every second day 75mg prednisone plan. After a short lull, things started coming apart at the seams again, and I've...
After almost four weeks, I finally managed to escape from here on a day pass and went home for a few hours. That was the high point of the month I think....
Hello all! The doctor at UCLA did conclude that I have hereditary Spherocytosis. My original doctor agrees. I will be having a splenecomy and it will be...
Hello everyone, I'm so glad this list is here. My husband Doug (douglas_ridgway) has been posting on my behalf. I've had an acute case of this, similar in...
Hello All! I saw the specialist at UCLA and he doesn't think that I have autoimmune hemolytic anemia (because my coombs test is negative). He thinks it is...
Hi everybody, I'm happy to discover this group. My wife came down with AIHA just over two weeks ago. Her hemoglobin got down to 3.1 before they got blood in...
I was diagnosed with autoimmune hemolytic anemia last February. I have been trying to get information on the disease, but have come up with more unanswered...
Hi everyone, My dad was diagnosed with AHA in early 1999. He is currently 86 years old. When he was first told he had AHA the doctors did the usual testing. He...
I was diagnosed with autoimmune hemolytic anemia last February. I have been trying to get information on the disease, but have come up with more unanswered...
We saw the docs on Thursday the 17th. All went well, he had his port flushed, and blood work. He will have another MRI in December. Logan had been sick since ...
Hi, I just have to urge you as well to go to a good hemotologist at a hospital local doctors are not up on this stuff a very good doctor saved my life, if I...
I have a question. Has anyone experienced problems with fevers? As a reminder, logan was dx with AHA in April of this year. The docs said it was either caused...
Hi everyone. Logan turns four tomorrow. It is a bitter sweet day. I hold in my heart all of the parents, and family members who have lost a child to a brain...
Hi Yvonne, Thanks for writing back. I'm hungry for any information anyone has pertaining to hemolytic anemia. Have you been in contact with any other people on...
Yvonne, Didn't mean to hit the send button......Oh well.....I just wanted you to know the message was from Lynn Take care!!!!! Chat with friends online, try...
Hi everyone, It's been a few weeks since anyone has posted. I was wondering how everyone is doing. How about we all give an update. I am doing pretty good....
Hey Chris, could you remind me again how to get that yahoo messenger back on my computer? Since I deleted it, I can't remember how to go get it again. Then I...
Hi everyone, Has anyone talked to Lynne lately? I haven't seen her on or seen an emails from her in ages. I see on the members list they have her on the...
Well we are home. It has been actually a week now, but coming home to laundry, sharing photos and passing out gifts I have time to share a little about our...
I think I lost the e-mail that you sent responding to mine and can't remember if I ever responded. I will blame the prednisone. Anyway, that is really good...
Hi, Gina and Chris, thank you both for your supportive messages. I am terribly frustrated. Went to the neurologist today. He was the one who initially said I...
Hi, I just wrote a relatively long message, hit post and think I somehow erased it. But then again there may be two messages from me here. I am terribly inept...
A big thank you to all who welcomed us aboard! Logan is having a good day. He is off the prednesone now, so I guess well see what happens next! His hgb dropped...
