Dana, As Erin said earlier, each case is different. Pretty much all of us in the group have been battling this or taking care of children battling this for...
2560
Jennifer
thmarine1
May 18, 2012 6:15 pm
Hi Dana, My son was also diagnosed at thirteen. He received blood and 180 mg of prednisone the first day. We continued on the prednisone roller coaster for...
2561
Erin Healey
eheals27
May 18, 2012 6:36 pm
Very well said, Dick, Michelle and Jennifer! Dana: My son's case of anemia is idiopathic as well. Right now, there is no known cause for it. Patrick's...
2562
Jaquie Gardiner
mrs_yellow6
May 18, 2012 8:51 pm
Dana, Â I'm glad you found this group -Â as the others have explained, this condition is so varied in its onset, treatment and remission/relapse cycles. Â ...
2563
Dana Jaffe
Danasong
May 18, 2012 10:31 pm
Jackie: Thank you so much for writing. Dana ... From: Jaquie Gardiner To: Autoimmune_Hemolytic_Anemia@yahoogroups.com Sent: Friday, May 18, 2012 4:51 PM ...
2564
Dana Jaffe
Danasong
May 18, 2012 10:31 pm
... From: Jennifer To: Autoimmune_Hemolytic_Anemia@yahoogroups.com Sent: Friday, May 18, 2012 2:15 PM Subject: Re: [Autoimmune_Hemolytic_Anemia] New Diagnosis ...
2565
Dana Jaffe
Danasong
May 18, 2012 10:32 pm
Jennifer: Thank you so much for writing. Dand ... From: Jennifer To: Autoimmune_Hemolytic_Anemia@yahoogroups.com Sent: Friday, May 18, 2012 2:15 PM Subject:...
2566
Dana Jaffe
Danasong
May 18, 2012 10:32 pm
Michelle: Thank you so much for writing. Dana ... From: michelle bayliss To: hemolytic anemia group Sent: Friday, May 18, 2012 12:43 PM Subject: RE:...
2567
Danasong
May 20, 2012 11:30 pm
Hi Everyone: I want to thank everyone who wrote back to me this week when I was diagnosed. YOu are all extremely helpful. After three transfusions my...
2568
Denise Miller
bdenisemiller
May 20, 2012 11:38 pm
You are so welcome! Stay positive and educated. It'll all work out the way it's supposed to. Ours is a rare and baffling disease. Remember, you are not alone!...
2569
Wiley Smith
susanandwiley
May 21, 2012 5:09 am
Dana, The blood clots remind me of my brother's situation. He was diagnosed with anti-cardiolipin antibodies syndrome. Which is an autoimmune reaction in the...
2570
Jennifer
thmarine1
May 21, 2012 1:38 pm
Susan, did you get diagnosed with lupus first or hemolytic anemia? I was wondering if the anemia was a symptom that led to the Lupus diagnoses? Thanks ...
2571
Wiley Smith
susanandwiley
May 21, 2012 5:17 pm
Jennifer, I had been diagnosed with Lupus about a year prior to the AIHA diagnosis. Just a few months after I was diagnosed with Lupus I had a hysterectome...
2572
Th
thmarine1
May 21, 2012 6:20 pm
Thank you so much for the info. My son has AIHA and our hematologist said that he expected it to turn into lupus. So far nothing else has popped up! A friend...
2573
Julianne Fontenoy
pjenf
May 22, 2012 4:19 pm
I'm curious to know--are you still getting massages 3x a week? Also, are you Coombs negative now or still hemolysing but keeping up with the need for new red...
2574
Wiley Smith
susanandwiley
May 22, 2012 7:52 pm
My rheumy calls it background hemolysis. So some hemolysis happening but not enough to overwhelm my liver and also bonemarrow is keeping up with production. I...
2575
Wiley Smith
susanandwiley
May 23, 2012 2:18 am
Yes Indeed God is Good. Hmm! I remember my father was anemic when he was in his early 30's. They may have misdiagnosed him in the 1940s with pernicious ...
2576
Jennifer
thmarine1
May 23, 2012 3:05 am
Are you showing a negative or positive Coombs test? Sent from my iPhone...
2577
Wiley Smith
susanandwiley
May 23, 2012 4:35 am
At this point I do not know I haven't been tested for a long time for coombs. My rheumatologist did those for diagnosis but I have not seen those results ...
2578
Dana Jaffe
Danasong
May 26, 2012 1:48 pm
Hi Everyone: I wrote two weeks ago about my Autoimmunne Hemolytic Anemia diagnosis. After three transfusions and more than 2 weeks, my hemoglobin count went...
2579
Autoimmune_Hemolytic_...
Autoimmune_Hemolytic_...
Jun 1, 2012 12:22 pm
File : Dear fellow YahooGroup member.pdf Description : HealthShare International Support Network...
2580
Danasong
Jun 8, 2012 1:22 am
Hi: I was hospitalized for autoimmune hemolytic anemia (hemoglobin = 6) on May10th. Counts came up on their own after initial three transfusions and are now at...
2581
wanderingwanda
Jun 8, 2012 4:08 am
Wishing you the best of luck in you recovery and your new job. My recovery was much longer. I was treated with Retuxin with no luck, had numerous transfusions...
2582
Julianne Fontenoy
pjenf
Jun 8, 2012 3:57 pm
I actually have not yet gotten back to hg of 13 -- stuck in the 10-11 zone after getting as low as 8 or so...and I've gone up and down a couple of times...but...
2583
michelle bayliss
melissamiche...
Jun 8, 2012 4:22 pm
My son also bounces back very quickly. His lowest hgb was a 3.4, but he has been as low as 5.3 and still able to attend summer daycare. He did have to rest...
2584
Erin Healey
eheals27
Jun 8, 2012 11:02 pm
Julianne and all: I'm catching up on this week's posts and may be missing some of them. I just read the post by Dana and noticed it said hgb is in 13 range...
2585
Lori Helton
whereru216
Jun 9, 2012 12:13 am
I was diagnosed about 4 yrs ago when I spent 2 weeks in hospital...went in for shortness of breath. Had pleural effusion (fluid around the lungs....not in the...
2586
JoAnn Green
joannb57
Jun 9, 2012 12:27 am
Hello group Has anyone had experience with being on FMLA while being treated? Looking for some advice I have been in remission for just over 3 years....
2587
Lori Helton
whereru216
Jun 9, 2012 12:47 am
Be honest with yourself...are you feeling ok? If so, go back to work full-time. Save your FMLA leave days for when you really need them...if you relapse. Dont...
2588
michelle bayliss
melissamiche...
Jun 9, 2012 12:54 am
I agree. I would think that the doctors would be looking at more than just your hemoglobin count. Low hgb, high retic, increase bilirubin, and a positive...
