Chelsea ended up back at the hospital the Thursday before Christmas. Her hemoglobin dropped to a 6.1. They were able to get it under control with steroids,...
2033
Wiley Smith
susanandwiley
Jan 5, 2010 1:21 am
Sherry I am glad to see the rituximab is working well for Chelsea. I thought I was doing great feeling pretty good and all and then had blood tests last week...
2034
Jessica Vanlandingham
landjfamily5
Jan 5, 2010 5:04 am
Sorry she had another huge drop! BUT Wonderful on her new count levels!! You know I am a Rutiximab Supporter! Let me know if I can help! Jessica...
2035
Bob
bob_debell
Jan 5, 2010 8:18 am
Susan - My son had a low white count for a while, his diagnosis has now been changed to Evans Syndrome but is stated to be 'not 100% sure'. Good luck, we...
2036
Wiley Smith
susanandwiley
Jan 6, 2010 2:20 am
Bob thank you for your response. I looked into Evans syndrome and saw some info on Gaucher disease that has similar symptoms also. Hmm. I have not had a bone...
2037
Bob
bob_debell
Jan 6, 2010 10:02 am
Hi Susan Bruce also has a low Reticulocyte [new red blood cells] count which suggests that there may be an additional problem, or the Evans Syndrome diagnosis...
2038
Wiley Smith
susanandwiley
Jan 6, 2010 11:39 pm
My retic count is high so that means I'm hemolizing to some extent still. But my red counts are in normal range except for the distribution width due to the...
2039
Erin Healey
eheals27
Jan 6, 2010 11:49 pm
My son's white count decreased at times but usually when his spleen became more enlarged. Platelets would drop too but never dangerously low... Those counts...
2040
Sherry
sher_bear4531
Jan 7, 2010 12:06 am
Chelsea has completed three treatments of the rituximab., She developed a fever and had to go to clinic, for iv antibiotics. While there they checked her...
2041
Wiley Smith
susanandwiley
Jan 7, 2010 12:14 am
I have never had rituxan but when I was 19 years old my platelets dropped to between 30-40 thousand. They gave me prednisone and it counteracted the...
2042
Bob
bob_debell
Jan 7, 2010 8:48 am
Hi Erin. Bruce is out of hospital, he came out just before Christmas so he had the festivities together with his wife, 2 daughters and us which was nice as he...
2043
Wiley Smith
susanandwiley
Jan 28, 2010 10:50 pm
Have any of you seen this info. my husband happened to find it when he was studying up on planting Favas as a green fertilizer. Very Interesting and the...
2044
Erin Healey
eheals27
Jan 29, 2010 1:52 pm
I have read about the connection of fava beans and hemolytic anemia... Â The only other time I have ever heard about fava beans was in the creepy movie...
2045
Jessica V
landjfamily5
Jan 29, 2010 4:22 pm
As some of you may know I have a 10 yr old daughter that is still positive for Autoimmune Hemolytic Anemia. We are counting our blessings everyday that she...
2046
Sherry Ippolito
sher_bear4531
Jan 30, 2010 1:50 pm
How is Mindy doing? Are things still going good. I am hoping so. Did her DAT ever go completley negative?  Chelsea finished 3 Rituximab treatments...
2047
frteach2000
Jan 30, 2010 6:51 pm
Taylor had her partial splenectomy in late Dec. They were able to do it laproscopically and they basically left her a normal spleen as a remenant. We know...
2048
Sherry Ippolito
sher_bear4531
Jan 30, 2010 9:44 pm
Good News!! Thank God! ... From: frteach2000 <grele@...> Subject: [Autoimmune_Hemolytic_Anemia] Post surgery update To:...
2049
Sherry Ippolito
sher_bear4531
Jan 30, 2010 9:49 pm
On the times I have read about Fava Beans, it seems to mostly deal with a G6PD deficency. ... From: Wiley Smith <wileysmith@...> Subject:...
2050
Erin Healey
eheals27
Feb 1, 2010 12:15 am
Sharon: Â Such great news...thanks for sharing... I never realized a partial splenectomy could be done...very interesting... My son always felt well with HGB...
2051
melissa hudgens
melissalynn8...
May 10, 2010 6:30 pm
 My name is Melissa...I am 19 years old going on 20 in Dec. I have had Autoimmune Hemoylytic Anemia since I was 16 years old. I first got it in Aug of 2006....
2052
John Thomas
jthomas7
May 10, 2010 6:31 pm
Hi Everyone I just joined this email group. I am 58 year old male. My twin brother has just been diagnosed with AIHA. I am just now trying to learn about the...
2053
John Thomas
jthomas7
May 10, 2010 6:31 pm
Hi Everyone I am brand new to this group and am a little unsure how all this works. My twin brother was recently diagnosed with AIHA (idiopathic I think). We...
2054
jacobsonfran
May 10, 2010 6:31 pm
My mom is 82 and has hemolytic anemia. she is soooo tired all the time. Has anyone tried Chinese medicine?...
2055
John Thomas
jthomas7
May 10, 2010 6:34 pm
Sharon How does your doctor differentiate between the spherocytosis and the AIHA? Â John ... From: frteach2000 <grele@...> Subject:...
2056
Francine Jacobson
jacobsonfran
May 10, 2010 6:35 pm
My mom started acupuncture...good results. To: Autoimmune_Hemolytic_Anemia@yahoogroups.com From: landjfamily5@... Date: Wed, 14 Oct 2009 05:11:33 -0700 ...
2057
Deanna
deanna.sorenson
May 10, 2010 6:36 pm
Hello all, My mother had extreme fatique, paleness, shortness of breath and confusion when we admitted into the hospital over 2 months ago. She had 2 bone...
2058
John Thomas
jthomas7
May 10, 2010 6:36 pm
Thanks for the update, glad to hear he is doing well. Â John ... From: michelle bayliss <bayliss_michelle@...> Subject: RE:...
2059
John Thomas
jthomas7
May 10, 2010 6:36 pm
Sherry I too am curious about the test. Tell us more. Â John ... From: joannb57 <joannb@...> Subject: [Autoimmune_Hemolytic_Anemia] Re: Red blood cell...
2060
jthomas7
May 10, 2010 6:36 pm
Michelle I was wondering if your son got his splenectomy and how it all went. Hope all is well. John --...
2061
jthomas7
May 10, 2010 6:36 pm
Hi Everyone I just joined this group. I am a 58 year old male. My twin brother was just diagnosed 8 weeks ago or so with warm AIHA (told idiopathic). He has...
