My son has used The Listening Program and Samonas with good results.  Both
are home programs you purchase and can repeat at home as often as you like
without added expense.  He did  Samonas first (runs about $50 a disc or about
$600 for a full protocol -- I think this was developed by Ingo Steinbach).
It helped tremendously in reducing sound sensativity and boosting auditory
processing.  After two 5-month rounds of Samonas, he moved to The Listening
Program, which was developed by Advanced Brain Technologies & The National
Academy of Child Development -- runs about $500 for people who are not doing
NACD programs.  This seemed to have much more effect on auditory processing
and communication.  The Speech & Language CD they've recently added was the
closest thing to a talking pill I've ever found.  This disc hits all of the
tones used in human language.  Every time he listens to that we see a huge
boost in his conversation.  He's done several rounds of these now and seems
to benefit well each time.  However, the progress does seem to fade a little
if we give him several months between rounds.  We tried the Ease disc years
ago but he refused to listen to it.  Since I'll be going through training to
use the new Digital Auditory Aerobics Berrard AIT equipment with a school I
do some work with, I'm considering trying AIT on my son as well.  I'll let
you know how it compares once he does it.   I do know several people who have
done all three therapies.  They did AIT first then Samonas or TLP when the
AIT lost effectiveness, which seemed to work well.

AIT clearly has the most research backing it.  However, I know of many people
who seemed to be helped at first but later the treatment wore off --
sometimes very quickly -- not cool for a $1500-2000 a pop treatment.  Most of
those I know who lost effectiveness fairly quickly had physical things going
on that threw it off which is why we opted for the other methods while
healing my son from the metals tox.  In comparing it to the others, AIT's
music is much less pleasant to listen to -- kind of whacked out, scratchy
rock music compared to nice classical music and nature sounds.  Listening to
AIT music for a few minutes one time made me sick at my stomach and gave me a
headache for days.  I was told this indicated I needed it.  I did not find
the same negative feelings with Samonas when I listened to it and the program
helped my sound sensativities.  If I had a child who didn't wear headphones
easily or was extremely sensative, I'd ease into headphones and listening
with one of the other programs.  AIT also seems a bit less stable since you
have to avoid listening to things with headphones or wearing ear plugs after
the treatment which you don't with the other two.

Laurie Riggs, one of the developers of The Listening Program and our protocol
designer for Samonas, also used AIT with children prior to the other two
programs.  She told me that she believes AIT can be too harsh for some of the
children, especially if you don't use the filters, and that the other two
programs are more gentler and longer lasting because they ease the person in
to listening more slowly.   TLP is an 8-week program and Samonas can be as
long as 6 months, depending on the protocol.  When Annabella Stehli spoke
here recently, she also stressed the importance of filters, even though most
therapists don't use these since it's hard to get lower-functioning kiddos to
cooperate in doing the audio test that sets the filters.
Gaylen



[Non-text portions of this message have been removed]

AUTISM AND MERCURY
Q: How is Mercury Poisoning related to Autism?
Q: How dangerous is mercury?
Q: How could my child have become mercury poisoned?
Q: What are some other sources of exposure to mercury?
Q: But my dentist told me that dental amalgam is perfectly safe
Q: If mercury poisoning is caused by vaccines, then why aren't all kids mercury toxic?
Q: Has anyone actually cured their autistic child by chelating them?

DETERMINING MERCURY TOXICITY & FIRST STEPS
Q: My doctor says that my child is not mercury toxic because his/her blood and urine mercury levels are within normal limits. What do you think?
Q: How can I find out if my child has mercury poisoning?
Q: My alternative doctor wants to do a DMPS challenge test. Is this safe?
Q: I've made an appointment for a hair test and I'm trying to find a doctor to help me chelate. Is there anything I can do right now?
Q: OK, I'm convinced my child is mercury toxic. What do I do now?
Q: My child has only one amalgam filling, and I can't seem to find a dentist
who will agree to replace it. Can't I go ahead and chelate?
Q: I've gotten back the hair test results for my child, and it shows he has high
levels of other metals besides mercury. What should I do?

CHELATION
Q: What are chelating agents?
Q: What is DMPS?
Q: What is DMSA?
Q: What is ALA or LA?
Q: What is the proper dosage and administration schedule for DMSA and LA?
Q: I've started chelating and my child is having bad side effects. What can I do?
Q: I've heard that glutathione, chlorella, cilantro, cysteine, MSM, NAC, garlic,
and saunas will chelate naturally, and that the natural way is better. Is this true?
Q: My child is GFCF. Can I continue the diet?
Q: How long does it take to complete chelation?

RESOURCES
Q: Who is Andy Cutler?
Q: Who is Dr. Amy?
Q: How can I find a mercury-free dentist?

====================================================
AUTISM AND MERCURY

Q: How is Mercury Poisoning related to Autism?

In their paper "Autism: A Unique Type of Mercury Poisoning" Bernard et. al, http://www.cureautismnow.org/sciwatch/invest.cfm have revealed a startling similarity in the symptoms of Autism and Mercury Poisoning. While this may sound frightening, it actually shines a bright ray of hope into the lives of families living with an autistic child. Why? Because mercury poisoning can be cured.

Q: How dangerous is mercury?

Very. Mercury is the second most toxic element on earth, second only to plutonium. The amount of mercury found in one mercury thermometer is enough to pollute a small lake. Mercury toxicity has been linked to a large number of diseases, including arthritis, altzheimer’s, multiple sclerosis, fibromyalgia, lupus, chronic fatigue syndrome, depression, bipolar disorder, schizophrenia, learning disabilities and ADHD.

Q: How could my child have become mercury poisoned?

Many parents believe the major culprit to be thimerosal, a preservative used in vaccines and other medications. Thimerosal is 50% mercury by weight. In October 1998, the FDA banned the use of thimerosal in over the counter medications. Since July, 1999, the FDA has "encouraged" manufacturers to remove thimerosal from vaccines. Some have done it; others have not. Today, most vaccines that are being manufactured do not contain thimerosal, or they only contain a "trace." But we do not know how many of the old thimerosal products are still on the shelf.

Each vaccine containing thimerosal exceeds the EPA's safety guidelines of 0.1 mcg/kg/day. Since multiple vaccines are often given on the same day, the amount of mercury injected into a typical infant is many times over the "safe" limit. Before the FDA ban, mercury had been added to eye drops, contact lens preparations, nasal sprays, contraceptive creams, hemmhoroid creams, lubricating gels, allergy injections, and antiseptics such as Mercurochrome® and merthiolate.

Q: What are some other sources of exposure to mercury?

There are many other common sources for mercury exposure. Here's a short list:

• Dental amalgams
• Released into the air by coal burning plants
• Fish and shellfish, especially tuna, salmon and swordfish
• Some paints
• Thermometers and blood pressure gauges (especially if mercury from broken instruments was spilled on carpet)
• Fluorescent light bulbs

Q: But my dentist told me that dental amalgam is perfectly safe.

The presence of mercury in dental amalgams is a very controversial subject. Despite the fact that dental amalgam contains 50% mercury, the American Dental Association's official position is that dental amalgam is safe, and that mercury does not pose a health risk. However, numerous research studies show that dental amalgams are a major source of mercury toxicity. Because of the ADA’s position, your dentist risks losing his license if he tells you that amalgam fillings are dangerous, no matter what he personally believes.

Q: If mercury poisoning is caused by vaccines, they why aren't all kids mercury toxic?

Sensitivity to mercury varies widely from person to person, as does the body's natural ability to detoxify. Some children can get rid of the mercury quickly, while in others, the toxin remains in the body longer, allowing it time to bind tightly in the brain and other organs.

Q: Has anyone actually "cured" their autistic child by chelating them?

The book "Turning Lead Into Gold" describes several cases of children with "autistic tendencies" who improved dramatically after chelation for lead.

As of this writing, no one on this list has completely cured their child from mercury poisoning. But its early yet. Dr. Amy is getting some wonderful results with the children in her practice, and numerous parents have reported improvements in their autistic children with each chelation cycle.

DETERMINING MERCURY TOXICITY & FIRST STEPS

Q: My doctor says that my child is not mercury toxic because his/her blood and urine mercury levels are "within normal limits." What do you think?

Most MDs are more familiar with lead poisoning than mercury poisoning. Blood and urine tests are the standard for measuring lead, but these tests are inadequate for mercury. This is because once mercury enters the body, it very quickly leaves the bloodstream and accumulates in the internal organs. Therefore, urine and blood tests will only show mercury if the person has been exposed to a large amount of mercury very recently. Chronic long-term exposure (amalgams) or old exposure (vaccines) will not show up with these tests. A better way to test for mercury is by using a hair elements test.

Q: How can I find out if my child has mercury poisoning?

Dr. Amy Holmes lists a number of useful medical tests on the website: http://www.healing-arts.org/children/holmes.htm. A trace minerals analysis, or hair test, is an inexpensive, non-invasive and reasonably accurate test for determining the body's burden of mercury and other heavy metals. Doctor's Data (708/231-3649) is a great source for obtaining this test. Keep in mind that mercury may be so tightly bound in the body's organs that it doesn't show up in large amounts in the hair test. Instead of looking at mercury by itself, it is necessary to look at all of the elements and to apply the "counting rules" (posted in files) to determine if mercury is present.

Q: My alternative doctor wants to do a DMPS challenge test. Is this safe?

No. DMPS challenge tests and IV chelation with DMPS can be very dangerous—see www.dmpsbackfire.com. A challenge test is when a doctor administers a large amount of a chelator in a single dose, and then tests the urine for metals. Challenge tests in general aren't useful for diagnosing mercury toxicity because everyone has some mercury in them, and DMPS (or DMSA) will mobilize it. If DMPS is to be used, it should be administered orally, every 8 hours. And no one should take a chelator of any kind if they have dental amalgam fillings.

Some doctors suggest doing the same sort of challenge test using a large oral dose of DMSA, or will suggest treatment with infrequent doses of chelator (once a day or every other day). This is also dangerous. Chelators should always be given in frequent, small doses (every 3-4 hours for DMSA, every 8 hours for DMPS).

Q: I've made an appointment for a hair test and I'm trying to find a doctor to help me chelate. Is there anything I can do right now?

Yes—you can begin supplementation. There are many dietary supplements that can help your child to feel better now, and during the chelation process. Here are some important ones:

Take these 4 times a day: Vitamin B complex, Vitamin C, and Milk Thistle extract

Take these often (frequency not as critical): Zinc, Magnesium, Vitamin E, mixed carotenes and lypocene, flax seed oil.

Q: OK, I'm convinced my child is mercury toxic. What do I do now?

If your child has dental amalgams, you will need to find a mercury-free dentist who can replace the silver amalgam fillings with some other material. Next, you should try to find a doctor who can help with chelation. Keep in mind that most regular allopathic doctors are not familiar with mercury toxicity. You don't have to go to a regular MD. "Alternative" doctors such as osteopaths, naturopaths, homeopaths and chiropractors may be able to help you obtain chelating agents and monitor your child's health during the process. You don't have to have a doctor to chelate, but it is a very good idea.

Q: My child has only one amalgam filling, and I can't seem to find a dentist who will agree to replace it. Can't I go ahead and chelate?

Absolutely not. You cannot start chelation if there are any silver amalgam fillings present. The chelator will remove mercury from the filling and deposit it in your child's body, making him even more toxic.

Q: I've gotten back the hair test results for my child, and it shows he has high levels of other metals besides mercury. What should I do?

Generally, you remove the other metals first. High levels of lead, copper, arsenic, antimony or aluminum can cause symptoms similar to mercury poisoning. If your child has high levels of several metals, he is likely very sick. Test again in three months.

Recommendations for chelating other metals:

Lead: Use DMSA, but follow the protocol for mercury in case mercury is present as well. Administer every 3-4 hours for several days, then rest for the same number of days, etc.

Arsenic: Use DMSA first if your child is mercury toxic. LA works very well for arsenic. Chelate using mercury protocol (every 3 hours, with on/off cycles).

Antimony: Use SAMe, 5 mg a day per pound of kid in divided doses. Or you can use the "poor man's methylating mix" of B-12 (100 mcg per pound), folate (10 mcg per pound) and TMG or choline (10-20 mg per pound). Spread these through the day. They may be energizing so you might want to give them in the earlier part of the day.

Copper: Copper absorption can be greatly reduced by giving 25 mg zinc + 250 mcg
molybdenum 4 times a day, and also by excluding high copper foods from the
diet. Nuts, organ meats, shellfish, molasses and sometimes unwashed produce
are high. Glycine, taurine and milk thistle extract might help get rid of copper faster.

Note: You should not give LA if your child has high copper levels, as LA will drive copper levels higher.

Aluminum: Restrict dietary intake. Don't cook in aluminum pans, or drink sodas from aluminum cans. Certain baking powders, antacids and antiperspirants contain aluminum, so be sure to check labels.

Cadmium: Zinc may help.

Antioxidant supplements help reduce the symptoms of all heavy metal problems.

CHELATION

Q: What are chelating agents?

Chelating agents are compounds with two or more binding groups for certain
metals combined into one molecule. Chelating agents for mercury are DMPS (2,3 dimercaptopropanesulfonate sodium), DMSA (2,3 meso DiMercaptoSuccinic Acid. Generic name: Succimer. Trade name: Chemet) and ALA (alpha lipoic acid).

Q: What is DMPS?

DMPS has been approved for bulk distribution by compounding pharmacies and is excellent for removing mercury from the body (but not the brain) if it is used properly.
Unfortunately many physicians use it and other chelating agents improperly, and like any drug these can be extremely dangerous when not used right.

Q: What is DMSA?

DMSA is a prescription medication which has been approved by the FDA for lead poisoning in children. It also works well for mercury. DMSA removes mercury from everywhere in the body except the brain, because it does not cross the blood-brain barrier.

Q: What is ALA or LA?

Alpha lipoic acid (ALA or LA) is an over-the-counter supplement which has been found to effectively chelate mercury. Unlike DMSA and DMPS, LA will cross the blood-brain barrier, and so it can move mercury out of or into the brain. LA should not be used if there has been recent mercury exposure (within 3 months) or if your child has high copper levels, since LA reduces copper excretion.

Q: What is the proper dosage and administration schedule for DMSA and LA?

The dosage is less important than the administration schedule. If you remember nothing else about this FAQ, remember this: DMSA or LA must be given in small, frequent doses (every 3-4 hours, even at night) over several days to be effective. Infrequent dosage will just stir up the mercury and redistribute it in the body, making your child sicker.

For DMSA alone, the guideline is 1 mg per pound of child to start. For DMSA given with LA, start with 1/8 to ½ mg. per pound of child. Increase slowly as tolerated.

If giving LA by itself, give it every 3 hours. DMSA is given every 4 hours. DMSA + LA should be given every 3 hours.

DMPS alone should be given every 8 hours.

Chelation should be done in cycles of at 3 to 7 days on the chelator, followed by at least as many days off as a rest period. Many parents find it convenient to chelate on weekends, starting when the child gets home from school and stopping on Monday morning, with weekdays as rest days. With the schedule, sleep is only interrupted on weekends and parents don't have to depend on school employees to give the medicine.

Q: I've started chelating and my child is having bad side effects. What can I do?

Some side effects that list members have reported include increased urination, redness of the face and extremities, rash, heartburn, and diarrhea. Your child may also show an increase in autistic symptoms (may become more "stimmy" or show more oppositional behavior). If the side effects are severe or difficult to deal with, stop the cycle and allow a rest time, then start the next cycle with a lower dosage. You may also want to try a shorter chelation cycle, with a larger rest period in between.

Q: I've heard that glutathione, chlorella, cilantro, cysteine, MSM, NAC, garlic, and saunas will chelate naturally, and that the natural way is better. Is this true?

Don't assume that because something is "natural," that it is necessarily better. As Andy has reminded us, strychnine and botulism are natural, and deadly. That said, some natural remedies are excellent. LA is a natural supplement available at health food stores, and it has been found to be a good chelator for mercury and arsenic. You have to read about and study each one so that you have some idea what you are giving your child. All of these remedies have been discussed on the list, and some of our list members swear by them. You are encouraged to inform yourself and make up your own mind. But here's what Andy and Amy say about them:

Glutathione – Andy: "Glutathione is not a chelator. Supplemental glutathione itself is of very little value since your gut should digest it. If your gut is not digesting it you will soon start taking other things to MAKE your gut digest it because letting undigested things like glutathione into your bloodstream will soon cause major allergy problems."

Chlorella—Andy: "While there is little in press that shows chlorella to be harmful, there are multitudinous observations of real people which show that. All you have to do is ask
around. Chlorella is simply another "sulfur food." It is very harmful to people who
are high in sulfur."

"Dr. Klinghardt, is the one that popularized DMPS injections and DMSA every other day, the first and second most dangerous mercury treatment protocols. Now he is on to chlorella, which is also very dangerous. I know several people who took it per his protocol and suffered permanent neurological damage as a result."

Cilantro—Andy: "There is some superstition that cilantro helps, and it really may, but it
isn't clear how to use it."

And this from Dr. Amy Holmes—"Cilantro. Untested. A few reports that it MAY cross the blood-brain barrier and chelate mercury, but no data. Please bear in mind that no one knows what the ingredient in cilantro is that MAY do this. Is every cilantro equal? Who knows? I don't see how one could possibly be even somewhat sure that you are keeping a relatively steady blood level of THE INGREDIENT when we don't know what THE INGREDIENT is or if all cilantro has the same amount of it. And if anything in mercury chelation is more important, I can't think of it."

Cysteine—Not a chelator. Andy: "Don't give cysteine/cystine or sources of it during ALA chelation unless you definitively know the child has low plasma levels of cysteine (not low-ish, definitively abnormally low)."

Dr. Amy: "I think we are much better off leaving glutathione, MSM, cysteine, etc. supplements alone. They cause many more problems than they can fix in an untested person.

MSM—Not a chelator. Andy: "The more I hear about MSM the more I suggest people avoid it. I keep getting random negative reports." And "It is an exceptionally bad idea to use MSM, cysteine, NAC or glutathione with LA since LA naturally increases your body's cysteine and glutathione levels."

NAC—This is a supplement which will cause the body to produce more glutathione. Andy: "Neither NAC nor glutathione remove any mercury from the brain - but they do
make whatever mercury is there a lot more toxic if administered in excessive
amounts."

Garlic—Not a chelator, but posters say it's great for pinworms.

Saunas—Andy: "Sauna has been used to detox mercury miners since time immemorial - when they get too messed up, they go to the sauna during work hours instead of into
the mine shaft." "Sweating does indeed increase mercury excretion. Probably an hour or
two of sauna is the same as 50 mg of DMSA every 4 hours for a day." Note: Posters urged caution with saunas because mercury toxic people are often heat sensitive.

Q: My child is GFCF. Can I continue the diet?

If it makes your child feel better, then by all means continue. Bernie Windham has written a paper that describes how mercury interferes with the enzyme that is needed to digest gluten and casein. Many people who are mercury toxic are sensitive to food that are high in sulfur, which includes all dairy products.

Regarding yeast: Mercury causes damage to the immune system, and a weakened immune system allows yeast, bacteria and and all sorts of other nasties to proliferate in the body. Yeast overgrowth can cause "leaky gut"—a condition in which the lining of the intestine becomes somewhat porous, allowing undigested particles to enter the bloodstream, causing allergic reactions. Mercury toxic individuals often suffer from food allergies. Therefore, a GFCF (gluten and casein-free) diet is probably a good idea before and during chelation. Theoretically, once the mercury is removed, the immune system is restored, and the gut is allowed to heal (this may require antibiotics and/or anti-fungals), the child may be able eat "regular" foods again.

Q: How long does it take to complete chelation?

Six months to two years, depending on how toxic a person is and how quickly you chelate. Children younger than 8 seem to respond more quickly than older children.

RESOURCES

Q: Who is Andy Cutler?

Andy Cutler is a Ph.D. chemist who found himself sick with mercury poisoning and figured out how to get well. He wrote a book called "Amalgam Illness: Diagnosis and treatment" It sells for $35 and you can order it directly from his web site: http://hometown.aol.com/noamalgam. Andy spends many hours answering questions on our list, and he always tells it like it is—no bull.

Q: Who is Dr. Amy?

Dr. Amy Holmes is an M.D. in Louisiana who is working with parents of many autistic children to help them chelate mercury and other toxic metals from their children. Dr. Amy used to be an oncologist. She retired to raise her infant son, only to find out that he has autism. Now she has gone back to work to help her son and others’ children. Dr. Amy has written an article on the healing arts website: http://www.healing-arts.org/children/holmes.htm that describes the mercury problem and her treatment protocol. Licensing laws prohibit Dr. Amy from consulting with people who are not her patients. However, your doctor may call Dr. Amy at (225)767-7433 to consult with her or receive a faxed copy of her protocol.

Q: How can I find a mercury-free dentist?

Send a #10 SASE with 78 cents postage to:

Foundation For Toxic-Free Dentistry (or just use FTFD)
P.O. Box 608010
Orlando, FL
32860-8010

Be very careful when selecting a dentist. Composite fillings require more skill in placement than amalgam, and the risk for further mercury exposure during amalgam replacement is great. The dentist should follow something similar to the IOAMT protocol: http://mall.turnpike.net/P/PDHA/mercury/iaomt.htm for amalgam removal and replacement.
 
 

Hi!  I am interested in chelation therapy and wanted to know if there
is a list on the internet (similar to DAN list) of dr.s that
specialize
in chelation, especially with austistic children.
Thank you,  Maddie

I'm not from Louisiana, but I have seen Dr. Amy and the Baton Rouge
airport.  I don't think any hotel has shuttle service from the
airport.  I'd guess a 20 minute ride to the mall, but just been there
once.  It's not a long drive though.  Kathy

--- In Autism-Mercury@y..., bronze3n1@c... wrote:
> group,
> I am just about to book my flight to see Dr. amy end of November.
> Travelocity is offering me 120.00 round trip from San Diego to
Baton Rouge!!!
> Can any of you out in Louisanna post to me how far the trip is from
batoin
> rouge airprt to the Mall in baton Rouge? (I know I will find a
hotel near the
> mall). I am trying to see if it worht the extra 150.00 to fly to
New Orleans
> from Ontario CA.  Ontario Ca. is my local international airport.
The 150.00
> is  60. for the rental car and 90.00 for the local travel. San
Diego is
> 90minutes away from my home; Omntario is 15 minutes away from home.
> is Baton Rouge Airport the type of airport that offers shuttle
service to
> hotel.
> Thanks so much.
> Judy Braun
> Levi is 11

does anyone know where to find info on ingredients in chickenpox vaccine. my
pediatrician wants my 4 yr old to get vaccine and i need to learn more about
it.
karen


[Non-text portions of this message have been removed]

Hey All,
This is good news, but when are they going after the IOM for hiding
important information?  Please don't tell me that they're going to get away
with it????
Barb
-----Original Message-----
From: Sally Bernard <sbernard@...>
To: Autism-Mercury@egroups.com <Autism-Mercury@yahoogroups.com>
Date: Wednesday, October 31, 2001 7:13 PM
Subject: [Autism-Mercury] Gov't Reform Committee Vax Comp Hearing


>Hearing Notice:                                 Contact: Mark Corallo/
>Josie Duckett
>October 30, 2001                                                  (202)
>225-5074
>
>                            Oversight Hearing Planned for
>              The National Vaccine Injury Compensation Program
>           Families complain that program has become too adversarial
>
>WHO:    House Government Reform Committee Dan Burton (R-IN), Chairman
>WHAT:   Full Committee Hearing - "The National Vaccine Injury
>Compensation Program:
> Is It Working as Congress Intended?"
>WHEN:   Thursday, November 1, 2001 10:00 a.m.
>WHERE:  2154 Rayburn House Office Building
>WITNESSES:
>
>Panel 1:        Family members of those injured by vaccinations
>Janet Zuhlke, Satellite Beach, Florida
>Harold Sword, Columbus, Ohio
>Thad Rogers, Auburn, Alabama
>
>Panel 2:        Federal health officials
>Thomas Balbier, Director, Vaccine Injury Compensation Program, U.S.
>Department of Health and Human Services
>Paul Harris, Sr., Deputy Assistant Attorney General, Civil Division,
>U.S. Department of Justice
>
>Washington D.C. - The House Government Reform Committee will hold a
>hearing to review the U.S. Department of Justice's and the Department of
>
>Health and Human Services' implementation of the Vaccine Injury
>Compensation Program (VICP) on Thursday, November 1, 2001.  Congress
>created the National Vaccine Injury Compensation Program in 1986 to
>establish a federally sponsored, no-fault system of compensating
>individuals
>who suffered adverse reactions to vaccines.
>
>The program was intended to be less adversarial than the tort system and
>was
>intended by Congress to fairly compensate those individuals who are
>injured or
>die as a consequence of vaccines.  However, the Program has received
>criticism in recent years as many families have seen their cases tied up
>for
>years in a system that they say has become too adversarial.
>
>The first panel will include family members of those that became ill due
>to
>vaccinations:
>
>Janet Zuhlke, Satellite Beach, Florida,
>In 1990, Janet's daughter Rachel had a severe reaction hours after
>receiving
>her pre-kindergarten vaccinations.  She developed a fever, headaches,
>vomiting, and pain in her eyes that caused her to scream.  Janet is now
>mentally retarded and will require care for the rest of her life.  The
>Zuhlkes
>filed a petition for compensation in 1992.  Although the case appeared
>to fit
>the injury table, the government spent several years attempting to
>demonstrate
>that Rachel's condition was caused by a streptococcal infection.  The
>Zuhlkes
>finally prevailed in July 2001, nine years after they filed their
>claim.  They
>remain months away from actually receiving compensation..
>
>Harold Sword, Columbus, Ohio
>Harold's daughter Natalie died four hours after receiving a vaccination
>in 1975,
>before the VICP was created.  She went limp in the car on the way home
>from
>the doctor's office and was unresponsive when they arrived at home.  The
>
>Swords filed for compensation in September 1990.  Eight years later, the
>
>special master overseeing the case overruled the government's expert
>witnesses
>and awarded compensation to the Swords. Despite the close proximity of
>the
>child's death to the time of vaccination, the government took the
>unusual step
>of appealing the special master's decision.  That appeal was rejected,
>but
>compensation was further delayed.
>
>Thad Rogers, Auburn, Alabama
> Thad's wife Diane, a pharmacist, became ill the day she received a
>routine
>tetanus booster ten years ago.  She has displayed Multiple
>Sclerosis-type
>symptoms that doctors feel is the result of her vaccine.  She is now
>bedridden
>and requires constant care.  They filed for compensation in 1994.  After
>eight
>years, the Rogers family won their case.  However, one month ago, the
>Rogers
>were informed that the Government would appeal the decision.
>
>Federal Health officials who administer the program will follow on the
>second
>panel.
>
>                                             ###
>
>
>=======================================================
>Statements posted on this list are for information only,
>and should NOT be taken as medical advice.  If you need
>medical advice, you should seek it from those who are
>authorized to give medical advice: doctors.
>
>Post message: Autism-Mercury@yahoogroups.com
>Subscribe:    Autism-Mercury-subscribe@yahoogroups.com
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>List owner:   Autism-Mercury-owner@yahoogroups.com
>Shortcut URL: http://groups.yahoo.com/group/Autism-Mercury
>Answers to common questions:
>http://groups.yahoo.com/group/Autism-Mercury/files/Mercury-Autism%20FAQ
>
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>
>
>

| Did you see much Hg with DMSA or with DMSA/ALA?  It seems to me if
| you saw more when you added ALA it indicates that the Tin/Lead theory
| may not be true.

Ben,

Well, I'm still not sure what the Tin/Lead theory is :-)  My experience doesn't
disprove the Tin/Lead theory, since she
started DMSA + ALA without seeing *both* lead and tin go away.  I would love to
know the story behind Dr. Amy's
assertion.

I saw Hg on her first DMSA round, and none since (just finished round 6, and
still don't have urinalysis results on
round 5).  My daughter isn't typical, though, since she had DMPS injections
about 2 years ago and I know mercury came
out then.

Not seeing Hg (or improvements) until round 7,8,9 is what the Dr. told me to
expect.   So far this is what has happened.

Happy Halloween, Mary K.

Hi Gaylen,
Could you please let me know where I would purchase these listening tapes?
Thank You, Maria R

Hello Karen:

I don't know where the vaccine is but I'll share with you what my regular
run of the mill pediatrician says about it.  It is not worth it.  It does
not confirm lifetime immunity.  This is a real problem for boys because
if they do in fact get the chicken pox after puberty they can become
sterile.  She is a pro vac doc but does not like this one and will not
vac any children.

In Christ's love and mine...Jen : )

On Thu, 1 Nov 2001 08:03:42 EST krnstvn@... writes:
does anyone know where to find info on ingredients in chickenpox vaccine.
my
pediatrician wants my 4 yr old to get vaccine and i need to learn more
about
it.
karen


[Non-text portions of this message have been removed]



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In Christ's love and mine...Jen : )

[Non-text portions of this message have been removed]

Thanks so much Rita!!!!. It is great that you share your experiences
on both of your kids with us. As I mentioned before, we are the
advocates of our children, and must stand together!!!!.
I agree, the medications will just help control some behaviors, but
of course, they are NOT the cure. There is no found cure to this, so
it is like you say, we must continue to incorporate them to society
as much as possible, try very hard so that they can have a good life.
In order to achieve this, we have to do the work, doctors will NOT.
I have been researching on alternative atypical anti-psychotics, but
we are more inclined to stop medications, and begin DMSA.
I am very pleased to hear that your son, who is 9, has had remarkable
progress. That gives us a lot of hope.
Thanks for all your input, and as soon as we start, I will keep all of
you posted.
Thanks for so much support and time,
Love,
Maria



>From: ritamo65809@...
>Reply-To: Autism-Mercury@yahoogroups.com
>To: Autism-Mercury@yahoogroups.com
>Subject: [Autism-Mercury] Re: NEW MEMBER/RISPERDAL/SEROQUEL/CHELATION???
>Date: Thu, 01 Nov 2001 00:55:49 -0000
>
>Maria,
>
>Like many families, we also tried just about every form of therapy
>out
>there before resorting to medications.  When severe behaviors are the
>primary issue, as was our case, medications can offer some much
>needed relief to these kids who are truly suffering underneath the
>anger
>outbusrts, almost endless tantrums, obsessive thoughts, aggression,
>etc.
>
>My 9 yr. old son is on Seroquel and Concerta and my 8 yr. old
>daughter
>is on Seroquel and Paxil.  We just started our daughter on DMSA this
>past weekend so it's too early to comment on how she'll do with this.
>
>Our son, however, has been chelating with DMSA since June and is
>showing remarkable improvements.
>
>You may want to ask your psychiatrist about alternatives to
>Risperdal.
>Zyprexa is also an atypical anti-psychotic but is also associated
>with
>weight gain. Geodon is in the same class of medications but is not
>known to cause weight gain--unfortunately, neither of my kids
>responded to this, but everyone's different.
>
>We hope so much that one day, through chelation and other therapies,
>both of our kids will be med-free. For now, it's out of the question.
>
>Best wishes to you & your family--welcome to the list!
>Rita
>
>
>--- In Autism-Mercury@y..., "MARIA E. & GASPAR GARCES"
><meggforwarding@h...> wrote:
> > Tracy:
> > Thanks for your response. The more we do, and we read, the more
>we
> > realize how little is known about the roots of our children's
> > problems, and how doctors just treat our children to experiment.
> > This is very hard to admit, and as parents we spend all of our
> > resources in trying to help. They well know we are desperate, but
> > no one doctor will see your child and get interested in the case.
> > Even doctors with autistic children make a business out of their
> > practice, this is why we(the parents) ALL must stand together,
> > to continue to investigate and research.
> > I think you are absolutely right, medications will not resolve the
> > issues. The only reason I am trying the anti-psychotic  (risperdal)
> > is because in cases like my daughter's, some children had reverted
> > symptoms and recovered previously acquired and then lost skills.
> > This is like the movie, "Lorenzo's Oil". We have to do the work,
> > when you leave the doctor's office, they in the majority, do not
>think
> > of your child again, until it is time to go back.
> > How is Sarah doing with chelation??. How old is she?. When did you
> > start on this???.
> > Thanks again, Maria
>
>


_________________________________________________________________
Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

Dear Moria:
Thank you so very much. Very Good Source of Information,
God Bless, Maria


>From: Moria Merriweather <moriam@...>
>Reply-To: Autism-Mercury@yahoogroups.com
>To: Autism-Mercury@yahoogroups.com
>Subject: Re: [Autism-Mercury] NEW MEMBER/RISPERDAL/SEROQUEL/CHELATION???
>Date: Wed, 31 Oct 2001 19:56:53 -0800
>
> >**ANY OF YOU WHO STARTED CHELATION ON CHILDREN OVER THE AGE
> >OF 6, AND CAN YOU SHARE THE RESPONSE TO IT?????
> >THANKS FOR ALL THE INPUT,
> >VERY APPRECIATIVE,
> >M.E.G.
>
>Dear M.E.G.,
>
>Welcome.
>You can find tons of progress reports here:
>http://groups.yahoo.com/group/Autism-Mercury/files/LOVE_LETTERS
>A lot of them don't say the child's age, but then again,
>some do.  If you read through them I'm sure you'll find
>some over 6 year olds among them.  It is a lot of reading to
>find the ones you are looking for, but I think you will find
>it worthwhile.
>
>Moria
>


_________________________________________________________________
Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

Karen:

My son went downhill rapidly after his chickenpox vaccine at 2.  (I
have videos of him playing with kids outside the week before, and
isolating himself and stimming two months later.)  I am not positive
of a direct correlation, but I regret the fact I allowed him to
receive it, particularly since what Jen says is exactly right--they
just don't need it.

If your doctor is really pushing it, I'd get a better doctor.

Ben
--- In Autism-Mercury@y..., Jennifer L Thorne <jthorne@j...> wrote:
> Hello Karen:
>
> I don't know where the vaccine is but I'll share with you what my
regular
> run of the mill pediatrician says about it.  It is not worth it.
It does
> not confirm lifetime immunity.  This is a real problem for boys
because
> if they do in fact get the chicken pox after puberty they can become
> sterile.  She is a pro vac doc but does not like this one and will
not
> vac any children.
>
> In Christ's love and mine...Jen : )
>
> On Thu, 1 Nov 2001 08:03:42 EST krnstvn@a... writes:
> does anyone know where to find info on ingredients in chickenpox
vaccine.
> my
> pediatrician wants my 4 yr old to get vaccine and i need to learn
more
> about
> it.
> karen
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Yahoo! Groups Sponsor
>
>
>
> =======================================================
> Statements posted on this list are for information only,
> and should NOT be taken as medical advice.  If you need
> medical advice, you should seek it from those who are
> authorized to give medical advice: doctors.
>
> Post message: Autism-Mercury@y...
> Subscribe:    Autism-Mercury-subscribe@y...
> Unsubscribe:  Autism-Mercury-unsubscribe@y...
> List owner:   Autism-Mercury-owner@y...
> Shortcut URL: http://groups.yahoo.com/group/Autism-Mercury
> Answers to common questions:
> http://groups.yahoo.com/group/Autism-Mercury/files/Mercury-Autism%
20FAQ
>
> Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> In Christ's love and mine...Jen : )
>
> [Non-text portions of this message have been removed]

ben_price@... wrote:

> Karen:
>
> My son went downhill rapidly after his chickenpox vaccine at 2.  (I
> have videos of him playing with kids outside the week before, and
> isolating himself and stimming two months later.)  I am not positive
> of a direct correlation, but I regret the fact I allowed him to
> receive it, particularly since what Jen says is exactly right--they
> just don't need it.
>
> If your doctor is really pushing it, I'd get a better doctor.
>
> Ben

The insurers to the Dr and pharm companies are pushing the Dr to do it.
.

My son was on DMSA from 1/01 to 9/01 .  In May my son was bumped off the the
autistic spectrum. He was calm, focus and beautiful eye contact.  We stopped
DMSA 9/1 (Dan Proto call).  We started seeing regression in June and the
doctor assure us that it was toxic metals being removed.  But with time he
only got worse.  His Citric Acid is elevated (sign of yeast infection) and he
has been taking Diflucan for the past 25 days along with many others
anti-yeast remedies.  We can't seem to get him back to his previous state.
If anyone has any suggestions please help.
Diane

The Chicken Pox Vaccine is named Varicella, Brand name Varivax,
made/manufactured by Merck is Thimerosal and Mercury Free. It's
necessity I feel is dependant on your child's needs. If having
chicken pox would be unbearable for your child's sensory issues you
may want to consider it. There is potential for risk however. There
is a new book by Dr. Stephanie Cave, M.D. discussing Vaccines of all
kinds and the title say the rest, it's called "What Your Doctor May
Not Tell You About Children's Vaccination's." She is in practice with
Dr. Amy Holmes in Louisiana.

You can also use http://www.vaccinesafety.edu to look up vaccine
information.

Cyndy

Contact Unlocking Autism, they have a Wings for Little Angels program
to pay for travel out of state for children and their parents,
including airfare, hotel, etc. They have a website, I think it is
http:/www.unlockingautism.com but I'm not positive so you may have to
do a search for them. Good Luck on the rest!
--- In Autism-Mercury@y..., bronze3n1@c... wrote:
> group,
> I am just about to book my flight to see Dr. amy end of November.
> Travelocity is offering me 120.00 round trip from San Diego to
Baton Rouge!!!
> Can any of you out in Louisanna post to me how far the trip is from
batoin
> rouge airprt to the Mall in baton Rouge? (I know I will find a
hotel near the
> mall). I am trying to see if it worht the extra 150.00 to fly to
New Orleans
> from Ontario CA.  Ontario Ca. is my local international airport.
The 150.00
> is  60. for the rental car and 90.00 for the local travel. San
Diego is
> 90minutes away from my home; Omntario is 15 minutes away from home.
> is Baton Rouge Airport the type of airport that offers shuttle
service to
> hotel.
> Thanks so much.
> Judy Braun
> Levi is 11

Has Varivax always been thimerasol free? My daughter was vaccinated with this
in '96.

Thx,
Yvonne

List Members,

My son is a type 1 diabetic who takes multiple insulin shots daily.  He had
a severe "regression" of skills lost (eye contact, academics, attention,
staying on-task, language), this happened 3-6 months after his diabetes
diagnosis/daily shots.  He is not autistic, but his twin brother is.  This
"regression" looked like autism, however, he was 9 years old.  I am
wondering if perhaps it could be the PHENOL preservatives which are in the
insulin.  Phenol is a neurotoxin.

He started supplements/mito. cocktail: of carnitor, coQ10, thiamine,
riboflavin, and bicitra (for some elevated lactic & pyruvic acidosis).  He
regained many of his skills back, but vacillates into being very "spacey",
extremely forgettful, and needs to be reminded frequently to stay on-task.
His teacher describes him as "the abscent minded professor", and he forgets
to turn much of his school work in.  I am getting very worried about him
again!  COULD PHENOL IN HIS 2X'S /2 INSULINS DAILY SHOTS BE CAUSING THESE
PROBLEMS???   Any help would be greatly appreciated!

Lisa

Andy,
Many thanks again for taking the time to answer my previous questions.

I've now completed my first round on myself (age 30).  I did 3 days on and am
now on my 4 days off.
I started on DMSA alone 50mg and upped it to 100mg on third dose, surprisingly
feeling little or no difference with symptoms.
Then on Day 2, I added ALA 50mg and worked up to 200mg whilst also taking DMSA
100mg.  Did this for the 3 days.

Much to my surprise, I felt little in the way of symptoms.  Perhaps a bit more
fatigued, slight headaches, maybe slightly worsened hives/allergies - but
nothing major.  I was even wondering whether or not my faulty digestive system
was actually digesting the DMSA and ALA ?!?  I must admit I was expecting some
major reactions.  I've also started many of the supplements recommended in your
book at the same time.

What do you think this all means ?  Am I not as mercury toxic as I perhaps
thought ? Or are some peoples body's just better at dealing with it.  I have
spent much of the last 5 years or so concentrating on nutrition, a clean
wholefood natural diet, detoxes, fast, etc, etc so perhaps my body is capable of
dealing without showing symptoms ?!?

As my symptoms are so far minimal, do you think it would be beneficial to
increase dosages further ? Would this significantly reduce the overall detox
time ?

Also, I've read in a few places of people taking the DMSA/ALA by taking it out
of the capsule and mixing it in fruit juice.  I have just been taking the
capsule as it is.  Is this OK ? Would it be better to take it mixed in juice ?

Thanks for any thoughts.
Best wishes
Michael

   ----- Original Message -----
   From: AndyCutler@...
   To: Autism-Mercury@yahoogroups.com
   Sent: Friday, October 26, 2001 7:00 AM
   Subject: [Autism-Mercury] Re: Quick question for Andy - a few more please...


   --- In Autism-Mercury@y..., "Michael Fitzgerald" <f-m-f-s@t...> wrote:
   > Thanks very much for your valued opinion Andy.  It is the same
   stuff!
   > I've only seen the guy once and that was for a Live Blood Analysis,
   which was very good and indicative of severe systemic yeast overgrowth
   which I've been treating now for 8 weeks.  I am certainly inclined to
   disagree with much of other therapies and services of the practice -
   such as Electro-Dermal screening.

   Typically, the people who get well do bounce from doctor to doctor,
   and find that half or so of the doc's say SOMETHING useful, even
   though none of them tell you everything you need to know.  The most
   helpful ones are usually those who are humble enough to know they
   don't have all the answers.

   >
   > As I mentioned I will be starting my chelation following your
   protocol within the next few days as my impatience is growing and, as
   you often seem to state - there is no good reason to delay.
   > I'd just like to ask you a few further questions quickly before
   doing so if you don't mind.

   Of course not.
   >
   > Seeing as it was 4 years ago that I had all my amalgam fillings
   replaced in Germany, do you think it will be OK to "skip" the initial
   DMSA to reduce blood levels of recent exposure and to "jump straight
   in" with the DMSA + ALA ?

   Yes.

   > Also, not having worked for 3 years due to the "health problems"
   imposed by this believed mercury poisoning my finances are VERY
   restricted.  Therefore, I cannot really afford to have tests done,
   such as Amino Acid profiles, liver function, etc.  Do you think it's
   OK to just get on with the chelation anyway and simply take some kind
   of complete Amino acid supplement along with a few other critical ones
   mentioned in your book ?

   I think it is OK to proceed without any testing, but you have to then
   pay attention to what your symptoms are telling you about your
   biochemistry, and do some careful therapeutic trials of this and that
   supplement (or medication) to figure out what works for you.

   Gelatin is an excellent and inexpensive protein supplement, as is
   hamburger or chicken.  A bit of digestive enzyme works wonders if
   these bother you.
   >
   > I've long had doctor confirmed adrenal and thyroid dysfunctions but
   have rejected taking hormones because I don't believe it's a good
   thing to do

   It provides absolutely marvelous relief from miserable symptoms.  I
   did it and strongly encourage others to consider it.  You can FEEL a
   lot better right away with a few pills while you slowly get your
   hormones back to the state where they can do it all naturally.

   >and wanted to get to the root of these and all the other problems -
   which I now believe I've found with your "Amalgam Illness".  The
   section in your book of what mercury can do to you reads like the
   story of my life!!  Hair mineral tests I've had done before have also
   shown Calcium and Nickel through the roof and all other minerals
   through the floor!!
   > Will the chelation still be effective and recover the endocrine
   function (eventually) without supplementing these hormones during
   chelation ?

   Yes, but you will feel 1,000,000% percent better, AND probably heal
   faster, if you do take some hormones judiciously.

   >(I'm not overly bothered about reducing symptoms during chelation -
   just want to get through it and get things working again for probably
   the first time in about 20 years!!)

   The hormones will probably let you get back to works sooner.

   >
   > Again, thanks again Andy in advance for all your help and time in
   answering these questions.
   > Best wishes
   > Michael
   >
   >
   >   ----- Original Message -----
   >   From: AndyCutler@a...
   >   To: Autism-Mercury@y...
   >   Sent: Wednesday, October 24, 2001 9:27 AM
   >   Subject: [Autism-Mercury] Re: Quick question for Andy
   >
   >
   >
   >   Presuming it is the same stuff described at
   >   http://www.fulcrumhealth.co.uk/page%207.htm
   >   it isn't going to chelate anything, and it makes me think you may
   >   need to find a less gullible doctor.
   >
   >   Andy
   >
   >   > Thanks in advance for any advice.
   >   > Best wishes
   >   > Michael Fitzgerald
   >
   >
   >         Yahoo! Groups Sponsor
   >
   >
   >
   >   =======================================================
   >   Statements posted on this list are for information only,
   >   and should NOT be taken as medical advice.  If you need
   >   medical advice, you should seek it from those who are
   >   authorized to give medical advice: doctors.
   >
   >   Post message: Autism-Mercury@y...
   >   Subscribe:    Autism-Mercury-subscribe@y...
   >   Unsubscribe:  Autism-Mercury-unsubscribe@y...
   >   List owner:   Autism-Mercury-owner@y...
   >   Shortcut URL: http://groups.yahoo.com/group/Autism-Mercury
   >   Answers to common questions:
   >
   http://groups.yahoo.com/group/Autism-Mercury/files/Mercury-Autism%20FA
   Q
   >
   >   Your use of Yahoo! Groups is subject to the Yahoo! Terms of
   Service.
   >
   >
   >
   > [Non-tex


         Yahoo! Groups Sponsor



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   and should NOT be taken as medical advice.  If you need
   medical advice, you should seek it from those who are
   authorized to give medical advice: doctors.

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[Non-text portions of this message have been removed]

Karen, contents of Varivax Varicella Virus Vaccine Live:

"produced using sucrose, phosphate, glutamate, processed gelatin medium:
human diploid cells (originating from human aborted fetal tissue)" - 1997
Physicians' Desk Reference.

You can call Merck & Co., Inc. for full insert on the vaccine.
1-800-672-6372

My two cents:  All three of my children were given the vaccine when it
first came out.  My son was 5, one daughter was 3 and the other was 1.  The
5 year old and 3 year old were already diagnosed with autism.  My
pediatrician told me the vaccine was 'safe' and a good idea.  I believed
him.  I also had the vaccine because I had never had chicken pox as a
child.  I actually had to have two shots because of my age/body weight.
Four years later, June 2001, my 9 year old son came down with chicken pox.
My doctor assured me it would no doubt be mild because he'd had the shot.
It was not - he was very sick and missed most of the last two weeks of
school.  Then my 7 year old got it.  Her case was also severe.  Then, you
guessed it, the 5 year old got it.  She was also extremely sick.  Finally I
came down with a mild case.  I was terribly ill for two days, but I never
developed as many spots as the children had suffered.

When I allowed my children to have the vaccines, I did not realize that
they would not guarantee lifelong immunity.  I thought the shot would
replace the disease in all aspects.  In light of my experience, I wouldn't
recommend the shots to anyone - what's the point.  Although the powers that
be claim that children can die from chicken pox, I personally have never
heard of any children that have.  I also remember reading - and it may have
been on the www.909shot.com site, not sure - that a significant number of
children suffered adverse reactions during the safety trials of the
vaccine, including death.

Claire M. Bothwell
Waters & Kraus, LLP
200 Oceangate, Suite 520
Long Beach, California 90802
Tel: (562) 436-8833
Fax: (562) 590-7296

Dear listmates,

This is the first time I am posting to this list which I have only
just joined a couple of days ago.  I also belong to the UK autism-
mercury list so some of you will have seen this message.  I am just
posting here to share our experience and what has been recommended to
us.

Our son, Daniel, is now 6.5 yo and is severely autistic (todate he is
not potty trained, non-verbal but is starting to communicate in his
own way i.e leading us by the hand.  Very very basic.  Completely
dependent on us for everything, poor motor skills and very very slow
to learn anything at all.  We have been doing ABA/VB, supplements,
OT, SI, diets, AIT since May 98 when he was just 3.3 yo.  Progress to
date extremely slow.

As we have been reading about mercury poisoning and chelation for the
last several months, we thought we would give this a try as well.  We
never even suspected that he might have been affected.

Here are the results of the mercury test:
BASELINE
Elements in Urine Value Ref. Range

Creatinine (mmol/1) 7.76 3.75 – 7.5
Mercury (ppb)        <0.1 0.0 – 5.0
.. Elements/g creatinine –
Mercury (ug/g)        <0.1 0 – 4.3

ELEMENTS AFTER THERAPY
Creatinine (mmol/1) 7.48 3.75 – 7.50
Mercury (ppb)         74.9 0.0 – 5.0
.. Elements/g creatinine –
Mercury (ug/g)         88.5 0 – 4.3

When I saw this, I was surprised and checked with a few parents who
all told us that this was pretty high.  Anyway, yesterday, we had the
consultation with our doctor and his comments are roughly noted below:

The doctor was not overly worried (he is a very calm patient man and
puts me at ease every time I speak to him) about how high or low the
numbers are.  He agreed there was mercury in our son's body and we
had to deal with it.  We asked if we needed to find out about other
metals/toxins and their values.  He said that there was a good chance
that there were other metals/toxins and we just need to start
chelating.

By the way, we have been working with this doctor for a few months
now and did a urine screening test in March for amino acids,
essential elements, etc and have been treating Daniel's gut for the
last 3 weeks with 14 different supplements on a daily basis.  This is
a 3-5 month course.  We have completed 3 weeks now and are already
seeing some nice minute little changes in Daniel - more attentive,
wants to play - does not know how to initiate but will pull us all
the time.  Good start!

Treatment for the mercury/other toxins will be to either use pure
Selenium or to use a combination of Selenium with other stuff (see
notes on Selenium below).  Will not be using DMSA or DMPS because
Daniel is so young and also because these substances have side
effects.  As we will not be using DMSA/DMPS there will be no need to
do regular (weekly/fortnightly) liver function tests.

QUOTE
Silenium (250 mcg)
BIOSA Prime contains the mineral Silenium primarily to neutralize the
effects of Mercury and other heavy metals so prevalent in children
with autism. Combined with vitamin E, I-glutathion, n-acetyl-cysteine
and d-alfa lipoic, Silenium becomes a powerful free radical
scavenger. Selenium's principal function is to inhibit the oxidation
of lipids (fats). It protects the imune system by preventing the
formation of free radicals, which can damage the body.
Silenium and vitamin E act synergistically to aid in the production
of antibodies and to help maintain a healthy heart and liver. This
trace element is needed for pancreatic function and tissue
elasticity.
Deficiency of silenium has been linked to cancer and heart disease.
It has also been associated with exhaustion, growth impairment, high
cholesterol levels, infections, liver impairment, pancreatic
insufficiency and sterility
UNQUOTE

The treatment will be for 3 months, at which time we test again and
revise protocol if necessary.

The casein test indicates that he is unable to digest it properly.
Daniel is neither allergic to casein nor is he intolerant – he just
cannot digest the casein (leaky gut).  Doctor says that if he cannot
digest casein, it is more than likely that he cannot digest gluten.
Bram recommends that we go on the GF/CF diet for 3-6 months max to
helps to restore Daniel's leaky gut.  Together with the supplements
regimen, it will help the whole process of cleaning up and curing the
gut as well.

David asked about giving Daniel some supplements to help his memory,
concentration and attending skills.  Bram explained that those
supplements would be Stage II of Daniel's treatment schedule.  We are
currently on Stage I which is the Developmental stage.  See schedule
below:

QUOTE
STAGE 1 – To habilitate and optimize Daniel's health status by
mitigating any metabolic imbalances and nutritional deficiencies.
Recommend 19 preparations that span the full range of all the
nutrients he needs. But please administer them very sparingly, one
day at a time for three to five months.

STAGE 2 - prescribe prescription medicine in combination with
orthomolecular preparation that will help improve neurotransmitter
and hormonal activity in the brain and central nervous system to
improve the capacity to learn

In approximately 3 months, we may start with Stage 2, also in very
small and manageable dosages. The preparations will most likely be
reduced from 19 in stage 1 to perhaps seven preparations which will
include the prescription medications.

STAGE 3 - Manage the day-to-day physiology
Administer three to five preparations. Stage 3 may last a long time,
perhaps his entire life.
UNQUOTE

By the way this doctor also has a child on the spectrum, who was
severe until age 7 - non-verbal etc.  Now at age 10, no longer has
diagnosis of autism however is developmentally delayed.

We are quite happy with what we have done so far and what has been
recommended.  Thought we would share this with you all.  Welcome any
comments or questions.  You can email us privately
(plawler99@...)or post to the list.

All the best,
Padma
Bahrain, Arabian Gulf

claire@... wrote:

>
> Karen, contents of Varivax Varicella Virus Vaccine Live:
>
> "produced using sucrose, phosphate, glutamate, processed gelatin
> medium:
> human diploid cells (originating from human aborted fetal tissue)" -
> 1997
> Physicians' Desk Reference.
>
> You can call Merck & Co., Inc. for full insert on the vaccine.
> 1-800-672-6372
>
> My two cents:  All three of my children were given the vaccine when it
>
> first came out.  My son was 5, one daughter was 3 and the other was
> 1.  The
> 5 year old and 3 year old were already diagnosed with autism.  My
> pediatrician told me the vaccine was 'safe' and a good idea.  I
> believed
> him.

My Dr originally said NOT to get the chicken pox vaccine. However a year
later (and the infamous BAD day) she changed her mind for some resaon. I
even asked her why she told us not to earlier and now she changed her
mind. She relpied she didnt recall telling us not to earlier. She is
also the one that didnt think our son's behaviour could be related to
the shots.

My understanding, and Ive asked several nurses have confirmed this, was
that the chicken pox shots was more for pnumoccial pnuemonia (bad
spelling) more so than chicken pox.

I think that Dr succumbed to the multitude of Pharm Company reps who are
ALWAYS there at the office when we go in. It could have been her "group
policy" that pushed it on her.

Hello,

Has anyone had IV glutathione for their child while chelating/ Can you
tell me whether you think it is worth it, and why? Is it worth all the
hype?

Thanks, Rose

Andy, at the end of my son's chelation cycle, I give him three extra
doses of DMSA (25mg) and he almost has no regressions between chelation
and non-chelation days. My question is (I give 25mg of ALA and 25mg of
DMSA per your protocol) should I give him 50mg of DMSA at the end of the
chelation cycle or stay with just 25mg of DMSA. Thanks. Vicky

_________________________________________________________
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Get your free @yahoo.com address at http://mail.yahoo.com

HI all. I finally made the decision to start. today at noon I gave
my 30lb. son approx. 15 mg of DMSA. Will give every four hours for 3
days.
Now, I have some questions.
Does anyone know of any contraindication to using Ojibwa Tea of Life
(essiac tea) along side chelation? I of course will give them at
separate times. But I really like the tea, and it seems to do my son
good, and I would like to continue giving it.
Also, a post today has given me some concerns. I realize that
chelation for autism is fairly new, but what I am wondering is
once these kids are adequately chelated, and taken off the chelators,
will the symptoms gradually come back? How do we know that they will
be able to detoxify on their own enough? What if the problem lies
with the inability to detoxify somewhere in the body, and we help
with chelation, but that mechanism still does not "take over" when we
are finished giving the chelators? Will we have to do rounds of
chelation every few years to keep the symptoms of returning?
Does anyone have any answers? The post about the child who stopped
chelating and began regressing has me concerned.
THanks.
BRandy

yvonne,

Anyone with sleep issues should have a completely dark bedroom, since light
effects the sleep hormones.  My middle of
the night-waking stopped when I installed good shades.

Mary K.

Gaylen, your Listening Program fits in where?  And can you give us a link?  I
couldn't find info on this program the
time I looked at the link you provided earlier.

| Can anyone tell me of a good reference to understand what is going on
| with these audio therapies?  They obviously seem to make a difference
| but I don't understand how or why they would work.  I'm trying to
| read Tomatis's book right now, but it is not making much sense yet.
| Perhaps some one can recommend a book or on-line discussion group?

Paul Madaule's "When Listening Comes Alive" (1994) is very good.  Paul does
Tomatis therapy.  His book goes into some
detail on why the underresponsive ear inhibits auditory processing and
attention.  Steinbach wrote "SAMONAS Sound
Therapy" (1997) and Tomatis wrote "The Ear and Language" (1996), but I haven't
read those.

Madaule's book was recommended by Sheila Frick (Listening Therapy).
(www.samonas.net) .  Sheila's therapy uses SAMONAS
discs developed by Ingo Steinbach in combination with SI therapy.  Ingo is a
perfectionist.  His CDs are recorded in
cathedrals and other locations where the spatial characteristics of the music
are retained.  The instruments are of top
quality to retain full tonality.  You can't get anywhere near his quality using
standard CDs.  Maybe you would get EASE
disc-like results?
See  http://www.he.net/~altonweb/cs/downsyndrome/index.htm?page=samonas.html for
SAMONAS info.

Tomatis (mid 1900s) used filtered sounds to 'charge' the brain.  Then Berard,
who studied under Tomatis, developed AIT.
Stehli wrote "The Sound of a Miracle" (1990) which described her daughter's AIT
benefits and which popularized AIT.
These methods use electronic filters to modify the music and sounds according to
the patient's needs.  Bill Mueller
developed the EASE disc, which has filtered music on the CD.  See
www.vision-audio.com . This is considered to be less
intense, generic therapy.  Ingo Steinbach's SAMONAS discs combine Tomatis type
sound modifications, using his updated
filtering machine, with spatial characteristics and full tonality.  These
therapies promote right ear dominance by
making the right channel a little louder.  SONAS and SAMONAS discs have
different levels of "spectral activation" and
filtering, so their use can be customized somewhat.  Shelia Frick combined
SAMONAS CDs with Sensory Integration Therapy
(Jean Ayers) to optimize the therapeutic effects of both.  Other auditory
therapies available on computers are Earobics
software, and through therapists, FastForWord.

I can't find my notes from the talk by Sheila Frick I attended, but just from
memory they think that flaccid ear muscles
are responsible for poor  listening (not hearing) and poor muscle tone and
coordination.  The high frequencies in these
therapies exercise the ear muscles to improve their tone and responsiveness and
thereby improve many processing areas,
both physical and language-related.  They blame ear infections for much of this.

It's quite a subject!

Mary K.

| > Can someone please tell me if these metals lay dormant like
| Mercury.
| > My sons 3 month fecal test all of sudden showed high levels of
| > Beryllium which never appeared on any other tests with Tungsten and
| > nickel.  Could this be a recent exposure?  Or is it because we have
| > been removing tons of Arsenic and lead and these are easier to get
| > too?
|
| I don't know.  I suspect recent or an artifact.  A fecal test
| consists of all the stuff that did NOT get digested and just passed
| through.
|
| > Where do you get Beryllium and Tungsten exposure from?
|
| Electrical equipment.  Welding dust.

Dental metal, too.  See Bernie's July 30 2001 post.

What toxic metals aren't in dental metal?

Mary K.

Hi Lisa

My son was on allergy shots and they did test him for
phenol because it was in the shots.  I remember them
saying most people are not allergic to this and my son
was not.  I hope this helps.
--- Lisa Case <allstar01@...> wrote:
> List Members,
>
> My son is a type 1 diabetic who takes multiple
> insulin shots daily.  He had
> a severe "regression" of skills lost (eye contact,
> academics, attention,
> staying on-task, language), this happened 3-6 months
> after his diabetes
> diagnosis/daily shots.  He is not autistic, but his
> twin brother is.  This
> "regression" looked like autism, however, he was 9
> years old.  I am
> wondering if perhaps it could be the PHENOL
> preservatives which are in the
> insulin.  Phenol is a neurotoxin.
>
> He started supplements/mito. cocktail: of carnitor,
> coQ10, thiamine,
> riboflavin, and bicitra (for some elevated lactic &
> pyruvic acidosis).  He
> regained many of his skills back, but vacillates
> into being very "spacey",
> extremely forgettful, and needs to be reminded
> frequently to stay on-task.
> His teacher describes him as "the abscent minded
> professor", and he forgets
> to turn much of his school work in.  I am getting
> very worried about him
> again!  COULD PHENOL IN HIS 2X'S /2 INSULINS DAILY
> SHOTS BE CAUSING THESE
> PROBLEMS???   Any help would be greatly appreciated!
>
> Lisa
>
>


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In a message dated 11/1/01 7:48:44 AM Central Standard Time,
jamaraw@... writes:


> Could you please let me know where I would purchase these listening tapes?
>

You can get The Listening Program from Advanced Brain Technologies
www.advancedbrain.com -- their site has a listing of professionals who can
guide your home use of it.  You can order the Samonas directly from Steinbach
(I thinkI'm spelling it right) but I'd highly recommend that you don't do it
without an experienced person to write your protocol.  Kay Ness, who has
posted to this list in the past, has experience writing protocols for Samonas
and would probably be a good person to contact about it.  Her e-mail is
kyness@...

By the way, you can do Samonas without headphones for kids who are highly
tactile sensative or not cooperative but the listening periods are much
longer.
Gaylen



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