It seems like this mercury thing is getting more and more popular. So
many people I run into on the internet are rushing for testing, doing
chelation and so on. Now I saw a message at this other place talking
about dangerous mercury leaching from dental amalgams - http://www.autisms.org/forum/topic.asp?ARCHIVE=&TOPIC_ID=7 . Recently
our son's symptoms got worse and this was right around the time he
got a bunch of fillings so I'm wondering if we are poisoning him at
the same time we are trying to help him!
I'm always skeptical of the latest greatest things especially when
people herald it as a "cure". Still this coincidence has me concerned
enough that I'd like to get our son tested for mercury. But how do I
know whether this may really apply to him or if I'm just looking for
trouble. We've spent so much money already getting trainers to fly in
and train our behavior techs in proper ABA techniques, MRI's, this
that and the other thing.
I'm so very tired of rushing around like a chicken with it's head
cutoff. Everyone keeps saying their thing needs to be done before a
certain age or before damage is so bad that it can't be reversed.
Then even when you decide you want to try something you got to beat
your doctor, insurance agent, or disinterested pencil pusher over the
head to implement it. Not to mention dragging the poor kid all over
God's green earth, poking, prodding, probing, and pleading.
Yet if I slow down for a second I'm afraid he will lose out on
something that may prove to be the ticket to his freedom from this
horrible nightmare!
Somebody pinch me and wake me from this nightmare!! Sorry I know I'm
whining but I could really use an A-men! :(
Yes, dark fillings are 50% mercury and should not be in place while you are
chelating. Yes, there are other accounts of children who were doing well on
the GFCF diet, and ended up getting more autistic after fillings were put
in. The number one source of mercury poisoning for adults is their
fillings, for children is the vaccines, or so I've been told.
Barb
-----Original Message-----
From: rancourus@... <rancourus@...>
To: Autism-Mercury@yahoogroups.com <Autism-Mercury@yahoogroups.com>
Date: Sunday, September 09, 2001 8:52 PM
Subject: [Autism-Mercury] The Latest Autism Cure!?
>It seems like this mercury thing is getting more and more popular. So
>many people I run into on the internet are rushing for testing, doing
>chelation and so on. Now I saw a message at this other place talking
>about dangerous mercury leaching from dental amalgams -
>http://www.autisms.org/forum/topic.asp?ARCHIVE=&TOPIC_ID=7 . Recently
>our son's symptoms got worse and this was right around the time he
>got a bunch of fillings so I'm wondering if we are poisoning him at
>the same time we are trying to help him!
>
>I'm always skeptical of the latest greatest things especially when
>people herald it as a "cure". Still this coincidence has me concerned
>enough that I'd like to get our son tested for mercury. But how do I
>know whether this may really apply to him or if I'm just looking for
>trouble. We've spent so much money already getting trainers to fly in
>and train our behavior techs in proper ABA techniques, MRI's, this
>that and the other thing.
>
>I'm so very tired of rushing around like a chicken with it's head
>cutoff. Everyone keeps saying their thing needs to be done before a
>certain age or before damage is so bad that it can't be reversed.
>Then even when you decide you want to try something you got to beat
>your doctor, insurance agent, or disinterested pencil pusher over the
>head to implement it. Not to mention dragging the poor kid all over
>God's green earth, poking, prodding, probing, and pleading.
>
>Yet if I slow down for a second I'm afraid he will lose out on
>something that may prove to be the ticket to his freedom from this
>horrible nightmare!
>
>Somebody pinch me and wake me from this nightmare!! Sorry I know I'm
>whining but I could really use an A-men! :(
>
>
>
>=======================================================
>Statements posted on this list are for information only,
>and should NOT be taken as medical advice. If you need
>medical advice, you should seek it from those who are
>authorized to give medical advice: doctors.
>
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>
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>
>
>
I plan to answer the issues regarding "cure" and whether this
chelation thing helps, and so on. HOWEVER, as I read your note,
what strikes me most strongly is your heartfelt request for
some empathy and understanding about how tired you are of --well--
all the things you mention. Which I cannot provide. I am
not the parent of an ASD kid. It's a place where I can't
help. (But you definitly have what empathy I *can* give---
for example, I've been tired, and I've been dicouraged,
and I've been wary.)
So, I hope some of my listmates will give you some
of the "amen" you are looking for, and then I'll be glad to
give you some useful and hopeful info about whether chelation
"works" or not.
best,
Moria
At 03:51 AM 9/10/2001 -0000, you wrote:
>It seems like this mercury thing is getting more and more popular. So
>many people I run into on the internet are rushing for testing, doing
>chelation and so on. Now I saw a message at this other place talking
>about dangerous mercury leaching from dental amalgams -
>http://www.autisms.org/forum/topic.asp?ARCHIVE=&TOPIC_ID=7 . Recently
>our son's symptoms got worse and this was right around the time he
>got a bunch of fillings so I'm wondering if we are poisoning him at
>the same time we are trying to help him!
>
>I'm always skeptical of the latest greatest things especially when
>people herald it as a "cure". Still this coincidence has me concerned
>enough that I'd like to get our son tested for mercury. But how do I
>know whether this may really apply to him or if I'm just looking for
>trouble. We've spent so much money already getting trainers to fly in
>and train our behavior techs in proper ABA techniques, MRI's, this
>that and the other thing.
>
>I'm so very tired of rushing around like a chicken with it's head
>cutoff. Everyone keeps saying their thing needs to be done before a
>certain age or before damage is so bad that it can't be reversed.
>Then even when you decide you want to try something you got to beat
>your doctor, insurance agent, or disinterested pencil pusher over the
>head to implement it. Not to mention dragging the poor kid all over
>God's green earth, poking, prodding, probing, and pleading.
>
>Yet if I slow down for a second I'm afraid he will lose out on
>something that may prove to be the ticket to his freedom from this
>horrible nightmare!
>
>Somebody pinch me and wake me from this nightmare!! Sorry I know I'm
>whining but I could really use an A-men! :(
You're both exactly right, of course; finding one's way through the
thicket of fad cures is exhausting, physically and emotionally; and
rancourus needs a well-earned hug :)
I am the mom of a 4yo son with autism, and I do devote myself, pretty
much full-time, to tracking down and implementing various ways to
help him get better. It ain't easy, but my rationale is that every
ounce of improvement we can achieve while he's little, will pay us
back in spades, later in life when his brain will become
less "plastic" and able to mend itself. I think it's completely
appropriate to be skeptical of wild claims and theories, and to be
protective of our kids' time and health, AND to be cognizant of our
own feelings and limitations, as you describe. All those feelings are
natural and inevitable, and imo the more you cope with them in real-
time, the less emotional "interest" you'll owe later on unprocessed
stress and grief.
We are relatively new to chelation; we've just finished the fourth
round, DMSA only. Before that my son's had a little over a year of 40
hours/week ABA, almost two years of 90 minutes/week individual speech
therapy, and about a year on the GF/CF diet. All those things have
helped (or we wouldn't have stuck with them) but I can say chelation
has already helped MARKEDLY in a way nothing else can touch. For the
first time in his life, he's actually curious; he notices things,
points out things, and while he's not quite ready to ask questions
yet, he now posits his own explanations for things he sees.
(F'rinstance, yesterday morning he went into the back yard early and
his lawn chair was still wet; he said "Chair is all wet" and then,
after a pause, with an accusing glance over at me, "Yuck. Pee goes in
the potty!") His thinking and awareness and engagement with the world
are qualitatively better than they have EVER been before, and in my
mind that's huge. We can now have a three-or-four exchange
conversation with him on subjects other than his own immediate
desires; he talks all day long, not always but often purposefully.
Hope this is of use in your decision-making. Good luck to you and
your boy.
Cathy
--- In Autism-Mercury@y..., Moria Merriweather <moriam@e...> wrote:
> dear rancourus@y..., and dear listmates,
>
> I plan to answer the issues regarding "cure" and whether this
> chelation thing helps, and so on. HOWEVER, as I read your note,
> what strikes me most strongly is your heartfelt request for
> some empathy and understanding about how tired you are of --well--
> all the things you mention. Which I cannot provide. I am
> not the parent of an ASD kid. It's a place where I can't
> help. (But you definitly have what empathy I *can* give---
> for example, I've been tired, and I've been dicouraged,
> and I've been wary.)
>
> So, I hope some of my listmates will give you some
> of the "amen" you are looking for, and then I'll be glad to
> give you some useful and hopeful info about whether chelation
> "works" or not.
>
> best,
> Moria
>
>
>
>
> At 03:51 AM 9/10/2001 -0000, you wrote:
> >It seems like this mercury thing is getting more and more popular.
So
> >many people I run into on the internet are rushing for testing,
doing
> >chelation and so on. Now I saw a message at this other place
talking
> >about dangerous mercury leaching from dental amalgams -
> >http://www.autisms.org/forum/topic.asp?ARCHIVE=&TOPIC_ID=7 .
Recently
> >our son's symptoms got worse and this was right around the time he
> >got a bunch of fillings so I'm wondering if we are poisoning him
at
> >the same time we are trying to help him!
> >
> >I'm always skeptical of the latest greatest things especially when
> >people herald it as a "cure". Still this coincidence has me
concerned
> >enough that I'd like to get our son tested for mercury. But how do
I
> >know whether this may really apply to him or if I'm just looking
for
> >trouble. We've spent so much money already getting trainers to fly
in
> >and train our behavior techs in proper ABA techniques, MRI's, this
> >that and the other thing.
> >
> >I'm so very tired of rushing around like a chicken with it's head
> >cutoff. Everyone keeps saying their thing needs to be done before
a
> >certain age or before damage is so bad that it can't be reversed.
> >Then even when you decide you want to try something you got to
beat
> >your doctor, insurance agent, or disinterested pencil pusher over
the
> >head to implement it. Not to mention dragging the poor kid all
over
> >God's green earth, poking, prodding, probing, and pleading.
> >
> >Yet if I slow down for a second I'm afraid he will lose out on
> >something that may prove to be the ticket to his freedom from this
> >horrible nightmare!
> >
> >Somebody pinch me and wake me from this nightmare!! Sorry I know
I'm
> >whining but I could really use an A-men! :(
-
Cathy this is really a wonderfully inspiring letter for any parent of
a younger child, I too remember the days when the little miracles
would happen with our son, it was amazing and still is, I think this
is definetley a letter Moria will have to put in her files of LOVE
LETTERS, this shows an abundance of love and the wellness it can
bring, sounds like your little one is well on his way to a good life,
Leah
-- In Autism-Mercury@y..., catharineb2001@y... wrote:
> You're both exactly right, of course; finding one's way through the
> thicket of fad cures is exhausting, physically and emotionally; and
> rancourus needs a well-earned hug :)
>
> I am the mom of a 4yo son with autism, and I do devote myself,
pretty
> much full-time, to tracking down and implementing various ways to
> help him get better. It ain't easy, but my rationale is that every
> ounce of improvement we can achieve while he's little, will pay us
> back in spades, later in life when his brain will become
> less "plastic" and able to mend itself. I think it's completely
> appropriate to be skeptical of wild claims and theories, and to be
> protective of our kids' time and health, AND to be cognizant of our
> own feelings and limitations, as you describe. All those feelings
are
> natural and inevitable, and imo the more you cope with them in real-
> time, the less emotional "interest" you'll owe later on unprocessed
> stress and grief.
>
> We are relatively new to chelation; we've just finished the fourth
> round, DMSA only. Before that my son's had a little over a year of
40
> hours/week ABA, almost two years of 90 minutes/week individual
speech
> therapy, and about a year on the GF/CF diet. All those things have
> helped (or we wouldn't have stuck with them) but I can say
chelation
> has already helped MARKEDLY in a way nothing else can touch. For
the
> first time in his life, he's actually curious; he notices things,
> points out things, and while he's not quite ready to ask questions
> yet, he now posits his own explanations for things he sees.
> (F'rinstance, yesterday morning he went into the back yard early
and
> his lawn chair was still wet; he said "Chair is all wet" and then,
> after a pause, with an accusing glance over at me, "Yuck. Pee goes
in
> the potty!") His thinking and awareness and engagement with the
world
> are qualitatively better than they have EVER been before, and in my
> mind that's huge. We can now have a three-or-four exchange
> conversation with him on subjects other than his own immediate
> desires; he talks all day long, not always but often purposefully.
>
> Hope this is of use in your decision-making. Good luck to you and
> your boy.
>
> Cathy
>
> --- In Autism-Mercury@y..., Moria Merriweather <moriam@e...> wrote:
> > dear rancourus@y..., and dear listmates,
> >
> > I plan to answer the issues regarding "cure" and whether this
> > chelation thing helps, and so on. HOWEVER, as I read your note,
> > what strikes me most strongly is your heartfelt request for
> > some empathy and understanding about how tired you are of --well--
> > all the things you mention. Which I cannot provide. I am
> > not the parent of an ASD kid. It's a place where I can't
> > help. (But you definitly have what empathy I *can* give---
> > for example, I've been tired, and I've been dicouraged,
> > and I've been wary.)
> >
> > So, I hope some of my listmates will give you some
> > of the "amen" you are looking for, and then I'll be glad to
> > give you some useful and hopeful info about whether chelation
> > "works" or not.
> >
> > best,
> > Moria
> >
> >
> >
> >
> > At 03:51 AM 9/10/2001 -0000, you wrote:
> > >It seems like this mercury thing is getting more and more
popular.
> So
> > >many people I run into on the internet are rushing for testing,
> doing
> > >chelation and so on. Now I saw a message at this other place
> talking
> > >about dangerous mercury leaching from dental amalgams -
> > >http://www.autisms.org/forum/topic.asp?ARCHIVE=&TOPIC_ID=7 .
> Recently
> > >our son's symptoms got worse and this was right around the time
he
> > >got a bunch of fillings so I'm wondering if we are poisoning him
> at
> > >the same time we are trying to help him!
> > >
> > >I'm always skeptical of the latest greatest things especially
when
> > >people herald it as a "cure". Still this coincidence has me
> concerned
> > >enough that I'd like to get our son tested for mercury. But how
do
> I
> > >know whether this may really apply to him or if I'm just looking
> for
> > >trouble. We've spent so much money already getting trainers to
fly
> in
> > >and train our behavior techs in proper ABA techniques, MRI's,
this
> > >that and the other thing.
> > >
> > >I'm so very tired of rushing around like a chicken with it's
head
> > >cutoff. Everyone keeps saying their thing needs to be done
before
> a
> > >certain age or before damage is so bad that it can't be
reversed.
> > >Then even when you decide you want to try something you got to
> beat
> > >your doctor, insurance agent, or disinterested pencil pusher
over
> the
> > >head to implement it. Not to mention dragging the poor kid all
> over
> > >God's green earth, poking, prodding, probing, and pleading.
> > >
> > >Yet if I slow down for a second I'm afraid he will lose out on
> > >something that may prove to be the ticket to his freedom from
this
> > >horrible nightmare!
> > >
> > >Somebody pinch me and wake me from this nightmare!! Sorry I know
> I'm
> > >whining but I could really use an A-men! :(
Well thanks Leah :) We do try with this boy, and we (hubby and I)
realize that there will be a time for serenity and acceptance of his
condition (however it turns out), but that time is far in the future.
Now's our time to get in there and work the problem, and for me,
that's actually the best coping strategy there is. I should add that
he's still a far cry from "normal" -- when it's my turn to work at
his co-op preschool I'm dazzled and depressed by the speed and
fluency and subtlety of the other kids' play. One day at a time.
So how's yours? :)
Cathy
--- In Autism-Mercury@y..., valadez4@s... wrote:
> -
> Cathy this is really a wonderfully inspiring letter for any parent
of
> a younger child, I too remember the days when the little miracles
> would happen with our son, it was amazing and still is, I think
this
> is definetley a letter Moria will have to put in her files of LOVE
> LETTERS, this shows an abundance of love and the wellness it can
> bring, sounds like your little one is well on his way to a good
life,
> Leah
>
>
> -- In Autism-Mercury@y..., catharineb2001@y... wrote:
> > You're both exactly right, of course; finding one's way through
the
> > thicket of fad cures is exhausting, physically and emotionally;
and
> > rancourus needs a well-earned hug :)
> >
> > I am the mom of a 4yo son with autism, and I do devote myself,
> pretty
> > much full-time, to tracking down and implementing various ways to
> > help him get better. It ain't easy, but my rationale is that
every
> > ounce of improvement we can achieve while he's little, will pay
us
> > back in spades, later in life when his brain will become
> > less "plastic" and able to mend itself. I think it's completely
> > appropriate to be skeptical of wild claims and theories, and to
be
> > protective of our kids' time and health, AND to be cognizant of
our
> > own feelings and limitations, as you describe. All those feelings
> are
> > natural and inevitable, and imo the more you cope with them in
real-
> > time, the less emotional "interest" you'll owe later on
unprocessed
> > stress and grief.
> >
> > We are relatively new to chelation; we've just finished the
fourth
> > round, DMSA only. Before that my son's had a little over a year
of
> 40
> > hours/week ABA, almost two years of 90 minutes/week individual
> speech
> > therapy, and about a year on the GF/CF diet. All those things
have
> > helped (or we wouldn't have stuck with them) but I can say
> chelation
> > has already helped MARKEDLY in a way nothing else can touch. For
> the
> > first time in his life, he's actually curious; he notices things,
> > points out things, and while he's not quite ready to ask
questions
> > yet, he now posits his own explanations for things he sees.
> > (F'rinstance, yesterday morning he went into the back yard early
> and
> > his lawn chair was still wet; he said "Chair is all wet" and
then,
> > after a pause, with an accusing glance over at me, "Yuck. Pee
goes
> in
> > the potty!") His thinking and awareness and engagement with the
> world
> > are qualitatively better than they have EVER been before, and in
my
> > mind that's huge. We can now have a three-or-four exchange
> > conversation with him on subjects other than his own immediate
> > desires; he talks all day long, not always but often purposefully.
> >
> > Hope this is of use in your decision-making. Good luck to you and
> > your boy.
> >
> > Cathy
> >
> > --- In Autism-Mercury@y..., Moria Merriweather <moriam@e...>
wrote:
> > > dear rancourus@y..., and dear listmates,
> > >
> > > I plan to answer the issues regarding "cure" and whether this
> > > chelation thing helps, and so on. HOWEVER, as I read your note,
> > > what strikes me most strongly is your heartfelt request for
> > > some empathy and understanding about how tired you are of --
well--
> > > all the things you mention. Which I cannot provide. I am
> > > not the parent of an ASD kid. It's a place where I can't
> > > help. (But you definitly have what empathy I *can* give---
> > > for example, I've been tired, and I've been dicouraged,
> > > and I've been wary.)
> > >
> > > So, I hope some of my listmates will give you some
> > > of the "amen" you are looking for, and then I'll be glad to
> > > give you some useful and hopeful info about whether chelation
> > > "works" or not.
> > >
> > > best,
> > > Moria
> > >
> > >
> > >
> > >
> > > At 03:51 AM 9/10/2001 -0000, you wrote:
> > > >It seems like this mercury thing is getting more and more
> popular.
> > So
> > > >many people I run into on the internet are rushing for
testing,
> > doing
> > > >chelation and so on. Now I saw a message at this other place
> > talking
> > > >about dangerous mercury leaching from dental amalgams -
> > > >http://www.autisms.org/forum/topic.asp?ARCHIVE=&TOPIC_ID=7 .
> > Recently
> > > >our son's symptoms got worse and this was right around the
time
> he
> > > >got a bunch of fillings so I'm wondering if we are poisoning
him
> > at
> > > >the same time we are trying to help him!
> > > >
> > > >I'm always skeptical of the latest greatest things especially
> when
> > > >people herald it as a "cure". Still this coincidence has me
> > concerned
> > > >enough that I'd like to get our son tested for mercury. But
how
> do
> > I
> > > >know whether this may really apply to him or if I'm just
looking
> > for
> > > >trouble. We've spent so much money already getting trainers to
> fly
> > in
> > > >and train our behavior techs in proper ABA techniques, MRI's,
> this
> > > >that and the other thing.
> > > >
> > > >I'm so very tired of rushing around like a chicken with it's
> head
> > > >cutoff. Everyone keeps saying their thing needs to be done
> before
> > a
> > > >certain age or before damage is so bad that it can't be
> reversed.
> > > >Then even when you decide you want to try something you got to
> > beat
> > > >your doctor, insurance agent, or disinterested pencil pusher
> over
> > the
> > > >head to implement it. Not to mention dragging the poor kid all
> > over
> > > >God's green earth, poking, prodding, probing, and pleading.
> > > >
> > > >Yet if I slow down for a second I'm afraid he will lose out on
> > > >something that may prove to be the ticket to his freedom from
> this
> > > >horrible nightmare!
> > > >
> > > >Somebody pinch me and wake me from this nightmare!! Sorry I
know
> > I'm
> > > >whining but I could really use an A-men! :(
Amen to everything you've said. I feel exactly like you but also feel I
can't not look into this. My son is 10 so we've had many years to "try it
all" and believe we did - vitamins, supplements, gf/cf, enzymes,
antifungals, antivirals, secretin, EFA's, thyroid testing, sensory
integration, auditory training, vision therapy, medication etc. I probably
would never have jumped onto this particular bandwagon if my son hadn't had
metals testing years ago which showed very high levels of mercury in both
hair and urine. When this recent research came up those old tests came
back to me in a flash and it all seemed to fall into place. We've done 6
rounds of chelation so far with minimal results but based on all of the
reading I have done I am still pretty sure that he "fits the bill". You
might try doing a hair analysis and seeing if your son fits the counting
rules. It's a fairly non invasive test and could give you something to go
on before jumping in. I wish you good luck and hope it helps to know you
are not alone in your frustration. Pat
>At 03:51 AM 9/10/2001 -0000, you wrote:
>>It seems like this mercury thing is getting more and more popular. So
>>many people I run into on the internet are rushing for testing, doing
>>chelation and so on. Now I saw a message at this other place talking
>>about dangerous mercury leaching from dental amalgams -
>>http://www.autisms.org/forum/topic.asp?ARCHIVE=&TOPIC_ID=7 . Recently
>>our son's symptoms got worse and this was right around the time he
>>got a bunch of fillings so I'm wondering if we are poisoning him at
>>the same time we are trying to help him!
>>
>>I'm always skeptical of the latest greatest things especially when
>>people herald it as a "cure". Still this coincidence has me concerned
>>enough that I'd like to get our son tested for mercury. But how do I
>>know whether this may really apply to him or if I'm just looking for
>>trouble. We've spent so much money already getting trainers to fly in
>>and train our behavior techs in proper ABA techniques, MRI's, this
>>that and the other thing.
>>
>>I'm so very tired of rushing around like a chicken with it's head
>>cutoff. Everyone keeps saying their thing needs to be done before a
>>certain age or before damage is so bad that it can't be reversed.
>>Then even when you decide you want to try something you got to beat
>>your doctor, insurance agent, or disinterested pencil pusher over the
>>head to implement it. Not to mention dragging the poor kid all over
>>God's green earth, poking, prodding, probing, and pleading.
>>
>>Yet if I slow down for a second I'm afraid he will lose out on
>>something that may prove to be the ticket to his freedom from this
>>horrible nightmare!
>>
>>Somebody pinch me and wake me from this nightmare!! Sorry I know I'm
>>whining but I could really use an A-men!
Well, I hope the other mail helped a bit with support for
your (very understandable) wariness and tiredness.
I do not think chelation is a CURE for ASD, but I think
it helps many ASD kids significantly. What is more, I do
not think this based on theory or conjecture, I think it
based on actual people TELLING ME that their kids have
improved. Furthermore, Rita and I have collected up many
of these stories and you can read them too: http://groups.yahoo.com/group/Autism-Mercury/files/LOVE_LETTERS
I would really recommend that you try to read ALL
of these. Not all at once (it is a lot). See YOURSELF what
you think, and whether this seems like evidence of anything
worthwhile. Your mileage will vary, and is unknown.
Another place to read about whether chelation helps is here: http://www.healing-arts.org/children/holmes.htm#results
Most people on the list know all about Dr. Amy Holmes,
but I shall assume that you do not. Dr. Amy specializes
in ASD kids, and has a huge waiting list to see her.
MANY of the parents on this list visit her, often traveling
from other states. She is also doing a great service by
putting her results on the web for all to read.
As for beating
>your doctor, insurance agent, or disinterested pencil pusher over the
>head to implement it. Not to mention dragging the poor kid all over
>God's green earth, poking, prodding, probing, and pleading.
Well, I cannot claim that heavy metal chelation is painless.
Some of the above applies -- sure, we can talk about what
your options are, so that you can try to find ways to do it
with less strain. But it is not painless. For one
thing, learning all about it is a lot of work. Takes time
and effort.
For another, the fillings you mention: if they are "silver"
amalgam fillings, they have to be replaced before you can
do mercury detox. (This one I can claim having "been there
and done that", not at all happily. Had 8 replaced last
year-- had more at one time.) Not only a gigantic pain,
but expensive too. Would I do it again? YES. Would
I recommend it if your child is merc toxic: absoloutely.
A big advantage you've got going for you is that you have
joined this group. Here you can get all manner of advice
and experience on every aspect you can think to ask about.
Not that that fixes everything, it doesn't, but it often
results in more options....
So, now, let me babble some unsolicited advice for you,
the best I can think up at the moment, and meant kindly.
Feel free to ignore any parts that don't apply, I'm in no
position to judge that.
1. take your time learning about this. Your wariness and
worn-outness need to be honored too. The learning curve
is pretty steep I think, so, don't try to get it all at
once--- it is a lot.
2. read Dr. Stephanie Cave's new book. I'm too tired to go
get you the URL, but if you look on the autism-mercury
website (the main page under groups.yahoo.com) and select
"BOOKMARKS" you'll find a bookmark that will take you to
info on the book. It will explain a lot of things that
are extremely relevant.
3. read one or two of the dental amalgam books about mercury
poisoning. You seem interested (based on your comments), and
there is plenty available to fill your desire to know if
dental fillings could be poisoning your son. A couple you
might try are:
a. ITS ALL IN YOUR HEAD by Hal Huggins
b. AMALGAM ILLNESS by Andrew Hall Cutler, available at
hometown.aol.com/noamalgam (Andy is a frequently contributor
on this list, and very appreciated for his advice.)
c. MERCURY FREE: the wisdom behind the global consumer movement
to ban "silver" dental fillings by Dr. James E. Hardy
Getting your son tested is a good idea. Look for the
counting rules file, also on the website. (If you don't
see it, just ask.) Testing is a good way to answer your
question as to whether this really applies to him or if
you are "just looking for trouble". Lots of ASD kids also
seem to have other heavy metals (lead, aluminum, etc)
I would really like to hear from you as to what you think
of the progress reports contained in the love_letters file.
I hope you'll stay around.
best,
Moria
[I'm doing chelation on mySELF.]
At 03:51 AM 9/10/2001 -0000, you wrote:
>It seems like this mercury thing is getting more and more popular. So
>many people I run into on the internet are rushing for testing, doing
>chelation and so on. Now I saw a message at this other place talking
>about dangerous mercury leaching from dental amalgams -
>http://www.autisms.org/forum/topic.asp?ARCHIVE=&TOPIC_ID=7 . Recently
>our son's symptoms got worse and this was right around the time he
>got a bunch of fillings so I'm wondering if we are poisoning him at
>the same time we are trying to help him!
>
>I'm always skeptical of the latest greatest things especially when
>people herald it as a "cure". Still this coincidence has me concerned
>enough that I'd like to get our son tested for mercury. But how do I
>know whether this may really apply to him or if I'm just looking for
>trouble. We've spent so much money already getting trainers to fly in
>and train our behavior techs in proper ABA techniques, MRI's, this
>that and the other thing.
>
>I'm so very tired of rushing around like a chicken with it's head
>cutoff. Everyone keeps saying their thing needs to be done before a
>certain age or before damage is so bad that it can't be reversed.
>Then even when you decide you want to try something you got to beat
>your doctor, insurance agent, or disinterested pencil pusher over the
>head to implement it. Not to mention dragging the poor kid all over
>God's green earth, poking, prodding, probing, and pleading.
>
>Yet if I slow down for a second I'm afraid he will lose out on
>something that may prove to be the ticket to his freedom from this
>horrible nightmare!
>
>Somebody pinch me and wake me from this nightmare!! Sorry I know I'm
>whining but I could really use an A-men! :(