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#303256 From: "yunjuyishi" <yunjuyishi@...>
Date: Thu May 31, 2012 2:58 am
Subject: Re: Heading into round 31 and the future is looking real good!
yunjuyishi
Send Email Send Email
 
Good JOb,Marie!
it's encouraging to see that your little one is making such progess!
I am following your progress with interest, coz my girl is just a few months
older than your boy, and we are on round 12 now.
My daughter is having great improvement too, mainly gross and fine motor skill,
awareness, alertness,receptive language,etc. and is affectionate with Daddy amd
Mummy.But her expressive language is way behind, and she has no interest playing
with other kids.
Hope one day we would have the progress you are having now!

best wishes.




--- In Autism-Mercury@yahoogroups.com, "dat102009" <dat102009@...> wrote:
>
> Just want to keep all you chelators updated on my progress with our 2.5 year
old boy.
>
> We've reached a new milestone!! Over the weekend we've watched him play
appropriately with children. he played ball, pretend play with his kitchen,
colored, and copied the older children with playing video games and dodgeball.
He was on point in every way!! At first he was timid but it looked like he
couldn't resist the fun. After 5 min he was right over there laughing and just
being a kid.
>
> I still need to test this out at the park where he is usually terrified of the
children but for now this shows me that when he is not fearful he will engage
and play like a typical kids do.
>
> Second big one is he is really attempting to string longer sentences together.
He is becoming more descriptive what he wants and whats going on. He loves
looking at pics that we take on our computer and he tells us in full detail what
we are doing. for example daddy is hugging momma and momma wears red shirt. He
still calls himself by his name but he will say his name and that he is hugging
mommy awww. grandma is cooking hotdog on grill with spatula.   He also
identifies emotion. he watched the mets game with my husband and said the man is
very mad. lol
>
> We are still on cod liver oil, methylated b vitamins, essential 4, chewable
multi, vitamin d and c, raw milk and culturelle, milk thistle and GSE when
needed.
>
> Not sure what it could be because I did botch rd 30 by missing a dose so i
ended the right 2 days prior to the weekend when all this took place. I am
confident though that we are ont he right track because with every round we see
something new, even if it's little, emerge.
>
> Marie
> 2.5 years old
> Rd 31 - ALA, 5mgs
>

#303257 From: "By Definition" <bydefinitionofunderstanding@...>
Date: Thu May 31, 2012 4:44 am
Subject: Re: Disciplining.....
bydefinition...
Send Email Send Email
 
Glad that worked for you, Haven. I've also read that book. It may not be
suitable for typical children though, that are at a point where they can
communicate more reasonably.

We don't use rules so much as reason/reasoning/communication, (What rules we
have, defaulting to as much, of the consequences/reinforcement/enforcement) how
rule-based behavior can get *way* out of hand (Where considered basic to an
ordered society, perhaps, where order becomes the thing, and not the reasoning
inherent to justice and freedom and what is more considerate) as I feel it has
in the US and elsewhere, where people basically are trained to be obedient (To
the rule of law? vs., Reason, if not God?) without questioning authority and
abuse, as much as they should be perhaps, to be more free, and intelligent, if
not so intelligent.. .

Something like rules (The fewer the better, but what else) to come of as much I
more attribute to common sense, but I think you have it with consequences (so
reasonable?) defines behavior (so reasonable? .. .

You're very considerate in going so far with your explaining your situation and
what you feel is best, Haven, I'll thank you for that. With rules, (and
legislation?) be wary of that becoming the thing, (over the Individual and
Justice and what is more, Constitutional) of those who have control of as much
irrespective of right and wrong, I mean. Provide what is needed, (Where you can,
always facilitating communication, real communication, where you can) make them
work for what they want otherwise, is the rule we abide by around our house,
that they could learn how to be so considerate and free otherwise, but I think
not.. . (It gets very pricey where they want something that isn't good for
them.. .

Best wishes,

Mike



--- In Autism-Mercury@yahoogroups.com, Haven DeLay <hdelay@...> wrote:
>
> One area in this journey I have felt very confident in is the area of
> behavior.
>
> In the beginning or our journey, my son was severe, non-verbal and just
> about anything and everything brought on a horrendous tantrum.  In public I
> used to worry about other people's reactions, so in the beginning I just
> wanted to "get out" of whatever I was doing, but then the shopping didn't
> get done.
>
> Reading the book, "Behavioral Interventions for Young Children With Autism"
>  helped me a lot.  I looked at where my son was behaviorally and then there
> was some trial and error to move forward.  I learned that he behaved better
> if he knew exactly how the day was going to go: "We are going to ______ to
> ___________.  Then we are going to ________ to _______, and then we will go
> home.  It helped if he had a picture schedule.
>
> Those were the young days.  My son is going through puberty now too, but
> the groundwork was laid.  Perhaps I was lucky.  My son developed some
> intent interests: computers, iPod(his aunt bought it for him), and swimming
> which continue to this day.  When he was younger it was Dora, Blues clues,
> sponge Bod, and the Food Network.  He actually saw Rachel Ray on the cover
> of a magazine one day in the supermarket and reacted like I would if I
> could have met Jackson Browne in person.  Knowing what matters to your
> child is important.
>
> It is important to teach children that the things they get are privileges
> and not rights.  For sure, they didn't ask to be born but it is our job as
> parents to teach them right from wrong and good behavior from bad.
> I never had low expectations due to his disability.  I assume that a
> disability is really no excuse for bad behavior.  That doesn't mean bad
> behavior won't occur.  It just means there are consequences to bad
> behavior.  It never meant I didn't get embarrassed by a meltdown in public,
> but studying changed my reactions and response to the bad behavior. I never
> again let a tantrum make me run out of a store.
>
> Whether we realize it or not, all humans respond to reward and consequence.
> Would many get up and go to work each day without any hope of a paycheck?
>
> Your child is a teenager now.  Gotta love teenagers --that time of life
> when humans know more than anyone. They have it all figured out.
>
> The key at any age is consistency.  You have to mean what  you say. You
> have to follow through, and you have to do it all while keeping your
> composure.  No must always mean NO or don't say it to begin with.
>
> They might whine, scream, cry and carry on, but no still has to mean no.
>
> When my son was young and I would discipline him, my mother felt "sorry"
> for him, but I said to her, "Should I wait until he is 6'4"? I doubt the
> world would make allowance for one that tall to hit, kick, or bite anyone.
>
> Now my son is taller than me.  He is going on 5'8" (I'm 5'6"), but he knows
> who is the boss.  He knows no means no (that doesn't mean he doesn't
> protest) but he knows that if he misbehaves about it, he loses his
> computer.  He loses swim time in the summer, and if he keeps up the bad
> behavior, he loses his most prized possession: the iPod.
>
> When he was younger I would always tell him "tomorrow is fresh with no
> mistakes in it."  I don't like to carry over punishment, but I know the day
> is going to come.  If he had a really bad day and lost all privileges, I
> would let him earn one back if he got himself together and WORKED for it,
> but this year I told him he is older, and so it is harder to earn something
> back.  The last time he pulled something he had to do a LOT of house
> cleaning.  I have told him that since he is getting older he has to learn
> to regulate his emotions and pretty soon he will not be allowed to earn
> anything back and will have to wait until the next day.
>
> This may work for some kids and not others.  To him, losing the iPod or
> swimming for even one day is torture, so it works.  It motivates him to
> regulate.
>
> I firmly believe diet plays a pivotal role in behavior.  I learned it the
> hard way.  My son cannot tolerate gluten, casein, or soy protein, and if he
> gets these proteins he becomes a different person and not a good one.  He
> can become aggressive, so we watch the diet carefully.  Processed sugar and
> dyes are another no-no.
>
> Have clear rules and clear consequences.  Resist the urge to get into
> verbal argument.  Say what it is and then do not show they can get a rise
> out of you.  When my son has a tantrum, I try to show no emotion at all.  I
> wait for a break.  then I say, "Are you done, now?"  Then if he screams
> again I just sit or stand there with a flat effect and wait.  Then I say,
> "When has this behavior EVER gotten you what you want?"  If he keeps on he
> loses privilege number 1, then two, then three....
>
> When he calms down, we talk.  I know puberty is going to bring more
> challenges, but I am ready.  I have found that sometimes you need to put
> the child to work with you.
>
> Monty Roberts is a horse whisperer, and I remembered reading one of his
> books a long time ago.  He also raised a lot of foster children.  One
> evening he told one of his kids to re-fill a horse's water bucket.  the kid
> could have got the hose and filled the bucket in no time.  The kid didn't
> do the chore, so Monty gave him a one cup measuring cup and told him that
> now he had to fill the bucket using the cup and keep making trips from the
> trough on the other side of the barn.  The kid never again forgot to fill
> the bucket with the hose.
>
> Make it easier to do what is ask if followed the first time.  Make it
> harder to do if the request is ignored.  Chores first, fun after.  We use a
> lot of praise here and a lot of love for hard work and jobs well done.
>  Discipline is not done in anger. I don't enjoy those bad days or bad
> tantrums.  I don't scream or yell.  I just matter-of-fact say, "You are
> about to start loosing privileges."
>
> Teens are testing the waters.  I rejoice secretly when my son acts like any
> other neuro-typical kid of this age, but I have to prepare him for the
> world.  I would put my son's overall behavior up against any neuro-typical
> kid's any day of the week.
>
> I spent fifteen years working with teen-agers as a teacher, mostly in
> inner-city schools.  Be honest, be fair, be firm, and mean what you say.
>  If you make a decision yeh/nay you have to stick to it.  If you waver one
> minute and the next, teenagers will eat you for lunch and spit you out.
>
> Our kids have autism, but they are still kids, and need us desperately to
> be the adults.
>
>
> [Non-text portions of this message have been removed]
>

#303258 From: "By Definition" <bydefinitionofunderstanding@...>
Date: Thu May 31, 2012 5:44 am
Subject: Re: Disciplining.....
bydefinition...
Send Email Send Email
 
Could be the *Golden Rule* by example

Mike


--- In Autism-Mercury@yahoogroups.com, "By Definition"
<bydefinitionofunderstanding@...> wrote:
>
> Glad that worked for you, Haven. I've also read that book. It may not be
suitable for typical children though, that are at a point where they can
communicate more reasonably.
>
> We don't use rules so much as reason/reasoning/communication, (What rules we
have, defaulting to as much, of the consequences/reinforcement/enforcement) how
rule-based behavior can get *way* out of hand (Where considered basic to an
ordered society, perhaps, where order becomes the thing, and not the reasoning
inherent to justice and freedom and what is more considerate) as I feel it has
in the US and elsewhere, where people basically are trained to be obedient (To
the rule of law? vs., Reason, if not God?) without questioning authority and
abuse, as much as they should be perhaps, to be more free, and intelligent, if
not so intelligent.. .
>
> Something like rules (The fewer the better, but what else) to come of as much
I more attribute to common sense, but I think you have it with consequences (so
reasonable?) defines behavior (so reasonable? .. .
>
> You're very considerate in going so far with your explaining your situation
and what you feel is best, Haven, I'll thank you for that. With rules, (and
legislation?) be wary of that becoming the thing, (over the Individual and
Justice and what is more, Constitutional) of those who have control of as much
irrespective of right and wrong, I mean. Provide what is needed, (Where you can,
always facilitating communication, real communication, where you can) make them
work for what they want otherwise, is the rule we abide by around our house,
that they could learn how to be so considerate and free otherwise, but I think
not.. . (It gets very pricey where they want something that isn't good for
them.. .
>
> Best wishes,
>
> Mike
>
>
>
> --- In Autism-Mercury@yahoogroups.com, Haven DeLay <hdelay@> wrote:
> >
> > One area in this journey I have felt very confident in is the area of
> > behavior.
> >
> > In the beginning or our journey, my son was severe, non-verbal and just
> > about anything and everything brought on a horrendous tantrum.  In public I
> > used to worry about other people's reactions, so in the beginning I just
> > wanted to "get out" of whatever I was doing, but then the shopping didn't
> > get done.
> >
> > Reading the book, "Behavioral Interventions for Young Children With Autism"
> >  helped me a lot.  I looked at where my son was behaviorally and then there
> > was some trial and error to move forward.  I learned that he behaved better
> > if he knew exactly how the day was going to go: "We are going to ______ to
> > ___________.  Then we are going to ________ to _______, and then we will go
> > home.  It helped if he had a picture schedule.
> >
> > Those were the young days.  My son is going through puberty now too, but
> > the groundwork was laid.  Perhaps I was lucky.  My son developed some
> > intent interests: computers, iPod(his aunt bought it for him), and swimming
> > which continue to this day.  When he was younger it was Dora, Blues clues,
> > sponge Bod, and the Food Network.  He actually saw Rachel Ray on the cover
> > of a magazine one day in the supermarket and reacted like I would if I
> > could have met Jackson Browne in person.  Knowing what matters to your
> > child is important.
> >
> > It is important to teach children that the things they get are privileges
> > and not rights.  For sure, they didn't ask to be born but it is our job as
> > parents to teach them right from wrong and good behavior from bad.
> > I never had low expectations due to his disability.  I assume that a
> > disability is really no excuse for bad behavior.  That doesn't mean bad
> > behavior won't occur.  It just means there are consequences to bad
> > behavior.  It never meant I didn't get embarrassed by a meltdown in public,
> > but studying changed my reactions and response to the bad behavior. I never
> > again let a tantrum make me run out of a store.
> >
> > Whether we realize it or not, all humans respond to reward and consequence.
> > Would many get up and go to work each day without any hope of a paycheck?
> >
> > Your child is a teenager now.  Gotta love teenagers --that time of life
> > when humans know more than anyone. They have it all figured out.
> >
> > The key at any age is consistency.  You have to mean what  you say. You
> > have to follow through, and you have to do it all while keeping your
> > composure.  No must always mean NO or don't say it to begin with.
> >
> > They might whine, scream, cry and carry on, but no still has to mean no.
> >
> > When my son was young and I would discipline him, my mother felt "sorry"
> > for him, but I said to her, "Should I wait until he is 6'4"? I doubt the
> > world would make allowance for one that tall to hit, kick, or bite anyone.
> >
> > Now my son is taller than me.  He is going on 5'8" (I'm 5'6"), but he knows
> > who is the boss.  He knows no means no (that doesn't mean he doesn't
> > protest) but he knows that if he misbehaves about it, he loses his
> > computer.  He loses swim time in the summer, and if he keeps up the bad
> > behavior, he loses his most prized possession: the iPod.
> >
> > When he was younger I would always tell him "tomorrow is fresh with no
> > mistakes in it."  I don't like to carry over punishment, but I know the day
> > is going to come.  If he had a really bad day and lost all privileges, I
> > would let him earn one back if he got himself together and WORKED for it,
> > but this year I told him he is older, and so it is harder to earn something
> > back.  The last time he pulled something he had to do a LOT of house
> > cleaning.  I have told him that since he is getting older he has to learn
> > to regulate his emotions and pretty soon he will not be allowed to earn
> > anything back and will have to wait until the next day.
> >
> > This may work for some kids and not others.  To him, losing the iPod or
> > swimming for even one day is torture, so it works.  It motivates him to
> > regulate.
> >
> > I firmly believe diet plays a pivotal role in behavior.  I learned it the
> > hard way.  My son cannot tolerate gluten, casein, or soy protein, and if he
> > gets these proteins he becomes a different person and not a good one.  He
> > can become aggressive, so we watch the diet carefully.  Processed sugar and
> > dyes are another no-no.
> >
> > Have clear rules and clear consequences.  Resist the urge to get into
> > verbal argument.  Say what it is and then do not show they can get a rise
> > out of you.  When my son has a tantrum, I try to show no emotion at all.  I
> > wait for a break.  then I say, "Are you done, now?"  Then if he screams
> > again I just sit or stand there with a flat effect and wait.  Then I say,
> > "When has this behavior EVER gotten you what you want?"  If he keeps on he
> > loses privilege number 1, then two, then three....
> >
> > When he calms down, we talk.  I know puberty is going to bring more
> > challenges, but I am ready.  I have found that sometimes you need to put
> > the child to work with you.
> >
> > Monty Roberts is a horse whisperer, and I remembered reading one of his
> > books a long time ago.  He also raised a lot of foster children.  One
> > evening he told one of his kids to re-fill a horse's water bucket.  the kid
> > could have got the hose and filled the bucket in no time.  The kid didn't
> > do the chore, so Monty gave him a one cup measuring cup and told him that
> > now he had to fill the bucket using the cup and keep making trips from the
> > trough on the other side of the barn.  The kid never again forgot to fill
> > the bucket with the hose.
> >
> > Make it easier to do what is ask if followed the first time.  Make it
> > harder to do if the request is ignored.  Chores first, fun after.  We use a
> > lot of praise here and a lot of love for hard work and jobs well done.
> >  Discipline is not done in anger. I don't enjoy those bad days or bad
> > tantrums.  I don't scream or yell.  I just matter-of-fact say, "You are
> > about to start loosing privileges."
> >
> > Teens are testing the waters.  I rejoice secretly when my son acts like any
> > other neuro-typical kid of this age, but I have to prepare him for the
> > world.  I would put my son's overall behavior up against any neuro-typical
> > kid's any day of the week.
> >
> > I spent fifteen years working with teen-agers as a teacher, mostly in
> > inner-city schools.  Be honest, be fair, be firm, and mean what you say.
> >  If you make a decision yeh/nay you have to stick to it.  If you waver one
> > minute and the next, teenagers will eat you for lunch and spit you out.
> >
> > Our kids have autism, but they are still kids, and need us desperately to
> > be the adults.
> >
> >
> > [Non-text portions of this message have been removed]
> >
>

#303259 From: "Farah Rahman" <farahrahman12@...>
Date: Thu May 31, 2012 10:52 am
Subject: Getting Back into it
farahrahman12
Send Email Send Email
 
Dear all

I wonder if you could advise me. I began chelation in December last year and it
was going amazingly well. Unfortunately In February my sister passed away and my
sons Biomed went out the window.

I am now trying to get back on track but have totally forgotten where I was in
terms of dosages etc (have also got pregnancy brain). Could anyone advise what I
can do as an absolute minimum to start chelation again and anything else they
would recommend cannot get my head around any reading at the moment.

He is 15kg and we were giving 5mg ALA.

Thank you all

Farah

#303260 From: "cipim@..." <cipim1968@...>
Date: Thu May 31, 2012 12:28 pm
Subject: Re: Re: Treatments for Apraxia of Speech?
cipim1968
Send Email Send Email
 
Cathy, I would appreciate If you can post here the quantities per day of these
suppliments , the age of yr child when you begin the tratements.
Did you do ABA therapy?
Thank you

--- On Tue, 5/8/12, ckrupa <catherine.krupa@...> wrote:


From: ckrupa <catherine.krupa@...>
Subject: [Autism-Mercury] Re: Treatments for Apraxia of Speech?
To: Autism-Mercury@yahoogroups.com
Date: Tuesday, May 8, 2012, 6:37 PM



 




My son's apraxia is resolved. Some of the best interventions:
Acetyl-l-carnitine
MB12 subcu shots
DMG
fish oil (high epa and dha)
vitamin E
tons of probiotics

Cathy

--- In Autism-Mercury@yahoogroups.com, "nikkibarbieri" <nikkibarbieri@...>
wrote:
>
> Besides fish oils what are other parents having success with?Thank u in
advance!
>








[Non-text portions of this message have been removed]

#303261 From: Marie Smith <dat102009@...>
Date: Thu May 31, 2012 1:58 pm
Subject: Re: Re: Heading into round 31 and the future is looking real good!
dat102009
Send Email Send Email
 
Awesome keep plugging away at those rounds!!  We have a ways to go but I am very
pleased with the outcome thus far. Good luck

[Non-text portions of this message have been removed]

#303262 From: "JoeGrane" <joegrane610@...>
Date: Thu May 31, 2012 2:28 pm
Subject: Re: Getting Back into it
joegrane610
Send Email Send Email
 
Tips here.
http://home.earthlink.net/~moriam/Andy_dose_sched.html
http://www.blogtalkradio.com/thecandystore/2010/03/15/special-guest-andrew-hall-\
cutler-phd-pe

--- In Autism-Mercury@yahoogroups.com, "Farah Rahman" <farahrahman12@...> wrote:
>
> Dear all
>
> I wonder if you could advise me. I began chelation in December last year and
it was going amazingly well. Unfortunately In February my sister passed away and
my sons Biomed went out the window.
>
> I am now trying to get back on track but have totally forgotten where I was in
terms of dosages etc (have also got pregnancy brain). Could anyone advise what I
can do as an absolute minimum to start chelation again and anything else they
would recommend cannot get my head around any reading at the moment.
>
> He is 15kg and we were giving 5mg ALA.
>
> Thank you all
>
> Farah
>

#303263 From: "danasview" <danasview@...>
Date: Thu May 31, 2012 2:29 pm
Subject: Re: bacteria/viruses
danasview
Send Email Send Email
 
--- In Autism-Mercury@yahoogroups.com, "kristinlm" <kristinlm@...> wrote:
> What is the best way to address bacteria and viruses?


I eliminated bad bacteria with OLE and Culturelle.

I eliminated viruses with OLE, Virastop, and high doses of vitamin A, vitamin C,
vitamin D, and lysine.

Dana

#303264 From: "JoeGrane" <joegrane610@...>
Date: Thu May 31, 2012 2:36 pm
Subject: Re: Heading into round 31 and the future is looking real good!
joegrane610
Send Email Send Email
 
Thank you for the updates.  It is great that you all are seeing gains.

We hear in the adult chelation groups that they also become less introverted
over time--myself included.

Joe

--- In Autism-Mercury@yahoogroups.com, "dat102009" <dat102009@...> wrote:
>
> Just want to keep all you chelators updated on my progress with our 2.5 year
old boy.
>
> We've reached a new milestone!! Over the weekend we've watched him play
appropriately with children. he played ball, pretend play with his kitchen,
colored, and copied the older children with playing video games and dodgeball.
He was on point in every way!! At first he was timid but it looked like he
couldn't resist the fun. After 5 min he was right over there laughing and just
being a kid.
>
> I still need to test this out at the park where he is usually terrified of the
children but for now this shows me that when he is not fearful he will engage
and play like a typical kids do.
>
> Second big one is he is really attempting to string longer sentences together.
He is becoming more descriptive what he wants and whats going on. He loves
looking at pics that we take on our computer and he tells us in full detail what
we are doing. for example daddy is hugging momma and momma wears red shirt. He
still calls himself by his name but he will say his name and that he is hugging
mommy awww. grandma is cooking hotdog on grill with spatula.   He also
identifies emotion. he watched the mets game with my husband and said the man is
very mad. lol
>
> We are still on cod liver oil, methylated b vitamins, essential 4, chewable
multi, vitamin d and c, raw milk and culturelle, milk thistle and GSE when
needed.
>
> Not sure what it could be because I did botch rd 30 by missing a dose so i
ended the right 2 days prior to the weekend when all this took place. I am
confident though that we are ont he right track because with every round we see
something new, even if it's little, emerge.
>
> Marie
> 2.5 years old
> Rd 31 - ALA, 5mgs
>

#303265 From: Adam Feinstein <adam@...>
Date: Thu May 31, 2012 2:38 pm
Subject: Unique chance to put your questions directly to Professor Gary Mesibov on June 25, 2012
autismcymru
Send Email Send Email
 
*DON'T MISS THIS UNIQUE CHANCE TO PUT YOUR QUESTIONS DIRECTLY TO A LEADING
WORLD AUTHORITY ON ASD, PROFESSOR GARY MESIBOV, ON JUNE 25, 2012*

www.awares.org/conferences

Grab your chance!  Register now and make sure you don't miss out on this
unique opportunity to put your questions directly to one of the world's
greatest autism authorities, Professor Gary Mesibov.

Gary - director (until 2010) of Division TEACCH in North Carolina - is one
of the top authorities on the planet in education and support for children
and adults with autism. He will be online from the morning of Monday, June
25, 2012 on the Awares conference site (www.awares.org/conferences) until
late that night, to receive and respond to YOUR questions. TEACCH's
internationally recognised programme has a pioneering approach to service,
treatment, training, research and the education of individuals with autism
spectrum disorders.

This is the first in a series of monthly one-day online seminars on
www.awares.org/conferences in 2012 (featuring an outstanding line-up of
figures from the world of autism) to be run by Autism Cymru, Wales's
National Charity for Autism. To cover our costs, we are charging an entry
fee of just 5 for members of Autism Cymru or 12.00 for non-members. Fees
are paid when you initially register for this one-day online seminar.
  Remember that this provides you with the opportunity to raise your
questions with Gary.

For further details about this and all other Awares online autism
conferences, please contact Adam Feinstein at: adam@...

*BECOME A MEMBER*

We take this opportunity to invite you to become a member of Autism Cymru.
Membership is free for individuals.

The benefits of becoming a member include:
.       Receive updates/newsletters on the Charity's activities
.       Advance notification of training, conferences and other events
.       Reduced fees for admission to conferences, seminars, training (both
face to face and on-line)
.       The opportunity to contribute to the charity by giving your views
about the future direction taken by the charity
.       Information on government policy for ASD in Wales and throughout
the UK
.       Good practice examples
.       Useful urls - youtube clips, research information including
activity updates from the forthcoming Autism Policy/Research/Practice 'Hub'
in the Wales Autism Research Centre, Cardiff University, which is being
developed in collaboration with Autism Cymru and the Welsh Government

To become a member of Autism Cymru, simply fill out application form at
www.autismcymru.org
Please send completed applications to member@...

*Why join Autism Cymru?*

Autism Cymru is the indigenous national autism charity for Wales which, in
2001, first created the concept and then encouraged the Welsh Government to
establish the world's first national autism Strategy. We also initiated and
led the partnership which brought about the Wales Autism Research Centre in
Cardiff University and the UK's first named professorial chair in autism.
Together, these two initiatives alone have brought in over 12 million of
new and ring-fenced funding for autism in Wales from government and
research bodies over the past few years.  Most of this funding, of course,
has gone into Local Authorities and Local Health Boards to establish an
infrastructure for autism and to deliver services and into research into
autism. For a small Welsh charity, we have achieved amazing influence and
impact.

Since 2004, the charity has run the Wales Autism International Conference
in Cardiff and from 2006 the annual world Awares on-line conference for
autism. We have provided training to over 550 schools in Wales. As a member
of the Celtic Nations Autism Partnership, we work closely with our partners
in Scottish Autism, Autism Northern Ireland and the Irish Society for
Autism. Our work also takes place on an international stage and with
European partners including Autism-Europe.  For example, our 2009-12
European funded Deis Cyfle project (Opportunities for people with autism in
education and employment) reached out to over 5,700 people across Wales and
Ireland. We work extensively with the emergency services in Wales, with our
Attention Card operated by all four Welsh Police Forces, and further very
significant developments across the emergency services will come into place
during 2012.

The charity is also the sole national autism charity governed by those
living in Wales. Autism Cymru's Chair is Professor Bill Fraser CBE;  Patron
Lord Dafydd Wigley and President, Dame Stephanie Shirley.  In spite of its
massive achievements, the charity has small staffing numbers, no
administrative staff and relies upon skilled and experienced trustees and
staff to deliver its highly influential and effective programme of
activities. All our staff have extensive experience of working directly
people with autism and their families.

We therefore now invite you to join the Autism Cymru 'team' and become part
of this Welsh success story by becoming a member of the charity.

Join us on Facebook & Twitter


[Non-text portions of this message have been removed]

#303266 From: Christine Nakra <cksteiner1122@...>
Date: Thu May 31, 2012 6:39 pm
Subject: Re: Lindamood Bell Program - Works for Kds with Autism?
cksteiner1122
Send Email Send Email
 
I was going to do that program because of the intensity in the summer. Instead I
found a nearby reading specialist that worked out of her home that was trained
in LMB.
I think one of the reasons that the program has good results is because of the
intensity but the kids are there for hours. I know my daughter would not have
done well with it.
We went the other route and found that 1:1 attention, tailored to her needs, a
few times a week for 45 minutes worked really well :) She was brought up to age
level in 3 months.

HTH,
Christine


[Non-text portions of this message have been removed]

#303267 From: "Linda Shepard Salzer" <Linda_Shepard@...>
Date: Thu May 31, 2012 10:09 pm
Subject: Real cost of mercury fillings
lgshepard
Send Email Send Email
 
Real cost of mercury fillings revealed in new study

Mercury fillings are more expensive than the mercury-free alternatives,
according to a new study released by a broad coalition of health, consumer, and
environmental groups including Consumers for Dental Choice.

The study was prepared by Brussels-based Concorde East/West, an international
consulting firm that provides research to the United Nations and the U.S.
Environmental Protection Agency, among others.  It details how society pays for
dental mercury through additional pollution control costs, deterioration of
public resources, and the health effects associated with mercury contamination.

“The report’s findings confirm that amalgam is not the least expensive when
the so-called ‘external costs’ are factored in,” said Michael Bender,
director of the Mercury Policy Project.

To read the full study, click here.

So who pays the high costs associated with dental mercury? 
Taxpayers….fishermen.… farmers….pregnant women….funeral home
owners….dental office landlords….tourism
workers.…environmentally-responsible, mercury-free dentists.…water rate
payers….wildlife.…dental workers….consumers….children….your family...

Ultimately, it’s you.

Remind your friends and neighbors: dental mercury does not only affect
individuals – it affects everyone when it pollutes:

Our water via dental clinic releases and  human waste
Our air via cremation, dental clinic emissions, sludge incineration, and
respiration; and

Our soil via landfills, burials, and fertilizer.
In the environment, dental mercury converts into methylmercury – making
amalgam a source of the mercury in the fish we eat.  From there, the effects of
dental mercury are well-known, and have recently been reiterated by the U.S.
Environmental Protection Agency: brain damage and neurological problems,
especially for children and the unborn babies of pregnant women.

The environmental concerns and indirect health risks from dental mercury
contamination clearly demonstrate the need for ending amalgam use. Now we know
that economics is on our side as well: far from being a bargain, amalgam is
significantly more costly than mercury-free fillings.

And until mercury-using dentists change or governments act, we will all continue
paying the price.


Charlie
31 May 2012


Charles G. Brown
National Counsel, Consumers for Dental Choice
President, World Alliance for Mercury-Free Dentistry
316 F St. NE, Suite 210 Washington, DC 20002 USA
Phone: 202-544-6333; Fax: 202-544-6331
www.toxicteeth.org

#303268 From: "brownjetta" <brownjetta@...>
Date: Thu May 31, 2012 11:56 pm
Subject: I would like to start chelating my 5 year old son BUT
brownjetta
Send Email Send Email
 
I don't have recommended doses of the four essential supplements that are needed
in place yet since my son is very sensitive to supplements:

  - vit C - my son has problems with oxalates so I cannot give him a lot of this,
if any, right now I am trying just sprinkles of Purely-C as the capsules contain
lower doses of C to see if he can handle it but very likely this will never get
to the recommended dose of 500+ mg
  - vit E - we are starting at 60 IUs on Purely-E and working the dose up
  - Zinc - we are at 30 mg
  - Magnesium - we are at 600 mg

On the top of this we are doing the following daily: B6 (100 mg), biotin (15
mg), Inositol (2000 mg), vit A (5000 IU), Adrenal cortex (100 mg), Enhansa
(curcumin) (75 mg), GSE (400 mg), AKG (900 mg), Co-Q10 (12.5 mg), Trienza
enzymes, Selenium (150 mg), Liver Life (4 drops), Culturelle (3 packets),
Lactobacillus Duo (45 billion.)
In addition he is on Thyroid, coconut oil(1 tspn per day) and TTFD cream.  Some
of these doses are quite low but as I said he is sensitive when it comes to
supplements and I could not find a vitamin complex that he would tolerate
without shivers.

I would like to start chelating him as soon as possible with 2.5 mg (although
his weight would suggest 5 mg) of ALA only due to low neut absolute and yeast
problems but I am wondering if I have enough support in the supplements for him.
He also has high ammonia.  I am really anxious about starting and feel like I
will never get enough of things in place to be completely ready.

Should I go ahead and start?  Your opinions are appreciated.

Jetta
ASD Mom

#303269 From: "brownjetta" <brownjetta@...>
Date: Fri Jun 1, 2012 12:23 am
Subject: Re: Neutrophils test
brownjetta
Send Email Send Email
 
I just wanted to point out that the neutrophils absolute looks low normal
according to what is given for the range.  There is a file posted in the file
section about the neutrophils.
Jetta
ASD Mom

--- In Autism-Mercury@yahoogroups.com, "phyllis.chowaniok" <pwchowaniok@...>
wrote:
>
> Hello everyone,
>
> I need help with reading the results from direct labs regarding a neutrophils
test results for my son...The neutrophils seem alright but there are some things
that are off...I am going to post the results in the files section so please
please take a look and tell me what you think... I will put it under
"Jordiesresults" Thank you
>
> Sincerely,
>
> Phyllis
>

#303270 From: "San" <san_gentry@...>
Date: Fri Jun 1, 2012 1:18 am
Subject: Re: Fw: ALERT: CRC End-Around Now in the Senate!
san_gentry
Send Email Send Email
 
A Smith,

let's say you're a homeschooler.... what would you think about homeschooling not
being an option because how does the bureaucratic arm know you're a capable
teacher and now it's outlawed?

That's my biggest gripe about it.

If it wasn't for that and the medical freedom of choice potentially being
infringed upon, I would wholeheartedly support it.


The way your answer came off was verbally abusive, what about that?
Very accusatory and demeaning.


--- In Autism-Mercury@yahoogroups.com, Alison Schwartz <vbhomeprogram@...>
wrote:
>
>
> To all list serve members :Read between  the lines,
> This treaty is a clear attempt to assault the liberties we have under the
constitution.
> There are many parents on this list serve who feel strongly about  making the
best choices for  their special needs children
> And the effects of this treaty would be grave for these families, parental
rights would be taken away from these families.
> But don't worry if you're not the parent of a special needs child,
there will be another treaty to take your rights away as well soon enough.
> To respond to the anonymous tongue and cheek, you should perhaps board  the
next plane  to china, I hear the government makes great choices for everyone
there.
>
> Alison
>
> [Non-text portions of this message have been removed]
>

#303271 From: "San" <san_gentry@...>
Date: Fri Jun 1, 2012 1:23 am
Subject: Re: I would like to start chelating my 5 year old son BUT
san_gentry
Send Email Send Email
 
On top of my head:

Sounds like a lot of Mg you have already worked up to. Congratulations!

And I think you are doing very well in being conservative in starting doses.
Remember, ALA does not generate the yeast proliferation that DMSA causes. DMSA
attracts Mercury and other heavy metals TO the intestine. ALA enters the
bloodstream and crosses the blood brain barrier (BBB) and is sent onward to the
kidneys for liquid waste removal.

I know, lots to learn in the beginning.

Let us know how it goes when you do start!

San

--- In Autism-Mercury@yahoogroups.com, "brownjetta" <brownjetta@...> wrote:
>
> I don't have recommended doses of the four essential supplements that are
needed in place yet since my son is very sensitive to supplements:
>
>  - vit C - my son has problems with oxalates so I cannot give him a lot of
this, if any, right now I am trying just sprinkles of Purely-C as the capsules
contain lower doses of C to see if he can handle it but very likely this will
never get to the recommended dose of 500+ mg
>  - vit E - we are starting at 60 IUs on Purely-E and working the dose up
>  - Zinc - we are at 30 mg
>  - Magnesium - we are at 600 mg
>
> On the top of this we are doing the following daily: B6 (100 mg), biotin (15
mg), Inositol (2000 mg), vit A (5000 IU), Adrenal cortex (100 mg), Enhansa
(curcumin) (75 mg), GSE (400 mg), AKG (900 mg), Co-Q10 (12.5 mg), Trienza
enzymes, Selenium (150 mg), Liver Life (4 drops), Culturelle (3 packets),
Lactobacillus Duo (45 billion.)
> In addition he is on Thyroid, coconut oil(1 tspn per day) and TTFD cream. 
Some of these doses are quite low but as I said he is sensitive when it comes to
supplements and I could not find a vitamin complex that he would tolerate
without shivers.
>
> I would like to start chelating him as soon as possible with 2.5 mg (although
his weight would suggest 5 mg) of ALA only due to low neut absolute and yeast
problems but I am wondering if I have enough support in the supplements for him.
He also has high ammonia.  I am really anxious about starting and feel like I
will never get enough of things in place to be completely ready.
>
> Should I go ahead and start?  Your opinions are appreciated.
>
> Jetta
> ASD Mom
>

#303272 From: "Mr. Wonderful" <rick_tallman1@...>
Date: Fri Jun 1, 2012 1:28 am
Subject: Only the Most Functional Children Were Included
rick_tallman1
Send Email Send Email
 
Only the Most Functional Children Were Included in CDC’s Autism Study

http://gaia-health.com/gaia-blog/2012-05-30/only-the-most-functional-children-we\
re-included-in-cdcs-autism-study/ 

 

























 

Man will ultimately be governed by God or by tyrants.

Make yourselves sheep and the wolves will eat you.
Beer is living proof that God loves us and wants us to be happy.





Ben Franklin

[Non-text portions of this message have been removed]

#303273 From: "San" <san_gentry@...>
Date: Fri Jun 1, 2012 1:30 am
Subject: Re: Fw: ALERT: CRC End-Around Now in the Senate!
san_gentry
Send Email Send Email
 
Please disregard the prior message...the member is already gone.
San

--- In Autism-Mercury@yahoogroups.com, "San" <san_gentry@...> wrote:
>
> A Smith,
>
> let's say you're a homeschooler.... what would you think about homeschooling
not being an option because how does the bureaucratic arm know you're a capable
teacher and now it's outlawed?
>
> That's my biggest gripe about it.
>
> If it wasn't for that and the medical freedom of choice potentially being
infringed upon, I would wholeheartedly support it.
>
>
> The way your answer came off was verbally abusive, what about that?
> Very accusatory and demeaning.
>
>
> --- In Autism-Mercury@yahoogroups.com, Alison Schwartz <vbhomeprogram@> wrote:
> >
> >
> > To all list serve members :Read between  the lines,
> > This treaty is a clear attempt to assault the liberties we have under the
constitution.
> > There are many parents on this list serve who feel strongly about  making
the best choices for  their special needs children
> > And the effects of this treaty would be grave for these families, parental
rights would be taken away from these families.
> > But don't worry if you're not the parent of a special needs child,
there will be another treaty to take your rights away as well soon enough.
> > To respond to the anonymous tongue and cheek, you should perhaps board  the
next plane  to china, I hear the government makes great choices for everyone
there.
> >
> > Alison
> >
> > [Non-text portions of this message have been removed]
> >
>

#303274 From: "JoeGrane" <joegrane610@...>
Date: Fri Jun 1, 2012 1:32 am
Subject: Re: I would like to start chelating my 5 year old son BUT
joegrane610
Send Email Send Email
 
--- In Autism-Mercury@yahoogroups.com, "brownjetta" <brownjetta@...> wrote:
>
> I don't have recommended doses of the four essential supplements that are
needed in place yet since my son is very sensitive to supplements:
>
>  - vit C - my son has problems with oxalates so I cannot give him a lot of
this, if any, right now I am trying just sprinkles of Purely-C as the capsules
contain lower doses of C to see if he can handle it but very likely this will
never get to the recommended dose of 500+ mg
>  - vit E - we are starting at 60 IUs on Purely-E and working the dose up
>  - Zinc - we are at 30 mg
>  - Magnesium - we are at 600 mg
>
> On the top of this we are doing the following daily: B6 (100 mg), biotin (15
mg), Inositol (2000 mg), vit A (5000 IU), Adrenal cortex (100 mg), Enhansa
(curcumin) (75 mg), GSE (400 mg), AKG (900 mg), Co-Q10 (12.5 mg), Trienza
enzymes, Selenium (150 mg), Liver Life (4 drops), Culturelle (3 packets),
Lactobacillus Duo (45 billion.)
> In addition he is on Thyroid, coconut oil(1 tspn per day) and TTFD cream. 
Some of these doses are quite low but as I said he is sensitive when it comes to
supplements and I could not find a vitamin complex that he would tolerate
without shivers.
>
> I would like to start chelating him as soon as possible with 2.5 mg (although
his weight would suggest 5 mg) of ALA only due to low neut absolute and yeast
problems but I am wondering if I have enough support in the supplements for him.

== I've always thought it is wise to start with a very conservative dose in
round 1.

== My understanding of Cutler is that if there has not been any recent exposure
to mercury, it is fine for the kids to use ALA.

== DMSA often helps people to tolerate higher doses of ALA--including me;
however I can understand that you'd like to avoid exacerbating the yeast
problem.  Some use it on occasional rounds.


>  He also has high ammonia.

== Do you have any clues as to why?  I'm sorry, I don't know what members have
been doing for that.  You could do a search of the onibasu.com archives.

> ...I am really anxious about starting and feel like I will never get enough of
things in place to be completely ready.
>
> Should I go ahead and start?  Your opinions are appreciated.

== What did the doctor say about the ammonia test results?

== Joe

>
> Jetta
> ASD Mom
>

#303275 From: "phyllis.chowaniok" <pwchowaniok@...>
Date: Fri Jun 1, 2012 1:43 am
Subject: Re: Neutrophils test
phyllis.chow...
Send Email Send Email
 
Hi Jetta,
I will take a look at the file, I may end up supplementing just to be on the
safe side...

Phyllis
--- In Autism-Mercury@yahoogroups.com, "brownjetta" <brownjetta@...> wrote:
>
> I just wanted to point out that the neutrophils absolute looks low normal
according to what is given for the range.  There is a file posted in the file
section about the neutrophils.
> Jetta
> ASD Mom
>
> --- In Autism-Mercury@yahoogroups.com, "phyllis.chowaniok" <pwchowaniok@>
wrote:
> >
> > Hello everyone,
> >
> > I need help with reading the results from direct labs regarding a
neutrophils test results for my son...The neutrophils seem alright but there are
some things that are off...I am going to post the results in the files section
so please please take a look and tell me what you think... I will put it under
"Jordiesresults" Thank you
> >
> > Sincerely,
> >
> > Phyllis
> >
>

#303276 From: "yunjuyishi" <yunjuyishi@...>
Date: Fri Jun 1, 2012 4:20 am
Subject: reposthelp interpret hair test result pls!
yunjuyishi
Send Email Send Email
 
Dear everyone,

I just uploaded the my daughter's first hair test result from Doctor's Data.

the link is

http://f1.grp.yahoofs.com/v1/8Km7TyNj4kUjcg3aYTPYC7oD7PD-e7tesjsZDnV1MOK2gKHYcY-\
\
KWaw4x7q1uVbdrqKk2_44jIRH8K8waTL_tMpARdXg-Bc/HairTests/ninihairtest.pdf

The sample was taken three months ago, whose result shows high lead arsenic,and
bunch of other heavy metals, and marginally meets the counting rule. since then
we have done 12 rounds of chelation AC style, and thank GOD my little one has
made great improvement.

now i think i need to know more from the test result. eg. the situation of her
kidney, fast or low liver phases, ardrenal, fast or low metabolization et. can
these be shown by the hair test result? or anything more?

unfortunately i dont have the hair interpretation book on hand. would someone
please help me interpret?

she is 2.11 yro, weighs 30 lbs.

#303277 From: "mrboysmom" <misterboysmom@...>
Date: Fri Jun 1, 2012 4:35 am
Subject: Re: Mr Boys liver - help please
mrboysmom
Send Email Send Email
 
I'm worried that I'm taking too long to get started on the lead..
however when I tried DMSA we had a dangerous few hours of severe rage.  We can't
go through that again.  Next time it will be a miniscule dose.

I do think the copper is pouring out because his hair has turned very reddish
and everyone is noticing.  He has taken zinc with every meal for years now, but
I guess his overall health is improving and finally letting go of that copper
due to the last year and a half of proper chelation.  Can't think of any other
reason the hair would turn red.  Deb

--- In Autism-Mercury@yahoogroups.com, Rebecca Elizabeth <ladyshrink222@...>
wrote:
>
> Deb,
>
> We had a few kids on RFA, now APC, that could not tolerate Dmsa at first. So
this does happen. If he reacts badly to this go round with Dmsa, just back off
and do another 10 rounds of Ala and then try again.
>
> All the kids who initially could not tolerate Dmsa, eventually could, so don't
worry.
>
>  
> Rebecca
> http://www.SavingSavannah.org
>
>
>
>
> ________________________________
>  From: mrboysmom <misterboysmom@...>
> To: Autism-Mercury@yahoogroups.com
> Sent: Wednesday, May 30, 2012 1:21 AM
> Subject: [Autism-Mercury] Re: Mr Boys liver - help please
>
>
>  
> Interesting post.  It appears from my boys 4 yo hair test he had high lead +
met the counting rules for mercury.  Then at his 11yo hair test (after having
been on zinc) he shows high copper almost in the red.  By that time the lead is
lower (must have moved to the bones) and he still met the counting rules for
mercury.
>
> Now that he has been taking molybdenum for about a year + zinc + taurine, his
brown hair is turning more red which a lot of people have noticed.  I think he
is dumping that copper into his hair.
>
> I have added the glycine (he did not seem to notice) and the milk thistle
(rough start, but now taking with every meal and then some) so hopefully his
liver is improving.  I will add the lecithin soon.
>
> I know I will have to add DMSA soon.  I worry about it, the first time I tried
it he went ballistic.  I don't think we are up to trying it again just yet. 
Maybe in a few months.  The ALA is working well.  He does great all weekend +
day 1 after, but then falls apart on day 2 and 3 after round.
>
> I'm just getting into Hair Test Interpretation and things are starting to look
very dismal for him.  The good news is that he is improving a lot.
>
> Thanks for that link, I need to study this more.  Deb
>
> --- In Autism-Mercury@yahoogroups.com, "coast2cape" <coast2cape@> wrote:
> >
> > Found another older Cutler post about lead being a real spoiler in the liver
and making chelation much harder.  Andy was discussing this with a parent of a
daughter who had high copper and Hg as well as lead or suspected lead. Cutler
had some suggestions.
> >
> > http://onibasu.com/archives/am/70901.html
> >
> > atb
> > Laura
> >
> >
> > --- In Autism-Mercury@yahoogroups.com, "mrboysmom" <misterboysmom@> wrote:
> > >
> > > I love Lecithin and I take it for my skin.  I'll put some into a capsule
and see how he does.  Thx!
> > >
> > > --- In Autism-Mercury@yahoogroups.com, "JoeGrane" <joegrane610@> wrote:
> > > >
> > > >
> > > >
> > > > --- In Autism-Mercury@yahoogroups.com, "Anita" <mysuperteach@> wrote:
> > > > >
> > > > > If your child doesn't have extreme soy sensitivities, I'd suggest
phosphatidylcholine.
> > > >
> > > > == It has had a nice effect on my memory recall speed.  I currently get
it in lecithin (available in granules and capsules) but not everyone tolerates
that well.  Joe
> > > >
> > > > > ...It's effect on the liver is very good, and research shows it can
even be very beneficial in the case of hepatitis.
> > > > >
> > > > > Anita
> > > > >
> > > > >
> > > >
> > >
> >
>
>
>
>
> [Non-text portions of this message have been removed]
>

#303278 From: "mbrookh" <mbrookh@...>
Date: Fri Jun 1, 2012 10:57 am
Subject: Re: I would like to start chelating my 5 year old son BUT
mbrookh
Send Email Send Email
 
Jetta,
We have used Yasko's suggestion of Yucca to help w the ammonia. It is an herb
found in capsule form. I just open a capsule and sprinkle a small amount on/in
protein foods or combos. It is not at all detectable. It is also sold as a
frozen veggie in some areas. I can't find it like that where we live.
Alphaketoglutarate is also supposed to be helpful for the ammonia
http://en.wikipedia.org/wiki/Alpha-Ketoglutaric acid
as is a lower protein diet. My daughter always shows a disgustingly low profile
of amino acids so I've not tried to severely limit proteins.   Mary

--- In Autism-Mercury@yahoogroups.com, "JoeGrane" <joegrane610@...> wrote:
>
> --- In Autism-Mercury@yahoogroups.com, "brownjetta" <brownjetta@> wrote:
>
> >  He also has high ammonia.
>
> == Do you have any clues as to why?  I'm sorry, I don't know what members have
been doing for that.  You could do a search of the onibasu.com archives.
>> == What did the doctor say about the ammonia test results?
>
> == Joe
>
> >
> > Jetta
> > ASD Mom
> >
>

#303279 From: Rebecca Elizabeth <ladyshrink222@...>
Date: Fri Jun 1, 2012 11:45 am
Subject: Vaccine Video-The Chalkboard Campaign
ladyshrink222
Send Email Send Email
 
Bookmark and distribute this video to as many groups as you can.

This is an excellent medium to send to anyone who is weighing the pros and cons
of vaccines.

http://youtu.be/iwMBttvAu5k

Rebecca
http://www.SavingSavannah.org

[Non-text portions of this message have been removed]

#303280 From: "brownjetta" <brownjetta@...>
Date: Fri Jun 1, 2012 1:40 pm
Subject: Re: I would like to start chelating my 5 year old son BUT
brownjetta
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In the past I was told by our DAN that high ammonia levels were due to ongoing
bacterial issues in the gut.  We know from my son's stool test that he struggles
with bacteria in his gut.  I have read somewhere that giving a child methylated
forms of vitamins could cause ammonia levels to go up as well.  To deal with
this I am using AKG 300 mg per meal and trying to eliminate high sulphur foods. 
We are trying to battle bacteria with GSE and coconut oil (MCT.)

Jetta

--- In Autism-Mercury@yahoogroups.com, "JoeGrane" <joegrane610@...> wrote:
>
> --- In Autism-Mercury@yahoogroups.com, "brownjetta" <brownjetta@> wrote:
> >
> > I don't have recommended doses of the four essential supplements that are
needed in place yet since my son is very sensitive to supplements:
> >
> >  - vit C - my son has problems with oxalates so I cannot give him a lot of
this, if any, right now I am trying just sprinkles of Purely-C as the capsules
contain lower doses of C to see if he can handle it but very likely this will
never get to the recommended dose of 500+ mg
> >  - vit E - we are starting at 60 IUs on Purely-E and working the dose up
> >  - Zinc - we are at 30 mg
> >  - Magnesium - we are at 600 mg
> >
> > On the top of this we are doing the following daily: B6 (100 mg), biotin (15
mg), Inositol (2000 mg), vit A (5000 IU), Adrenal cortex (100 mg), Enhansa
(curcumin) (75 mg), GSE (400 mg), AKG (900 mg), Co-Q10 (12.5 mg), Trienza
enzymes, Selenium (150 mg), Liver Life (4 drops), Culturelle (3 packets),
Lactobacillus Duo (45 billion.)
> > In addition he is on Thyroid, coconut oil(1 tspn per day) and TTFD cream. 
Some of these doses are quite low but as I said he is sensitive when it comes to
supplements and I could not find a vitamin complex that he would tolerate
without shivers.
> >
> > I would like to start chelating him as soon as possible with 2.5 mg
(although his weight would suggest 5 mg) of ALA only due to low neut absolute
and yeast problems but I am wondering if I have enough support in the
supplements for him.
>
> == I've always thought it is wise to start with a very conservative dose in
round 1.
>
> == My understanding of Cutler is that if there has not been any recent
exposure to mercury, it is fine for the kids to use ALA.
>
> == DMSA often helps people to tolerate higher doses of ALA--including me;
however I can understand that you'd like to avoid exacerbating the yeast
problem.  Some use it on occasional rounds.
>
>
> >  He also has high ammonia.
>
> == Do you have any clues as to why?  I'm sorry, I don't know what members have
been doing for that.  You could do a search of the onibasu.com archives.
>
> > ...I am really anxious about starting and feel like I will never get enough
of things in place to be completely ready.
> >
> > Should I go ahead and start?  Your opinions are appreciated.
>
> == What did the doctor say about the ammonia test results?
>
> == Joe
>
> >
> > Jetta
> > ASD Mom
> >
>

#303281 From: "brownjetta" <brownjetta@...>
Date: Fri Jun 1, 2012 1:45 pm
Subject: Re: I would like to start chelating my 5 year old son BUT
brownjetta
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Mary,
Thank you about your suggestion of Yucca.  From what I know this supplement is
high in oxalates that my son struggles with so unfortunately I would not be able
to use it.  I have been using AKG for a couple of weeks now.  My son's aminos
are low as well so like you I have tried not to limit proteins too much.  I am
thinking though about starting amino acid supplementation based on the low lab
results.  Thank you for your thoughts.
Jetta

--- In Autism-Mercury@yahoogroups.com, "mbrookh" <mbrookh@...> wrote:
>
> Jetta,
> We have used Yasko's suggestion of Yucca to help w the ammonia. It is an herb
found in capsule form. I just open a capsule and sprinkle a small amount on/in
protein foods or combos. It is not at all detectable. It is also sold as a
frozen veggie in some areas. I can't find it like that where we live.
Alphaketoglutarate is also supposed to be helpful for the ammonia
http://en.wikipedia.org/wiki/Alpha-Ketoglutaric acid
> as is a lower protein diet. My daughter always shows a disgustingly low
profile of amino acids so I've not tried to severely limit proteins.   Mary
>
> --- In Autism-Mercury@yahoogroups.com, "JoeGrane" <joegrane610@> wrote:
> >
> > --- In Autism-Mercury@yahoogroups.com, "brownjetta" <brownjetta@> wrote:
> >
> > >  He also has high ammonia.
> >
> > == Do you have any clues as to why?  I'm sorry, I don't know what members
have been doing for that.  You could do a search of the onibasu.com archives.
> >> == What did the doctor say about the ammonia test results?
> >
> > == Joe
> >
> > >
> > > Jetta
> > > ASD Mom
> > >
> >
>

#303282 From: "danasview" <danasview@...>
Date: Fri Jun 1, 2012 2:34 pm
Subject: Re: I would like to start chelating my 5 year old son BUT
danasview
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--- In Autism-Mercury@yahoogroups.com, "brownjetta" <brownjetta@...> wrote:
> I don't have recommended doses of the four essential supplements that are
needed in place yet since my son is very sensitive to supplements:


When I started my son on ALA, the only supplement he tolerated was digestive
enzymes.  I was able to add a few supps at round 10 and the rest by round 50. 
So based on my experience, I would say go ahead and start with low dose ALA.

Dana

#303283 From: "By Definition" <bydefinitionofunderstanding@...>
Date: Fri Jun 1, 2012 6:40 pm
Subject: Chromium, and something consider replenishing with respect to your chelating
bydefinition...
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http://www.naturalnews.com/027398_chromium_diabetes_natural.html

With respect to diabetes being a serious and growing problem

Michael Glavic

#303284 From: "By Definition" <bydefinitionofunderstanding@...>
Date: Sat Jun 2, 2012 4:08 am
Subject: Re: Chromium, and something consider replenishing with respect to your chelating
bydefinition...
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Relevant to as much, where you might be confused by that

http://www.naturalnews.com/036038_gluten-free_diet_celiac_disease.html

Mike

Chromium, and something to consider replenishing with respect to your
chelating.. (The *to* would have compromised the subject heading, length, for
reposting clarity? how insignificant it was to the story? .. . Let us more than
hope not.. . It's just  what I Feel

BWT



--- In Autism-Mercury@yahoogroups.com, "By Definition"
<bydefinitionofunderstanding@...> wrote:
>
> http://www.naturalnews.com/027398_chromium_diabetes_natural.html
>
> With respect to diabetes being a serious and growing problem
>
> Michael Glavic
>

#303285 From: "yunjuyishi" <yunjuyishi@...>
Date: Sat Jun 2, 2012 11:59 am
Subject: safety of Grapefruit Seed Extract,very concerned!
yunjuyishi
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Found this post at the adult chelation group.
According to the post, GSE is not safe,and it's natural ingredient does not kill
yeast or bacterial, its synthetic ingredient which is poisonous do.
I give GSE as yeast killer to my girl almost everyday. very concerned after
reading this post.
Any thought pls!


>>http://www.livestrong.com/article/551822-grapefruit-seed-extract-the-thyroid/

>>Despite the wholesome-sounding name, controversy over grapefruit seed extract,
also known as citrus seed extract, revolves around a synthetic chemical found in
five out of six brands tested. This antibacterial disinfectant, benzethonium
chloride, is a suspected endocrine disruptor, a chemical believed to interfere
with the healthy functioning of the thyroid and other hormone-generating glands.
Trade secret laws protect manufacturers from having to list this chemical --
classified as a poison in Switzerland and a hazardous substance in the United
States -- as a product ingredient.
A Manufacturer's Claim

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