Truly,

Yes and no.... Yes, we really don't have the extra $$$ AND we live about 200
miles from Portland Ore where the closest dr would be who would know
anything! I would love to be able to go see Dr Amy! BUT, I think it is about
a 6mos wait, and then it sounds like she orders your tests, reviews
everything gets you started and sends you home to follow up with your local
dr.... Our Ped is just TO TO BUSY! I am better off without her. I once asked
her for a copy of a journal on adoption med and she just gave it to me and
told me to tell her what she needs to know..... why should I pay HER for me
to teach her???

I do think though if I can do my research and get Grace well I can "train"
at least 3 drs on chleation!!!

From what I am learning here I can order the tests myself, its just a matter
of $$$ and trial and error, and going s l o w! Though I think I am going to
order some DMSA and see what happens.

I know what you mean about the bad medical stuff also! I have been bugging
the ped, my sis the Dr, and my sis the midwife, that I thought there was
something wrong with Grace, since she kept pulling at her panties for the
last 3 mos! First everyone kept saying its just a NEW autistic "stim" (I
HATE when they blame everything on Autism!!!!!) They would have me bring in
multiple urine samples, all clear. finaly got an appt 4 weeks later and it
turns out she has a birth defect near her urethra that is irratating.....
something the Ped has never seen before, so now we are waiting for an appt
with a urologist.

UGH!!!!! I must admitt I thought I had done something to her, it started
right after the first round of ALA and I wondered if I burned her or
something when the metals came out..... It would be soooo nice to have
someone else to blame!

Good Luck!

laurie


> Date: 1 Apr 2001 03:14:54 -0000
> To: Autism-Mercury@yahoogroups.com
> Subject: [Autism-Mercury] Digest Number 1036
>
> Thanks Laurie,
> I just am overwhelmed since joining this list.  I don't know where to
> start with my son.  Are you doing this yourself to save expense?  I
> certainly agree with Andy that sometimes us ordinary non-doc types can know
> just as much as the MDs, at least on some things.  Just having an autistic
> son taught me that ....along with a previous bad medical experience---
> Truly
> ----- Original Message -----

Hi everyone,

I am writing to let you know that Andy posted his very first
comment on the list 1 year ago-- on April 1, 2000.

Happy anniversary Andy!
You give so much to all of us---   no foolin!

A copy Andy's first post is below -- it is post number number 376.

best,
Moria

============================================================
From:  AndyCutler@a...
Date:  Sat Apr 1, 2000 9:20am
Subject:  Re: SV: [Autism-Mercury] RhoGam

<< You should require a DMSA provocation 24 hour urine test - this way you
might get the truth on toxicity levels. >>

Hi.  I'm new to the list.  Sallie Bernard suggested I join for a while since
people were discussing detox protocols and I wrote a book on how to treat
mercury tox in adults.

One thing to note is that the DMSA challenge test and DMPS challenge tests
are not at all diagnostic,  and they are dangerous.  Improper use of DMPS (by
injection, for challenge or treatment) are more dangerous than improper use
of DMSA is.

The absolute level of mercury in urine,  blood or hair is seldom diagnostic
in and of itself.  You have to look for signs,  symptoms and laboratory
results that show a variety of physiological effects that mercury can cause,
but that are otherwise unrelated to each other.

Andy Cutler

Hi Moria,
Sorry for assuming that you were in the same boat as me :(
Thanks for the info, I'll surely check it out!

Carolyn


--- In Autism-Mercury@y..., moriam@e... wrote:
> Hi Carolyn,
>
> First I will break the news that I don't have any children
> (autistic or otherwise)--- so I cannot report on chelation
> from that angle.  Sorry! Hopefully a number of our buddies
> here will answer your question about how things are going.
> There are definately other interventions in use as well!
>
> I'm doing chelation on myself. My last amalgam filling was
> replaced on 11/30/2000.  I started using ALA only on 12/31/
2000.
> I have only done 5 "rounds" so far--- I basically did chelation
> during January 2001, then in early Feb I got some sort of
> flu and have never completely recovered. (I realize that may
> sound really bizarre-----)  (My joke is that my "chelation
> cycle" is 1 month on, 2 months off.)  (That is a joke: I
> was doing 3/4 and 3/11 cycles!)
>
> To get a little bit of idea of how some of the kids of list
> members are doing, go to
> http://groups.yahoo.com/group/Autism-Mercury/
> and click on files and then look for a file called something
> like "chelation survey".  (Sorry I can't get you the URL
> right now...) It should give you some sense of what people
> are seeing.
>
> best,
> Moria
>
> --- In Autism-Mercury@y..., shuichi@a... wrote:
> > Hi Moria!
> > Thank you for your reply!  : )  I've just finished reading the faq,
> and
> > am going to order Dr. Andy's book today.
> > How long have you been doing chelation?  Do you do any
other
> > interventions as well?
> > I'm just curious to find out what kind of progress people have
> > been getting from this treatment.
> > thanks,
> > Carolyn
> >
> >
> >
> >
> > --- In Autism-Mercury@y..., Moria Merriweather <
moriam@e...>
> > wrote:
> > > Hello Carolyn,
> > >
> > > Welcome to the list.
> > >
> > > What sort of help would you like?  I know that question
might
> > sound
> > > dumb---- but it would help in knowing what to tell you to
know
> > > what sort of things you want to know.  There is an awful lot
of
> > > possible information to say otherwise.....
> > >
> > > In general Andy's book and the FAQ for this list are good
> > places
> > > to start. The FAQ is at:
> > > http://groups.yahoo.com/group/Autism-Mercury/files/
Mercury-
> > Autism%20FAQ
> > > (be sure you get the whole line--- it sometimes gets
chopped.)
> > >
> > > :) Moria
> > >

Dear Group,
I am new to the group.
We thought we would pass on a copy of the upated list of Autism
Awakening Online Websites and Online Suport Groups. Can't wait to
chat with you all and get caught up to you!
Sincerely,
L.D.
UAIowaRepWedewer@...




Autism Awakening Online Services


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Online Autism Support & Resource Groups:


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Check back often, our web sites are updated & improved daily.
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If you have a suggestion please send us a letter or e-mail us at the
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Thank you for your response about seizures and alfalfa.  The reason I asked
these
questions is because I started giving my son a small amount of alfalfa about 10
days ago (he takes the ojibwa tea as well, with very good results), and two days
ago began having the seizures that he gets.  Last night that got even worse
(they
come every 15-30 minutes and last for several hours).  I wondered if maybe the
alfalfa was detoxing him or something.  He's going to a new dr. this week who
will do all the necessary testing (right now I just use a try this and that
approach and see what happens).  Hopefully soon we'll have some idea if he has
high metals or some other type of infection or both.  I questioned the seizures
and alfalfa, since he's had very few seizures since being yeast free, gluten and
casein free and with the start up of alfalfa they returned.

Thanks!

Sharon

Nomoremetals@... wrote:

> In a message dated 3/31/01 9:41:33 PM Central Standard Time,
> Sharonke@... writes:
>
> << Do you think mercury or other metal toxicity can cause seizures in
>  children?  Also, have you ever
>  heard to metal poisoned kids getting cyclical seizures (seizures every
>  so many days?). >>
>
> I know this was addressed to Andy, but thought I'd mention that metals tox
> can cause seizures and there are many cases where seizures were significantly
> reduced or eliminated with chelation.  My son used to have patterns of
> seizures and has been almost seizure free for two years now.
> Gaylen
>
>
> =======================================================
> Statements posted on this list are for information only,
> and should NOT be taken as medical advice.  If you need
> medical advice, you should seek it from those who are
> authorized to give medical advice: doctors.
>
> Post message: Autism-Mercury@yahoogroups.com
> Subscribe:    Autism-Mercury-subscribe@yahoogroups.com
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> Shortcut URL: http://groups.yahoo.com/group/Autism-Mercury
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/

Listmates:

If you weren't able to catch this Bill Moyers PBS special on the
chemical industry and how they have affected the lives of all of us and
most importantly, our dear children, you MUST take a look at this.  If
you desire a video copy of the program, check with your local PBS
affiliate in regards to a possible re-broadcast or purchasing a copy
from them directly.  Truth and knowledge sow the first seeds of change.


With great hope,

Michael Lang

>Subject: PBS:  Chemical Industry  Poisoning Us
>
>
>>
>> Chemical Industry Poisoning Us
>> Trade Secrets: A Moyers Report on PBS
>> Program Transcript, Bill Moyers
>>
>> This was on PBS Monday, March 26 at 9 PM
>>
>> http://www.pbs.org/tradesecrets/transcript.html
>>
>>       NARRATION: They are everywhere in our daily lives - often where we
>> least expect them.
>>       DR. PHILIP LANDRIGAN, CHAIRMAN, PREVENTIVE MEDICINE, MT. SINAI
>SCHOOL
>> OF MEDICINE: We are conducting a vast toxicologic experiment, and we are
>> using our children as the experimental animals.
>>       NARRATION: Not a single child today is born free of synthetic
>> chemicals.
>>       AL MEYERHOFF, FORMER ATTORNEY FOR THE NATURAL RESOURCES DEFENSE
>> COUNCIL: With chemicals, it's shoot first and ask questions later.
>>       NARRATION: We think we are protected but, in fact, chemicals are
>> presumed safe - innocent - until proven guilty.
>>       SANDY BUCHANAN, EXECUTIVE DIRECTOR, OHIO CITIZEN ACTION: Years of
>> documents have shown that they knew they were hurting people, much like
>the
>> tobacco industry.
>>       PROFESSOR GERALD MARKOWITZ Ph.D, JOHN JAY COLLEGE: Historians don't
>> like to use broad political terms like "cover-up," but there's really no
>> other term that you can use for this.
>>       NARRATION: In this special investigation, we will reveal the secrets
>> that a powerful industry has kept hidden for almost fifty years.
>>       TRADE SECRETS: A Moyers Report
>>       PROLOGUE:
>>       NARRATION: There is a three-hundred mile stretch along the coast
>where
>> Texas and Louisiana meet that boasts the largest collection of
>petrochemical
>> refineries and factories in the world.
>>       Many who live and work here call it "Cancer Alley."
>>       RAY REYNOLDS: Many, many nights we were walking through vapor clouds
>> and you could see it. You know how a hot road looks down a long straight?
>> Well, that's exactly what it looks like - wavy. We would complain about
>it,
>> and they would pacify us by saying, there's no long term problem. You
>might
>> have an immediate reaction like nausea, but that's only normal. Don't
>worry
>> about it.
>>       NARRATION: In the living room of his house a few miles from the
>> chemical plant where he worked for 16 years, Ray Reynolds waits out the
>last
>> days of his life. He is 43 years old. Toxic neuropathy - poisoning - has
>> spread from his nerve cells to his brain.
>>       MOYERS: What's the prognosis? How long do they give you?
>>       REYNOLDS: They don't. There's too many variables, and there's too
>much
>> unknown about it.
>>       NARRATION: Dan Ross had no doubt about what made him sick. Neither
>> does his wife of 25 years, Elaine.
>>       ELAINE ROSS: Went to a dance one night, and he walked in the door,
>and
>> I had never seen him before, didn't know what his name was or anything,
>and
>> he started shooting pool with a bunch of his friends, and the friend that
>I
>> was with, I told him, I said, "That's who I'll spend the rest of my life
>> with."
>>       MOYERS: Love at first sight?
>>    ROSS: Uh huh.
>>       MOYERS: Did he think that?
>>       ROSS: No.
>>       MOYERS: You had to, had to...
>>       ROSS: I had to persuade him. When we got married, he was still in
>the
>> Air Force, so he spent eighteen months overseas. When he got back, he had
>an
>> eighteen-month-old daughter. And so probably the main thing was, he was
>> worried about making a living for everybody, for us.
>>       NARRATION: The plant where Dan Ross made that living produces the
>raw
>> vinyl chloride that is basic to the manufacture of PVC plastic.
>>       ROSS: Danny worked for them 23 years - and every single day that he
>> worked, he was exposed. Not one day was he not exposed.
>>       As the years went by, you could see it on his face. He started to
>get
>> this hollow look under his eyes, and he always smelled. I could always
>smell
>> the chemicals on him. I could even smell it on his breath after a while.
>But
>> even up until he was diagnosed the first time, he said, "They'll take care
>> of me. They're my friends."
>>       NARRATION: In 1989, Dan Ross was told he had a rare form of brain
>> cancer.
>>  ROSS: He and I never believed in suing anybody. You just don't sue
>> people. And I was looking for answers. Since I couldn't find a cure, I
>> wanted to know what caused it.
>>       NARRATION: Looking for an answer, she found something that raised
>more
>> questions instead.
>>       ROSS: I was just going through some of his papers, and I found this
>> exposure record. It tells you what the amount was that he was exposed to
>in
>> any given day.
>>       MOYERS: Somebody's written on here, "Exceeds short-term exposure."
>> What does that mean?
>>       ROSS: That it was over the acceptable limit that the government
>> allows. So this exceeded what he should have been exposed to that day.
>>       NARRATION: There was also a hand-written instruction.
>>       MOYERS: And then there's writing that says?
>>       ROSS: "Do not include on wire to Houston."
>>       MOYERS: Don't send this to the headquarters?
>>    ROSS: Right.
>>       ROSS: My question was: Why wasn't it included - why was it held up
>> from going to Houston?
>>       MOYERS: What did you take that to mean?
>>       ROSS: Somebody's trying to cover something up. Why?
>>       NARRATION: Her discovery led Dan and Elaine Ross to sue.
>>       ROSS: And I promised him that they would never, ever forget who he
>> was, ever.
>>       DOCUMENT WAREHOUSE
>>       NARRATION: And this is the result of that vow.
>>       MOYERS: How long did it take you to gather all this?
>>       WILLIAM BAGGETT, JR, ATTORNEY: Ten years.
>>       NARRATION: Over those ten years, attorney William Baggett, Jr. waged
>a
>> legal battle for the Rosses that included charges of conspiracy against
>> companies producing vinyl chloride. Dan's employers - and most of the
>> companies - have now settled. But the long legal discovery led deeper and
>> deeper into the inner chambers of the chemical industry and its Washington
>> trade association. More than a million pages of documents were eventually
>> unearthed.
>>       In these rooms is the legacy of Dan Ross.
>>       We asked to examine the documents buried in these boxes - and
>> discovered a shocking story.
>>       It is a story we were never supposed to know - secrets that go back
>to
>> the beginning of the chemical revolution.
>>       NARRATION: It was love at first sight. In the decade after World War
>> II, Americans opened their arms to the wonders of chemistry.
>>       Synthetic chemicals were invented to give manufacturers new
>> materials - like plastic.
>>       Pesticides like DDT were advertised as miracle chemicals that would
>> eradicate crop pests - and mosquitoes.
>>       The industry boomed.
>>       Since then, tens of thousands of new chemicals have been created,
>> turned into consumer products or released into the environment. We use
>them
>> to raise and deliver our food. We clean our carpets and our clothes with
>> them. Plastics carry everything from spring water to cooking oil. They're
>in
>> our shower curtains and in our blood bags. They are the material of choice
>> in our children's toys.
>>    But there are risks that come with the benefits of the chemical
>> revolution.
>>       MT. SINAI SCHOOL OF MEDICINE
>>       MOYERS: In this arm?
>>       NURSE: Preferably, if that's where your vain is good at.
>>       NARRATION: Specialists in public health at the Mt. Sinai School of
>> Medicine in New York - led by Dr. Michael McCally - are trying to assess
>how
>> many synthetic chemicals are in our bodies. For the purpose of this
>> broadcast, I volunteered take part in their study. A much larger project
>is
>> underway at the US Centers for Disease Control.
>>       MOYERS: And you're looking for chemicals?
>>       DR. MICHAEL McCALLY, VICE-CHAIRMAN, PREVENTIVE MEDICINE, MT. SINAI
>> SCHOOL OF MEDICINE: Not the body's normal chemicals. We're looking for
>> industrial chemicals, things that weren't around 100 years ago, that your
>> grandfather didn't have in his blood or fat. We're looking for those
>> chemicals that have been put into the environment, and through
>environmental
>> exposures - things we eat, things we breathe, water we drink - are now
>> incorporated in our bodies that just weren't there.
>>       MOYERS: You really think you will find chemicals in my body?
>>       McCALLY: Oh yes...no question. No question.
>>       +Transcript continues at:
>> http://www.pbs.org/tradesecrets/transcript.html under the heading of
>> ’ÄúDocuments’Äù.

----- Original Message -----
From: <amterry@...>
To: <Autism-Mercury@yahoogroups.com>
Sent: Saturday, March 31, 2001 11:26 PM
Subject: Re: [Autism-Mercury] where the mercury in autism is coming from


> In a message dated 3/31/01 11:01:36 PM Eastern Standard Time,
> teambill@... writes:
>
> << If
>  kids are autistic as a result of mercury I don't understand how most of
them
>  are getting mercury.  I'm still trying to understand this whole mercury
>  theory.

I think I have figured out what caused my daughter's autism.  Perhaps you
are interested and might find a clue within.

I have learned things I did not know previously.  Just yesterday Lacey's
aunt (on her father's side) said she also had food allergies.  She scares me
because she believes you should continue to eat the offending foods ("just
as if they are allergy shots") and she keeps Lacey for weekends sometimes,
but I think I made "no milk" clear to her.

My mother and sister are also allergic to milk and we discovered Lacey to be
as well, but did not know this when we were giving her a milk-based formula
for the first year and a half after her birth.

I do believe the mercury in vaccines caused her to have the leaky gut
syndrome and open to Candida albicans.  Both have been found to be prevalent
in autism.

When she was one, I began to feed her wheat in Cheerios and because she had
the leaky gut at that time, molecules of gluten went into her brain after
metabolizing into an opioid.  Naturally, by two years of age, she was
oblivious to our existence.

She was rocking back and forth constantly, expressed pain when touched,
uttered no sounds, avoided eye contact, tippy toed (called "The Peacock
Walk" by neurologists), and purposely avoided any interaction.  All she
wanted was to be left alone.

We put her on the gfcf diet and within one week had a child who wanted to
roll a ball back and forth with us, loved to be picked up, and smiled a lot.
She continued to progress with many natural medicinal therapies that were
non-invasive and today she is a bright child who is affectionate and shows
empathy, is beginning to volunteer speech and will mimick any words we tell
her to say, so all is going very well.

Another thing I did inadvertantly that led to her autistic state was to make
her formula with leaded waters.  Evidently we had lead soldering in our
copper pipes.  In San Antonio they are beginning to move towards PVC pipes
now.  We had no one to sue as they said we own the pipes on our property and
there was no telling from whence the lead came from - their pipes or ours.

Lacey rendered a 6.2 on a hair analysis for lead poisoning and was naturally
more of a jovial, exhuberant child once the lead was out.

I do not know if it is all out and I have seen no signs of mercury leaving
her body so feel confident that oral chelation is our next step.

Lacey sometimes does not hear us and has had AIT four times, so we are at a
loss as to what to do, but she has learned to watch for sign language and
then comply with words, so we have a form of communication established that
works for the moment.

We labeled EVERYTHING in our home to inspire her towards sight-reading on
some subliminal (at least) basis and she has good word recognition now.

The other day I was upset and she offered me a hug, so we know she is
capable of empathy.  She is affectionate and the other day rushed into my
arms and said "Love you!"

But she has missed years of development and language that is volunteered is
not fortcoming as often as we like.  We took her for allergy tests two weeks
ago and it was then we discovered that if she was pinpricked with just a
drop of milk, it made a huge welt on her back.

Imagine what milk was doing to her insides, particularly the areas of the
intestines that had no mucosal wall ... those cells are infinitely more
delicate than those on the back.

We took Lacey for colon therapy when she was 4.  We saw mounds and mounds of
white foam (the Candida albicans) and also old, dried grey matter, said to
be what was sticking to the intestines not protected by a mucosal lining.

On her father's side, there is ADD and ADHD and the ADD in her father was
never diagnosed until we saw a geneticist in San Antonio who said he had it.
Her father does not take to reading and cannot comprehend difficult matter,
does not really speak much and does not like to go to parties and other
social gatherings.

The doctor said his thirty years of experience dealing with parents of
autistic children have led him to conclude that one is always creatively
expressive while the other is more constructive.  I am a writer/artist and
her father is an electrician and carpenter.  I have no sense of math and am
right-hemisphered while her father is totally left-hemisphered.

The doctor said I was a "speed thinker" who does not always think using
words.  I can type as fast as I think (120 words per minute), so that proves
it easily.  The doctor said the other majorally uses actual words and will
"plan out" what he is going to say at times of stress.

He said if our house was on fire, her father would say "get the hose" while
I would be rushing to the neighbor's to call the fire department; that our
thnking processes were opposite, we each have a different method of problem
solving, so naturally a child born to us would struggle between the two
before deciding upon which method was easier and more natural; that they do
not have a "natural" process from the beginning, so it would take time to
adjust by experimentation.

He might be true in our case and in many others and that, along with the
allergies and her father's heritage of slow thinkers (they are from Hickory,
NC while I have traveled the world because my father was a Green Beret
soldier), we have a genetic predisposition.

I have a son who is 22 and was concerned he could have an autistic child,
but think, with the deletion of mercury in vaccines and a food allergy test
right away if the baby refuses the breast, would do much to avoid autism on
my side.  His father's side would stand more of a chance of a second
autistic child in the family, I think, and it is sad that they do not want
to learn how to avoid it should it happen, but they are hillbilliies that
think vitamins will kill them <grin>.

Perhaps this is helpful to you?  Lacey was also vaccinated before she was
allowed to leave the hospital but it was the DPT when she was four that
threw her into partial seizures where she would cross her eyes and her
entire body would stiffen.

Oddly enough, we can tell her to stop and she can, but she does not seem to
be able to avoid those seizures ...

We are looking forward to orally chelating her this summer and feel it might
be our final step as we have exhauxted all others that we can think of.

I feed her the foods that are the top 10 in being nutrient rich in a
particular vitamin/mineral, after deleting the foods she is allergic to
(milk, peanuts and chocolate so far - we have 2 more in a series of 3 food
allergy tests to go) and she is doing remarkably well.

So now she is considered to be "moderately" autistic whereas at 2 years old
she was "severely" autistic.  It took ridding the body of Candida, ridding
her brain of the lead, cleansing the colon and establishing good flora as
well as rebuilding the mucosal wall with aloe vera juice.  Next is the
mercury and Lord only knows what we will have in the end, but we feel very
positive now that we've found Mr. Cutler and Mr. Windham of the
Autism-Mercury list.

What I don't understand as yet is how the Kaufman family (from the movie and
book, "SonRise: The Miracle Continues") was able to cure their son, Raun.
We met Raun when we attended special classes at The Option Institute and he
is personable, intelligent and shows no signs whatsoever of ever having been
autistic.  He holds a degree in Medical Ethics and had just graduated when
we met him.

All they did ws a constant behavioural modification therapy that is very
engaging and enjoyable, plus they deleted chemicalized foods and meat and
went entirely vegetarian.  How could it have been so easy?  What did they
feed him that got the mercury out?

Maybe some day we'll know all the answers.  In our case we feel we
comprehend why she became autistic and grateful we stumbled on the right
things to do, one by one.

Minc Williams
www.geocities.com/Tokyo/Towers/3431/pict2.jpg

We are trying to get rid of my son's yeast and I was wondering if someone could give me a list of foods that are acceptable on a yeast-free diet? Please, be as specific as possible.

Thanks,

Victoria

Any leads would be appreciated.

Thanks,

Victoria

Laurie,  I was doing LA alone also for a while(4 cycles).  I found a
doctor that will work with me via the phone and fax.  I wanted soo
bad to get some DMSA.  I'm not even following the doctors protocol.
The good thing is,I am getting the lead out now and I do think there
are less side affects, not that they were that bad on ala alone.  How
are you going to get DMSA without a doctors help?  This doctor cost
$135 for a 1/2 hour phone call.  I am afraid to ask a question.
Thanks for any information.  Marianne

  -- In Autism-Mercury@y..., Laurie Hunter <chinamom@p...> wrote:
> Truly,
>
> Yes and no.... Yes, we really don't have the extra $$$ AND we live
about 200
> miles from Portland Ore where the closest dr would be who would know
> anything! I would love to be able to go see Dr Amy! BUT, I think it
is about
> a 6mos wait, and then it sounds like she orders your tests, reviews
> everything gets you started and sends you home to follow up with
your local
> dr.... Our Ped is just TO TO BUSY! I am better off without her. I
once asked
> her for a copy of a journal on adoption med and she just gave it to
me and
> told me to tell her what she needs to know..... why should I pay
HER for me
> to teach her???
>
> I do think though if I can do my research and get Grace well I can
"train"
> at least 3 drs on chleation!!!
>
> From what I am learning here I can order the tests myself, its just
a matter
> of $$$ and trial and error, and going s l o w! Though I think I am
going to
> order some DMSA and see what happens.
>
> I know what you mean about the bad medical stuff also! I have been
bugging
> the ped, my sis the Dr, and my sis the midwife, that I thought
there was
> something wrong with Grace, since she kept pulling at her panties
for the
> last 3 mos! First everyone kept saying its just a NEW autistic
"stim" (I
> HATE when they blame everything on Autism!!!!!) They would have me
bring in
> multiple urine samples, all clear. finaly got an appt 4 weeks later
and it
> turns out she has a birth defect near her urethra that is
irratating.....
> something the Ped has never seen before, so now we are waiting for
an appt
> with a urologist.
>
> UGH!!!!! I must admitt I thought I had done something to her, it
started
> right after the first round of ALA and I wondered if I burned her or
> something when the metals came out..... It would be soooo nice to
have
> someone else to blame!
>
> Good Luck!
>
> laurie
>
>
> > Date: 1 Apr 2001 03:14:54 -0000
> > To: Autism-Mercury@y...
> > Subject: [Autism-Mercury] Digest Number 1036
> >
> > Thanks Laurie,
> > I just am overwhelmed since joining this list.  I don't know
where to
> > start with my son.  Are you doing this yourself to save expense?
I
> > certainly agree with Andy that sometimes us ordinary non-doc
types can know
> > just as much as the MDs, at least on some things.  Just having an
autistic
> > son taught me that ....along with a previous bad medical
experience---
> > Truly
> > ----- Original Message -----

We experienced some strange walking for a couple months and never
identified the cause, so now we don't know when it will resurface. Here
is what happened over Christmas holiday.

James began walking by bringing the top of his rear foot up against the
back of his other ankle and sliding it around in front of the foot and
then placing it directly-no space- in front. He would repeat the movement
with the other foot, thus walking with a 'scissor-type' step and one foot
always touching the other.  In a few days he was stretching out the
distance between the steps, but still rubbing the feet during the
passing/forward motion. He then began to exaggerate the scissor
left-right movements. Occasionally he would trip himself. He was slow and
did not run. It was difficult to pry his legs apart to change clothes or
diaper. He is 4y7m.

After 4 weeks James had a cranial MRI, a spinal MRI, and a spinal CTScan.
The doctors were looking for a tethered spinal cord or an obstruction of
bony tissue along the spinal cord. All appeared normal.

We started intensive PT and I would duck walk (me backwards, him forward)
  in front of him, holding and guiding his feet into the "natural walking
pattern." When he stood, I would straighten and hold his feet in straight
alignment. I was always conscious of his foot positioning and holding
them in the correct position. It took a couple months to straighten his
feet. The right foot on occasion still has the tendency to drag across
the left in forward motion. Still no idea what caused it.

Jon,
I also fall asleep aftereating carbs (I avoid sugar itself).
Linda S
--------------------------------------------------------------
I too have a similar quote; "One of the most important functions of Lipoic  acid
is to normalise blood sugar levels"....."Lipoic acid has been extensiv ely used
in Europe for decades to prevent complications from insulin resist ance and
other forms of diabetes, but it has been virtually ignored in the  US."  (Earl
Mindell's Supplement Bible p. 84-85)  Other accolades he gives  to Lipoic acid
are curing fatal liver disease (Amanita mushroom poisoning),
  it substitutes for Vitamin C & E as an antioxidant and it can reverse comp
letely the damage caused by stroke in animals.  I had a Grandfather with a  form
of late (60's) onset diabetes, not sure what type and have an autistic
  child, I have no diagnosis of diabetes, but I do fall fast asleep if I get
  too much sugar, so I'm careful with the stuff.  I think that there is an a
ssociation between the two, and (this is only my idea) it has much to do wi th
Neuroendocrine convertase 1 which, converts/activates Pro-insulin, Pro-d
ynorphin, Pro-enkephalin, Pro-somatostatin, Pro-opiomelanocortin and the on e
that I have been most interested in is Pro-renin. It is expressed in vari ous
organs/tissues and I'm reckoning that feedback-repression by it's other
  products from elsewhere may be serving an inhibitory role in the pancreas.
   I'm yet to learn, but I suspect that insulin & secretin have significant 
interface and can't remember their collective title properly but it is some
thing like "Pancreatic Polypeptide Hormones". I seem to recall that secreti n
has "insulin-like properties" but can't for the life of me remember where
  from.

Jon Scott.


   ----- Original Message -----
   From: l_shepard
   To: Autism-Mercury@yahoogroups.com
   Sent: Tuesday, March 27, 2001 11:00 AM
   Subject: Re:Re: [Autism-Mercury] Autism and diabetes


   Some time ago I came across info about the benefits of alpha lipoic acid  for
those with diabetes...don't recall what it did exactly but that some no
  longer needed insulin.  I also recall reading that (some?) insulin contain s
thimerosal???  Perhaps the treatment for the diabetes contributes to the 
child's challenge?
   Linda S
   --------------------------------------------------------------
   Adam,
   We fit this one too!  My husband has Juvenile Diabetes and my son was dia gn
osed w/ autism/PDD at age 2.9
   Kathy

   -----Original Message-----
   From: Adam Feinstein <LookingUp@...>
   To: Autism-Mercury@yahoogroups.com <Autism-Mercury@yahoogroups.com> Date:
  Tuesday, March 27, 2001 5:06 AM
   Subject: [Autism-Mercury] Autism and diabetes





       Hello all,

           An Italian father with diabetes who has an autistic child has ask ed
   me whether I could find out whether there are other cases around the worl d
   of diabetes and autism co-existing in the same family.

           Do any of you fit into this category? Any help would be much appr ec
iated.

                       Many thanks and best wishes,

                               Adam Feinstein


   Yahoo! Groups Sponsor



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Patti,
See if you can get the MSDS sheets from the farms/sprayers in the area.  These
sheets tell what's in the spray.  If they spray from planes you probably get a
higher dose than if they spray on the ground.
Linda S
--------------------------------------------------------------

Hi,

We have lived were we do now for about 13 years. This is the first year tha t I
dread seeing the farmers planting crops, but mostly the spraying, which
  usually gets sprayed in our yard. Should we be concerned about this? What' s in
the sprays the farmers use on the crops?? My son has high arsenic, and
  I think the herbicides contain that, am I correct?
Another concern I have: We also live at the end of a dirt road that they ar e
constantly grading, stirring alot of dirt around. I wonder now what kind  of
toxins it probably contains! Am I an absolute worry wort ? Or am I justi fyed
thinking about these things? I just don't want my family getting any s icker
then we already are. Can someone give me any information to ease my w orries on
these subjects??  Thanks, Patti



***
[This message has been truncated.]

My son is allergic to yeast.  Your best bet is going to a health food
store.  They have yeast free bread. Also avoid processed meats as
they have yeast in them.  unprocessed, unbleach flour you need also
and they should have that. Watch out for canned stuff such as cream
of mushroom...almost all those have yeast in them and mushrooms are
considered yeasty..moldy food. Avoid peanuts or peanut
butter...peanuts can be moldy.  Condiment have distilled vingear in
them ...meaning yeast. All fresh baked breads, including roll,
donuts, ect.  Avoid spices and when they are dried they can have
mold, yeast of them. No cheeses. Becareful even with fruits or fruit
juices as they can get moldy fast. Its best to just stick with fresh
vegatables, fresh unprocessed meats and I was told even on potatoes
to peel those and the skin can carry yeast from them being in the
ground growing.  Pumkins are very moldy..anything moldy equals yeast.
Also on vitamines you might want to get those at a health food place
too..they should say contains no yeast.  Hope this helps. Julie
--- In Autism-Mercury@y..., Victoria Greenspan <vic2171@y...> wrote:
>
> We are trying to get rid of my son's yeast and I was wondering if
someone could give me a list of foods that are acceptable on a yeast-
free diet? Please, be as specific as possible.
>
> Thanks,
>
> Victoria
>
>
>
> ---------------------------------
> Do You Yahoo!?
> Yahoo! Mail Personal Address - Get email at your own domain with
Yahoo! Mail.

In a message dated 4/1/01 11:05:41 AM Eastern Daylight Time,
vic2171@... writes:

<<
  Any leads would be appreciated.

  Thanks,

  Victoria  >>

Victoria:
     Check your health food store or whole foods store for either Shelton's
brand or Applegate Farms.
Andrea

Right now he really has no idea. Bad Luck? He just tells me not mercury because
they gave mercury to pregnant women for a condition that I can't remember the
name of, and their kids turned out fine.
   Though he does believe that the MMR, and the vaccine schedule is set up to
cause problems in kids. He NEVER liked the research on the MMR, and was shocked
to learn it is still being used. He was appalled by the comment on ER that one
in 500 kids die of measles. In all his years of practice he only saw one death.
Though he was a small town doctor, he trained in Chicago at a city hospital,
then worked at St. Louis's city hospital for several years before coming to the
small town.  In his knowledge, one in a thousand gets a serious case, and one in
five hundred of them actually die of complications.

He is just sick that he isn't what he use to be because of the brain surgery 14
years ago (he blew 2 aneurysms, and had another found during surgery) When he
was in college he proved one of the leading researchers in the field of diabetes
wrong on his research. I remember his story well because he presented his
research as a student in front of a lecture hall of researchers, and this
particular researcher was there. He was so nervous, then the researcher stood up
afterwards.....as my dad's knees went weak, then the researcher said that
through my dad's presentation, he saw the flaws in his own study, then re did it
to find my father right.  My dad was one of those doctors that would know what
was wrong with someone just by looking at them walk into the office, then do the
tests to make sure.
I know, and this is my dad's regret, that if he was able to do the research, he
would be leading the way for recovery right now.

Luckily with living in Kansas, close to KC, I've gotten to speak with Dr. Shaw
on a number of occasions, and as soon as I can get my dad out here to visit I'll
be arranging a dinner with the two of them. Should be interesting. Just wish I
could talk my dad into moving here and working with Dr. Shaw. Unfortunately,
after his brain surgery he has become very insecure with his thinking. His
friends kid him that now he knows what it's like to be "normal".

Blessings,
Natalie




Bill's TEAM wrote:

> What does your father think may be causing autism?
> ----- Original Message -----
> From: <mnlarue@...>
> To: <Autism-Mercury@yahoogroups.com>
> Sent: Saturday, March 31, 2001 6:30 PM
> Subject: Re: [Autism-Mercury] Re: Desirability of a doctor for ALA chelation
>
> > Thought I'd answer, even with out the poll. We are doing the chelation
> with a
> > DAN doctor, but I am leading the way as he knows very little about it. I
> > bought him Andy's book for Christmas.
> > Also my father is a retired doctor, and though he doesn't yet believe that
> > Autism is caused by mercury (he says there was tons of exposure in his
> day,
> > and no Autistic children). He still supports me in chelating my son, and
> says
> > with the protocol Andy has laid out, and the research I've sent him, that
> he
> > doesn't see any harm in it.
> >
> > Moria Merriweather wrote:
> >
> > > I love this answer!!!!
> > >
> > > Your point that without a doc if you are a bit scared that
> > > may be GOOD is interesting---- makes sense but I hadn't
> > > thought of it.
> > >
> > > It is almost enought to make me want to do a poll on who is
> > > using a doctor and whether it is helpful.
> > >
> > > :)
> > >
> > > At 05:50 AM 3/31/2001 -0000, you wrote:
> > > >ALA is alpha lipoic acid, and from all the protocols I hear people's
> > > >doctors have given them, I think it may be more dangerous to do it
> > > >WITH a doctor than without one - you'll be lulled into a false sense
> > > >of security if you have a doc, but most of them will tell you to do
> > > >something that will hurt your kid and you'll keep doing it if they
> > > >insist.
> > > >
> > > >If you do it all on your own you'll be scared out of your wits, do it
> > > >very carefully, and stop if your kid is getting worse.
> > > >
> > > >I realize we are taught to worship MD's - the AMA has become the state
> > > >religion we aren't supposed to have - but they are just people like
> > > >you and I.  They aren't infallible when it comes to giving advice
> > > >about health, nor is making good health decisions something that
> > > >requires years of training.  It isn't trivial but it isn't THAT hard.
> > > >You can get it right sometimes and the doc's do get it wrong
> > > >sometimes.
> > > >
> > > >Most of the adults I know who got well did it by deciding what to do
> > > >themselves, mostly against medical advice.  Most of the ones I know
> > > >who got a lot worse with treatment did it by following medical advice.
> > > >
> > > >You have to decide for yourself how much and what kind of medical
> > > >supervision you want.
> > > >
> > > >Andy
> > > >
> > > >--- In Autism-Mercury@y..., "Bill's TEAM" <teambill@f...> wrote:
> > > >> Laurie,
> > > >>     What is ALA and isn't it dangerous to do this without a doctor?
> > > >>             Truly
> > > >> ----- Original Message -----
> > > >> From: "Laurie Hunter" <chinamom@p...>
> > > >> To: <Autism-Mercury@y...>
> > > >> Sent: Friday, March 30, 2001 8:16 PM
> > > >> Subject: Re: [Autism-Mercury] Digest Number 1032
> > > >>
> > > >>
> > > >> > Well you can always try a round without telling him and when he
> > > >says
> > > >> WOW!!!
> > > >> > What is going on!?!?!? Say YOU made the informed decision to try
> > > >it!!!
> > > >> >
> > > >> > Laurie
> > > >> > Doing ALA on her own with Grace 3.11
> > > >> >
> > > >> > > From: Autism-Mercury@y...
> > > >> > > Reply-To: Autism-Mercury@y...
> > > >> > > Date: 30 Mar 2001 20:08:07 -0000
> > > >> > > To: Autism-Mercury@y...
> > > >> > > Subject: [Autism-Mercury] Digest Number 1032
> > > >> > >
> > > >> > > Message: 17
> > > >> > > Date: Fri, 30 Mar 2001 12:08:39 EST
> > > >> > > From: MMacGregor@a...
> > > >> > > Subject: Chelation success stories
> > > >> > >
> > > >> > > Hi
> > > >> > >
> > > >> > > Could I ask for more of these?  I'm going to put together a file
> > > >of them
> > > >> to
> > > >> > > show
> > > >> > > DH.  I need something to try and persuade him to go for this.
> > > >Of
> > > >> course, he
> > > >> > > could just dismiss it as "anecdotal evidence" and therefore "not
> > > >> scientific".
> > > >> > >
> > > >> > > Margaret
> > > >> >
> > > >> >
> > > >> >
> > > >> > =======================================================
> > > >> > Statements posted on this list are for information only,
> > > >> > and should NOT be taken as medical advice.  If you need
> > > >> > medical advice, you should seek it from those who are
> > > >> > authorized to give medical advice: doctors.
> > > >> >
> > > >> > Post message: Autism-Mercury@y...
> > > >> > Subscribe:    Autism-Mercury-subscribe@y...
> > > >> > Unsubscribe:  Autism-Mercury-unsubscribe@y...
> > > >> > List owner:   Autism-Mercury-owner@y...
> > > >> > Shortcut URL: http://groups.yahoo.com/group/Autism-Mercury
> > > >> >
> > > >> > Your use of Yahoo! Groups is subject to
> > > >http://docs.yahoo.com
> > > >
> > > >
> > > >
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> > >
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> > medical advice, you should seek it from those who are
> > authorized to give medical advice: doctors.
> >
> > Post message: Autism-Mercury@yahoogroups.com
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Vicotria,  I give my Jack, Sheltons chicken hot dogs.  I know they
have no dairy and  no nitrates.  They are frozen.  I get my at the
health food store.  Marianne

-- In Autism-Mercury@y..., Victoria Greenspan <vic2171@y...> wrote:
>
> Any leads would be appreciated.
>
> Thanks,
>
> Victoria
>
>
>
> ---------------------------------
> Do You Yahoo!?
> Yahoo! Mail Personal Address - Get email at your own domain with
Yahoo! Mail.

I don't understand how fillings could be a problem if they are not
breaking.
Truely

         Mercury has a negative vapor pressure.  That means it is a gas
natually at room temperature;  You would have to do something very
strange to it to keep it from vaporizing which it does constantantly.
Also when in an environment with mixed metals you get galvanic
currents.  That is the way a battery works, and the reason you can't mix
aluminum and copper wiring, and the reason metal pipes deteriorate
without protection from this;  any engineer is aware of all this, as its
standard science.  Gov'ts and amalgam manufacturers have warned that
this is a problem;  but the dentist didn't heed the warning or pass it
on to patients.  Also electromagnetic fields, like computer monitors
have, induce electric currents in metals;  thats the way electricity is
generated.   And the electric currents in metal fillings is transported
by the currents into your body.  All of this is well known and has been
confirmed in lots of medical studies.  Amalgam is the number one source
of mercury in most adults, and exposures are commonly above Gov't health
guidelines.  This has been confirmed by Local Sewer Districts
measurements in home sewers, confirming that the average excretion of
people fillings is on the order of 40 to 50 micrograms per day, which is
enough to contaminate every river and lake in the U.S. with enough
mercury so that fish can't be eaten safely,
plus enough to cause the person major health problems in many cases,
since studies document(autopsy studies) that mercury accumulates in the
Brain, CNS, hormone glands, etc.  of those with amalgam to high
levels,   causes Alzheimiers, MS, ALS, Parkinson's, memory decline, ADD,
etc.  plus immune conditions and hormonal problems.    All of this is
documented by over 1000 medical study references at my web site
www.home.earthlink.net/~berniew1

Bernie

Bernie, what are the best tests to start with??    Truly

      It depends on the purpose of the tests that you have in mind.
Since millions have been tested, you don't need a test to know that if
you have several fillings you are getting a big exposure to something
very toxic.  Everyone is affected over time, and only those
with very strong neurological and immune systems not significantly.
Mercury is taken to all cells and all organs and can affect any cell and
any organ, and there is documentation of the types of effects it has on
different organs.  And there are tests that look at those
effects.          But if you want to "prove" exposure this is not
straightforward since mercury lasts  very short time in the blood and is
transfered to cells very fast, and you can't measure body burden using
standard tests like blood or urine. Though urine is probably better, the
problem is reference limits, no concensus there, and an unchallanged
urine test isn't very good for body burden either.    Challange test
with DMSA is better in my opin. for body burden, but still doesn;t
measure whats in the brain or CNS from past exposures or in hormone
glands, etc.   Hair test is useful imo, but not reliable for mercury due
to most mercury being transferred to major organs that get the most
blood and Hg in hair also depends on free thiol levels, etc.   You get
mostly organic mercury in blood and hair, though the largest source to
body is vapor, whose half life in blood is 10 seconds.     So if you
want proof, you look at exposure and symptoms, and do several tests;
I would start with hair test,   it is correlated to mercury in system,
though the measurement is totally reliable, but it gives you info on
other toxic exposures(which are common) plus essential mineral levels
which tell you something about body's toxic status.     The fractionated
porphyrin test(urine) is approved by FDA for mercury, but most labs have
dropped the most relevant test for mercury.  Its still useful though as
measure of metabolic damage thats been done by toxics;  It has some
weight behind it.    Also if you blood tests and other tests such as for
enzymes and hormone levels  are abnormal in the way mercury causes, this
is supportive.   A challange urine test with DMSA is useful,  but
probably dangerous for those with fillings, since the mercury can be
redistributed to the brain and CNS.
For further discussion     see
www.home.earthlink.net/~berniew1/amalg6.html
Bernie

(the hair test is inexpensive & easy, so a good way to start; choice of
others depends on your purpose and symptoms)

Can mercury cause seizures in kids?    (my mouse isn't working)

    Yes, mercury is documented to be a cause of seizures, as is essential
mineral deficiencies which are probably a major underlying factor in
most cases(whatever the cause of the deficiency).      And seizures are
documented to often be controlable through dealing with those mineral
imbalances.   I've posted references before from VRP & Pfeiffer.  see
their sites also, and  my web site for some documentation.
Bernie

Truly,
         I forgot to mention that mercury effects are not strictly dose
dependent.  Susceptability is a major factor.    Those who are immune
reactive to mercury are affected the most or at least fastest.   The
major degenerative neurological conditions like ALS, MS, Lupus, CFS,
Fibromyalgia, RA, etc. have a major autoimmune factor.
And this is measurable, by a blood lympocyte reactivity test such as
MELISA
www.melisa.org           use of the test has been very successful in
aiding documentation and treatment.
Bernie

AUTISM AND MERCURY
Q: How is Mercury Poisoning related to Autism?
Q: How dangerous is mercury?
Q: How could my child have become mercury poisoned?
Q: What are some other sources of exposure to mercury?
Q: But my dentist told me that dental amalgam is perfectly safe
Q: If mercury poisoning is caused by vaccines, then why aren't all kids mercury toxic?
Q: Has anyone actually cured their autistic child by chelating them?

DETERMINING MERCURY TOXICITY & FIRST STEPS
Q: My doctor says that my child is not mercury toxic because his/her blood and urine mercury levels are within normal limits. What do you think?
Q: How can I find out if my child has mercury poisoning?
Q: My alternative doctor wants to do a DMPS challenge test. Is this safe?
Q: I've made an appointment for a hair test and I'm trying to find a doctor to help me chelate. Is there anything I can do right now?
Q: OK, I'm convinced my child is mercury toxic. What do I do now?
Q: My child has only one amalgam filling, and I can't seem to find a dentist
who will agree to replace it. Can't I go ahead and chelate?
Q: I've gotten back the hair test results for my child, and it shows he has high
levels of other metals besides mercury. What should I do?

CHELATION
Q: What are chelating agents?
Q: What is DMPS?
Q: What is DMSA?
Q: What is ALA or LA?
Q: What is the proper dosage and administration schedule for DMSA and LA?
Q: I've started chelating and my child is having bad side effects. What can I do?
Q: I've heard that glutathione, chlorella, cilantro, cysteine, MSM, NAC, garlic,
and saunas will chelate naturally, and that the natural way is better. Is this true?
Q: My child is GFCF. Can I continue the diet?
Q: How long does it take to complete chelation?

RESOURCES
Q: Who is Andy Cutler?
Q: Who is Dr. Amy?
Q: How can I find a mercury-free dentist?

====================================================
AUTISM AND MERCURY

Q: How is Mercury Poisoning related to Autism?

In their paper "Autism: A Unique Type of Mercury Poisoning" Bernard et. al, http://www.cureautismnow.org/sciwatch/invest.cfm have revealed a startling similarity in the symptoms of Autism and Mercury Poisoning. While this may sound frightening, it actually shines a bright ray of hope into the lives of families living with an autistic child. Why? Because mercury poisoning can be cured.

Q: How dangerous is mercury?

Very. Mercury is the second most toxic element on earth, second only to plutonium. The amount of mercury found in one mercury thermometer is enough to pollute a small lake. Mercury toxicity has been linked to a large number of diseases, including arthritis, altzheimer’s, multiple sclerosis, fibromyalgia, lupus, chronic fatigue syndrome, depression, bipolar disorder, schizophrenia, learning disabilities and ADHD.

Q: How could my child have become mercury poisoned?

Many parents believe the major culprit to be thimerosal, a preservative used in vaccines and other medications. Thimerosal is 50% mercury by weight. In October 1998, the FDA banned the use of thimerosal in over the counter medications. Since July, 1999, the FDA has "encouraged" manufacturers to remove thimerosal from vaccines. Some have done it; others have not. Today, most vaccines that are being manufactured do not contain thimerosal, or they only contain a "trace." But we do not know how many of the old thimerosal products are still on the shelf.

Each vaccine containing thimerosal exceeds the EPA's safety guidelines of 0.1 mcg/kg/day. Since multiple vaccines are often given on the same day, the amount of mercury injected into a typical infant is many times over the "safe" limit. Before the FDA ban, mercury had been added to eye drops, contact lens preparations, nasal sprays, contraceptive creams, hemmhoroid creams, lubricating gels, allergy injections, and antiseptics such as Mercurochrome® and merthiolate.

Q: What are some other sources of exposure to mercury?

There are many other common sources for mercury exposure. Here's a short list:

• Dental amalgams
• Released into the air by coal burning plants
• Fish and shellfish, especially tuna, salmon and swordfish
• Some paints
• Thermometers and blood pressure gauges (especially if mercury from broken instruments was spilled on carpet)
• Fluorescent light bulbs

Q: But my dentist told me that dental amalgam is perfectly safe.

The presence of mercury in dental amalgams is a very controversial subject. Despite the fact that dental amalgam contains 50% mercury, the American Dental Association's official position is that dental amalgam is safe, and that mercury does not pose a health risk. However, numerous research studies show that dental amalgams are a major source of mercury toxicity. Because of the ADA’s position, your dentist risks losing his license if he tells you that mercury is dangerous, no matter what he personally believes.

Q: If mercury poisoning is caused by vaccines, they why aren't all kids mercury toxic?

Sensitivity to mercury varies widely from person to person, as does the body's natural ability to detoxify. Some children can get rid of the mercury quickly, while in others, the toxin remains in the body longer, allowing it time to bind tightly in the brain and other organs.

Q: Has anyone actually "cured" their autistic child by chelating them?

The book "Turning Lead Into Gold" describes several cases of children with "autistic tendencies" who improved dramatically after chelation for lead.

As of this writing, no one on this list has completely cured their child from mercury poisoning. But its early yet. Dr. Amy is getting some wonderful results with the children in her practice, and numerous parents have reported improvements in their autistic children with each chelation cycle.

DETERMINING MERCURY TOXICITY & FIRST STEPS

Q: My doctor says that my child is not mercury toxic because his/her blood and urine mercury levels are "within normal limits." What do you think?

Most MDs are more familiar with lead poisoning than mercury poisoning. Blood and urine tests are the standard for measuring lead, but these tests are inadequate for mercury. This is because once mercury enters the body, it very quickly leaves the bloodstream and accumulates in the internal organs. Therefore, urine and blood tests will only show mercury if the person has been exposed to a large amount of mercury very recently. Chronic long-term exposure (amalgams) or old exposure (vaccines) will not show up with these tests. A better way to test for mercury is by using a hair elements test.

Q: How can I find out if my child has mercury poisoning?

Dr. Amy Holmes lists a number of useful medical tests on the website: http://www.healing-arts.org/children/holmes.htm. A trace minerals analysis, or hair test, is an inexpensive, non-invasive and reasonably accurate test for determining the body's burden of mercury and other heavy metals. Doctor's Data (708/231-3649) is a great source for obtaining this test. Keep in mind that mercury may be so tightly bound in the body's organs that it doesn't show up in large amounts in the hair test. Instead of looking at mercury by itself, it is necessary to look at all of the elements and to apply the "counting rules" (posted in files) to determine if mercury is present.

Q: My alternative doctor wants to do a DMPS challenge test. Is this safe?

No. DMPS challenge tests and IV chelation with DMPS can be very dangerous—see www.dmpsbackfire.com. A challenge test is when a doctor administers a large amount of a chelator in a single dose, and then tests the urine for metals. Challenge tests in general aren't useful for diagnosing mercury toxicity because everyone has some mercury in them, and DMPS (or DMSA) will mobilize it. If DMPS is to be used, it should be administered orally, every 8 hours. And no one should take a chelator of any kind if they have dental amalgam fillings.

Some doctors suggest doing the same sort of challenge test using a large oral dose of DMSA, or will suggest treatment with infrequent doses of chelator (once a day or every other day). This is also dangerous. Chelators should always be given in frequent, small doses (every 3-4 hours for DMSA, every 8 hours for DMPS).

Q: I've made an appointment for a hair test and I'm trying to find a doctor to help me chelate. Is there anything I can do right now?

Yes—you can begin supplementation. There are many dietary supplements that can help your child to feel better now, and during the chelation process. Here are some important ones:

Take these 4 times a day: Vitamin B complex, Vitamin C, and Milk Thistle extract

Take these often (frequency not as critical): Zinc, Magnesium, Vitamin E, mixed carotenes and lypocene, flax seed oil.

Q: OK, I'm convinced my child is mercury toxic. What do I do now?

If your child has dental amalgams, you will need to find a mercury-free dentist who can replace the silver amalgam fillings with some other material. Next, you should try to find a doctor who can help with chelation. Keep in mind that most regular allopathic doctors are not familiar with mercury toxicity. You don't have to go to a regular MD. "Alternative" doctors such as osteopaths, naturopaths, homeopaths and chiropractors may be able to help you obtain chelating agents and monitor your child's health during the process. You don't have to have a doctor to chelate, but it is a very good idea.

Q: My child has only one amalgam filling, and I can't seem to find a dentist who will agree to replace it. Can't I go ahead and chelate?

Absolutely not. You cannot start chelation if there are any silver amalgam fillings present. The chelator will remove mercury from the filling and deposit it in your child's body, making him even more toxic.

Q: I've gotten back the hair test results for my child, and it shows he has high levels of other metals besides mercury. What should I do?

Generally, you remove the other metals first. High levels of lead, copper, arsenic, antimony or aluminum can cause symptoms similar to mercury poisoning. If your child has high levels of several metals, he is likely very sick. Test again in three months.

Recommendations for chelating other metals:

Lead: Use DMSA, but follow the protocol for mercury in case mercury is present as well. Administer every 3-4 hours for several days, then rest for the same number of days, etc.

Arsenic: Use DMSA first if your child is mercury toxic. LA works very well for arsenic. Chelate using mercury protocol (every 3 hours, with on/off cycles).

Antimony: Use SAMe, 5 mg a day per pound of kid in divided doses. Or you can use the "poor man's methylating mix" of B-12 (100 mcg per pound), folate (10 mcg per pound) and TMG or choline (10-20 mg per pound). Spread these through the day. They may be energizing so you might want to give them in the earlier part of the day.

Copper: Copper absorption can be greatly reduced by giving 25 mg zinc + 250 mcg
molybdenum 4 times a day, and also by excluding high copper foods from the
diet. Nuts, organ meats, shellfish, molasses and sometimes unwashed produce
are high. Glycine, taurine and milk thistle extract might help get rid of copper faster.

Note: You should not give LA if your child has high copper levels, as LA will drive copper levels higher.

Aluminum: Restrict dietary intake. Don't cook in aluminum pans, or drink sodas from aluminum cans. Certain baking powders, antacids and antiperspirants contain aluminum, so be sure to check labels.

Cadmium: Zinc may help.

Antioxidant supplements help reduce the symptoms of all heavy metal problems.

CHELATION

Q: What are chelating agents?

Chelating agents are compounds with two or more binding groups for certain
metals combined into one molecule. Chelating agents for mercury are DMPS (2,3 dimercaptopropanesulfonate sodium), DMSA (2,3 meso DiMercaptoSuccinic Acid. Generic name: Succimer. Trade name: Chemet) and ALA (alpha lipoic acid).

Q: What is DMPS?

DMPS has been approved for bulk distribution by compounding pharmacies and is excellent for removing mercury from the body (but not the brain) if it is used properly.
Unfortunately many physicians use it and other chelating agents improperly, and like any drug these can be extremely dangerous when not used right.

Q: What is DMSA?

DMSA is a prescription medication which has been approved by the FDA for lead poisoning in children. It also works well for mercury. DMSA removes mercury from everywhere in the body except the brain, because it does not cross the blood-brain barrier.

Q: What is ALA or LA?

Alpha lipoic acid (ALA or LA) is an over-the-counter supplement which has been found to effectively chelate mercury. Unlike DMSA and DMPS, LA will cross the blood-brain barrier, and so it can move mercury out of or into the brain. LA should not be used if there has been recent mercury exposure (within 3 months) or if your child has high copper levels, since LA reduces copper excretion.

Q: What is the proper dosage and administration schedule for DMSA and LA?

The dosage is less important than the administration schedule. If you remember nothing else about this FAQ, remember this: DMSA or LA must be given in small, frequent doses (every 3-4 hours, even at night) over several days to be effective. Infrequent dosage will just stir up the mercury and redistribute it in the body, making your child sicker.

For DMSA alone, the guideline is 1 mg per pound of child to start. For DMSA given with LA, start with 1/8 to ½ mg. per pound of child. Increase slowly as tolerated.

If giving LA by itself, give it every 3 hours. DMSA is given every 4 hours. DMSA + LA should be given every 3 hours.

DMPS alone should be given every 8 hours.

Chelation should be done in cycles of at 3 to 7 days on the chelator, followed by at least as many days off as a rest period. Many parents find it convenient to chelate on weekends, starting when the child gets home from school and stopping on Monday morning, with weekdays as rest days. With the schedule, sleep is only interrupted on weekends and parents don't have to depend on school employees to give the medicine.

Q: I've started chelating and my child is having bad side effects. What can I do?

Some side effects that list members have reported include increased urination, redness of the face and extremities, rash, heartburn, and diarrhea. Your child may also show an increase in autistic symptoms (may become more "stimmy" or show more oppositional behavior). If the side effects are severe or difficult to deal with, stop the cycle and allow a rest time, then start the next cycle with a lower dosage. You may also want to try a shorter chelation cycle, with a larger rest period in between.

Q: I've heard that glutathione, chlorella, cilantro, cysteine, MSM, NAC, garlic, and saunas will chelate naturally, and that the natural way is better. Is this true?

Don't assume that because something is "natural," that it is necessarily better. As Andy has reminded us, strychnine and botulism are natural, and deadly. That said, some natural remedies are excellent. LA is a natural supplement available at health food stores, and it has been found to be a good chelator for mercury and arsenic. You have to read about and study each one so that you have some idea what you are giving your child. All of these remedies have been discussed on the list, and some of our list members swear by them. You are encouraged to inform yourself and make up your own mind. But here's what Andy and Amy say about them:

Glutathione – Andy: "Glutathione is not a chelator. Supplemental glutathione itself is of very little value since your gut should digest it. If your gut is not digesting it you will soon start taking other things to MAKE your gut digest it because letting undigested things like glutathione into your bloodstream will soon cause major allergy problems."

Chlorella—Andy: "While there is little in press that shows chlorella to be harmful, there are multitudinous observations of real people which show that. All you have to do is ask
around. Chlorella is simply another "sulfur food." It is very harmful to people who
are high in sulfur."

"Dr. Klinghardt, is the one that popularized DMPS injections and DMSA every other day, the first and second most dangerous mercury treatment protocols. Now he is on to chlorella, which is also very dangerous. I know several people who took it per his protocol and suffered permanent neurological damage as a result."

Cilantro—Andy: "There is some superstition that cilantro helps, and it really may, but it
isn't clear how to use it."

And this from Dr. Amy Holmes—"Cilantro. Untested. A few reports that it MAY cross the blood-brain barrier and chelate mercury, but no data. Please bear in mind that no one knows what the ingredient in cilantro is that MAY do this. Is every cilantro equal? Who knows? I don't see how one could possibly be even somewhat sure that you are keeping a relatively steady blood level of THE INGREDIENT when we don't know what THE INGREDIENT is or if all cilantro has the same amount of it. And if anything in mercury chelation is more important, I can't think of it."

Cysteine—Not a chelator. Andy: "Don't give cysteine/cystine or sources of it during ALA chelation unless you definitively know the child has low plasma levels of cysteine (not low-ish, definitively abnormally low)."

Dr. Amy: "I think we are much better off leaving glutathione, MSM, cysteine, etc. supplements alone. They cause many more problems than they can fix in an untested person.

MSM—Not a chelator. Andy: "The more I hear about MSM the more I suggest people avoid it. I keep getting random negative reports." And "It is an exceptionally bad idea to use MSM, cysteine, NAC or glutathione with LA since LA naturally increases your body's cysteine and glutathione levels."

NAC—This is a supplement which will cause the body to produce more glutathione. Andy: "Neither NAC nor glutathione remove any mercury from the brain - but they do
make whatever mercury is there a lot more toxic if administered in excessive
amounts."

Garlic—Not a chelator, but posters say it's great for pinworms.

Saunas—Andy: "Sauna has been used to detox mercury miners since time immemorial - when they get too messed up, they go to the sauna during work hours instead of into
the mine shaft." "Sweating does indeed increase mercury excretion. Probably an hour or
two of sauna is the same as 50 mg of DMSA every 4 hours for a day." Note: Posters urged caution with saunas because mercury toxic people are often heat sensitive.

Q: My child is GFCF. Can I continue the diet?

If it makes your child feel better, then by all means continue. Bernie Windham has written a paper that describes how mercury interferes with the enzyme that is needed to digest gluten and casein. Many people who are mercury toxic are sensitive to food that are high in sulfur, which includes all dairy products.

Regarding yeast: Mercury causes damage to the immune system, and a weakened immune system allows yeast, bacteria and and all sorts of other nasties to proliferate in the body. Yeast overgrowth can cause "leaky gut"—a condition in which the lining of the intestine becomes somewhat porous, allowing undigested particles to enter the bloodstream, causing allergic reactions. Mercury toxic individuals often suffer from food allergies. Therefore, a GFCF (gluten and casein-free) diet is probably a good idea before and during chelation. Theoretically, once the mercury is removed, the immune system is restored, and the gut is allowed to heal (this may require antibiotics and/or anti-fungals), the child may be able eat "regular" foods again.

Q: How long does it take to complete chelation?

Six months to two years, depending on how toxic a person is and how quickly you chelate. Children younger than 8 seem to respond more quickly than older children.

RESOURCES

Q: Who is Andy Cutler?

Andy Cutler is a Ph.D. chemist who found himself sick with mercury poisoning and figured out how to get well. He wrote a book called "Amalgam Illness: Diagnosis and treatment" It sells for $35 and you can order it directly from his web site: http://hometown.aol.com/noamalgam. Andy spends many hours answering questions on our list, and he always tells it like it is—no bull.

Q: Who is Dr. Amy?

Dr. Amy Holmes is an M.D. in Louisiana who is working with parents of many autistic children to help them chelate mercury and other toxic metals from their children. Dr. Amy used to be an oncologist. She retired to raise her infant son, only to find out that he has autism. Now she has gone back to work to help her son and others’ children. Dr. Amy has written an article on the healing arts website: http://www.healing-arts.org/children/holmes.htm that describes the mercury problem and her treatment protocol. Licensing laws prohibit Dr. Amy from consulting with people who are not her patients. However, your doctor may call Dr. Amy at (225)767-7433 to consult with her or receive a faxed copy of her protocol.

Q: How can I find a mercury-free dentist?

Send a #10 SASE with 78 cents postage to:

Foundation For Toxic-Free Dentistry (or just use FTFD)
P.O. Box 608010
Orlando, FL
32860-8010

Be very careful when selecting a dentist. Composite fillings require more skill in placement than amalgam, and the risk for further mercury exposure during amalgam replacement is great. The dentist should follow something similar to the IOAMT protocol: http://mall.turnpike.net/P/PDHA/mercury/iaomt.htm for amalgam removal and replacement.
 
 

-You can buy DMSA without a prescription at www.vrp.com


-- In Autism-Mercury@y..., marib005@h... wrote:
> Laurie,  I was doing LA alone also for a while(4 cycles).  I found a
> doctor that will work with me via the phone and fax.  I wanted soo
> bad to get some DMSA.  I'm not even following the doctors protocol.
> The good thing is,I am getting the lead out now and I do think there
> are less side affects, not that they were that bad on ala alone.  How
> are you going to get DMSA without a doctors help?  This doctor cost
> $135 for a 1/2 hour phone call.  I am afraid to ask a question.
> Thanks for any information.  Marianne
>
>  -- In Autism-Mercury@y..., Laurie Hunter <chinamom@p...> wrote:
> > Truly,
> >
> > Yes and no.... Yes, we really don't have the extra $$$ AND we live
> about 200
> > miles from Portland Ore where the closest dr would be who would know
> > anything! I would love to be able to go see Dr Amy! BUT, I think it
> is about
> > a 6mos wait, and then it sounds like she orders your tests, reviews
> > everything gets you started and sends you home to follow up with
> your local
> > dr.... Our Ped is just TO TO BUSY! I am better off without her. I
> once asked
> > her for a copy of a journal on adoption med and she just gave it to
> me and
> > told me to tell her what she needs to know..... why should I pay
> HER for me
> > to teach her???
> >
> > I do think though if I can do my research and get Grace well I can
> "train"
> > at least 3 drs on chleation!!!
> >
> > From what I am learning here I can order the tests myself, its just
> a matter
> > of $$$ and trial and error, and going s l o w! Though I think I am
> going to
> > order some DMSA and see what happens.
> >
> > I know what you mean about the bad medical stuff also! I have been
> bugging
> > the ped, my sis the Dr, and my sis the midwife, that I thought
> there was
> > something wrong with Grace, since she kept pulling at her panties
> for the
> > last 3 mos! First everyone kept saying its just a NEW autistic
> "stim" (I
> > HATE when they blame everything on Autism!!!!!) They would have me
> bring in
> > multiple urine samples, all clear. finaly got an appt 4 weeks later
> and it
> > turns out she has a birth defect near her urethra that is
> irratating.....
> > something the Ped has never seen before, so now we are waiting for
> an appt
> > with a urologist.
> >
> > UGH!!!!! I must admitt I thought I had done something to her, it
> started
> > right after the first round of ALA and I wondered if I burned her or
> > something when the metals came out..... It would be soooo nice to
> have
> > someone else to blame!
> >
> > Good Luck!
> >
> > laurie
> >
> >
> > > Date: 1 Apr 2001 03:14:54 -0000
> > > To: Autism-Mercury@y...
> > > Subject: [Autism-Mercury] Digest Number 1036
> > >
> > > Thanks Laurie,
> > > I just am overwhelmed since joining this list.  I don't know
> where to
> > > start with my son.  Are you doing this yourself to save expense?
> I
> > > certainly agree with Andy that sometimes us ordinary non-doc
> types can know
> > > just as much as the MDs, at least on some things.  Just having an
> autistic
> > > son taught me that ....along with a previous bad medical
> experience---
> > > Truly
> > > ----- Original Message -----

Hi all,

Okay, please bear with my "dumb" question, but could someone
please tell me what "sensory defensive" means?

Is it the thing where I don't want to wear clothes that are
scratchy fabricsb or scratchy tags?
Or is it not wanting to be touched?
Or something else?

I'm pretty sure it applies to me.

While I'm at it, any thoughts about whether clutter and
disorganization are related to metals?  I know that the
majority of people have a lot of junk they won't get rid
of, and have at least SOME areas of disorganization---
so I don't think it could be "all" from metals---
any theories? Or experiences with getting more order after
chelation?

MANY THANKS!
Moria

Dear Carolyn,

It is no problem--- It is a reasonable assumption---
and it would have been "nice" if I could have shared some
choice info about my autistic/PDD/etc kid.  But, it
doesn't apply, and, hopefully lots of other people will
fill that gap.

I do seem to have a *lot* of issues in common with
the kids discussed on the list --- funny coincidence ;)

best,
Moria


At 08:58 AM 4/1/2001 -0000, you wrote:
>Hi Moria,
>Sorry for assuming that you were in the same boat as me :(
>Thanks for the info, I'll surely check it out!
>
>Carolyn
>
>
>--- In Autism-Mercury@y..., moriam@e... wrote:
>> Hi Carolyn,
>>
>> First I will break the news that I don't have any children
>> (autistic or otherwise)--- so I cannot report on chelation
>> from that angle.  Sorry! Hopefully a number of our buddies
>> here will answer your question about how things are going.
>> There are definately other interventions in use as well!
>>
>> I'm doing chelation on myself. My last amalgam filling was
>> replaced on 11/30/2000.  I started using ALA only on 12/31/
>2000.
>> I have only done 5 "rounds" so far--- I basically did chelation
>> during January 2001, then in early Feb I got some sort of
>> flu and have never completely recovered. (I realize that may
>> sound really bizarre-----)  (My joke is that my "chelation
>> cycle" is 1 month on, 2 months off.)  (That is a joke: I
>> was doing 3/4 and 3/11 cycles!)
>>
>> To get a little bit of idea of how some of the kids of list
>> members are doing, go to
>> http://groups.yahoo.com/group/Autism-Mercury/
>> and click on files and then look for a file called something
>> like "chelation survey".  (Sorry I can't get you the URL
>> right now...) It should give you some sense of what people
>> are seeing.
>>
>> best,
>> Moria
>>
>> --- In Autism-Mercury@y..., shuichi@a... wrote:
>> > Hi Moria!
>> > Thank you for your reply!  : )  I've just finished reading the faq,
>> and
>> > am going to order Dr. Andy's book today.
>> > How long have you been doing chelation?  Do you do any
>other
>> > interventions as well?
>> > I'm just curious to find out what kind of progress people have
>> > been getting from this treatment.
>> > thanks,
>> > Carolyn
>> >
>> >
>> >
>> >
>> > --- In Autism-Mercury@y..., Moria Merriweather <
>moriam@e...>
>> > wrote:
>> > > Hello Carolyn,
>> > >
>> > > Welcome to the list.
>> > >
>> > > What sort of help would you like?  I know that question
>might
>> > sound
>> > > dumb---- but it would help in knowing what to tell you to
>know
>> > > what sort of things you want to know.  There is an awful lot
>of
>> > > possible information to say otherwise.....
>> > >
>> > > In general Andy's book and the FAQ for this list are good
>> > places
>> > > to start. The FAQ is at:
>> > > http://groups.yahoo.com/group/Autism-Mercury/files/
>Mercury-
>> > Autism%20FAQ
>> > > (be sure you get the whole line--- it sometimes gets
>chopped.)
>> > >
>> > > :) Moria
>> > >
>
>
>
>=======================================================
>Statements posted on this list are for information only,
>and should NOT be taken as medical advice.  If you need
>medical advice, you should seek it from those who are
>authorized to give medical advice: doctors.
>
>Post message: Autism-Mercury@yahoogroups.com
>Subscribe:    Autism-Mercury-subscribe@yahoogroups.com
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>Shortcut URL: http://groups.yahoo.com/group/Autism-Mercury
>
>Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>
>

Marianne--- You can buy DMSA without a prescription from
www.vrp.com.  I have called them and verified this. You
just order it!


At 03:05 PM 4/1/2001 -0000, you wrote:
>Laurie,  I was doing LA alone also for a while(4 cycles).  I found a
>doctor that will work with me via the phone and fax.  I wanted soo
>bad to get some DMSA.  I'm not even following the doctors protocol.
>The good thing is,I am getting the lead out now and I do think there
>are less side affects, not that they were that bad on ala alone.  How
>are you going to get DMSA without a doctors help?  This doctor cost
>$135 for a 1/2 hour phone call.  I am afraid to ask a question.
>Thanks for any information.  Marianne
>
> -- In Autism-Mercury@y..., Laurie Hunter <chinamom@p...> wrote:
>> Truly,
>>
>> Yes and no.... Yes, we really don't have the extra $$$ AND we live
>about 200
>> miles from Portland Ore where the closest dr would be who would know
>> anything! I would love to be able to go see Dr Amy! BUT, I think it
>is about
>> a 6mos wait, and then it sounds like she orders your tests, reviews
>> everything gets you started and sends you home to follow up with
>your local
>> dr.... Our Ped is just TO TO BUSY! I am better off without her. I
>once asked
>> her for a copy of a journal on adoption med and she just gave it to
>me and
>> told me to tell her what she needs to know..... why should I pay
>HER for me
>> to teach her???
>>
>> I do think though if I can do my research and get Grace well I can
>"train"
>> at least 3 drs on chleation!!!
>>
>> From what I am learning here I can order the tests myself, its just
>a matter
>> of $$$ and trial and error, and going s l o w! Though I think I am
>going to
>> order some DMSA and see what happens.
>>
>> I know what you mean about the bad medical stuff also! I have been
>bugging
>> the ped, my sis the Dr, and my sis the midwife, that I thought
>there was
>> something wrong with Grace, since she kept pulling at her panties
>for the
>> last 3 mos! First everyone kept saying its just a NEW autistic
>"stim" (I
>> HATE when they blame everything on Autism!!!!!) They would have me
>bring in
>> multiple urine samples, all clear. finaly got an appt 4 weeks later
>and it
>> turns out she has a birth defect near her urethra that is
>irratating.....
>> something the Ped has never seen before, so now we are waiting for
>an appt
>> with a urologist.
>>
>> UGH!!!!! I must admitt I thought I had done something to her, it
>started
>> right after the first round of ALA and I wondered if I burned her or
>> something when the metals came out..... It would be soooo nice to
>have
>> someone else to blame!
>>
>> Good Luck!
>>
>> laurie
>>
>>
>> > Date: 1 Apr 2001 03:14:54 -0000
>> > To: Autism-Mercury@y...
>> > Subject: [Autism-Mercury] Digest Number 1036
>> >
>> > Thanks Laurie,
>> > I just am overwhelmed since joining this list.  I don't know
>where to
>> > start with my son.  Are you doing this yourself to save expense?
>I
>> > certainly agree with Andy that sometimes us ordinary non-doc
>types can know
>> > just as much as the MDs, at least on some things.  Just having an
>autistic
>> > son taught me that ....along with a previous bad medical
>experience---
>> > Truly
>> > ----- Original Message -----
>
>
>
>=======================================================
>Statements posted on this list are for information only,
>and should NOT be taken as medical advice.  If you need
>medical advice, you should seek it from those who are
>authorized to give medical advice: doctors.
>
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>
>

Moira,
I can only describe my son's sensory defensiveness as never wanting to be
hugged or held closely front to front.  When he was smaller and in a crib he
would hold up his arms to come out, but he  always turned around so I would
pick him up from behind.  It's heartbreaking for a parent not to be able to
hug your baby and to be literally pushed away.  The sense of touch seems
unbearable for them.  After many months of chelation, he is gradually
improving and the hugs are getting better and better!
Kathy

-----Original Message-----
From: Moria Merriweather <moriam@...>
To: autism-mercury@yahoogroups.com <autism-mercury@yahoogroups.com>
Date: Sunday, April 01, 2001 3:17 PM
Subject: [Autism-Mercury] what is "sensory defensive"?


>Hi all,
>
>Okay, please bear with my "dumb" question, but could someone
>please tell me what "sensory defensive" means?
>
>Is it the thing where I don't want to wear clothes that are
>scratchy fabricsb or scratchy tags?
>Or is it not wanting to be touched?
>Or something else?
>
>I'm pretty sure it applies to me.
>
>While I'm at it, any thoughts about whether clutter and
>disorganization are related to metals?  I know that the
>majority of people have a lot of junk they won't get rid
>of, and have at least SOME areas of disorganization---
>so I don't think it could be "all" from metals---
>any theories? Or experiences with getting more order after
>chelation?
>
>MANY THANKS!
>Moria
>
>
>
>=======================================================
>Statements posted on this list are for information only,
>and should NOT be taken as medical advice.  If you need
>medical advice, you should seek it from those who are
>authorized to give medical advice: doctors.
>
>Post message: Autism-Mercury@yahoogroups.com
>Subscribe:    Autism-Mercury-subscribe@yahoogroups.com
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>
>
>

Do either of you have any comments about autistic children
swimming in chlorine water?  I've read several posts indicating
that this could lead to seizures.  Is this something parents should
be worried about?  My son loves swimming in the summer.
Thanks.

Donna