AUTISM AND MERCURY
Q: How is Mercury Poisoning related to Autism?
Q: How dangerous is mercury?
Q: How could my child have become mercury poisoned?
Q: What are some other sources of exposure to mercury?
Q: But my dentist told me that dental amalgam is perfectly safe
Q: If mercury poisoning is caused by vaccines, then why aren't all kids mercury toxic?
Q: Has anyone actually cured their autistic child by chelating them?

DETERMINING MERCURY TOXICITY & FIRST STEPS
Q: My doctor says that my child is not mercury toxic because his/her blood and urine mercury levels are within normal limits. What do you think?
Q: How can I find out if my child has mercury poisoning?
Q: My alternative doctor wants to do a DMPS challenge test. Is this safe?
Q: I've made an appointment for a hair test and I'm trying to find a doctor to help me chelate. Is there anything I can do right now?
Q: OK, I'm convinced my child is mercury toxic. What do I do now?
Q: My child has only one amalgam filling, and I can't seem to find a dentist
who will agree to replace it. Can't I go ahead and chelate?
Q: I've gotten back the hair test results for my child, and it shows he has high
levels of other metals besides mercury. What should I do?

CHELATION
Q: What are chelating agents?
Q: What is DMPS?
Q: What is DMSA?
Q: What is ALA or LA?
Q: What is the proper dosage and administration schedule for DMSA and LA?
Q: I've started chelating and my child is having bad side effects. What can I do?
Q: I've heard that glutathione, chlorella, cilantro, cysteine, MSM, NAC, garlic,
and saunas will chelate naturally, and that the natural way is better. Is this true?
Q: My child is GFCF. Can I continue the diet?
Q: How long does it take to complete chelation?

RESOURCES
Q: Who is Andy Cutler?
Q: Who is Dr. Amy?
Q: How can I find a mercury-free dentist?

====================================================
AUTISM AND MERCURY

Q: How is Mercury Poisoning related to Autism?

In their paper "Autism: A Unique Type of Mercury Poisoning" Bernard et. al, http://www.cureautismnow.org/sciwatch/invest.cfm have revealed a startling similarity in the symptoms of Autism and Mercury Poisoning. While this may sound frightening, it actually shines a bright ray of hope into the lives of families living with an autistic child. Why? Because mercury poisoning can be cured.

Q: How dangerous is mercury?

Very. Mercury is the second most toxic element on earth, second only to plutonium. The amount of mercury found in one mercury thermometer is enough to pollute a small lake. Mercury toxicity has been linked to a large number of diseases, including arthritis, altzheimer’s, multiple sclerosis, fibromyalgia, lupus, chronic fatigue syndrome, depression, bipolar disorder, schizophrenia, learning disabilities and ADHD.

Q: How could my child have become mercury poisoned?

Many parents believe the major culprit to be thimerosal, a preservative used in vaccines and other medications. Thimerosal is 50% mercury by weight. In October 1998, the FDA banned the use of thimerosal in over the counter medications. Since July, 1999, the FDA has "encouraged" manufacturers to remove thimerosal from vaccines. Some have done it; others have not. Today, most vaccines that are being manufactured do not contain thimerosal, or they only contain a "trace." But we do not know how many of the old thimerosal products are still on the shelf.

Each vaccine containing thimerosal exceeds the EPA's safety guidelines of 0.1 mcg/kg/day. Since multiple vaccines are often given on the same day, the amount of mercury injected into a typical infant is many times over the "safe" limit. Before the FDA ban, mercury had been added to eye drops, contact lens preparations, nasal sprays, contraceptive creams, hemmhoroid creams, lubricating gels, allergy injections, and antiseptics such as Mercurochrome® and merthiolate.

Q: What are some other sources of exposure to mercury?

There are many other common sources for mercury exposure. Here's a short list:

• Dental amalgams
• Released into the air by coal burning plants
• Fish and shellfish, especially tuna, salmon and swordfish
• Some paints
• Thermometers and blood pressure gauges (especially if mercury from broken instruments was spilled on carpet)
• Fluorescent light bulbs

Q: But my dentist told me that dental amalgam is perfectly safe.

The presence of mercury in dental amalgams is a very controversial subject. Despite the fact that dental amalgam contains 50% mercury, the American Dental Association's official position is that dental amalgam is safe, and that mercury does not pose a health risk. However, numerous research studies show that dental amalgams are a major source of mercury toxicity. Because of the ADA’s position, your dentist risks losing his license if he tells you that amalgam fillings are dangerous, no matter what he personally believes.

Q: If mercury poisoning is caused by vaccines, they why aren't all kids mercury toxic?

Sensitivity to mercury varies widely from person to person, as does the body's natural ability to detoxify. Some children can get rid of the mercury quickly, while in others, the toxin remains in the body longer, allowing it time to bind tightly in the brain and other organs.

Q: Has anyone actually "cured" their autistic child by chelating them?

The book "Turning Lead Into Gold" describes several cases of children with "autistic tendencies" who improved dramatically after chelation for lead.

As of this writing, no one on this list has completely cured their child from mercury poisoning. But its early yet. Dr. Amy is getting some wonderful results with the children in her practice, and numerous parents have reported improvements in their autistic children with each chelation cycle.

DETERMINING MERCURY TOXICITY & FIRST STEPS

Q: My doctor says that my child is not mercury toxic because his/her blood and urine mercury levels are "within normal limits." What do you think?

Most MDs are more familiar with lead poisoning than mercury poisoning. Blood and urine tests are the standard for measuring lead, but these tests are inadequate for mercury. This is because once mercury enters the body, it very quickly leaves the bloodstream and accumulates in the internal organs. Therefore, urine and blood tests will only show mercury if the person has been exposed to a large amount of mercury very recently. Chronic long-term exposure (amalgams) or old exposure (vaccines) will not show up with these tests. A better way to test for mercury is by using a hair elements test.

Q: How can I find out if my child has mercury poisoning?

Dr. Amy Holmes lists a number of useful medical tests on the website: http://www.healing-arts.org/children/holmes.htm. A trace minerals analysis, or hair test, is an inexpensive, non-invasive and reasonably accurate test for determining the body's burden of mercury and other heavy metals. Doctor's Data (708/231-3649) is a great source for obtaining this test. Keep in mind that mercury may be so tightly bound in the body's organs that it doesn't show up in large amounts in the hair test. Instead of looking at mercury by itself, it is necessary to look at all of the elements and to apply the "counting rules" (posted in files) to determine if mercury is present.

Q: My alternative doctor wants to do a DMPS challenge test. Is this safe?

No. DMPS challenge tests and IV chelation with DMPS can be very dangerous—see www.dmpsbackfire.com. A challenge test is when a doctor administers a large amount of a chelator in a single dose, and then tests the urine for metals. Challenge tests in general aren't useful for diagnosing mercury toxicity because everyone has some mercury in them, and DMPS (or DMSA) will mobilize it. If DMPS is to be used, it should be administered orally, every 8 hours. And no one should take a chelator of any kind if they have dental amalgam fillings.

Some doctors suggest doing the same sort of challenge test using a large oral dose of DMSA, or will suggest treatment with infrequent doses of chelator (once a day or every other day). This is also dangerous. Chelators should always be given in frequent, small doses (every 3-4 hours for DMSA, every 8 hours for DMPS).

Q: I've made an appointment for a hair test and I'm trying to find a doctor to help me chelate. Is there anything I can do right now?

Yes—you can begin supplementation. There are many dietary supplements that can help your child to feel better now, and during the chelation process. Here are some important ones:

Take these 4 times a day: Vitamin B complex, Vitamin C, and Milk Thistle extract

Take these often (frequency not as critical): Zinc, Magnesium, Vitamin E, mixed carotenes and lypocene, flax seed oil.

Q: OK, I'm convinced my child is mercury toxic. What do I do now?

If your child has dental amalgams, you will need to find a mercury-free dentist who can replace the silver amalgam fillings with some other material. Next, you should try to find a doctor who can help with chelation. Keep in mind that most regular allopathic doctors are not familiar with mercury toxicity. You don't have to go to a regular MD. "Alternative" doctors such as osteopaths, naturopaths, homeopaths and chiropractors may be able to help you obtain chelating agents and monitor your child's health during the process. You don't have to have a doctor to chelate, but it is a very good idea.

Q: My child has only one amalgam filling, and I can't seem to find a dentist who will agree to replace it. Can't I go ahead and chelate?

Absolutely not. You cannot start chelation if there are any silver amalgam fillings present. The chelator will remove mercury from the filling and deposit it in your child's body, making him even more toxic.

Q: I've gotten back the hair test results for my child, and it shows he has high levels of other metals besides mercury. What should I do?

Generally, you remove the other metals first. High levels of lead, copper, arsenic, antimony or aluminum can cause symptoms similar to mercury poisoning. If your child has high levels of several metals, he is likely very sick. Test again in three months.

Recommendations for chelating other metals:

Lead: Use DMSA, but follow the protocol for mercury in case mercury is present as well. Administer every 3-4 hours for several days, then rest for the same number of days, etc.

Arsenic: Use DMSA first if your child is mercury toxic. LA works very well for arsenic. Chelate using mercury protocol (every 3 hours, with on/off cycles).

Antimony: Use SAMe, 5 mg a day per pound of kid in divided doses. Or you can use the "poor man's methylating mix" of B-12 (100 mcg per pound), folate (10 mcg per pound) and TMG or choline (10-20 mg per pound). Spread these through the day. They may be energizing so you might want to give them in the earlier part of the day.

Copper: Copper absorption can be greatly reduced by giving 25 mg zinc + 250 mcg
molybdenum 4 times a day, and also by excluding high copper foods from the
diet. Nuts, organ meats, shellfish, molasses and sometimes unwashed produce
are high. Glycine, taurine and milk thistle extract might help get rid of copper faster.

Note: You should not give LA if your child has high copper levels, as LA will drive copper levels higher.

Aluminum: Restrict dietary intake. Don't cook in aluminum pans, or drink sodas from aluminum cans. Certain baking powders, antacids and antiperspirants contain aluminum, so be sure to check labels.

Cadmium: Zinc may help.

Antioxidant supplements help reduce the symptoms of all heavy metal problems.

CHELATION

Q: What are chelating agents?

Chelating agents are compounds with two or more binding groups for certain
metals combined into one molecule. Chelating agents for mercury are DMPS (2,3 dimercaptopropanesulfonate sodium), DMSA (2,3 meso DiMercaptoSuccinic Acid. Generic name: Succimer. Trade name: Chemet) and ALA (alpha lipoic acid).

Q: What is DMPS?

DMPS has been approved for bulk distribution by compounding pharmacies and is excellent for removing mercury from the body (but not the brain) if it is used properly.
Unfortunately many physicians use it and other chelating agents improperly, and like any drug these can be extremely dangerous when not used right.

Q: What is DMSA?

DMSA is a prescription medication which has been approved by the FDA for lead poisoning in children. It also works well for mercury. DMSA removes mercury from everywhere in the body except the brain, because it does not cross the blood-brain barrier.

Q: What is ALA or LA?

Alpha lipoic acid (ALA or LA) is an over-the-counter supplement which has been found to effectively chelate mercury. Unlike DMSA and DMPS, LA will cross the blood-brain barrier, and so it can move mercury out of or into the brain. LA should not be used if there has been recent mercury exposure (within 3 months) or if your child has high copper levels, since LA reduces copper excretion.

Q: What is the proper dosage and administration schedule for DMSA and LA?

The dosage is less important than the administration schedule. If you remember nothing else about this FAQ, remember this: DMSA or LA must be given in small, frequent doses (every 3-4 hours, even at night) over several days to be effective. Infrequent dosage will just stir up the mercury and redistribute it in the body, making your child sicker.

For DMSA alone, the guideline is 1 mg per pound of child to start. For DMSA given with LA, start with 1/8 to ½ mg. per pound of child. Increase slowly as tolerated.

If giving LA by itself, give it every 3 hours. DMSA is given every 4 hours. DMSA + LA should be given every 3 hours.

DMPS alone should be given every 8 hours.

Chelation should be done in cycles of at 3 to 7 days on the chelator, followed by at least as many days off as a rest period. Many parents find it convenient to chelate on weekends, starting when the child gets home from school and stopping on Monday morning, with weekdays as rest days. With the schedule, sleep is only interrupted on weekends and parents don't have to depend on school employees to give the medicine.

Q: I've started chelating and my child is having bad side effects. What can I do?

Some side effects that list members have reported include increased urination, redness of the face and extremities, rash, heartburn, and diarrhea. Your child may also show an increase in autistic symptoms (may become more "stimmy" or show more oppositional behavior). If the side effects are severe or difficult to deal with, stop the cycle and allow a rest time, then start the next cycle with a lower dosage. You may also want to try a shorter chelation cycle, with a larger rest period in between.

Q: I've heard that glutathione, chlorella, cilantro, cysteine, MSM, NAC, garlic, and saunas will chelate naturally, and that the natural way is better. Is this true?

Don't assume that because something is "natural," that it is necessarily better. As Andy has reminded us, strychnine and botulism are natural, and deadly. That said, some natural remedies are excellent. LA is a natural supplement available at health food stores, and it has been found to be a good chelator for mercury and arsenic. You have to read about and study each one so that you have some idea what you are giving your child. All of these remedies have been discussed on the list, and some of our list members swear by them. You are encouraged to inform yourself and make up your own mind. But here's what Andy and Amy say about them:

Glutathione – Andy: "Glutathione is not a chelator. Supplemental glutathione itself is of very little value since your gut should digest it. If your gut is not digesting it you will soon start taking other things to MAKE your gut digest it because letting undigested things like glutathione into your bloodstream will soon cause major allergy problems."

Chlorella—Andy: "While there is little in press that shows chlorella to be harmful, there are multitudinous observations of real people which show that. All you have to do is ask
around. Chlorella is simply another "sulfur food." It is very harmful to people who
are high in sulfur."

"Dr. Klinghardt, is the one that popularized DMPS injections and DMSA every other day, the first and second most dangerous mercury treatment protocols. Now he is on to chlorella, which is also very dangerous. I know several people who took it per his protocol and suffered permanent neurological damage as a result."

Cilantro—Andy: "There is some superstition that cilantro helps, and it really may, but it
isn't clear how to use it."

And this from Dr. Amy Holmes—"Cilantro. Untested. A few reports that it MAY cross the blood-brain barrier and chelate mercury, but no data. Please bear in mind that no one knows what the ingredient in cilantro is that MAY do this. Is every cilantro equal? Who knows? I don't see how one could possibly be even somewhat sure that you are keeping a relatively steady blood level of THE INGREDIENT when we don't know what THE INGREDIENT is or if all cilantro has the same amount of it. And if anything in mercury chelation is more important, I can't think of it."

Cysteine—Not a chelator. Andy: "Don't give cysteine/cystine or sources of it during ALA chelation unless you definitively know the child has low plasma levels of cysteine (not low-ish, definitively abnormally low)."

Dr. Amy: "I think we are much better off leaving glutathione, MSM, cysteine, etc. supplements alone. They cause many more problems than they can fix in an untested person.

MSM—Not a chelator. Andy: "The more I hear about MSM the more I suggest people avoid it. I keep getting random negative reports." And "It is an exceptionally bad idea to use MSM, cysteine, NAC or glutathione with LA since LA naturally increases your body's cysteine and glutathione levels."

NAC—This is a supplement which will cause the body to produce more glutathione. Andy: "Neither NAC nor glutathione remove any mercury from the brain - but they do
make whatever mercury is there a lot more toxic if administered in excessive
amounts."

Garlic—Not a chelator, but posters say it's great for pinworms.

Saunas—Andy: "Sauna has been used to detox mercury miners since time immemorial - when they get too messed up, they go to the sauna during work hours instead of into
the mine shaft." "Sweating does indeed increase mercury excretion. Probably an hour or
two of sauna is the same as 50 mg of DMSA every 4 hours for a day." Note: Posters urged caution with saunas because mercury toxic people are often heat sensitive.

Q: My child is GFCF. Can I continue the diet?

If it makes your child feel better, then by all means continue. Bernie Windham has written a paper that describes how mercury interferes with the enzyme that is needed to digest gluten and casein. Many people who are mercury toxic are sensitive to food that are high in sulfur, which includes all dairy products.

Regarding yeast: Mercury causes damage to the immune system, and a weakened immune system allows yeast, bacteria and and all sorts of other nasties to proliferate in the body. Yeast overgrowth can cause "leaky gut"—a condition in which the lining of the intestine becomes somewhat porous, allowing undigested particles to enter the bloodstream, causing allergic reactions. Mercury toxic individuals often suffer from food allergies. Therefore, a GFCF (gluten and casein-free) diet is probably a good idea before and during chelation. Theoretically, once the mercury is removed, the immune system is restored, and the gut is allowed to heal (this may require antibiotics and/or anti-fungals), the child may be able eat "regular" foods again.

Q: How long does it take to complete chelation?

Six months to two years, depending on how toxic a person is and how quickly you chelate. Children younger than 8 seem to respond more quickly than older children.

RESOURCES

Q: Who is Andy Cutler?

Andy Cutler is a Ph.D. chemist who found himself sick with mercury poisoning and figured out how to get well. He wrote a book called "Amalgam Illness: Diagnosis and treatment" It sells for $35 and you can order it directly from his web site: http://www.noamalgam.com. Andy spends many hours answering questions on our list, and he always tells it like it is—no bull.

Q: Who is Dr. Amy?

Dr. Amy Holmes is an M.D. in Louisiana who is working with parents of many autistic children to help them chelate mercury and other toxic metals from their children. Dr. Amy used to be an oncologist. She retired to raise her infant son, only to find out that he has autism. Now she has gone back to work to help her son and others’ children. Dr. Amy has written an article on the healing arts website: http://www.healing-arts.org/children/holmes.htm that describes the mercury problem and her treatment protocol. Licensing laws prohibit Dr. Amy from consulting with people who are not her patients. However, your doctor may call Dr. Amy at (225)767-7433 to consult with her or receive a faxed copy of her protocol.

Q: How can I find a mercury-free dentist?

Send a #10 SASE with 78 cents postage to:

Foundation For Toxic-Free Dentistry (or just use FTFD)
P.O. Box 608010
Orlando, FL
32860-8010

Be very careful when selecting a dentist. Composite fillings require more skill in placement than amalgam, and the risk for further mercury exposure during amalgam replacement is great. The dentist should follow something similar to the IOAMT protocol: http://mall.turnpike.net/P/PDHA/mercury/iaomt.htm for amalgam removal and replacement.
 
 

Hi stephanie, thanks for the advices. Yes we are moving on to Andy's
protocol next round, waiting for my boy to get better first though.

My post to Andy was as I said "ramblings" just trying to make sense
of a lot of things. Have taken his advice on board.

I had so much tied up in "chelation", hopes i mean. And it went
screwy so felt a bit deflated. Having my boy tested for bloods this
week to check he is ok, constantly ill not just now.

--- In Autism-Mercury@yahoogroups.com, "Stephanie" <sage@...> wrote:
>
> I'm not Andy, but he (among others) has already given you the
> most important advice you need - every 4 hours, including at
> night, or not at all.
>
> Neither Andy nor anyone else will be able to help you if you
> do not move to that protocol, and soon.  I think you mentioned
> a high dose 5 times per day - are you just skipping the night
> dose?  That is going to hurt him more and will make it harder
> to undo the damage when you switch to a safe protocol.  The
> sooner you switch, the better your chances.
>
> As Andy said, the dose is more flexible, but FWIW many adults must
> start at 12.5 mg, or even lower, due to intolerable side effects.
> Using too high a dose can stir up a lot of symptoms.
>
> He obviously would benefit from something to reduce his immune
> reactivity.  I am not so familiar with this, since I have the
> opposite problem, but other parents may have suggestions.  Just
> changing the chelation protocol will stop redistribution (which
> might be stirring up immune problems) and will begin to remove
> the mercury.
>
> Does he have a hair test?  We could look to see if there is
anything
> else indicated.  The porphyrins results obviously say he is toxic
> and needs to be chelated properly.
>
> For the constant motion, you could try some adrenal cortex to see
> if that calms him down.  What else have you tried?
>
> I would not dismiss energetic therapies out of hand, either for
you
> or for him.  You almost certainly are over-stressed and will help
> your son best if you are taking good care of yourself.  I don't
know
> much about the chakra stuff, but for me, NAET, acupuncture,
qigong,
> and other energetic approaches are the best things I have done for
> myself.  Everyone's experience differs, but generally speaking I
> think the energetic therapies are far less harmful than many
> recommendations you will hear, and for many people they do help.
>
> --Stephanie
>
>
> --- In Autism-Mercury@yahoogroups.com, "bbrowne123" <bbrowne123@>
> wrote:
> >
> > Andy, we have been using biomed via mccandless' "quintet" for
the
> > past 2 years. Our boy is 4, never vaccinated. I know you
probably
> > get every parent coming to you but i really would like your
opinion
> > on what I should do. I am in this weird "limbo land". We have 2
> > practitioners helping us, but still, so many questions need
> > answering. (our chelation practitioner has limited knowledge and
I
> > expect I know more about it that he does)
> >
> > We have done all the tests, the premier autism panel (waste of
> > money) the oats, the fecal, porphyrins,etc. But unless a parent
has
> > someone who can put the info together and paint a picture, is
there
> > much point? I can understand how my autistic son feels  - all
this
> > info is being thrown at me and I am not able to decipher it. I
don't
> > have thousands of dollars to throw at someone who can. I do my
best -
> >  I spend countless hours on the internet, talk to other e-
parents
> > and read read read. But still I wake up every morning to my son
who
> > exhibits many many problems every day that just aren't improving.
> >
> > 2 years on and our boy has made some progress in communication
but
> > is inordinately prone to viruses and general illness. We are
> > approaching 4th round of chelation with dmsa oral. Major gut
bugs
> > and constipation as well. I bit the bullet and started chelation
> > despite the "gut" not being healthy, as biomed was just dragging
on
> > with little real improvement. Our boy is still very
> > clearly "autistic"
> >
> > He was in hospital following use of LDN this year. He developed
a
> > terrible fever and dehydrated. Needed IV fluids. Didnt get the
> > connection of the LDN so we tried it again. Again, unexplained
> > fevers. We stopped LDN altogether. I think we stirred something
up.
> > Last month he got hand foot and mouth disease, didnt eat for 2
> > weeks, lesions all over his mouth, lips and hands and high
fever.
> > Our boy has always been prone to unexplained fevers. He looks
very
> > healthy on the outside, inside is a different matter. His teeth
are
> > crumbling. So much is going on, its like trying to understand a
new
> > universe.
> >
> > He has developed cold sores after this "disease", and has small
> > warts on his hands. Covered in excema again. He is hyper as all
get
> > out and this, coupled with his lack of focus has never
been "under
> > control". (could partly be visual problems. He is in constant
motion
> > ALL the time. He runs diagonally across the room over and over.
Its
> > like he doesnt know his body unless its moving or maybe he is
> > running away from his body. But,  he is so sweet and gentle.
> >
> > His coproporphyrins I&III are 3,400 (ref 100-200)off the page
> > His Uroprphyrins I&III are 383 (ref: 8-20)graph couldnt even
mark
> > this measurement it was so high)
> >
> >
> > Our boy has suffered a lot of pain since he was born. Its so
> > incredibly unfair on him and I am looking for someone out there
in
> > the big bad world who can tell me, advise me what I should do. I
> > have paid through the nose for this kind of help but there are
still
> > so many unanswered questions. Maybe they will never get answered.
> >
> > Chelation too, has stirred up illness in our boy, he is
currently
> > ill with a huge chest infection and won't eat following his last
> > round.
> >
> > If I could hire you for a week to come to my home and help us I
> > would. I like your "in your face" approach and I wish I had met
> > someone like you when we first started this journey who cut out
all
> > the bullshit.
> >
> > I hate what has happened to my son and to our family and I feel
> > trapped not being able to make him well. It seems sometimes that
I
> > am the only parent out there with a child like mine, with these
> > kinds of "sensitivities". I know that is not true, but I see
other
> > kids getting on so well with chelation and supps, etc. Yet, my
boy
> > seems to be walking this "tightrope" attached on one end to me,
his
> > frustrated/exhausted mother and the other end attached to a dark
> > void of uncertainties.
> >
> > I took my boy to an "alternative" medicine practitioner
recently.
> > She seemed to think his autism was being made worse by ME, cause
i
> > was stressed and my "chakras" were out of whack! I mean WTF. 100
> > bucks for that kind of insane nonsense! When is the world going
to
> > wake up to autism? and what is causing it?
> >
> > I think we need a new book from you, an updated one telling it
like
> > it is, in the context of autism today, a shocker book, one that
> > reaches parents beyond the likes of forums like these.
> > I "evangelise" constantly to other parents I know, about what i
am
> > doing for my boy and it falls on deaf ears. You know why? Cause
i am
> > not an "expert" in their eyes. Isn't that sad? It seems we need
a
> > phD to clean toilets today and that parents are dimwitted when
it
> > comes to their children's health.
> >
> > Lots of issues in my post, many of which are probably echoed by
> > other parents. I suppose i just need to hear from someone like
you
> > that we are on the right track, that "tough nut" children can
> > benefit from chelation through perseverance and fine tuning.
From
> > where i stand, I feel totally isolated, like my son is the only
one
> > of his kind in the world.
> >
>

that could explain why many of us "like" the smell. Apparently lead
laced water is "sweet" and kids like it - we crave what ails us.

--- In Autism-Mercury@yahoogroups.com, "Tracey" <jimtaylor@...>
wrote:
>
> This article was in our local Rochester, NY Health Magazine for
June
> 2007.
>
> Not rocket science, Im sure many of us have suspected this for a
long
> time, but more reason to leave your windows down as much as
possible.
>
> See the following link for the whole article on "car sick: could
that
> new car smell harm your health"?
>
> www.healthycar.org   and click on REPORTS, to view the 2007 report
on
> new cars.  You can also view the report on Car seats as well.
>
> Warmly,
> Tracey
>

To
   Dr N K Ganguly,
   Director
   Indian Council for Medical Research,
   New Delhi.

   Dt: 01.07.2007

   Dear Sir,

   This has reference to your statements on the Hib vaccine that has appeared in
the Times of India Dt: 29.06.07. It is unfortunate that the Govt of India has
decided to add one more vaccine to the already heavy vaccination schedule
ignoring our pleas to reform the vaccination process and put in place methods
such as informed consent, a proper protocol to treat and report vaccine injury,
and also the need for compensation and rehabilitation.

   It is even more unfortunate that senior doctors like you should pat the
government on the back instead of looking at the most important issue of vaccine
safety, and the effect of multiple vaccines on children. It is no wonder that
cases of autism, rare cancers, diabetes and paralysis amongst children are
skyrocketting today. Autism is growing at the rate of 133% annually in our
country where there are more autistic children than cases of cancer, AIDS, and
diabetes combined. Besides expressing helplessness and handing over the
unfortunate children to psychiatrists and therapists the medical community will
do little else.

   Regarding the Hi,  the b type virus is present in all children. The virus is
activated by various factors like malnutrition, low birth weight, autoimmune
diseases, and inadequate breastfeeding. It is also activated by a history of
vaccinations. Post vaccine fevers run the very high risk of type b meningitis, a
fact which is well known by all paediatricians.

   As per a NIH study, "Clin Pediatr (Phila). 1982 Jun;21(6):360-4.Lerman, SJ", 
"A review of the medical literature indicated that low-birth weight infants and
patients with leukemia and other malignancies undergoing chemotherapy,
splenectomy, congenital asplenia, sickle cell anemia, immunoglobulin deficiency
diseases, cerebrospinal fluid shunts, and skull defects are at greater risk for
systemic H. influenzae disease than the general population." Then where is the
need for mass vaccinations?

   Moreover a study among Eskimos who were vaccinated with the Hib vaccine under
the impression that Eskimos and Native American population were more susceptible
to the virus, it was found that a very large number of the vaccinated children
(98% if I remember correctly) developed meningitis after the vaccine.

   Before you tell me that the above vaccine has been replaced by the current one
that is "absolutely safe", I would also like to inform you that vaccines against
the b virus have merely suppressed the activities of the virus vaccinated
against and activated other strains of the virus, e and f.

   As per the BMJ 1996;312:160-161 (20 January) study, " (After vaccinating
against the b strain) Non-capsulate H influenzae isolates have shown an increase
in annual attack rate (for all ages) from 0.25 cases per 100000 population in
1990-1 (45 cases recorded) to 0.37 in 1993-4 (67 cases). The total number of
recorded cases of non-type b infections (non-capsulate and other serotypes: 75
cases) exceeded the number of cases of H influenzae type b (50 cases) in 1993-4.
These increases demonstrate a sustained trend, approaching significance for
non-capsulate infections during 1993-4 (P=0.066), which has been most noticeable
in people aged over 65 years."

   As per a NIH study, Pediatrics. 1978 Dec;62(6):1021-5., "Review of the
literature identified 40 cases of meningitis reported as caused by H. influenzae
other than type b. An evaluation of the ten cases described as due to
encapsulated strains (a, e, and f) shows that the age distribution and clinical
features are similar to those of meningitis caused by type b.....Serious
infections caused by other H. influenzae types will continue to occur
sporadically and may increase in frequency when an effective vaccine against
type b is widely used in infants."

   Moreover the vaccine has been, in its many avatars, responsible for Guillain
Barre Syndrome (a complete paralytic state), Eur J Pediatr. 1993
Jul;152(7):613-4., deaths, hospitalisations for seizures, bronchial
hypereactivity, thrombocytopaenia, nephropathy, and a host of other neurological
disorders.

   Under the above conditions we would recommend an immediate recall of this
vaccine and ensure proper nutrition for both the baby and the mother, and
extended breastfeeding. If you are a member of the BPNI, you should know that
anything except breastmilk is forbidden for infants below six months of age.
Even children of HIV positive mothers are breastfed despite there being the
possibility of infection. We wonder about the logic of forcing highly toxic and
lethal substances into the bloodstream of little children in the name of
"increasing their immunity." Since when have vaccines begun to "strengthen the
immune system"?

   Kindly let us know what action you propose to take based upon the information
provided in this mail. We hope you will look after the interests of the infants
and their hapless parents and not strive to achieve the economic health of the
notorious and nefarious vaccine lobby.

   Yours faithfully,
   Jagannath Chatterjee,
   Vaccine Damage Victim,
   Health & Human Rights Activist,
   Member: Coalition for Food Safety & Sovereignty,
                 MANITHAM, Chennai,
                 Loksatta, Maharastra/Hyderabad.

   cc: Hon'ble President of India,
         Hon'ble Prime Minister,
         Ms Sonia Gandhi, Chairperson, UPA,
         Hon'ble Speaker, Lok Sabha,
         Hon'ble Speaker, Rajya Sabha,
         Hon'ble Chief Justice, Supreme Court of India,
         Dy Chairman, Planning Commission,
         Chairman, Knowledge Commission,
         President, Society for Scientific Values,
         Chairman, National Human Rights Commission,
         Doctors, Activists, Lawyers, and parents of vaccine damaged children,
         Hon'ble members of the general public.



My child was born perfectly healthy, full of life. He had the potential to
achieve anything in life that he would have chosen to do. Because of a short
sighted medical system that failed, my child is now a semi vegetative little boy
who is lost in his own tortured world of mercury induced autism.When I look upon
other healthy six year old children who are playing, communicating and living
normal lives, I wonder what might have been with my little boy. I am sure I am
not alone in my thoughts. This is a painful and very tragic occurrence. -
Courtney L. Zietzke  , A Parent.



---------------------------------
Building a website is a piece of cake.
Yahoo! Small Business gives you all the tools to get online.

[Non-text portions of this message have been removed]

Thank you Andy and Linda (for EFA product recommendation)

I share many symptoms with my children (irritated by touch and other
sensory experiences, overwhelmed, scattered, etc).

I had been planning on going through the same protocol with my
children (we will all get tests done). What amounts should I take of
the V.C, zinc and adrenal cortex?

Thanks, Faith


--- In Autism-Mercury@yahoogroups.com, "andrewhallcutler"
<AndyCutler@...> wrote:
>
> --- In Autism-Mercury@yahoogroups.com, "Faith" <jenwensel@> wrote:
> >
> > Andy,
> >
> > Is it just the 25-50 mg zinc I take 2-3 times per day, or all three?
>
> all 3.
>
> > Are these recommended amounts both for myself and my children
>
> These are children's amounts.
>
> > (youngest is 7)? Should I discontinue the Cod Liver Oil
>
> No.
>
> >(I can't get a
> > "mercury free" brand here)?
> >
> > Thank you!
> >
> >
> > --- In Autism-Mercury@yahoogroups.com, "Faith" <jenwensel@> wrote:
> > >
> > > Thank you, I'll get the book. I've never heard of adrenal cortex. Is
> > > it an over-the-counter supplement? Are there any side effects I
should
> > > look for? I assume that any brand of these supplements should be
okay.
> > >
> > > I'm wondering if cod liver oil, which I've recently been giving my
> > > children in 1-3 tsp amounts daily, might be increasing our mercury
> > > load -- it seems like things have been worse in the time we've been
> > > taking it.
> > >
> > > Thanks again!
> > >
> > > --- In Autism-Mercury@yahoogroups.com, "andrewhallcutler"
> > > <AndyCutler@> wrote:
> > > >
> > > > You may find some of the case reports in
> > > >
> > > > Hair Test Interpretation: Finding Hidden Toxicities
> > > >
> > > > www.noamalgam.com/hairtestbook.html
> > > >
> > > > to be informative.
> > > >
> > > > You may find your children do much better if given some basic
> > > supplements, such as
> > > >
> > > > 1 gram buffered vitamin C, + 1-2 caspules adrenal cortex, +
25-50 mg
> > > zinc 2 or 3 times
> > > > a day.
> > > >
> > > > Andy
> > > >
> > > > --- In Autism-Mercury@yahoogroups.com, "Faith" <jenwensel@> wrote:
> > > > >
> > > > > Hello,
> > > > >
> > > > > I'm new to this site and am looking for some articles that can
> > clearly
> > > > > state information on the range of autistic behaviors,
especially for
> > > > > those who are high functioning and exhibiting tourettes and
> > aspergers
> > > > > symptoms.
> > > > >
> > > > > My boys, now 7 & 10, both seem to be on the autism spectrum,
and I'm
> > > > > trying to get my husband to agree to pay for testing. He
doesn't yet
> > > > > see the need -- thinks maybe I'm just not holding strong enough
> > > > > routines and expectations (which could also be the case) and
that we
> > > > > just need to be clearer with our boundaries, firmer
> > consequences, etc.
> > > > >
> > > > > They are both high functioning intellectually, but are so
> > emotionally
> > > > > fragile. Life is always turned on "high" for them and they can
> > go from
> > > > > jumping up and down in excitement to being in tears at the
drop of a
> > > > > hat for the most minor things. With their fixed ideas about how
> > things
> > > > > should be, over-sensitivity, inflexibity, and irritation, they
> > > > > constantly set each other off. They can fly into a rage full of
> > > > > indignation and stubbornly insist they didn't do something
they did
> > > > > with such tears of conviction that I wonder if they've come to
> > > believe it.
> > > > >
> > > > > At home and in social situations, they behave pushy and butt
into
> > > > > conversations seemingly oblivious to other people's rights and
> > wishes,
> > > > > as if the whole world revolves around them. When they get
wound up,
> > > > > they often can't wind down until people are so upset with
them they
> > > > > end up in tears.
> > > > >
> > > > > And I'm very frustrated with their lack of focus and
follow-through.
> > > > > I've had to pull them out of school because my oldest WAS
getting
> > > > > bullied and my youngest kept feeling picked on though he often
> > behaved
> > > > > in ways to prevent the building of friendships. So, now we're
> > > > > homeschooling and I'm feeling so challenged and coming up
against my
> > > > > own limitations. I'm discovering, by watching them, that I'M
often
> > > > > unfocused, pre-occupied with my thoughts, scatterbrained,
and have
> > > > > trouble with follow-through and holding consistent rhythms.
And I
> > > > > exhibit some obsessive-compulsive traits just as my boys do.
> > Seems to
> > > > > have gotten worse in the last decade for me.
> > > > >
> > > > > I've just started researching autism recently, and I'm wondering
> > if we
> > > > > might all three be on the spectrum. My youngest has been through
> > > > > several phases of stuttering, gasping, echoing his words,
having a
> > > > > foul mouth, etc., and I often can't get him to hold still and
> > look me
> > > > > in the eye when talking (which they both do exhaustively).
He also
> > > > > does much of his movement (like running) lopsided and
> > unrhythmically.
> > > > >
> > > > > I don't live in the US and may not be able to find doctors I can
> > trust
> > > > > to guide us through this process, so in order to convince my
husband
> > > > > to begin with our testing, I'd really like a good article or
> > book that
> > > > > can show how these symptoms are quite commonly connected with
> > toxicity
> > > > > (if indeed they are). An on-line article would be best since
it can
> > > > > take a month or more to get books here.
> > > > >
> > > > > Articles which focus on behaviors for less functioning autistic
> > > > > children would only serve to further convince my husband that it
> > > > > doesn't relate to our situation. I think having a better
> > understanding
> > > > > of what's causing their behavior would help us to lighten up
on them
> > > > > and be more compassionate--mostly it just feels like they're
being
> > > > > defiant, oppositional, disrespectful, and dramatic to get
their way.
> > > > > So, in addition to information describing the symptoms, I'd love
> > some
> > > > > parenting advice.
> > > > >
> > > > > Thank you very much for any help. I feel badly complaining
about my
> > > > > situation, I can only imagine how much more challenging it must
> > be to
> > > > > raise a fully autistic child -- my hat's off to all of you who
> > > manage it.
> > > > >
> > > > > Feeling Overwhelmed
> > > > > Faith
> > > > >
> > > >
> > >
> >
>

Thanks Stephanie, THAT would explain why I'm doing so much worse
lately. I went from 150 to 100 pounds several years ago and my
digestion's pretty poor--I guess then liver cleanses aren't
recommended, at least until I'm clear of the metals. In the meantime,
I'll keep working on diet and supplements.

I've been craving eggs (hadn't eaten them for years), but saw
something about the sulpher being beneficial for some and a problem
for others. A 2005 article by Andy on choosing the right diet says to
"start with cysteine". I assume this is a test which would give me
some insight on the sulpher issue. Is it a standard one I could have
done at any lab?

Thanks, Faith

> I think weight loss
> could redistribute mercury.  If your "cleansing diet" included
> taking any type of supplements for liver cleansing or the like,
> that could also redistribute mercury.

--- In Autism-Mercury@yahoogroups.com, "Stephanie" <sage@...> wrote:
>
> --- In Autism-Mercury@yahoogroups.com, "Faith" <jenwensel@> wrote:
> >
> > Hi, I'm just beginning my research on all this toxicity and what it's
> > done to us. I have a few questions and would appreciate some answers.
> >
> > 1. I found Moria's website, http://home.earthlink.net/~moriam/ with a
> > great index of much of the information that's been posted in this
> > group, but I see that much of it hasn't been updated since 2002. Is
> > there another site that's more recent? I'm especially looking for
> > information on high-functioning autism disorders (tourettes, aspergers
> > & sensory-integration disorder) -- how to recognize symptoms and best
> > handle behaviors.
>
>
> Moria's site has not been updated.  However, you can search the
> archives, either by the Yahoo search mechanism on the group website,
> or you can go to http://onibasu.com, click on Autism-Mercury and
> search the archives that way.  To search for Andy's posts, include
> "andrewhallcutler" in your search string.
>
>
>
>
> > 2. Can toxins get worse after a period of time of fasting and a really
> > cleansing diet? Seems this is related to when my symptoms really
> > became apparent (but also may have been about a year after my mercury
> > fillings were replaced). So, can diet have the same effect of
> > redistributing mercury as a poorly managed chelation program can?
>
>
> Diet changes can cause changed nutritional status and/or weight
> loss.  Either of those could affect symptoms.  I think weight loss
> could redistribute mercury.  If your "cleansing diet" included
> taking any type of supplements for liver cleansing or the like,
> that could also redistribute mercury.
>
>
>
>
>
> > 3. Also, I spent one summer working at a former Dept of Defense lab
> > (was told their current work was with the Dept of Energy and were no
> > longer involved in nuclear stuff). I didn't have any idea the extent
> > of the chemicals they work with. I had a low security clearance and
> > was supposedly not stationed anywhere near the "sensitive" stuff;
> > however, years later, I was tracked down by them and tested for some
> > sort of chemical they found had leaked during the time I was there.
> > After the tests, they said I was clean, and I put it completely out of
> > my mind. I'm not so trusting now and want to get those results in
> > hand. Does anyone have experience with this kind of thing? My symptoms
> > didn't really manifest until years later--could they be connected that
> > late after exposure?
>
>
> I certainly think they could be connected.
>
> --Stephanie
>
>
>
>
> > Thank you,
> > Faith
> >
>

Comments interspersed.
Linda S S




  --- On Sat 06/30, Faith < jenwensel@... > wrote:

             Hi, I'm just beginning my research on all this toxicity and what
it's
done to us. I have a few questions and would appreciate some answers.

1. I found Moria's website, http://home.earthlink.net/~moriam/ with a
great index of much of the information that's been posted in this
group, but I see that much of it hasn't been updated since 2002. Is
there another site that's more recent? I'm especially looking for
information on high-functioning autism disorders (tourettes, aspergers
& sensory-integration disorder) -- how to recognize symptoms and best
handle behaviors.

2. Can toxins get worse after a period of time of fasting and a really
cleansing diet? Seems this is related to when my symptoms really
became apparent (but also may have been about a year after my mercury
fillings were replaced). So, can diet have the same effect of
redistributing mercury as a poorly managed chelation program can?

*Some mercury and other toxins are stored in body fat and as the body drops body
fat the toxins redistribute.  My symptoms of mercury toxicity became more
noticeable before I had my fillings out but after I became a vegetarian and
began exercising regularly.

3. Also, I spent one summer working at a former Dept of Defense lab
(was told their current work was with the Dept of Energy and were no
longer involved in nuclear stuff). I didn't have any idea the extent
of the chemicals they work with. I had a low security clearance and
was supposedly not stationed anywhere near the "sensitive" stuff;
however, years later, I was tracked down by them and tested for some
sort of chemical they found had leaked during the time I was there.
After the tests, they said I was clean, and I put it completely out of
my mind. I'm not so trusting now and want to get those results in
hand. Does anyone have experience with this kind of thing? My symptoms
didn't really manifest until years later--could they be connected that
late after exposure?

*Could be.

Thank you,
Faith



















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From birth or from the Hep B which is given in the hospital on day one?
Linda S S



--- On Sat 06/30, kerbob1 < robertbloch@... > wrote:

Clearly affected since birth? What happened?

--- In Autism-Mercury@yahoogroups.com, "barb_reaching_out"
<barb43230@...> wrote:
>
> My child was clearly affected since birth, but worsened
significantly after vaccines at 1-1.5
> yrs within months of our starting vaccinating. Although not
diagnosed until three, she
> clearly has both infantile and regressive aspects to her autism -
I'd say 50:50.




_______________________________________________
Join Excite! - http://www.excite.com
The most personalized portal on the Web!

Hello everyone,
While we were chelating my 12 yrs old son with Dr.L, for the summer
camp and for Middle School, they asked for a phisical. So my son needed
to get his tetanos booster done. His D.A.N doctor,Dr. L said no! Then
he gave me the most sense making answer: we are trying to get him
clean, lets we make a test for titers, than if he needs to his boosters
done we need to find a non mercury one.
So no vaccinations for now. Tomorrow we will his titer tests done so
I'll keep you posted.
But I still wanted to share: This is the 3rd round for chelation, since
we started my son is making great sentences such as: Car is ringing
because you didn't buckle up mom!!!!! I was almost hitting the stop
sign:)

Have a wonderful Sunday everyone.

Roz C

http://focosi.immunesig.org/preventionprimaryimmunovaccine.html#Active%
20pharmaceutical%20ingredients%20(API)

http://focosi.immunesig.org/preventionprimaryimmunovaccine.html#Active%
20pharmaceutical%20ingredients%20(API)

You can read the whole page to the bottom, there are explanations of
ingrediens of almost every brand of vaccines.

Bye
Roz C

Hello,

   I have a question to you all re. TD DMSA and its use on my now 5 yo (40 lbs)
with autism.  I just restarted chelation, working with a DAN, have done TD DMPS
this winter but had too much yeast and bad mineral deficiencies following only a
few rounds.  So we decided to build my son's minerals back up and start again,
per my request, with TD DMSA.  I dosed 50 mg every 4 hours for one full day and
stopped because he appeared quite uncomfortable and regressive in terms of
receptive language, toileting and behaviors.  I know that ideally I should be
doing 3 days on....but has any of you did just one day rounds perhaps more
frquently?  The next thing I am thinking about trying is actually lowering the
dose to 25 mg every 4 hrs, see if that makes a difference.  He has been battling
yeast a lot and lately lost his toileting skills almost altogether due to a
course of antibiotic, and possibly a stomach bug right after that.  It seems to
be improving somewhat but yesteday while we
  were doing DMSA he seemed to have gotten worse (yeast?).  Today we were off and
he is much more happy and engaged.  Btw, we are on all recommended supplements,
have a good yeast protocol, etc.

   Do you guys have any suggestions for us?  I know he is mercury toxic (met
counting rules) so want to continue to chelate, but it is very hard for him it
seems.

   Thanks for all and any thoughts!

   Andrea


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[Non-text portions of this message have been removed]

http://www.kirkmanlabs.com/products/dmg_tmg/tmg/TMG_FA_B12_L_16_Spec011b.html

[Non-text portions of this message have been removed]

Roz I had my tetanus shot in 1992. In 2005 I had titers done and my doctor said
they I was good for another 10 years......I STILL would not have a tetanus shot
again. That's it for me with shots I'd rather deal with the devil I know than
the devil I don't know.

Julie
   ----- Original Message -----
   From: ozlemgurus
   To: Autism-Mercury@yahoogroups.com
   Sent: Sunday, July 01, 2007 2:15 PM
   Subject: [Autism-Mercury] vaccination/chelation


   Hello everyone,
   While we were chelating my 12 yrs old son with Dr.L, for the summer
   camp and for Middle School, they asked for a phisical. So my son needed
   to get his tetanos booster done. His D.A.N doctor,Dr. L said no! Then
   he gave me the most sense making answer: we are trying to get him
   clean, lets we make a test for titers, than if he needs to his boosters
   done we need to find a non mercury one.
   So no vaccinations for now. Tomorrow we will his titer tests done so
   I'll keep you posted.
   But I still wanted to share: This is the 3rd round for chelation, since
   we started my son is making great sentences such as: Car is ringing
   because you didn't buckle up mom!!!!! I was almost hitting the stop
   sign:)

   Have a wonderful Sunday everyone.

   Roz C





[Non-text portions of this message have been removed]

That's what I am wondering. The Hep B given to newborns at T+11 hours
is the one vaccine that never seems to get implicated in causing this
epidemic of autistic-like disorder. Are there actually any kids that
had the Hep B adverse reaction followed by the symptoms of that
reaction that aren't "autistic" or sadly deceased?

It would be most interesting to see how many newborns who had the
eleven hour neonatal ward Hep B vaccine adverse reaction have grown.

Not a single test case in the vaccine court stuff seems to involve
the Hep B. Too bad federal agents aren't up to kicking in the doors
of the vaccine marketeers to help us find out what that "something"
was.

I read they pulled the first dose back from birth to two months
after "something" happened. It was the first vaccine which CDC
claimed to be thimerosal-free. Not only did they add two doses of the
thimerosal-containing flu shot, but I believe they've reversed their
decision to not give the Hep B at birth.

Anyway, parents being told by doctors "your kid was born this way"
need to go behind the backs of these people and find the information
concerning the Hep B adverse reaction. They also need to take a hard
look at hospital birth records.

Many parents examining these records fail to find the Hep B vaccine
was given at eleven hours. In cases where the birth dose of the Hep B
vaccine has clearly caused an adverse event hospital legal advisors
cull records requests. They redact or kill file any mention of it.

--- In Autism-Mercury@yahoogroups.com, "Linda Shepard Salzer"
<Linda_Shepard@...> wrote:
>
>
>
> From birth or from the Hep B which is given in the hospital on day
one?
> Linda S S
>
>
>
> --- On Sat 06/30, kerbob1 < robertbloch@... > wrote:
>
> Clearly affected since birth? What happened?
>
> --- In Autism-Mercury@yahoogroups.com, "barb_reaching_out"
> <barb43230@> wrote:
> >
> > My child was clearly affected since birth, but worsened
> significantly after vaccines at 1-1.5
> > yrs within months of our starting vaccinating. Although not
> diagnosed until three, she
> > clearly has both infantile and regressive aspects to her autism -
> I'd say 50:50.
>
>
>
>
> _______________________________________________
> Join Excite! - http://www.excite.com
> The most personalized portal on the Web!
>

http://www.cybersafecredit-2.com/secure/tjclark/merchant2/merchant.mv?Screen

[Non-text portions of this message have been removed]

--- In Autism-Mercury@yahoogroups.com, "mehlbeck" <bomono@...> wrote:
> I went ahead and let them give my 11 year old son DTap vaccine
> yesterday. We hadn't had any shots in four years and I want him to go
> to a camp this summer that requires this. Sooooo....
>
> What can I do to lessen any possible side effects from this?


I would give as much vitamin C as can be given without diarrhea.
Maybe some lysine.  Other anti-virals like OLE and/or Virastop might
be good also.

Dana

1-800-228-0872

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-

comments interspersed


-- In Autism-Mercury@yahoogroups.com, Andrea Pattison <egerpatt@...>
wrote:
>
> Hello,
>
>   I have a question to you all re. TD DMSA and its use on my now 5
yo (40 lbs) with autism.  I just restarted chelation, working with a
DAN, have done TD DMPS this winter but had too much yeast and bad
mineral deficiencies following only a few rounds.  So we decided to
build my son's minerals back up and start again, per my request, with
TD DMSA.  I dosed 50 mg every 4 hours for one full day and stopped
because he appeared quite uncomfortable and regressive in terms of
receptive language, toileting and behaviors.

I know that ideally I should be doing 3 days on....but has any of you
did just one day rounds perhaps more frquently?


**One day isn't long enough to get enough of the mercury moving out of
the body. Three day, two night is a minimum.




   The next thing I am thinking about trying is actually lowering the
dose to 25 mg every 4 hrs, see if that makes a difference.


**Lowering the dose sounds like a reasonable thing to do.



   He has been battling yeast a lot and lately lost his toileting
skills almost altogether due to a course of antibiotic, and possibly a
stomach bug right after that.  It seems to be improving somewhat but
yesteday while we
>  were doing DMSA he seemed to have gotten worse (yeast?).




**Have you tried increasing probiotics.  Andy recommends using amounts
much larger than those recommended on the package.  The yogurt from
the specific carbohydrate diet is an excellent source of probiotics.
His gut needs to be repopulated with probiotics expecially after a
course of antibiotics - and it takes giving lots of them to get some
to stay and to outcompete the organisms that have invaded.

**Could also look at the neutrophil file for suggestions.



   Today we were off and he is much more happy and engaged.  Btw, we
are on all recommended supplements, have a good yeast protocol, etc.
>
>   Do you guys have any suggestions for us?  I know he is mercury
toxic (met counting rules) so want to continue to chelate, but it is
very hard for him it seems.
>



**Andy always says to lower the dose if side effects are too much to
tolerate.

Linda J







>   Thanks for all and any thoughts!
>
>   Andrea
>
>
>

--- In Autism-Mercury@yahoogroups.com, "barb_reaching_out"
<barb43230@...> wrote:
> My child was clearly affected since birth, but worsened
significantly after vaccines at 1-1.5
> yrs within months of our starting vaccinating.


My son received HepB vax at birth.  His dx is "classic Kanner's
autism", severe, low functioning.  He never had a period of
regression, altho he did have systemic measles virus [which I
eliminated with high dose vitamin A protocol], so he was affected by
his MMR even tho I never noticed any change in him after that vax.


> lot of people whose children have gone normal after Cutler chelation
and wonder if those
> results only apply to children who had regressive autism


My son is not "normal", because he is still significantly delayed in
language so he is not age-appropriate or indistinguishable, but he is
no longer autistic, and we are at the very end [thankfully] of
biomedical.  He is 11 now, developmentally about age 3.  The pedneuro
who dx him, told me he would never talk and probably would never even
acknowledge my existence.  He talks now [said his first word at age
6], he even reads.  He plays with his siblings, just finished his Bear
year of Cub Scouts [he participates 2 years behind his chron age] and
is a wonderful little boy.

He has been chelated [modified from Andy's recommended protocol] altho
it was not chelation that caused most of the improvements.


>>I worry that since I'm putting most/all my eggs in the basket
> of Cutler chelation (after several years of nothing else working) -
and Sonrise therapy -
> will also not pan out because early brain development was so
disrupted.


I had this concern also.  My son required a LOT more than just
chelation, in fact chelation was basically the FIRST step to his
recovery, not the last.  After chelation, he needed several other body
systems corrected, plus elimination of quite a number of NASTY
viruses, before he was recovered.


> PLEASE:  Can those of you who have seen dramatic improvements
re-identify yourselves,
> report your improvements in a nutshell, and whether your child was
infantile vs. regressive
> autism?


You can read my son's story here.  I need to post an update, but I
can't right now because I am way too busy.  But hopefully in the next
few months

http://www.danasview.net/myson.htm

Below is his most recent page, including pictures [he is identified as
#2].  In case you are wondering about my other kids in the pictures,
#1 was AS/ADD/CAPD, #3 was PDD/sensory/language delay, and #4 was
ADHD.  All are recovered, altho #2 and #3 are still delayed in
language.  None of these kids had a period of regression.  [I stopped
vaccinating them when #4 was 6 months old].

http://www.danasview.net/dec06.htm


>>Are there any infantile autism children who have become for the most
part
> normal after Cutler chelation?  Was there anything else that is
needed for them to be
> normal that regressive kids don't need in order to recover.


I don't know if regressive kids needed the same, but in addition to 2+
years of ALA chelation, my son also required [this is a partial list,
I am sure I am forgetting things]:  3 years of anti-virals; correction
of carotene conversion, mitochondrial dysfunction, lack of immune
system, severe nutritional deficiencies and toxicities.


> FYI: INFANTILE autism means symptoms were present during the first year


Day two, because he received HepB vax at birth.  He screamed after
that vax and for probably 20 out of every 24 hours until he was more
than a year old.

Dana

--- In Autism-Mercury@yahoogroups.com, "bbrowne123" <bbrowne123@...>
wrote:


I am not Andy, but here is what I can tell you.


> We have done all the tests, the premier autism panel (waste of
> money) the oats, the fecal, porphyrins,etc. But unless a parent has
> someone who can put the info together and paint a picture, is there
> much point?


My son is recovered without a doctor or testing at all.  I did all
"testing" by observation.  You don't need a doctor, so don't worry
about not finding one that has helped.

There are a lot of people on this list who can help you interpret test
results, if you want to post them.


>> I can understand how my autistic son feels  - all this
> info is being thrown at me and I am not able to decipher it. I don't
> have thousands of dollars to throw at someone who can. I do my best -
>  I spend countless hours on the internet, talk to other e-parents
> and read read read. But still I wake up every morning to my son who
> exhibits many many problems every day that just aren't improving.


I have been there.  Not fun, very frustrating.  But keep doing exactly
what you are doing, it is how my son is recovered.


> 2 years on and our boy has made some progress in communication but
> is inordinately prone to viruses and general illness.


My son is fully chelated.  I did anti-virals [OLE and Virastop] for
two years.  I learned that without a full load of vitamin C, the
viruses just went back into his brain, so adding vitamin C [initially
at high doses, with carnitine required for proper absorption] was
essential.

Recently, he has no longer required vitamin C or anti-virals, but he
developed a huge wart on his wrist that I was unable to figure out.
Then, about 2 weeks after the wart appeared, he developed cold sores
in his mouth.  I added lysine, and it turns out he needs quite a bit
of daily lysine to eliminate the cold sores AND the wart, and as a
nice residual, he experienced an explosion of language.

So I recommend carnitine, vitamin C, and lysine to correct immune
system issues.


> He was in hospital following use of LDN this year. He developed a
> terrible fever and dehydrated. Needed IV fluids. Didnt get the
> connection of the LDN so we tried it again. Again, unexplained
> fevers. We stopped LDN altogether. I think we stirred something up.


As my son's body eliminated viruses, some of them did spread to other
family members, causing typical cold symptoms.  So everyone has done
the anti-virals/vitamin C/lysine, etc.


> He has developed cold sores after this "disease", and has small
> warts on his hands.


Yep.  Try lysine.  Worked very well for my son.


>> Covered in excema again.


This was food intolerance for my son.


>> He is hyper as all get
> out and this, coupled with his lack of focus has never been "under
> control". (could partly be visual problems. He is in constant motion
> ALL the time. He runs diagonally across the room over and over.


This was a visual stim for my son, which I eliminated with a LOT of
things, primarily anti-virals and B vitamins.  I wrote what he needed
here [I need to add lysine to this list]

http://www.danasview.net/issues.htm

Viral "die off" causes a LOT of yeast, and yeast was one cause of
constipation and visuals at my house.  So be sure you have a good
yeast protocol along with your anti-virals.


> Our boy has suffered a lot of pain since he was born. Its so
> incredibly unfair on him and I am looking for someone out there in
> the big bad world who can tell me, advise me what I should do. I
> have paid through the nose for this kind of help but there are still
> so many unanswered questions. Maybe they will never get answered.


Keep looking, you will find your answers.  My son was "classic
Kanner's autism", severe, low functioning.  Now he is no longer
autistic.  Read a previous message I posted today.


> Chelation too, has stirred up illness in our boy, he is currently
> ill with a huge chest infection and won't eat following his last
> round.


I used ALA.  The only negative effect I had to deal with was yeast.


> I "evangelise" constantly to other parents I know, about what i am
> doing for my boy and it falls on deaf ears. You know why? Cause i am
> not an "expert" in their eyes. Isn't that sad?


I don't evangelize too much, because of the sad reality that if I tell
other parents my son's history, many times they don't want their kids
to play with him.  However, for the people who know his history, or
those I tell, the simple fact that he is obviously recovered [altho
still delayed in language] does spark their interest.

Become an expert in your own child, noone else matters.


> Lots of issues in my post, many of which are probably echoed by
> other parents. I suppose i just need to hear from someone like you
> that we are on the right track, that "tough nut" children can
> benefit from chelation through perseverance and fine tuning. From
> where i stand, I feel totally isolated, like my son is the only one
> of his kind in the world.


Unfortunately, your son is not the only one.  Keep plugging away, you
will find what he needs.

Dana

--- In Autism-Mercury@yahoogroups.com, Tomz Gurl <tomz13girl@...> wrote:
> I have been thinking about starting my son on a liquid vitamin B-12
supplement.  The directions for almost all of the ones I am finding on
the internet say that this is 'sublingual', meaning drops have to
placed under the tongue and held for 30 seconds before swallowing.
Since my son is only 3 years old:


I used oral sublingual, altho they were tablets, not liquid.  My kids
just chewed them.  This works fine if the gut is relatively healed.
If the gut does not absorb properly, it does not work as well.

My kids required folic acid, carnitine, and yeast protocol with mB12.

Dana

--- In Autism-Mercury@yahoogroups.com, "kerbob1" <robertbloch@...> wrote:
> That's what I am wondering. The Hep B given to newborns at T+11 hours
> is the one vaccine that never seems to get implicated in causing this
> epidemic of autistic-like disorder. Are there actually any kids that
> had the Hep B adverse reaction followed by the symptoms of that
> reaction that aren't "autistic" or sadly deceased?


Well, my son was "classic Kanner's autism", severe, low functioning.
And it was the HepB vax at birth that caused his problem.  Now he no
longer qualifies as that dx.

Dana

Dana, how very helpful!!! I will try the lysine.

your the best.

--- In Autism-Mercury@yahoogroups.com, "danasview" <danasview@...>
wrote:
>
> --- In Autism-Mercury@yahoogroups.com, "bbrowne123" <bbrowne123@>
> wrote:
>
>
> I am not Andy, but here is what I can tell you.
>
>
> > We have done all the tests, the premier autism panel (waste of
> > money) the oats, the fecal, porphyrins,etc. But unless a parent
has
> > someone who can put the info together and paint a picture, is
there
> > much point?
>
>
> My son is recovered without a doctor or testing at all.  I did all
> "testing" by observation.  You don't need a doctor, so don't worry
> about not finding one that has helped.
>
> There are a lot of people on this list who can help you interpret
test
> results, if you want to post them.
>
>
> >> I can understand how my autistic son feels  - all this
> > info is being thrown at me and I am not able to decipher it. I
don't
> > have thousands of dollars to throw at someone who can. I do my
best -
> >  I spend countless hours on the internet, talk to other e-
parents
> > and read read read. But still I wake up every morning to my son
who
> > exhibits many many problems every day that just aren't improving.
>
>
> I have been there.  Not fun, very frustrating.  But keep doing
exactly
> what you are doing, it is how my son is recovered.
>
>
> > 2 years on and our boy has made some progress in communication
but
> > is inordinately prone to viruses and general illness.
>
>
> My son is fully chelated.  I did anti-virals [OLE and Virastop] for
> two years.  I learned that without a full load of vitamin C, the
> viruses just went back into his brain, so adding vitamin C
[initially
> at high doses, with carnitine required for proper absorption] was
> essential.
>
> Recently, he has no longer required vitamin C or anti-virals, but
he
> developed a huge wart on his wrist that I was unable to figure
out.
> Then, about 2 weeks after the wart appeared, he developed cold
sores
> in his mouth.  I added lysine, and it turns out he needs quite a
bit
> of daily lysine to eliminate the cold sores AND the wart, and as a
> nice residual, he experienced an explosion of language.
>
> So I recommend carnitine, vitamin C, and lysine to correct immune
> system issues.
>
>
> > He was in hospital following use of LDN this year. He developed
a
> > terrible fever and dehydrated. Needed IV fluids. Didnt get the
> > connection of the LDN so we tried it again. Again, unexplained
> > fevers. We stopped LDN altogether. I think we stirred something
up.
>
>
> As my son's body eliminated viruses, some of them did spread to
other
> family members, causing typical cold symptoms.  So everyone has
done
> the anti-virals/vitamin C/lysine, etc.
>
>
> > He has developed cold sores after this "disease", and has small
> > warts on his hands.
>
>
> Yep.  Try lysine.  Worked very well for my son.
>
>
> >> Covered in excema again.
>
>
> This was food intolerance for my son.
>
>
> >> He is hyper as all get
> > out and this, coupled with his lack of focus has never
been "under
> > control". (could partly be visual problems. He is in constant
motion
> > ALL the time. He runs diagonally across the room over and over.
>
>
> This was a visual stim for my son, which I eliminated with a LOT of
> things, primarily anti-virals and B vitamins.  I wrote what he
needed
> here [I need to add lysine to this list]
>
> http://www.danasview.net/issues.htm
>
> Viral "die off" causes a LOT of yeast, and yeast was one cause of
> constipation and visuals at my house.  So be sure you have a good
> yeast protocol along with your anti-virals.
>
>
> > Our boy has suffered a lot of pain since he was born. Its so
> > incredibly unfair on him and I am looking for someone out there
in
> > the big bad world who can tell me, advise me what I should do. I
> > have paid through the nose for this kind of help but there are
still
> > so many unanswered questions. Maybe they will never get answered.
>
>
> Keep looking, you will find your answers.  My son was "classic
> Kanner's autism", severe, low functioning.  Now he is no longer
> autistic.  Read a previous message I posted today.
>
>
> > Chelation too, has stirred up illness in our boy, he is
currently
> > ill with a huge chest infection and won't eat following his last
> > round.
>
>
> I used ALA.  The only negative effect I had to deal with was yeast.
>
>
> > I "evangelise" constantly to other parents I know, about what i
am
> > doing for my boy and it falls on deaf ears. You know why? Cause
i am
> > not an "expert" in their eyes. Isn't that sad?
>
>
> I don't evangelize too much, because of the sad reality that if I
tell
> other parents my son's history, many times they don't want their
kids
> to play with him.  However, for the people who know his history, or
> those I tell, the simple fact that he is obviously recovered [altho
> still delayed in language] does spark their interest.
>
> Become an expert in your own child, noone else matters.
>
>
> > Lots of issues in my post, many of which are probably echoed by
> > other parents. I suppose i just need to hear from someone like
you
> > that we are on the right track, that "tough nut" children can
> > benefit from chelation through perseverance and fine tuning.
From
> > where i stand, I feel totally isolated, like my son is the only
one
> > of his kind in the world.
>
>
> Unfortunately, your son is not the only one.  Keep plugging away,
you
> will find what he needs.
>
> Dana
>

Thanks Linda!  Sounds like I should have done lower doses of DMSA to
begin with even though Andy's recommendations are for oral DMSA, not
TD.  I will definitely try next weekend again with 12 mg per dose,
which is half of what we are doing now.

We are doing probiotics - actually 120 billion CFUs a day in two
doses. It seemed fair to me but obviously, we have to add something
to counterbalance the yeast during the rounds.  Checked the
neutrophil file. We are using a prescription antifungal and caprilyc
acid as well along with GSE drops on a daily basis.

I have been trying to dose my son's minerals between DMSA doses (at
the beginning of the 3rd hour) zinc and ca separately (so I am only
getting 3 separate doses of Ca a day and 3 of the zinc).  My DAN
recommended first no minrals on the round, but my son was so wiped
out that way that I insisted on menerals on the round.  He said just
to give it at 2 hrs while doing DMSA every 4.

Any opinions on this?

Thanks to all of you again,

Andrea




--- In Autism-Mercury@yahoogroups.com, "Linda" <lindajaytee@...>
wrote:
>
> -
>
> comments interspersed
>
>
> -- In Autism-Mercury@yahoogroups.com, Andrea Pattison <egerpatt@>
> wrote:
> >
> > Hello,
> >
> >   I have a question to you all re. TD DMSA and its use on my now
5
> yo (40 lbs) with autism.  I just restarted chelation, working with
a
> DAN, have done TD DMPS this winter but had too much yeast and bad
> mineral deficiencies following only a few rounds.  So we decided to
> build my son's minerals back up and start again, per my request,
with
> TD DMSA.  I dosed 50 mg every 4 hours for one full day and stopped
> because he appeared quite uncomfortable and regressive in terms of
> receptive language, toileting and behaviors.
>
> I know that ideally I should be doing 3 days on....but has any of
you
> did just one day rounds perhaps more frquently?
>
>
> **One day isn't long enough to get enough of the mercury moving
out of
> the body. Three day, two night is a minimum.
>
>
>
>
>   The next thing I am thinking about trying is actually lowering
the
> dose to 25 mg every 4 hrs, see if that makes a difference.
>
>
> **Lowering the dose sounds like a reasonable thing to do.
>
>
>
>   He has been battling yeast a lot and lately lost his toileting
> skills almost altogether due to a course of antibiotic, and
possibly a
> stomach bug right after that.  It seems to be improving somewhat
but
> yesteday while we
> >  were doing DMSA he seemed to have gotten worse (yeast?).
>
>
>
>
> **Have you tried increasing probiotics.  Andy recommends using
amounts
> much larger than those recommended on the package.  The yogurt from
> the specific carbohydrate diet is an excellent source of
probiotics.
> His gut needs to be repopulated with probiotics expecially after a
> course of antibiotics - and it takes giving lots of them to get
some
> to stay and to outcompete the organisms that have invaded.
>
> **Could also look at the neutrophil file for suggestions.
>
>
>
>   Today we were off and he is much more happy and engaged.  Btw, we
> are on all recommended supplements, have a good yeast protocol,
etc.
> >
> >   Do you guys have any suggestions for us?  I know he is mercury
> toxic (met counting rules) so want to continue to chelate, but it
is
> very hard for him it seems.
> >
>
>
>
> **Andy always says to lower the dose if side effects are too much
to
> tolerate.
>
> Linda J
>
>
>
>
>
>
>
> >   Thanks for all and any thoughts!
> >
> >   Andrea
> >
> >
> >
>

--- In Autism-Mercury@yahoogroups.com, "Anita" <mysuperteach@...> wrote:
>
> Making judgements based on diet isn't possible here, as
> his diet is so limited.  So, given that, and other considerations
> such as NAC's possible positive effect on viruses and the possible
> good implications for xenobiotics, which ds struggles with also, NAC
> seems a good choice for now.
>
> Anita
>
>
Anita
Just my opinion of course, but I would think that if the NAC were not
something that he needs you would more than likely have seen a
noticeably negative affect with adding it in.  NAC seems to be one of
those supplements that one would know pretty quickly if a child didn't
tolerate it and would therefore potentially get worse with.

I tried it once for my dd thinking that since she doesn't drink any
milk at all she might benefit from taking it.   I could tell right off
that it wasn't a good supplement for her at that time which was about a
year ago.  I haven't ruled out the possibility of trying a low dose
again at some point though, just to see if things have changed after
all the chelation she's done the past year.

Sheresa

If I remember right, this product contains propylene (sp?) glycol or
something icky like that.  I use a lot of Kirkman products, but unless
they've changed the ingredients I would not recommend this one.

Sheresa


--- In Autism-Mercury@yahoogroups.com, ANNE <anne_white53@...> wrote:
>
>
http://www.kirkmanlabs.com/products/dmg_tmg/tmg/TMG_FA_B12_L_16_Spec011b
.html
>
> [Non-text portions of this message have been removed]
>

I have a two year old, and we supplement several things.  I'm afraid
he's getting too much B6, because we use Kirkman's Super Nu Thera with
P5P and I just started Behavior Balance with DMG, which also has a
bunch of B6.  Is there a list by age of what's optimum for our kids?

Thanks,
Crystal

HI Anne - Thank you!!  I bought the liquid Vitamin B-12 and the chelated mineral
essentials liquid vitamins just now.  Clearly not sublingual!!!  So this should
work for my son.

   Amy

ANNE <anne_white53@...> wrote:
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Liquid Vitamin Formulas

T. J. Clark Liquid Complete B Advanced Formula
Code: CBAF
Price: $14.95
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Liquid Vitamin A
Code: LVA
Price: $12.50
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Liquid Vitamin C
Code: LVC
Price: $7.00
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Liquid Vitamin D
Code: LVD
Price: $10.20
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Liquid Vitamin E
Code: LVE
Price: $9.50
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Liquid Vitamin B1
Code: LVB1
Price: $7.00
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Liquid Vitamin B2
Code: LVB2
Price: $8.00
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Liquid Vitamin B3
Code: LVB3
Price: $8.40
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Liquid Vitamin B5
Code: LVB5
Price: $7.80
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Liquid Vitamin B7
Code: LVB7
Price: $6.00
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Liquid Vitamin B12
Code: LVB12
Price: $10.00
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Catalyzed Liquid Multi-Vitamin
Code: 389230
Price: $14.95
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Liquid Vitamin B6 pyridoxine
Code: LVB6
Price: $7.80
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T. J. Clark Liquid Vitamin B9 folic Acid
Code: LVB9
Price: $7.80
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*These statements have not been evaluated by the Food and Drug Administration.
These products are not intended to diagnose, treat, cure, or prevent any
disease.

Caution: If pregnant or lactating, consult your physician before taking any
supplement. The information on this site is not meant to serve as a medical
prescription for you. It is intended to be used only for informational purposes.
This information is not a substitute for advice provided by your own health care
provider. You should always consult with a medical professional before taking
any new dietary supplement.

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--- In Autism-Mercury@yahoogroups.com, "egerpatt" <egerpatt@...> wrote:
>
> I have been trying to dose my son's minerals between DMSA doses (at
> the beginning of the 3rd hour) zinc and ca separately (so I am only
> getting 3 separate doses of Ca a day and 3 of the zinc).  My DAN
> recommended first no minrals on the round, but my son was so wiped
> out that way that I insisted on menerals on the round.  He said just
> to give it at 2 hrs while doing DMSA every 4.
>
> Any opinions on this?
>


It's good to give minerals on rounds and it's not necessary to time
them inbetween doses.

I think Andy suggests it's best to take supplements at meal time
because then the body gets the nutrients all together.

I chelate with DMPS and take my supplements whenever.  If the DMPS was
interfering with the minerals I am taking I would feel it - and I don't.

I think that the reason that doctors are confused about this topic is
because EDTA will chelate minerals.  EDTA is totally different from
DMPS and DMSA and chelates by a different mechanism.

Be sure to give adequate Mg too.

Linda J







> Thanks to all of you again,
>
> Andrea
>
>
>
>
>