The same doctor told me to do jsut that, namely to stop chelation to

give the myelination process a break. When I hesitated, he asked

me "when are you going to stop?" I said when I see a peak in my

kid's mercury levels (following regression in other metal loads) and

see them go down on tests and see him do better. He couldn't give me

a solid counterargument for that one, except to repeat that the

nerves need healing and that I have to decide at some point when to

stop.

I know that Andy thinks that what we see in the child is more

important than the test results. That makes sense to look at what

happens with the patient rather than go by test results alone.

But I still can't help but post this question: Is it unreasonable to

expect mercury and other metals to peak and go down on tests? Is

this not what's happening to you all? Or do you all get results all

over the place and solely rely on how your child is doing?

Given that my child is responding to every treatment that we try

very very slowly, I feel like I have no choice but to wait for

mercury to peak (his mercury levels are moving upward very very

slowly and other stuff like arsenic is moving up pretty fast, but we

haven't reached a peak yet, except may be with lead) and then go

down at some point to make any decision about what further to do

with chelation. Does mercury ever peak? Or am I waiting for Godot

here?

Thanks.

Beti

--- In Autism-Mercury@yahoogroups.com, "Beti" <mbdpargun@y...> wrote:

Is it unreasonable to

> expect mercury and other metals to peak and go down on tests? Is

> this not what's happening to you all?



I think it's reasonable if you're using hair tests. Urine and fecal

tests are too variable to rely on, imo.



So far with Julian, before chelation his toxic elements were kind of

medium, Hg almost zero. After 8 months of chelation they were high, Hg

still almost zero. After another 8 months the other toxic elements

were much lower, but Hg had doubled (still not out of the green, but

going up).



I'm not planning to stop until way after he has no more symptoms at

all, including yeast.



Nell

My sentiments exactly! Tracy and I are seeing the same doctor and

despite wide-ranged differences in our sons' tests and behavioral

results thusfar, he's suggested the same sort of suspension of the

chelation procedure to give the body a rest. This doctor also has

come up with a fairly complex formula that determines how much

mercury is "acceptable" in the body (don't ask me how and why he

came up with that, I can't even repeat it). He seems to think that

we cannot get rid of "all" heavy metals, therefore we can't keep

chelating forever. Oh, I don't know!

Nell, what you said earlier makes perfect sense to me: if you see

good results, keep chelating until you don't. And if you don't see

such great results, as in my case: well, as a mom, if I can't be

convinced that my child has dumped all the junk that he can possibly

and safely dump (and I tests do show that he has plenty of junk in

there), then I have no choice but to continue.

B.



--- In Autism-Mercury@yahoogroups.com, "lanellici" <lanellici@a...>

wrote:

>

> --- In Autism-Mercury@yahoogroups.com, "Beti" <mbdpargun@y...>

wrote:

> Is it unreasonable to

> > expect mercury and other metals to peak and go down on tests? Is

> > this not what's happening to you all?

>

> I think it's reasonable if you're using hair tests. Urine and fecal

> tests are too variable to rely on, imo.

>

> So far with Julian, before chelation his toxic elements were kind

of

> medium, Hg almost zero. After 8 months of chelation they were

high, Hg

> still almost zero. After another 8 months the other toxic elements

> were much lower, but Hg had doubled (still not out of the green,

but

> going up).

>

> I'm not planning to stop until way after he has no more symptoms at

> all, including yeast.

>

> Nell

>

So, as I ponder Dr Stewart's theory, I open up a bill just now from

Ty's pediatrician. It is a bill for $2.00 left over balance from

2/20/2003 for Ty's DTaP !!!!!!!!!

Well, I guess that is my sign guys.. I'll be with yah for quite a

while longer...lol!!!

Tracy







-- In Autism-Mercury@yahoogroups.com, "Beti" <mbdpargun@y...> wrote:

>

> My sentiments exactly! Tracy and I are seeing the same doctor and

> despite wide-ranged differences in our sons' tests and behavioral

> results thusfar, he's suggested the same sort of suspension of the

> chelation procedure to give the body a rest. This doctor also has

> come up with a fairly complex formula that determines how much

> mercury is "acceptable" in the body (don't ask me how and why he

> came up with that, I can't even repeat it). He seems to think that

> we cannot get rid of "all" heavy metals, therefore we can't keep

> chelating forever. Oh, I don't know!

> Nell, what you said earlier makes perfect sense to me: if you see

> good results, keep chelating until you don't. And if you don't see

> such great results, as in my case: well, as a mom, if I can't be

> convinced that my child has dumped all the junk that he can

possibly

> and safely dump (and I tests do show that he has plenty of junk in

> there), then I have no choice but to continue.

> B.

>

> --- In Autism-Mercury@yahoogroups.com, "lanellici"

<lanellici@a...>

> wrote:

> >

> > --- In Autism-Mercury@yahoogroups.com, "Beti" <mbdpargun@y...>

> wrote:

> > Is it unreasonable to

> > > expect mercury and other metals to peak and go down on tests?

Is

> > > this not what's happening to you all?

> >

> > I think it's reasonable if you're using hair tests. Urine and

fecal

> > tests are too variable to rely on, imo.

> >

> > So far with Julian, before chelation his toxic elements were

kind

> of

> > medium, Hg almost zero. After 8 months of chelation they were

> high, Hg

> > still almost zero. After another 8 months the other toxic

elements

> > were much lower, but Hg had doubled (still not out of the green,

> but

> > going up).

> >

> > I'm not planning to stop until way after he has no more symptoms

at

> > all, including yeast.

> >

> > Nell

> >

>

--- In Autism-Mercury@yahoogroups.com, "Tracy McDermott" <jtmcde@s...>

wrote:

>

> So, as I ponder Dr Stewart's theory, I open up a bill just now from

> Ty's pediatrician. It is a bill for $2.00 left over balance from

> 2/20/2003 for Ty's DTaP !!!!!!!!!





Send it in unwrapped pennies.



Dana

Or perhaps wrap each penny in a bill you've received for medical

services SINCE that DTaP.



--- In Autism-Mercury@yahoogroups.com, "danasview" <danasview@y...>

wrote:

>

> --- In Autism-Mercury@yahoogroups.com, "Tracy McDermott"

<jtmcde@s...>

> wrote:

> >

> > So, as I ponder Dr Stewart's theory, I open up a bill just now

from

> > Ty's pediatrician. It is a bill for $2.00 left over balance from

> > 2/20/2003 for Ty's DTaP !!!!!!!!!

>

>

> Send it in unwrapped pennies.

>

> Dana

>

It seems to me that if moving the metals around can in fact

damage/impair/whatever the myelin, that is all the more reason to

get them out of there.  The thread on MS, and various things I've

read about alzheimers, etc, convince me even further.  I'll bet

there are some kids who can finish the job on their own, and yes

chelation and detoxifying do put a stress on the body, but it would

seem in the best interests of kids' health now and in the future to

get rid of as many of the heavy metals (especially the ones that can

take a long time to get out like mercury and lead) as possible.

We've been told that "tiny" amounts of these things couldn't hurt

our kids in the first place, and we know that to be untrue.  In my

opinion, your choice is the best one Beti.



Anita



--- In Autism-Mercury@yahoogroups.com, "Beti" <mbdpargun@y...> wrote:

>

> My sentiments exactly! Tracy and I are seeing the same doctor and

> despite wide-ranged differences in our sons' tests and behavioral

> results thusfar, he's suggested the same sort of suspension of the

> chelation procedure to give the body a rest. This doctor also has

> come up with a fairly complex formula that determines how much

> mercury is "acceptable" in the body (don't ask me how and why he

> came up with that, I can't even repeat it). He seems to think that

> we cannot get rid of "all" heavy metals, therefore we can't keep

> chelating forever. Oh, I don't know!

> Nell, what you said earlier makes perfect sense to me: if you see

> good results, keep chelating until you don't. And if you don't see

> such great results, as in my case: well, as a mom, if I can't be

> convinced that my child has dumped all the junk that he can

possibly

> and safely dump (and I tests do show that he has plenty of junk in

> there), then I have no choice but to continue.

> B.

>

> --- In Autism-Mercury@yahoogroups.com, "lanellici"

<lanellici@a...>

> wrote:

> >

> > --- In Autism-Mercury@yahoogroups.com, "Beti" <mbdpargun@y...>

> wrote:

> > Is it unreasonable to

> > > expect mercury and other metals to peak and go down on tests?

Is

> > > this not what's happening to you all?

> >

> > I think it's reasonable if you're using hair tests. Urine and

fecal

> > tests are too variable to rely on, imo.

> >

> > So far with Julian, before chelation his toxic elements were

kind

> of

> > medium, Hg almost zero. After 8 months of chelation they were

> high, Hg

> > still almost zero. After another 8 months the other toxic

elements

> > were much lower, but Hg had doubled (still not out of the green,

> but

> > going up).

> >

> > I'm not planning to stop until way after he has no more symptoms

at

> > all, including yeast.

> >

> > Nell

> >

>

Hi everyone,



      so glad I found this group. I have a 7 yo daughter with autism. I'm not

sure I would call her high functioning. She does have some speech but is on

about a 3 yo level We just got her potty trained after 4 years of working on it.

She has a full time aide at school. She does toe wlaking, hand flapping and has 

severe sound sensitivity (especially phones)



     We can't afford alot for her.  I am also sick with multiple chemical

sensitivities and unable to work.I was able to refinance my car loan and get an

ION panel done for her which showed all the typical dediciencies A,E,zinc ,

selenium EFA's and some aminos also impaired kidney and liver function. I was

hoping to get her on TD-DMPS but can't afford all that right now.



      I do have a bottle of metal free spray that I was going to try. Does anyone

have experience with that?



     I would also appreciate any advice on chlorella or ALA if anyone has

experience with that.



    Thanks for your help and gald to be here..............Love  Jen







---------------------------------

  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.



[Non-text portions of this message have been removed]

Some people don't do well on Metal Free and some people don't feel

it does anything for them.  There are a few people that posted this product

made them feel better.  I took this and it made me feel better but I had

to stop taking it because it increased my period symptoms.  So I believe

some of the ingredients in it is estrogenic.



Metal Free is so expensive.  ALA is so darn cheap to buy.



Liz D.





> [Original Message]

> From: Jen West <jenn97420@...>

> To: <Autism-Mercury@yahoogroups.com>

> Date: 10/14/2005 3:30:38 PM

> Subject: Re: [Autism-Mercury] Hi I'm new and looking for chelation advice

>

>

>

>

> Hi everyone,

>>

>      I do have a bottle of metal free spray that I was going to try. Does

anyone have experience with that?

>

>     I would also appreciate any advice on chlorella or ALA if anyone has

experience with that.

>

>    Thanks for your help and gald to be here..............Love  Jen

>

--- In Autism-Mercury@yahoogroups.com, Jen West <jenn97420@y...>

wrote:

>

>

>

>

> Hi everyone,

>

>      so glad I found this group. I have a 7 yo daughter with

autism. I'm not sure I would call her high functioning. She does

have some speech but is on about a 3 yo level We just got her potty

trained after 4 years of working on it. She has a full time aide at

school. She does toe wlaking, hand flapping and has  severe sound

sensitivity (especially phones)

>

>     We can't afford alot for her.



well, I think you'll probably like this group -- there are

a number of people who have chelated without a doctor's

supervision and with minimal testing.  Also, I think we

tend to be sort of "a pratical bunch"--- people may not

LIKE some options, but a general level of understanding

that everyone is making choices, and we won't all agree.





> I am also sick with multiple chemical sensitivities and unable to

work.



which could also be related to mercury poisoning.



> I was able to refinance my car loan and get an ION panel done for

her which showed all the typical dediciencies A,E,zinc , selenium

EFA's and some aminos also impaired kidney and liver function. I was

hoping to get her on TD-DMPS but can't afford all that right now.



yeah, it is expensive.



>

>      I do have a bottle of metal free spray that I was going to

try. Does anyone have experience with that?



no, I haven't used it, but I would not recommend it either.



>

>     I would also appreciate any advice on chlorella or ALA if

anyone has experience with that.



Stay away from chlorella.  I'd throw it out right away.

Alpha lipoic acid is cheap and effective.  It needs to be used

in VERY SMALL doses, every THREE hours, including at night.

A real pain, eh?  Here is some info on how to figure that:

http://home.earthlink.net/~moriam/Andy_dose_sched.html



If you want to look into the available options, you can also

read here:

http://home.earthlink.net/~moriam/HOW_TO_buy_DMSA.html

There are now 2 suppliers also selling 25 MG DMSA without

a perscription.



>

>    Thanks for your help and gald to be here..............Love  Jen



good wishes,

Moria

Jen,



Just to add to what Moria wrote.  The oral DMSA is also dirt cheap.

My son weighs 32 pounds.  I ordered 2 bottles of the 50 mg DMSA from

Kirkman's and at the rate we're using it, those 2 bottles will last

more than 44 rounds.  A year almost!  In that light, it is the

cheapest thing I do for my son--other than the ALA.  The supplements

and tests that I order from the States can add up, yes, but the

chelation itself is very, very inexpensive.



Welcome to the group :-)



Anita



--- In Autism-Mercury@yahoogroups.com, "moriamerri" <moriam@e...>

wrote:

>

> --- In Autism-Mercury@yahoogroups.com, Jen West <jenn97420@y...>

> wrote:

> >

> >

> >

> >

> > Hi everyone,

> >

> >      so glad I found this group. I have a 7 yo daughter with

> autism. I'm not sure I would call her high functioning. She does

> have some speech but is on about a 3 yo level We just got her

potty

> trained after 4 years of working on it. She has a full time aide

at

> school. She does toe wlaking, hand flapping and has  severe sound

> sensitivity (especially phones)

> >

> >     We can't afford alot for her.

>

> well, I think you'll probably like this group -- there are

> a number of people who have chelated without a doctor's

> supervision and with minimal testing.  Also, I think we

> tend to be sort of "a pratical bunch"--- people may not

> LIKE some options, but a general level of understanding

> that everyone is making choices, and we won't all agree.

>

>

> > I am also sick with multiple chemical sensitivities and unable

to

> work.

>

> which could also be related to mercury poisoning.

>

> > I was able to refinance my car loan and get an ION panel done

for

> her which showed all the typical dediciencies A,E,zinc , selenium

> EFA's and some aminos also impaired kidney and liver function. I

was

> hoping to get her on TD-DMPS but can't afford all that right now.

>

> yeah, it is expensive.

>

> >

> >      I do have a bottle of metal free spray that I was going to

> try. Does anyone have experience with that?

>

> no, I haven't used it, but I would not recommend it either.

>

> >

> >     I would also appreciate any advice on chlorella or ALA if

> anyone has experience with that.

>

> Stay away from chlorella.  I'd throw it out right away.

> Alpha lipoic acid is cheap and effective.  It needs to be used

> in VERY SMALL doses, every THREE hours, including at night.

> A real pain, eh?  Here is some info on how to figure that:

> http://home.earthlink.net/~moriam/Andy_dose_sched.html

>

> If you want to look into the available options, you can also

> read here:

> http://home.earthlink.net/~moriam/HOW_TO_buy_DMSA.html

> There are now 2 suppliers also selling 25 MG DMSA without

> a perscription.

>

> >

> >    Thanks for your help and gald to be here..............Love

Jen

>

> good wishes,

> Moria

>

>>and has severe sound sensitivity (especially phones)

----

I have heard that magnesium supplements help some folks with this.  And

carbonated beverages leach magnesium from the body, so if the child drinks sodas

that could be contributing to the problem.





And welcome to the list. :-)







Michele in California



calif.michele@...

webmaster@...





Visit Michele's World! of (Twice) Exceptional Homeschooling

http://www.califmichele.com



"Peace cannot be kept by force. It can only be achieved by understanding." --

Albert Einstein



[Non-text portions of this message have been removed]