> Quick question...is the Urinary Porphyrins test done after using a
> provoking agent?

No.

> Trying to piece this all together, please bear with me...- are hair
> test and urinary porphyrins tests the two best tests? Or is ALL
> testing useless??

These are the 2 best tests.

I strongly favor the hair test.

Testing isn't useless, you're falling into the trap of black and white thinking.
It's all just probabilities - which test results are likely to come out in such
a way that the probabilities of your child having X or Y or Z get close enough
to 0 or 1 that it is worthwhile trying something to see if it helps. The
ultimate test is always a therapeutic trial.

There is a certain amount of inference you can make from other testing if you
happen to have it. Sometimes you're lucky enough that it is a pretty strong
inference (a high probability) without needing a hair or porphyrin test.

Usually the cheapest and easiest way to get to high certainty is to try
chelation (or whatever else you are thinking of).

> Carolyn

Andy


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