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Stumped: latest urine toxic metals test shows zero Hg   Message List  
Reply | Forward Message #174083 of 269938 |
Re: Stumped: latest urine toxic metals test shows zero Hg

No, not necessarily, you need a normal creatinine to make muscle
etc.Creatinine fluxes thruought the day and high creatinine goes with
darker urine, lower creatinine is with nearly water colored urine.
But in the game we are playing,(for lack of better word) and at times
needing to see it on paper, and if you are inclined to "need" to
prove to anyone, as usually it only takes one result of a high level
to get people to believe you(been there done that) the way to do it,
to nail a test with black lines is:

Watch behavior and urine color. Darker urine will usually give you
the off behaviors,hyper, cranky, moody, when they bounce out of that
funk, urine will go clear, that is the urine you want to send, the
one following a funky behavior going to clear water colored urine.
WORKS EVERY TIME. But it has to precede a dark urine spell.
Bottom line you are seeing improvements, moving up the chain of
issues that is all that matters. But we all like to "see" what we are
doing on paper at times.

--- In Autism-Mercury@yahoogroups.com, "noaholiviaian" <phaselow@...>
wrote:
>
> So, is having lower creatinine BETTER under some circumstances? His
> creatinine has always been nearly 2 SD below the norm; I was
excited
> to see that number approaching normal...
>
> I am usually not one who relies on test results for confirmation.
I
> only do blood work every 6 months at best. For some reason, this
> test frustrates me. I guess I was hoping to show it to my husband
> to get him on board.
>
> Everyone is correct: the bottom line is that the Autism is
> literally melting away. I worry at times that I'll be stuck with
> ADHD as a replacement Dx (was never a hyper kid before), but most
> days I'll take it!! I often wonder if he is hyper because he is
> frantically making up for lost time... all of these experiences he
> missed for 2 years after regressing. This kid has a zest for life
> that wears me out!
>
> Pam
>
> --- In Autism-Mercury@yahoogroups.com, "deverelementary"
> <kearneysix@> wrote:
> >
> > It is all just the timing you nailed that test. I bet his mercury
> > excretion was higher with the lower creatinine level. The higher
> the
> > creatinine goes, the lower the metal excretion will be. Next time
> you
> > get a urine test, take it when the color is nearly clear, the
> metel
> > excretion will be greater with the lower creatinine, especially
> after
> > seeing a spell of darker urine. Works all the time, that is if
you
> > are into seeing it on paper, some are, some don't care. --- In
> Autism-
> > Mercury@yahoogroups.com, "noaholiviaian" <phaselow@> wrote:
> > >
> > > Hi guys,
> > >
> > > I just rec'd a copy of our latest DDI urine toxic metals test.
> I
> > > had been eager to see the results, since it was the first test
> > since
> > > adding oral ALA to our TD-DMSA regimen.
> > >
> > > ZERO mercury. Not even a little blip on the page. Our prior
> urine
> > > test (just DMSA) showed mercury in to the yellow. Nothing else
> was
> > > pulled in any significant amounts, except we saw lead for the
> first
> > > time (still very much in the green).
> > >
> > > We are seeing remarkable improvements in our child since
> starting
> > > ALA. Can't quite recall: is ALA mainly excreted in the feces?
> > >
> > > On a nicer note, his creatinine is much, much closer to the
norm
> > (83
> > > now vs 32 mg/dL 6 mnths ago).
> > >
> > > So, TD-DMSA alone seemed to show (on paper) the mercury coming
> out
> > > in the urine but we didn't see the great behavioral
> improvements.
> > > TD-DMSA plus oral ALA shows spectacular behavior changes but
> looks
> > > poor on paper.
> > >
> > > What to do? Continue on and dump the urine test for some hair
> and
> > > stool testing?
> > >
> > > I'm frustrated. I feel like someone who opened a gift;
thinking
> it
> > > would be an engagement ring only to find a goofy charm bracelet.
> > >
> > > Pam
> > >
> >
>








Tue May 16, 2006 2:38 pm

deverelementary
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Message #174083 of 269938 |
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Hi guys, I just rec'd a copy of our latest DDI urine toxic metals test. I had been eager to see the results, since it was the first test since adding oral ALA...
noaholiviaian
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May 15, 2006
8:24 pm

Some chelator cause excretion in urine, others in stool...I think ALA is through stool, but check with others to see if that is correct. Linda S S ... Hi...
Linda Shepard Salzer
lgshepard
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May 15, 2006
8:46 pm

It is through urine, at least for copper. See http://onibasu.com/archives/am/143992.html Anne ... ALA is through stool, but check with others to see if that...
anneecbrynn
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May 15, 2006
9:05 pm

I heard that the urine test shouldn't be relied upon too much as an indicator of how successful the treatment is because of timing issues. For example, it may...
Maria Loulourgas
mloulourgas
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May 16, 2006
1:18 am

... You know what's working, so why sweat it? Urine and stool tests aren't useful. Just focus on those spectacular improvements and smile to yourself :). Nell...
lanellici
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May 16, 2006
1:34 am

Pam, I would follow progress not paper. If your child is doing so much better, then mercury is moving out of the brain. It may be excreted via stool. As long...
Jan
queenvavee
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May 16, 2006
3:00 am

Agreed!!! I too remember hearing that ALA is stool, DMSA is urine though. All that matters is that your son is getting better, that is a blessing like no...
lvchefmel
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May 16, 2006
2:37 pm

It is all just the timing you nailed that test. I bet his mercury excretion was higher with the lower creatinine level. The higher the creatinine goes, the...
deverelementary
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May 16, 2006
3:34 am

So, is having lower creatinine BETTER under some circumstances? His creatinine has always been nearly 2 SD below the norm; I was excited to see that number...
noaholiviaian
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May 16, 2006
1:26 pm

No, not necessarily, you need a normal creatinine to make muscle etc.Creatinine fluxes thruought the day and high creatinine goes with darker urine, lower...
deverelementary
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May 16, 2006
2:39 pm

... wrote: I guess I was hoping to show it to my husband ... Totally understandable. How is your husband reacting to the improvements? ... This is what...
lanellici
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May 16, 2006
2:48 pm

That is interesting, the change in Dx. My son was Dx autistic and borderline PDD when he was 2. He has come a very long way and a friend of mine (an OT who...
lvchefmel
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May 16, 2006
3:09 pm

... I hear him and my other son actually having conversations. Short sentences and not always complete but a definite exchange of words in a conversational...
lanellici
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May 16, 2006
3:53 pm

Yup, they do. That's usually the pattern as they are recovering. Barb ... From: "lvchefmel" <lvchefmel@...> To: <Autism-Mercury@yahoogroups.com> Sent:...
jromkema
eromkema
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May 17, 2006
2:41 am

In a message dated 16/05/2006 04:01:06 GMT Daylight Time, queenvavee@... writes: Someone else may be able to help on how ALA helps mercury out, if by...
Mum231ASD@...
asdparent2pa...
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May 17, 2006
8:06 am

According to an on-line discussion by Amy Holmes, alpha lipoic acid excretes mercury mainly via stools. I *thought* that was what I remembered hearing. Pam ......
noaholiviaian
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May 17, 2006
12:33 pm

My son, 5 y.o. with ASD is still getting potty trained. Being non-verbal makes this even a huge challenge. I need advice. We have him to the point where we...
Abid Khan
A_BIT_SOLUTIONS
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May 17, 2006
12:51 pm

Consider using PECS (picture exchange communication system) and he can hand you a picture of a potty to "tell" you that he needs to go. Some make little...
Linda Shepard Salzer
lgshepard
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May 17, 2006
3:58 pm

My daughter, not 10, was also potty trained when she was 5. although this is something that I worried about as well, I quickly realized that, when she needed...
eyesnelson@...
nelsoneyes2
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May 17, 2006
5:28 pm

Hi Yvonne, Its helpful to know that they'll just go as my son is starting to do this. I'm guessing you did some training to push her along. What did you do? ...
Abid Khan
A_BIT_SOLUTIONS
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May 17, 2006
5:39 pm

My son was showing no signs of wanting to use the potty (although he would pee if put on it) until 8 hours after we started him on Valtrex, at which time he...
anneecbrynn
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May 17, 2006
6:27 pm

... non-verbal makes this even a huge challenge. I need advice. Here is my site section http://www.danasview.net/parent2.htm#potty ... will pee-on-the potty....
danasview
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May 18, 2006
2:28 pm
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