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AtresiaMicrotia
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Group Information

  • Members: 2289
  • Category: Other
  • Founded: Oct 15, 2001
  • Language: English
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Links

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Links

Name Creator
Folder Hearing Aids
Sites related to hearing aids
 
Folder Hearing Impairment
Sites related to hearing impairments
 
Folder Medpor Implant
Sites related to the polyethylene Medpor Implant Microtia Repair
 
Folder Prosthesis
Sites related to Prosthetic Ears
 
Folder Rib Graft
Sites related to Rib Graft Microtia Repair
 
Folder Sign language sites
 
2005 West Coast Atresia Microtia Conference Video Purchase
for International Buyers with Paypal accounts
http://tinyurl.com/dtglq 		sbyrne1281
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2005 West Coast Atresia Microtia Conference Video Purchase
for Domestic Buyers with Paypal accounts
http://tinyurl.com/bq6r3 		sbyrne1281
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ANATOMY OF AN EAR
This is an interactive display of how the ear works
http://www.hearingcenteronline.com/ear2.shtml 		adhemar1965
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An Educator's Resource Guide
Info for Parents:Teaching for Deaf & Hearing Challenged Students. A guide and resource bank.
http://www.edu.gov.mb.ca/k12/docs/support/dhh_resource/full_doc.pdf 		tina_chakrab...
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Arturo Bonilla, MD's website
Dr Bonilla's site describes procedures, illustration of cases
http://www.microtia.net 		clixpix2000
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Aural Atresia Definition
1 - 10Êgrading system that Dr. Kesser uses for evaluation of surgical outcome.ÊÊÊ 1 - 10Êgrading system that Dr. JÊ uses for evaluation of surgical outcome.ÊÊÊ
http://www.utmb.edu/otoref/Grnds/Congenital-Aural-Atresia-2003-01/Congenital-Aural-Atresia-030108.htm 		adhemar1965
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BAHA_PPL Yahoogroup
If you are interested in the BAHA and want to ask questions from those who've been through the process this is the place to be
http://groups.yahoo.com/BAHA_PPL 		barakta
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Bahapeople resource site
A UK based website with links to current BAHA resources online; mailing lists; web fora and support groups.
http://www.bahapeople.org.uk 		barakta
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Burt Brent, MD's website
Website of Dr Brent,, who does reconstructive surgery for microtia; illustrations of cases, explanation of procedures
http://www.earsurgery.com 		kazemir
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CONGENITAL AURAL ATRESIA
A good paper by Alberto D. Fernandez, M.D. in 1995 regarding Atresia and issues surrounding it.
http://www.bcm.tmc.edu/oto/grand/11295.html 		kazemir
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Canadian Microtia Website
To help Canadian Families to Get together and support each other:)
http://www.microtiasupport.com 		vishini_2000
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Charles H. Thorne, MD's website
Dr Thorne's website illustrating his procedures, with photos of cases
http://www.microtia.com 		clixpix2000
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Closing the IEP Deal
Negotiating your child's IEP
http://www.tacanow.com/ClosingtheDealPDF.pdf 		beachlifemom
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DR. ANTONIO DE LA CRUZ, M.D.
Atresia repair Los Angeles CA
http://www.houseearclinic.com/delacruzA.htm 		adhemar1965
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DR. NAGATA’S WEB SITE
http://www.akiba-hp.com/keisei.html 		paul_n_holly
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DeafFriendfinder
DeafFriendFinder.com is one of the largest deaf communities in the world, here you can meet someone next door or from around the world. All your personal information is confidential.
http://www.deaffriendfinder.com 		casualguy8001
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Definitions of canalplasty & meatoplasty
http://www.tampabayhearing.com/Patient_Forms/PDF_Forms/Canalplasty_Meatoplasty.pdf 		sarahkatebarnum
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Description of aural atresia and reconstructive procedures
Describes atresia and reconstructive procedures (canalplasty)
http://www2.utmb.edu/otoref/Grnds/congen-aurl-atresia-9911/congen-aural-atresia.htm 		clixpix2000
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Dr. Bradley Kesser
Atresia Repair in Charlotsville Virginia
http://www.healthsystem.virginia.edu/people/dop/dopDetail.cfm?drid=1451 		adhemar1965
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Dr. John Reinisch
Medpor implant for outer ear reconstruction
http://www.csmc.edu/8312.html 		adhemar1965
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Dr. Joseph Robertson
Atresia repair he works out of both the Palo Alto and San Ramon practices.
http://www.letthemhear.org/other/about_board.asp 		adhemar1965
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Dr. RUSSELL H. GRIFFITHS Microtia/Ear Reconstruction
Dr. Griffiths offers both RIB GRAFT and MEDPOR options .. you can choose. Also offers a ONE STAGE technique. Check out the before and after photos on the website....fantastic!
http://www.earreconstructionspecialist.com 		dancemom_24
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Dr. Robert ÊJahrsdoerfer also known as Dr. J
Pioneered surgery to correct congenital ear atresi
http://www.healthsystem.virginia.edu/internet/news/Experts/jahrsdoerfer.cfm 		adhemar1965
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Dr.Barry Eppley
This is Dr.Eppley's website. This site really tells you alot about his education and vast areas of knowledge and experience. There are also before and after photos as well.too.Some areas are still under construction.
http://www.eppleyplasticsurgery.com/ 		ladylin861
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Dr.Barry L.Eppley
This is a link to Dr.Barry L.Eppleys bio and info. He has done microtia reconstruction for over 12 years and is very experienced in reconstruction using the rib cartilige.
http://www.iuplasticsurgery.com/surgeons/ 		ladylin861
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Entific website
Website of the manufacturer of the BAHA (bone-anchored hearing aid)
http://www,entific.com 		clixpix2000
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Ethan's Ear
Blog chronicling Ethan's trip from one ear to two.
http://ethans-ear.blogspot.com/ 		magicbeanpro...
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External Ear, Aural Atresia
http://http://www.emedicine.com/ent/topic329.htm 		sarahkatebarnum
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Faces
Discussion of craniofacial syndromes, medical centers, resources
http://www.faces-cranio.org/ 		clixpix2000
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Free SMS
http://club4sms.com/ 		saniakhanlahore
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Free SMS to Pakistan
Send SMS Anywhere in the Pakistan For No Cost. When youSignup, you will get up to 100 SMS in Your Account. And we will update your account every week for SMS Credits at no Cost, Soyour Account Balance Never Ends. You may Purchase SMS Bundle for Bulk SMS Sending through our selected Payment Options**. Sothis service become Virtually Unlimited Free Text Messaging for Life. Currently Supporting SMS toPakistan
http://www.eocean.com.pk/ 		saniakhanlahore
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General information
http://en.wikipedia.org/wiki/Microtia#Complications 		adhemar1965
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Goldenhar Kids
For parents of Kids with Goldenhar or Hemifacial Microsomia
http://goldenharkids.grouply.com 		michelleridoutt
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Hard of Hearing Facing the Challenge in Class
Articles: Insights and Strategies
http://clerccenter.gallaudet.edu/Odyssey/Winter2003/index.html 		beachlifemom
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How to read Audiograms!
This site gives a step by step introduction to audiograms, and how to interpret them. Very useful.
http://www.earinfo.com/howread1.html 		kazemir
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IU Plastic Surgery Associates
This is the site for the Indiana University Plastic Surgery Associates. They have a craniofacial team that does work on all types of craniofacial anomalies including microtia.
http://www.iuplasticsurgery.com/request 		ladylin861
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Interplast
A non-profit organization providing free plastic and reconstructive surgeries to children and adults in developing nations.
http://www.interplast.org/ 		ladylin861
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Lauren's Journey
Microtia/Atresia/Goldenhar Blog
http://www.laurensjourneyut.blogspot.com/ 		beckyottley
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Linda Pattons Ear Reconstruction Surgery Pictures
Here's step by step photos of my surgery! Caution they are graphic.
http://www.geocities.com/surfsup62/surgery.html 		ladylin861
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Listen-Up website
Valuable website for resources connected with hearing impairment, including devices, insurance issues, surgeries, etc.
http://www.listen-up.org 		clixpix2000
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Making Faces
A Workshop Program for Kid in Canada with Facial Differences
http://makingfaces.ca 		melinda.brady
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Mark M. Jones, MD's website
Dr Jones' website with discussion of microtia repair, including case illustrations
http://www.atlantaplastic.com 		clixpix2000
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Medpor at Cedars Sinai with Dr Reinisch & Dr Lewin
current link to best medpor surgeons
http://www.csmc.edu/14043.html 		sarahkatebarnum
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Microtia Malaysia
The first site on Microtia in Malaysia
http://www.microtiamalaysia.com/ 		kazemir
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Miles' Blog: A Record of Medpor Microtia Reconstruction
A blog of our experiences of surgery with Dr. John Reinisch
http://www.milestrip.blogspot.com 		mpcsmommy
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Patients' BAHA website
Website devoted to the BAHA from the patients' perspectives
http://www.patients-baha.com 		clixpix2000
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Portland, OR Shriner's Hospital
This hospital performs free reconstruction for those who qualify
http://www.shrinershq.org/shc/portland 		lynbopp
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Prosthetist Daril Atkins. Dubai, UAE
A newspaper's website reporting a cosmetic section at Rashid Hospital, in the UAE. Still have no idea if it does microtia, I will visit it myself and check it out. Read the report.
http://www.gulf-news.com/Articles/print.asp?ArticleID=111498 		poiod
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Q and A about Atresia repairs
Dr. Kesser answers some of the common questions about atresia repairs
http://www.healthsystem.virginia.edu/internet/atresia/FAQs.cfm 		tjajnk
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Sensational Kids
Books for children about hearing loss & microtia. Sensational Kids was set up by the parent of a child with microtia.
http://www.sensationalkids.ie 		kleigh1ie
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Soft tissue reconstruction
Microtia and aural atresia
http://www.meei.harvard.edu/shared/staff/otodocs/reavey.htm 		adhemar1965
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The Conor Leigh Fund
Microtia & Atresia Info & Irish Support Group
http://conor.ie 		kleigh1ie
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The Microtia And Aural Atresia Division of the IRPS
Info on Microtia and Atresia
http://irps.net/microtiainfo.html 		kazemir
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Thomas Romo, MD's website
Dr Romo's site describes his use of polyethylene implants for microtia reconstruction
http://www.earreconstruction.com 		clixpix2000
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Trey's ear reconstruction surgery
ear reconstruction blog
http://adventruresofTreyandMatthew.blogspot.com/ 		azwillia
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atresia repair questions
Questions to ask a prospective surgeon for atresia repair
http://health.groups.yahoo.com/group/AtresiaMicrotia/message/26916?l=1 		tjajnk
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aural atresia repair answers C.E.I. Dr Roberson
Dr Joseph Roberson in Palo Alto Ca
http://www.atresiarepair.com/ 		sarahkatebarnum
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hearing aid and cochlear batteries
hearing aid and cochlear implant batteries
http://www.abattery.com 		hohdeaf
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