HI Heidi, Thank you for responding to my question. It sounds like not only do you have the pains to deal with, but it has affected other areas of you body....
In my view, if you have arachnoiditis, the worst thing that could happen is to have it diagnosed. What tends to happen is that you become blacklisted by...
I owe ann a debit of gratitude. She sent me a link to a new website, based in England, put up by Dr Sarah Andreae-Jones (Smith) MB BS, who has worked with...
New Arachnoidits siteI'm familiar with that website, but must offer a bit of warning: Dr. Smith is focused on one cause of arachnoiditis, injected dyes in...
"The way you look after your children isn't necessarily bad or inadequate just because your mother in law thinks it is." goldeneagle "It is not the critic who...
In praise of criticism!According to Dr. Aldrete, back surgeries are the most significant cause of arachnoiditis. Period. Perhaps not so many are done in...
Yes Heidi, I agree with you too. Blessings, Don & Jeanie __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the...
from the The NZ Ministry of Health Report Thursday, 21 April 2005 From the 1940s to the 1980s there were approximately 1 million oil myelograms performed each...
some facts from the web siteYour quote from Dr. Burton is very interesting. First, let me tell you that I have seen him. Here's what happened: First, he had...
I had a second lumbar spine surgery (posterior lumbar fusion LS/S1) on 5/17/2005 after my first surgery (anterior lumbar fusion) 9/13/2004 resulted in a...
I am deleting my membership immediately after I mail this post off. I am moving to a moderated forum. I encourage all of you, to invest your time looking over...
Your symptoms are classic. "Just" inflammation is the classic sign of the onset of arachnoiditis, and it is the only chance for limiting its effects. (That is...
Dear Goldeneagle, What made you decide to do this and leave all of your old friends very unhappy, This is just what Don has been trying to get you to do for...
Below is a picture from Dr. Burton's website. Th red dots are showing where the nerve roots are occupying space. Far too much spaceas they are either...
MessageBrent, I have the same problems. And the degree of clumping you're describing was occurring six months after the surgery that gave me arachnoiditis. I...
Actually, Prialt in the patch form was having some trouble and the clinical studies were halted. As I said, my pain clinic was the final clinical testing...
MessageYou're very lucky with your pump combination. It's actually very difficult to calculate the dosages when they're mixed. What if you need more...
Hi Everyone, I disagree with this comment. Far worse than having arach, and not having it diagnosed, is HAVING it, and having doctors say nothing is wrong,...
For the record, this Aword.org site is a pretty good site. However, ARAC has much wider references and a more complete library of information and resources,...
I think you make sense, and on the whole, believe that you're right - in particular with regard to SSD. Still, there are some serious disadvantages to being...
HEIDI IS EXACTLY RIGHT ABOUT THIS ONE ASPECT. YOU CAN AND EASILY WILL BE BLACKLISTED BY DOCS, AT LEAST IN THE US AND UK, FROM TREATMENT IF YOU HAVE ARC/AA. IT...
Hello all, My name is Lori, and I am new to Arachnoiditis. Actually today I am able to sit at the computer longer than normal,but I know I will be paying for...
Dear All, My doctor convinced me to apply for medicaid recently, and when I did that, they told me I have to apply for Social Security disability. Has anyone...
I am so sorry to hear of what's happened to you. It is, unfortunately, typical of the treatment of people with arachnoiditis. We are the deep, dark secret of...
Yes, I have been successful, and would be happy to offer advice. I got it on the first try, without an attorney - and technically being unqualified, since the...
Saraann, We have filed and be successful in getting the Social Security Disablity. There is some wording that you will need to make sure you have down. Make...
HI, me again. I just read what Heidi wrote to you and she is right on the money about everything. Try it yourself 1st. We were denied and did end up getting an...
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