Hi All, I've been researching arachnoiditis and iophendylate for the past 4 years and have succeeded in WCB accepting arachnoiditis as a result of a work...
Hi Brian , Please tell me just what is Iophewdlate, and how doe's it relate to Arachnoiditis , tell us a lot more about it, my doctors at John Hopkins says...
Hi Patti; I hope that your pain has decreased by now. Have the pain management specialists looked at your medications to see if they are really the right...
Patti, There is a good Aractnoiditis group, that is very good and a lot of people belong to, it go to _Cofwa@yahoogroups.com_ (mailto:Cofwa@yahoogroups.com)...
Is there anybody in the group that gets good pain relief from anything other than the Fentanyl (Duragesic) patch? Fentanyl is about 100 - 150 times more potent...
The address for COWFA Is not as you say Brian you said it was _http://www.cowfa.org/AdhesArch.htm_ (http://www.cowfa.org/AdhesArch.htm) . The correct Address...
Brian is this the drug that you were trying to tell me about the other day that at that time you said you would not tell me what it was that would stop the...
Brian is this the drug that you were trying to tell me about the other day that at that time you said you would not tell me what it was that would stop the...
Brian, thanks but I have had my meds checked and rechecked by 4 doctors. I've been unable to get into a pain management since I moved here. I'm on a waiting ...
Guys, I joined COWFA after I sent the email to arachnoiditis group. I just look for all the information I can get and I'm getting crazy being so isolated....
Dear Patti, I am in the same boat that you are in. The days sometimes get long with nothing much to do. When did you get ARACHNOIDITIS? I have been 5 years now...
Dear Don, I was diagnosed with A in March. I had a car accident in 97 and then had a Tarlov Cyst where I had a shunt implanted in my spine and then 5...
FENTANYL For PAIN THE major problem with improperly treated arachnoiditis is the PAIN. I have had arachnoidits for 12 years now, the result of a bad back ...
I have been using these patches for about 6 months at 50MCG/Hr and yes they do work. This story is right on target with my experience after over 10 years of...
Dear Patti, My faith in God helps me everyday. I could not of made it this far with out God in my life and my wife Jeanie. I was in the worst pain for 4 years...
Don, I live in Florida with my boyfriend, John & dog, Max. I have military health insurance. The car that hit me took off. It was a hit and run. Talk about...
Thanks for your letter! I have actually been "technically disabled" for 21 years but have been working and enjoying life. I have had multiple back surgeries...
Do You REALLY Want To WorK? As I have read these forums over the years the one thing that is most discussed after doctors who are idiots and insurance...
Jeff, I'm new to arc, but not new to chronic pain. I had a very bad accident in 83, and continued to work after multiple back surgeries. Are you working with...
This is very interesting information about your Social Security! (Read it and Pass it on) Franklin Roosevelt, a Democrat, introduced the Social Security (FICA)...
Re: DOCTORS IN AUSTIN TEXAS AREA There probably is no doctor in Austin that treats arachnoiditis because there is really no treatment in the sense of cure for...
After three failed surgeries, five oil based myelograms, and many epidural injections in the early 1980's, my wife was finally diagnosed two years ago with...
There is no recorded instance in the literature of the patch or morphine causing edema also known as water retention in the legs. Water retention is a classic...
Hi there, One thing you are not telling is that Fentanyl is the same drug used for anesthesia. It is a type of synthetic morphine. I was on duragesic...
Patti; There is one CRITICAL thing Patti, do not understand. The pain from real arachnoiditis ONLY responds to fentanyl or the synthetic neurotoxin from the...
I got the following letter from Patti. Shows the same attitude I see all the time. This letter is from my caregiver with whom I share many of the letters I...
What ever your name is. The email was not from me but from my caregiver. As for me: I do not take kindly to being called stupid, dumb, an idiot, a fat person...