Hi, My name is Brianna, my husband has had arachnoiditis for 4 years. I want to talk with other ppl with this disease to see what life is like for others. Life...
Hi, my name is Laura and I have arachnoiditis for 10 years now. I am fairly controlled on medications but I know that others have different opinions about...
hi Brianna, I do not even know why I still belong to that group as no one ever posts and there is so much spam. Another group is called COFWA, you might want...
Hi Brianna, I have been diagnosed witharachoiditis for 8 years, yes life is difficult. I have had 4 surgeries, from the initial lower lumbar surgery in 2001...
Hi Laura, My name is melissa I have arachnoiditis for 8 years, I have written Briana also. I was wondering what medications do you take? I am on Fentanyl...
Hello to All, It is good to see the Group being used again, and it is a pleasure hearing from fellow "Arachnoiditis Sufferers" instead of the usual unrelated...
i m new here and i need to find a doctor in nebraska that is familiar with conjoined nerve roots. Is this arachnoiditis? I have been diagnosed with permanent...
Thank you for such an interesting Email re: Arachnoiditis I was getting disappointed with the Emails that I have received of late and I think it sounds as...
Melissa, I would be happy to talk to you. As far as my medication go they are numerous. I am on backlofin, zanflex, morphine, and several other medications I...
Laura, Glad that we can communicate, need support some days. I agree this cold weather is definitely not good for us. Stay warm and in your tub. Have a...
Hi Laura, Yes, my pain management is suggested to try to take me off all pain meds, and try methadone. I am currently on Fentanyl patch, lidocaine patch,...
Melissa, I was tired with the methadone. Also I had a hard time coming off it when it was time. Other than that It worked fairly well. But I also use my...
after my latest myleogram and c-t scan i have found out i have conjoined nerve roots. This and the numbness and chronic pain in my lower back, legs and feet...
I am interested in how your diagnosis was made. What your symptons were and what tests were done to confirm your diagnosis. Sincerely Damaged goods. My e-mail...
Hi Melissa, Thanks for your e-mail. My husband has had Arachnoiditis for 4 years, back problems for 6 years. I am finding now that I HAVE to stay home to look...
Hi Briana and Mike, Mike is lucky to have such a supportive spouse as you, I am glad u are getting involved with your side business, anything to help keep the...
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I live in PA and I suffer with arachnoiditis. I have to go to another state to get my meds. Anyone know of a doctor in northeast PA that understands this...
you may want to join COFWA, it has many members and so much info, unlike this group where it is usually very quite and so much spam. I myself cannot help you...
I live in England so I am sorry I can't help you with regard to advising you where you could get help. It is very difficult as not many Drs or Specialists...
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