Dear Rachel, Sorry, but it is true ... there is no cure for arachnoiditis. Expert surgeons havae tried to fix that problem inside the spinal cord and have...
Hi, Was hoping someone here might know how to get intouch with Dr. Sarah Smith--the only person in the UK apparently, who knows a lot about this disease. Thank...
Ursula here, Sarah is a friend of mine, who is also a sufferer of Arachnoiditis, she is not a Dr who specialises in Arachnoiditis, she is a very dedicated lady...
I took neurotin for a few weeks and developed the side reaction of blurred vision so I need to know if anyone knows an alternative to the medicine as other...
Hello Linda, How long have you been taking Neurotin for? I used to take Neurotin a few years ago and I can remember having blurred vision for a good few weeks,...
... the ... My Neurosurgeon wanted to take me off the neurontin as it didn't seem to help me anymore and put me on Lyrica; however, my insurance company...
I am on topomax it has helped me-- I also tried Lyrica but it makes you gain weight ... From: Linda <lmorgan@...> To: Arachnoiditis@yahoogroups.com ...
... I was taking it for about three weeks and was sleeping alot better but still had the daytime pain but it took the "edge" off a tad... ... blurred ... the...
Hello to members, I am from Pa. Along with Chiari Malformation, Syringomyelia, Cervical Myelopathy, Multi-disc herniations,C,T,L discs, Fibromyalgia,etc., I ...
Melana; I was on Neurontin for several years, but changed to Lyrica about 8 months ago. I initially was having trouble getting too drowsy during the day,...
Dear Rachel,I'm so sorry to hear about your Mothers plight. But, I can understand how hard it is to come to terms with your life changing so much. I would just...
Dear Rachel,I'm so sorry to hear about your Mothers plight. But, I can understand how hard it is to come to terms with your life changing so much. I would just...
Dear Rachel, I am so sorry to hear about the problems and my thoughts are with you. i have had Arachnoidiyis since 1976 it wasn't diagnoised until 1982 and I...
I am Lauren and I am 38 year old and was searching the internet for more information on this illness. I have been though too much to get into but a year and a...
Hello Lauren, I'm so sorry that you have to endure this pain at such at such a young age. I had my first back surgery a spinal fusion at L5-S1. I have been in...
Hi Lauren, I am so sorry to hear about your diagnosis. I am 39 years old, and just found out yesterday that I need to have a hysterectomy. I have had two back...
Thanks for the definition of having scar tissue growing through the spinal nerves. Is this verified? Regards, Jay ... From: Michael <Sfusion@...> To:...
Thank you for all your support. In answer to some questions, I didn't get arachnoiditis from my hystromecty, I just had the back pain before the surgery,...
Jen, Thanks for your support, have you had your blood checked to see if you have Epstein Bar? I have it and it makes you very tired, I got it years ago, and it...
Hello Jay, I'm sorry that you have to suffer with horrible back pain yourself. If you have Arachnoiditis. I can give you plenty of sites on the web to find out...
It's not always scar tissue, the reason it is an "-itis" is because it's an auto-immune disease meaning the body is attacking the tissues and causing the...
Hello Jeff, thanks for your reply. I have gotten a lot of information and read a lot about this condition from every source that I could find it. And I still...
Just learned of your group. With what I have learned about this condition, I have to wonder how Eastman Kodak and the drug companies that endorced and...
I can see a class action suit in the future, wiith all the pain docs doing injections, but that could take several years.' Jay ... From: pjraleigh46...
Yes Michael, you are right, right, right... I was not exactly correct about the "itis" as my wife pointed out just after I sent that one. Oop's sorry for that...
Hello Michael, I hope you won't mind my input! You are correct in saying Arachnoiditis is an inflammatory condition / disease, the arachnoid membrane is very...
Hello Jeff, no need to apologize. If I apologized to everyone that I made a mistake sending something about. I would be at this computer forever. I have been...
Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
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