well all, surgery done. I had l6-s1 fused -second day after surgery my IV line infiltrated and went close to 2hr without pain meds. try that one 24 hrs after...
Hello, I am so sorry your not feeling well! I hope you become pain free after surgery good luck..You have been through a lot..Hugs..StarRose ... From: "COREY"...
Corey, I know what you mean....after my first surgery, spinal fusion L4-L5,L5-S1 they did not give me ANYTHING for pain. I was literally screaming, my family...
Corey, I am so sorry to hear that you are suffering so much pain and I only hope it will settle to some extent after a while. As we all know there is no cure...
Dear Trish, I am so sorry that I have not been in touch with you before now. I was very taken back by your letter and to know how much you have sufferred and...
Dear Trish, Keep taking the pain medications. I know they are awful, but since there is no miracle cure what else can be done. My husband has had 9 back...
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... Hi My name is Susan from NY and the pain of living with this new diagnosis is beyongd pain. I had surgery 4 years ago, a fusion...what a waste. Can you...
Dear Laura, I've just received your message, I will do my best to help you, I myself have lived with this disease for 30 years, I do understand how you are ...
Dear Laura, I have just read your letter and a reply and I rely do feel for you. I also have suffered since the late '70's. The pain is terrible and I'm...
Hello to group, I have never been diagnosed with AA, but I have many of the symptoms. No Dr.s want to risk any invasive testing and advise against surgery. I...
I think those doctors get paid off or something, and I would think they would be afraid to send you back to work because if you get hurt they could be...
Dear Star Rose, Comp doctors have certain cryteria's that they have to follow. And yes, they have to protect themselve. If they feel your injury in not...
First of all let me begin by telling you all a little bit about me – more so my mum. It is my mum who suffers from arachnoiditis - I do not. We both suffered...
Dear Rachel & Mrs Brook, My name is Ursula Darker, for many years I ran a support group for fellow Arachnoiditis sufferers, unfortunately I've been unable to...
Hi R achel and Hi to your Mum.My name is Ginny,I'm 58 and I've had Arachnoiditis and Fibromyalgia since the 1980's,although I wasn't diagnosed with the Arach...
Dear Rachel, Sorry, but it is true ... there is no cure for arachnoiditis. Expert surgeons havae tried to fix that problem inside the spinal cord and have...
Hi, Was hoping someone here might know how to get intouch with Dr. Sarah Smith--the only person in the UK apparently, who knows a lot about this disease. Thank...
Ursula here, Sarah is a friend of mine, who is also a sufferer of Arachnoiditis, she is not a Dr who specialises in Arachnoiditis, she is a very dedicated lady...
I took neurotin for a few weeks and developed the side reaction of blurred vision so I need to know if anyone knows an alternative to the medicine as other...
Hello Linda, How long have you been taking Neurotin for? I used to take Neurotin a few years ago and I can remember having blurred vision for a good few weeks,...
... the ... My Neurosurgeon wanted to take me off the neurontin as it didn't seem to help me anymore and put me on Lyrica; however, my insurance company...
I am on topomax it has helped me-- I also tried Lyrica but it makes you gain weight ... From: Linda <lmorgan@...> To: Arachnoiditis@yahoogroups.com ...
... I was taking it for about three weeks and was sleeping alot better but still had the daytime pain but it took the "edge" off a tad... ... blurred ... the...
Hello to members, I am from Pa. Along with Chiari Malformation, Syringomyelia, Cervical Myelopathy, Multi-disc herniations,C,T,L discs, Fibromyalgia,etc., I ...
Melana; I was on Neurontin for several years, but changed to Lyrica about 8 months ago. I initially was having trouble getting too drowsy during the day,...
Dear Rachel,I'm so sorry to hear about your Mothers plight. But, I can understand how hard it is to come to terms with your life changing so much. I would just...
Dear Rachel,I'm so sorry to hear about your Mothers plight. But, I can understand how hard it is to come to terms with your life changing so much. I would just...
Dear Rachel, I am so sorry to hear about the problems and my thoughts are with you. i have had Arachnoidiyis since 1976 it wasn't diagnoised until 1982 and I...