There is already a large group of arachnoiditis sufferers with good self support. Contact Australian Arachnoiditis Sufferers association of NSW inc. see...
Hi, my husband suffers from this disease and has just recently been diagnosed...he is very discouraged as none of the dozen medications he has tried has helped...
As far as a law suit against the company that manufactured the dyes used in myelograms at one time the government put a cap on it or in other words wouldn't...
Hello members, My name is Melana. I am from Pa. In 1982 I was in auto accident and permanently injured my cervical spine. I was only 19 yrs. old then. Before...
I tried to get my back pain problem fixed many times and the end answer was always that they couldn't do anything. Without going into all the years of...
My name is John Martin from Greensburg PA. I been suffering with arachnoiditis for 3 years.I had 4 back surgerys until they told me there was nothing more they...
Note: forwarded message attached. Hey everyone, this was just sent to me by Business Networking groups's computer guru. I take him very very seriously. This is...
Hello and thank you for this site. I'm new to this and don't really know where to start. I have read many emails and it is hard for me to understand how this...
Hi, my name is Luanne and I also have Arachnoiditis. I'm glad to find a place where there are people who understand what's going on in my body. It's hard to...
Hi Luanne, I'm Jay and I live in Tampa. My arc showed up on films in 2001. I was told about it in 2004, when I had another MRI and it was known as advanced...
Hi, it's been awhile since I have been on this site. I forgot how much I learned by reading others emails regarding ARC. My husband has suffered with this...
... Hi, Jay! Thanks for replying. Sorry I didn't reply sooner, but There are some days that I just can't sit here long enough to get on the computer. Usually,...
Ok, I'm back for a few minutes. As for my meds, I've been taking Gabitril which is a Neurontin mix. This has helped greatly by reducing the burning and cattle...
Hi Luanne, My name is Anisa and I was wondering on what location did you have your back surgery and for what? Was it a disc? Just curious. I didn't know if...
Hi Anisa! I had fusions at L4-5, L5-S1. The went through the front and back. It's the Hynes special. LOL!! You take care too. Luanne ... your back surgery and...
I was wondering if the heat and humidity affects anybody else? When I get out into this kind of weather, I get very sick. Just going out from work to my car, I...
Hi everyone I'm a newbie. Some of you may have run across my name in looking for info. on arach. If you go to www.theaword.org you will find articles I've...
Hello I have just joined this group and would very much like to hear from other people with AA who live in the UK, particularly London and the SE I had AA...
I am on neurontin. I take 800mg 4 times a day. I am also on several other drugs though so I don't know if the neurontin is helping or the combination of all of...
Hi my name is Jennifer, I currently live in Virginia, but I am moving back to California in a few weeks. I have had 6 fushions. Four in my neck, and two in...
Hello Jennifer, my name is Michael I have had four surgeries on my back. Two which were fusion's. The others were for mistakes and misdiagnosesis. I would love...
... From: Michael <Sfusion@...> To: Arachnoiditis@yahoogroups.com Sent: Friday, May 26, 2006 8:46:20 PM Subject: [Arachnoiditis] Re: What a Pain Hello...
Michael, I also lived in Washington State, Tacoma and Gig Harbor. I had an accident at a wedding in 1993. I did not have my first fusion till 2000. I had...
Michael, I also lived in Washington State, Tacoma and Gig Harbor. I had an accident at a wedding in 1993. I did not have my first fusion till 2000. I had...
Hello Jennifer, thanking for telling your story. I used to have headaches very bad for about the first five years. But it seemed that once I had my hardware...
I have just joined the group and I have had Arachnoiditis since the '70's and would be interested to hear from others especially any who live in Somerset. I...
Patricia, I'm sorry I do not live by you. But I would be more than happy to correspond with you via email. I total understand, before I was diagnosed with...
I've seen some questions about pain pumps. I had a bad accident in 83, and had two spinal fusions. I went from being a workaholic to being out of work... Full...
Thank you for your Email I too went through years of feeling was not believed and then in 1982 I was diagnosed but I was not told the diagnosis until 1990. I...