Re: [Arachnoiditis] Need to understand what is Arach
Thank you Don & Jeanie - Your story is inspiring and hopeful. I am 49, had fibromyalgia first, then a back surgery as a disc had broken and pieces were floating around in the spinal canal and had to be removed. They think that is what may have caused the Arach (the scaring) I seem to scar very badly and easily as when I had carpal tunnel surgery I had all kinds of scar tissue they had to break up before they could do the surgery.
Its interesting, I was a master gardener and of course tho I don't do my volunteer hours to be "official" did a lot of landscaping for people. My husband is a special ed teacher in a local high school, and his kids of course aren't terribly handicapped, but enough so they need some help. I used to hire them sometimes to do the hard work. How I'd love to do that again. I also have a few dogs I used to show and I'd love to do that again. I too had a wonderful job, worked as a sales person for General Electric. I just feel so bad watching my husband working his butt off at his job, then bailing hay all summer (I had horses and we raised our own beef and beef to sell to others organically -turkeys for thanksgiving also). I only have one horse left that for some reason won't sell, so she's still here and we kept two cows for our own consumption) We used to be able to take vacations in the summer but now we rather he has to stick around to be able to cut and bale and do all the heavy work that I used to be able to help him with. Not to mention the lack of my income which was comparable to his. I just feel awful asking Jeff (husband) to do ANYTHING for me, he gets annoyed when I try to pick up or move anything heavy or do something I shouldn't probably do, which I'll try to do through the pain so I don't have to keep asking him for help. How does Jeanie handle that? Do you think she'd mind giving me her "take" on that aspect.
Jeff's a wonderful husband, but what is too much to ask for? Thanks a jigazillion, (that's a lot) Sue
Subject: Re: [Arachnoiditis] Need to understand what is Arach
Sue,
Hi Don here.
I too had a really well paying job and was in the $150,000.00 plus area. I had a business I built up over a 33 year period. It is all gone. All my money is gone too. The lake house, the boats, the everything except my wife. Praise God for Jeanie.
I tried to work for two years after I found out but I finally had to give into not being able too at 48 years old. It sucked big time. And then everything had to be sold just to try to pay medical bills etc. I am sure you know the story.
I got very depressed and as a man that could not support my family any longer it was so hard on me. When you get depressed you either do not eat or you do eat. I sat around and could not do a thing physically any longer and I got up to almost 370 LBS. I know it is bad but I did it. It was out of Character for me. As I gained weight my pain got worse as well as other things.
Last November 30 I decided to loose weight. I got a book at WalMart called (A WEEK IN THE ZONE) it was $7.95. I followed it to the letter and now I am down 120 lbs. I am in better shape than when I played High school football. I feel 19 years old again. It is awesome.I can out shovel my boys as we move dirt & rocks.I still hurt as the weather changes, I can not walk as well as before, I lose my balance sometimes but not too bad.
I have a Morphine Pump and it was set at 22 but now is at 7. I was on 38 pills a day but now take only 4. NO PAIN KILLERS. I used to take 5 shots a day for diabetes but NONE now.
I was able to get my older boys interested in landscaping as I had done for 35 years. The three of us are going slow but we work almost everyday. I love it. I can only work 5 or 6 hours a day but I do not care.I am able to be my own self again. Praise God.
I will never be the same as I once was just because if for no other reason, we get older but I just go on and try to forget that I have these troubles and do the very best that I can. I just give it 150% everyday and I am getting the smile on my face again that was lost I thought for ever.
It took a lot of hard work, Not giving into the doctors ways of doing things but rather following my heart. I give all the credit to God first and then to Jeanie my wife of 27 years. She is awesome. If I can help, just ask. I do not know everything but I have seen a lot since this came into my life 6 years ago.
Hi I am new to the board I had three back surgeries and was told I had arach three months ago.I need help understanding what i have and how to cope with it I...
You might try to go to Arachnoiditis.com. Write to Dr. Aldretti. He is a expert on this and treats a lot of us with it, You can get a lot of information from...
... He is a expert on this and treats a lot of us with it, You can get a lot of information from that site as well. It is a trustworthy site ... from the...
Hi, If I were you I would think twice about allowing anyone to inject you back or spine. THAT CAUSES AND WORSENS ARACHNOIDITIS. Since you are new to this you...
welcome back have not seen you on email for awhile please try to keep all of us posted with anything you know that willhelp or just a nice email ... ...
Thank you Don, the shots do not seem to be helping. The pain pills seem to take the edge off and since I've been taking them for fibromyalgia anyways, it's...
Sue, Hi Don here. I too had a really well paying job and was in the $150,000.00 plus area. I had a business I built up over a 33 year period. It is all gone....
HI, Don, I have been in this group for years and have talked to you before. I actually had not been on this email for several weeks and happened on to it...
Dear Teresa, Hi Don here from St.Louis. You have no idea how much it blesses me to know that my history in life has touched you & your husband. I am blessed...
Don - So very well said. Hope is what we all need, and it's already helped me to hear about yours and your loyal spouse's. Sue ... From: Don Goeglein To:...
Sue, I am a 23 year veteran of chronic pain. I was diagnosed with Arach about four years ago, but wasn't told about it until last year. During the four years...
Sue, Jay is so right with his advice to you Sue. Most are trained in a certain way and you need a doctor that will look beyond the window. If you find one that...
Thank you Don & Jeanie - Your story is inspiring and hopeful. I am 49, had fibromyalgia first, then a back surgery as a disc had broken and pieces were...
Dear Sue, After reading your words I can honestly tell you that you too have your Soul Mate in life. When we have our Soul Mate such as you and I do, there is...
Thank you Jay, that is the advice I've been getting. I've not only had facet joint injections but caudal as well. The doctor is indeed, as you say, an...
Sue, One of the very best ARACHNOIDITIS doctors is just South of Chicago IL. His name & number are Dr, Ramsis Ghaly 1900 Ogden Ave. Aura IL. 60504 630-978-6793...
Sue, One of the very best ARACHNOIDITIS doctors is just South of Chicago IL. His name & number are Dr, Ramsis Ghaly 1900 Ogden Ave. Aura IL. 60504 630-978-6793...
Thanks. That's really not too far for me at all, maybe 2-3 hrs. tops. Sue ... From: Don Goeglein To: Arachnoiditis@yahoogroups.com Sent: Saturday, October...
I thought it was pretty close. It is closer for you than it was for me but it was really worth it, Donald R. Goeglein "( Big D)" ... Yahoo! Music Unlimited -...
Thanks, you two are incredible. I appreciate your reply, and I think Jeff will too, AND agree with it 100%. Have a blessed day. Sue ... From: Don Goeglein ...
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