Hi Paula, I agree this is an unfair sentence and yes, it is very
tempermental, I have also discovered that what works some days doesn't
work the next. Stick with this bunch of outcasts and together we help
one another because nobody else understands us. You are welcome here
and have come to the right place. My arach was chemically induced, but
it doesn't matter how we got it, it's still HURTS!!! Hope we can chat
again. Mary Reyerson in Minn. Oh, by the way if you had any epidural
steroid injection in the nerve roots STOP and DON'T EVER have any
more.....that's how I got my arach, from an ESI using depo medrol that
got into the sub arachnoid space and the rest is history!!

-----Original Message-----
From: Pjschaiper@... [mailto:Pjschaiper@...]
Sent: Sunday, November 14, 2004 4:00 PM
To: Arachnoiditis@yahoogroups.com
Subject: [Arachnoiditis] Fairly New Member/Indiana



Hello, Paula from Indiana here.

I would like to join the chat. I have arachnoiditis, but it was not
chemically induced. Mine is from scar tissue due to surgery,
degeneration, and stenosis.

Speaking to anyone is helpful to me right now. I never even knew there
was such a thing as this condition. I want to gather all the information
possible.

I recently had steroid injections down both sides into my nerve roots.
DID NOT HELP AT ALL.

I am supposed to get the spinal cord simulator in December. I am
currently taking an anti-depressant and neurontin, and FINALLY, FINALLY
this past week I talked my Dr. into giving me a narcotic.

What I am finding is that arachnoiditis is very tempermental. Some
things work on certain days, and on other days, nothing works AT ALL. On
those days I just have to suffer.

It's a rather unfair sentence, is it not?

I'm only 38 and I am wondering how to live with this for the rest of my
life.

Best regards and God bless,
Paula from Indiana






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