Trish, I am SO SORRY that you have this horrid condition, but you have
found a group of caring friends to help see you through this, I was
diagnosed only a few months ago so I am new at this. There are a
several people in this group who know a lot more than I do and I'm sure
they will be able to help you more than me. Hang in there, they will
all answer your questions and help you, don't ever be afraid to ask for
help. This is a group of very caring friends, please keep in touch,
Mary R in Minnesota

-----Original Message-----
From: patricia_bruening [mailto:patricia_bruening@...]
Sent: Friday, November 05, 2004 10:09 AM
To: Arachnoiditis@yahoogroups.com
Subject: [Arachnoiditis] HELP.............




hI.....
I am from the porthuron mich area and I do not know anyone who
has this disease...I feel alone and scared...My family lives in Wis
and I have been here for about six years...I would greatly appreciat
it if anyone would please contact me to share..I was diganosed with
this a few months ago, but have been suffering for years...I have has
all toghther 3 back surgeries which all included going in to the
nerve sak...where tumor was mixed in with the nerves...I have had 4
myograms...and the first 2 where oilbased...
This last surgery was all i could take....and 6 months later I was
diganosed with arach...and live on morphone pills that dont even help.
please someone contact me back,
Trish







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