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Arachnoiditis · Looking for anyone in this area who are suffering with Arachnoiditist. Looking to start a grooup in this area maybe to get toge
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Help: Doctors and Tips   Message List  
Reply | Forward Message #186 of 1740 |
Re: [Arachnoiditis] Help: Doctors and Tips

CELESTE, i have a National Registry of Physicians that treat for this disease.  Contact me at chairmanafa@... and i will get you a list of Physicians in your area for you to contact.
 
sincerely,
 
 
FREDDIE LYTLE
FOUNDER & CHAIRMAN
ARACHNOIDITIS FOUNDATION OF AMERICA, INC.(AFA)

twoheadedpurplepig <watchmecatchme@...> wrote:
Hello everyone,

I came across this group by accident but I'm really glad I did.  My close friend
was recently diagnosed with arachnoiditis.  He's had a lot of bad luck with
doctors (I'm sure that doesn't come as a surprize to anyone here!) but I
promised I'd see if I could find someone good in the Philadelphia area.

On top of that, anyone who has any tips, I'd really appreciate it.  He's 29 and
while he's doing a great job fighting it, it's getting worse so fast that it takes my
breath away.  Right now he's on time-release morphine that does next to
nothing, and sometimes he takes an anti-inflammatory, maybe once a week. 
The other day he forgot where he was and what he was doing for a few
minutes.  It scared us both so I wondered if anyone else had any similar
experiences from the morphine? 

My heart goes out to all of you bravely fighting this terrible disease.  Thanks
for reading this and please don't hesitate to contact me about anything.

Celeste




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FREDDIE LYTLE
PRESIDENT & CHAIRMAN OF THE BOARD
ARACHNOIDITIS FOUNDATION OF AMERICA, INC.(AFA)


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Fri Feb 6, 2004 7:09 am

mystikz111
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Message #186 of 1740 |
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Hello everyone, I came across this group by accident but I'm really glad I did. My close friend was recently diagnosed with arachnoiditis. He's had a lot of...
twoheadedpurplepig
twoheadedpur...
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Jan 27, 2004
7:23 am

This is the most awful disease. It takes so much from not only the person who does the physical suffering, but the rest of the family. I think you will find as...
Teresa Schmied
teresaschmied30
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Jan 27, 2004
1:49 pm

Thank you Celeste for contributing. And please don't hesitate to do so as much as you want too. You are more than welcome. sincerely, FREDDIE LYTLE FOUNDER &...
freddie lytle
mystikz111
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Feb 6, 2004
7:03 am

CELESTE, i have a National Registry of Physicians that treat for this disease. Contact me at chairmanafa@... and i will get you a list of Physicians in...
freddie lytle
mystikz111
Offline Send Email
Feb 6, 2004
7:09 am
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