I live in England so I am sorry I can't help you with regard to advising you where you could get help. It is very difficult as not many Drs or Specialists seem to know much about it. I have had it since the 70's and it really did change my life. I try to take each day as it comes so that I get some kind of life.
I do hope you will get help and well not suffer too much.
Take care,
Pat
--- On Sun, 15/2/09, Diana Albers <dlalbers19572000@...> wrote: From: Diana Albers <dlalbers19572000@...> |