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Arachnoiditis · Looking for anyone in this area who are suffering with Arachnoiditist. Looking to start a grooup in this area maybe to get toge
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I wanna talk with ppl with arachnoiditis   Message List  
Reply | Forward Message #1666 of 1739 |
Re: [Arachnoiditis] I wanna talk with ppl with arachnoiditis

Hi Brianna,
 
I have been diagnosed witharachoiditis for 8 years, yes life is difficult.  I have had 4 surgeries, from the initial lower lumbar surgery in 2001 laminectomy, fusion, spinal cord stimulator in 2005 and a revision of the that stimulator in 2006.  I have also had the epidural injections, without any luck to trying to burn the nerves in 2007, without any relief.  I know it is difficult to function and people do not understand your life unless they have experienced it personally.  Well, I am at the point of just going to pain management every month with a host of medications I take daily to help function, but this is about as good as it gets.  Feel free to email me.  
You are not alone.  Where are you and your husband located?  Melissa
----- Original Message -----
From: Brianna
Sent: Monday, November 03, 2008 3:02 PM
Subject: [Arachnoiditis] I wanna talk with ppl with arachnoiditis

Hi,
My name is Brianna, my husband has had arachnoiditis for 4 years. I
want to talk with other ppl with this disease to see what life is like
for others. Life sucks for us and we feel totally alone, no one around
our area knows anything about this disease.
thx
Brianna



Thu Nov 20, 2008 7:47 pm

melly2go
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Message #1666 of 1739 |
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Hi, My name is Brianna, my husband has had arachnoiditis for 4 years. I want to talk with other ppl with this disease to see what life is like for others. Life...
Brianna
briezy81ca
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Nov 3, 2008
8:02 pm

Hi, my name is Laura and I have arachnoiditis for 10 years now. I am fairly controlled on medications but I know that others have different opinions about...
Laura Mannon
nccpsych24
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Nov 3, 2008
8:30 pm

hi Brianna, I do not even know why I still belong to that group as no one ever posts and there is so much spam. Another group is called COFWA, you might want...
Diana Albers
dlalbers1957...
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Nov 3, 2008
11:33 pm

Hi Brianna, I have been diagnosed witharachoiditis for 8 years, yes life is difficult. I have had 4 surgeries, from the initial lower lumbar surgery in 2001...
MELISSA HARNER
melly2go
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Nov 20, 2008
7:47 pm

Hello to All, It is good to see the Group being used again, and it is a pleasure hearing from fellow "Arachnoiditis Sufferers" instead of the usual unrelated...
Ursula Darker
ursuladarker
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Nov 20, 2008
11:41 pm

Thank you for such an interesting Email re: Arachnoiditis I was getting disappointed with the Emails that I have received of late and I think it sounds as...
Patricia Graddon
patnoelgraddon
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Nov 21, 2008
10:49 pm

Hi Melissa, Thanks for your e-mail. My husband has had Arachnoiditis for 4 years, back problems for 6 years. I am finding now that I HAVE to stay home to look...
Brianna Passmore
briezy81ca
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Jan 10, 2009
4:28 pm

Hi Laura, My name is melissa I have arachnoiditis for 8 years, I have written Briana also. I was wondering what medications do you take? I am on Fentanyl...
MELISSA HARNER
melly2go
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Nov 20, 2008
7:53 pm

Melissa, I would be happy to talk to you. As far as my medication go they are numerous. I am on backlofin, zanflex, morphine, and several other medications I...
Laura Mannon
nccpsych24
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Nov 22, 2008
9:32 pm

Laura, Glad that we can communicate, need support some days. I agree this cold weather is definitely not good for us. Stay warm and in your tub. Have a...
MELISSA HARNER
melly2go
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Nov 24, 2008
5:41 am

I used to be on methadone a long time ago. SO if you have an questions I an answer them. Laura ... From: Arachnoiditis@yahoogroups.com ...
Laura Mannon
nccpsych24
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Nov 24, 2008
5:55 am

Hi Laura, Yes, my pain management is suggested to try to take me off all pain meds, and try methadone. I am currently on Fentanyl patch, lidocaine patch,...
MELISSA HARNER
melly2go
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Nov 24, 2008
12:57 pm

Melissa, I was tired with the methadone. Also I had a hard time coming off it when it was time. Other than that It worked fairly well. But I also use my...
Laura Mannon
nccpsych24
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Nov 24, 2008
3:38 pm

Hi Briana and Mike, Mike is lucky to have such a supportive spouse as you, I am glad u are getting involved with your side business, anything to help keep the...
MELISSA HARNER
melly2go
Offline Send Email
Jan 16, 2009
3:01 pm
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