Hello Cindy,

 

Praying For You To Find Relief of Your Sensory Pain And Symptoms Soon!!! As far as finding a Good Dr. Who Knows Much About Arach, Well This Is A Huge Challenge For Most Of Us!!! Like you I have never had a definate dx of Arach, but Suffer All The Distinct Symptoms since Depo Medrol Lidocaine Lumbar Injection July 2004 and Especially After C Spine Surgery 2005!!! I have multiple neurospinal dx's since spinal disc injury assisting with mulidisabled teens at my former employment!!! I was unfortunately terminated as an employee from former job because of being seriously injured and found to have incurable neurospinal birth defects beginning Feb. 2004!! Worked in this condtion until March 2005 and was finally terminated Oct. 2007!! I now have to rely on Meager SSDI and Insufficient Medicare Coverage!!! I am also a member of DepoMedrolDidItHarmYou support group MSN.com. Most members in this group have much knowledge of Chronic Adhesive Arachnoiditis and will tell you that a dx of Failed Back Surgery Syndrome is Actually Just A Cover Up Dx of CAA!!! Most Dr.s Don't Want Much To Do With Any Of Us Who Claim To Have Arach!!! Reason for this is because Spinal Experts Are Causing This Horrid Incurable Spinal Meninge Disease And Getting Away With It!!! Dennis the Founder of DMDIHY and some other members of this group have been working towards Making People Listen To The Truth About Epidural Steroid Injections, The Real Link Between These NeuroToxic Injections And The Relentless Disease Chronic Incurable Adhesive Arachnoiditis!!! The Maker of this Neurotoxic Drug Now Pfizer Supposedly Has Printed A Warning In The Insert Of The Package Of The Drug Depo Medrol Reading, Not To Be Administered Directly Into The Epidural, Intrathecal Space of The Spine!!!! Greedy, Corrupt, Arrogant Spinal Drs. All Just Continue To Ignore This Warning As They Are Making MultiMillions of Dollars From These Injections!!!! All the Neurospinal Experts I have seen since the injection Either Insist I Don't Have Arach Or They Just Tell Me Sorry, But There Is No Cure For This Disease, Don't Want To Help Me In Anyway And Just Tell Me To Learn To Live With It!!!!! Like You And Others I Have Been To And Through Hell And Back Because of The Often Relentless, Incomprehensible Neurological Suffering, But Have Become An ExtraOrdinary Stronger Human Survivor of This Most Dreadful Disease!!!! I am also not a stranger to Chronic Neurospinal Pain as I have suffered much since Permanent C Spine Damage from a car accident at age 19, 1982!!!!!! I also have dx's of Brain and Spinal Cord Defect, Chiari Malformation, Syringomyelia, Possible Tethered Cord Syndrome along with many other spinal issues!!!! All this and I was a nurses assistant, caregiver, teacher and bus assistant for Multidisabled Adults, Teens and Children over the past 15yrs.!!! Well I Have Gone Into Telling You My Life Story And Really Just Want To Offer You Any Support And Help I Can At This Time!!!!  I live in PA. and have been to The Chiari Institute, Great Neck, NY, all around here in PA. and also am yet Again Headed To JHU, Baltimore, MD for possible help and treatment!!! From all or some of these neurospinal dx's I continue to develop increased serious Bladder Dysfunction!!! I started out having chronic bladder retention from spinal damage in 2004 to now having developed Flaccid Bladder with Dyssynergia, Detrusor Muscle Impairment!!! This Is All From Untreated Progressive NeuroSpinal Issues!!! Gross Negligence of The Medical World Today!!!! I really believe and fear that the main cause of my Neurogenic Bladder is Due To The Damage From The Depo Medrol Lidocaine Lumbar Injection!!!! I will continue to seek proof of this!!!! Hope You Can Find A NeuroSpinal Expert Who Is Knowledgable of Arach and Willing To Help Ease Your Suffering And Disability From It!!!!!!!!!

 

                                                                                         Melana from PA