Hi Christine!
I have all the empathy in the world for you, and anyone like us who has this disease. You are right about the resentment, and it sometimes creeps in. I have to kick myself and remember that the only one that's hurting is me... There are so many lessons I've learned from AA that help me get through this.
I'm sure you feel the same. If you ever need someone to talk to, feel free to call me. 813-988-1212. I have free long distance for the U.S. and Canada, so feel free to call and I'll you back if you don't have the same service. I've already told my wife about you, so feel free to ask for me if she answers.
Maybe kind of like an arachnoiditis sponsor:-).
I noticed that they said you had stage 3 arac. I haven't heard about it graded in stages. They told me that mine was severe adhesive arachnoiditis. I'd like to know how far it has progressed, but I have a spinal stimulator implanted, and an MRI would ruin the machine..Nuts!
One thing I've learned that you might find interesting: morphine and other narcotics do not damage the body. Alcohol is much much worse. We all know how it tears up the liver. Crack and meth also tear up the body and the teeth. I guess there is some small solace in knowing that the one thing that can give us some relief isn't all that bad. I have found that it does effect short term memory a bit, but it's worth the trade. I refuse to stay in bed. I still work at a job that doesn't require a lot of driving.
I hope you feel comfortable calling. Good luck and God bless.
Jay in Tampa.
----- Original Message ----
From: vopoulin <radiocorcoran@...>
To: Arachnoiditis@yahoogroups.com
Sent: Saturday, August 4, 2007 7:24:17 PM
Subject: [Arachnoiditis] Re: Help please!
Thank you so much, Jay, for the kind words! The hardest part in all of
this is resentment, and you know as well as I what that does to people
like us. I don't have that luxury, so I am trying to deal with it.
One day I was fine, getting ready to have my baby, the next I am poked
in the back three times with an epidural and then the symptoms started
to happen quickly. I have no history of any back problems, and so now
I am trying to just stay out of my head long enough to put it all in
perspective.
I have gathered all of my medical notes and labor notes, copied the MRI
pics and feel a little better knowing that the pain is not all in my
head. This really puts a new twist on
"One Day At A Time" huh?!! :) Life is good, and I am truly grateful I
am alive to even feel the pain...there but for the Grace of God go I!
Thanks!
Christine
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