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Arachnoiditis · Looking for anyone in this area who are suffering with Arachnoiditist. Looking to start a grooup in this area maybe to get toge
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Help please!   Message List  
Reply | Forward Message #1496 of 1739 |
Re: [Arachnoiditis] Re: Help please!

I'm sorry to hear you've got advanced arac.
 
I've also been a friend of Bill W for 15 years. I've given a lot of thought to taking the meds necessary to at least have a somewhat decent quality of life. Please remember that you have one of the most debilitating diseases known to man. It's okay to take medicine as prescribed. You seem to have a good sense of that. God didn't want us to live life in excruciating pain.
 
This is a man made disease, and there are treatments and meds out there which can give you some comfort..I've had good relief from a pain pump. I recently had a spinal stimulator implanted. They work well for some people, but mine hasn't done muchfor me. I also take a regimen of oral meds. The tough part is finding a balance where you are still alert, but the pain is at an acceptable level. Unfortunately, I know that I will never be pain free again.
 
Try to keep a positive attitude. Email me directly if you'd like,
 
Regards,
 
Jay

----- Original Message ----
From: vopoulin <radiocorcoran@...>
To: Arachnoiditis@yahoogroups.com
Sent: Saturday, August 4, 2007 2:02:20 PM
Subject: [Arachnoiditis] Re: Help please!


Well I guess I answered my own question. The MRI shows stage 3
adhesive arac. I am scared, lost, and do not know what to do next. At
least I feel a little less crazy, because the doctor started acting
like I was a "drug seeking" patient for pain meds. I am sober 13 years
now, and never took more than a tylonol for pain...this is not a good
place for me-any advice on what is best for pain management?

Thanks!




Sat Aug 4, 2007 9:11 pm

homesavers03
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Message #1496 of 1739 |
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Hi there, I have yet to be diagnosed formerly, my mri with contrast is scheduled for this coming Tuesday. I had a baby in November, and the anethesiologist...
vopoulin
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Jul 27, 2007
8:14 pm

Well I guess I answered my own question. The MRI shows stage 3 adhesive arac. I am scared, lost, and do not know what to do next. At least I feel a little...
vopoulin
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Aug 4, 2007
6:06 pm

I'm sorry to hear you've got advanced arac. I've also been a friend of Bill W for 15 years. I've given a lot of thought to taking the meds necessary to at...
jay
homesavers03
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Aug 4, 2007
9:11 pm

Thank you so much, Jay, for the kind words! The hardest part in all of this is resentment, and you know as well as I what that does to people like us. I...
vopoulin
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Aug 4, 2007
11:35 pm

Hi Christine! I have all the empathy in the world for you, and anyone like us who has this disease. You are right about the resentment, and it sometimes creeps...
jay
homesavers03
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Aug 5, 2007
10:29 pm

Jay, I knew the 813 area code was Tampa as my daughter just moved from there about 30 minutes away, I can't remember the name of the town. I have been to...
Diana Albers
msladydimich
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Aug 6, 2007
4:16 am

In a message dated 8/4/07 7:36:03 PM, radiocorcoran@... writes: << Arachnoiditis@yahoogroups.com >> Please Remove from mailing list. Thank you....
FERRARA1169@...
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Aug 7, 2007
9:17 pm

Dear Christine just a note re your Arachnoiditis, I have had it now myself since 1990 and I have had so many back surgery since that time I just gave up on...
BCGODSOESR@...
rgodsoesr63
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Aug 13, 2007
6:10 am

Bob, Thank you for the reply and I am so sorry for your suffering. It is horrible to think that something that should ease our pain only brings us more pain....
Christine Poulin
vopoulin
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Aug 13, 2007
11:48 am
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