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Arachnoiditis · Looking for anyone in this area who are suffering with Arachnoiditist. Looking to start a grooup in this area maybe to get toge
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No sign on MRI of Arach   Message List  
Reply | Forward Message #1494 of 1739 |
Re: [Arachnoiditis] Re: No sign on MRI of Arach

I'd like to add bits of my story.... First, yes congratulations on your baby. Kids make life worth living when nothing else does. There have been times when the only thing that stopped me taking an overdose was that I could not bear the thought of my kids finding me dead. Just as well, because a few years after getting over the worst depression, I discovered that my then husband had been abusing our older daughter. If I hadn't been around, there would have been no-one to help her, and she has had the most awful time with mental health issues (although she's now much better).
 
I got arachnoiditis because in 1971-2 I had two myelograms despite being known to be allergic to iodine (which is in all contrast mediums).  I had an MRI scan without contrast (naturally) in 1992 and it came back "normal", but it was carried out by the same hospital that did the original myelograms. Conflict of interests or what?! It is dead easy to "weight" the MRI wrongly so that nothing shows. Despite the "negative" MRI I have all the signs and symptomsof arachnoiditis. Every so often I come up with new signs and symptoms and call the arachnoiditis trust helpline and they say, yeah, that's arachnoiditis.
 
Two things changed my life. one was chiropractic - it gets your spine functioning at the best possible level. I found it has taken away a lot of the fear in my life, because I know if I overdo things, the chiropractic will sort it out. The second thing was that I took a degree with the Open University, which led to part-time teaching and then full time work. The work only lasted a few years because I then developed Crohn's disease (which is apparently linked to arachnoiditis) and at the moment I'm too ill to work - at least partly because I was given contrast medium to drink !!! Never mind, I'm going to sue the pants off the hospital!!!
 
You need to keep going for your baby, and also because what's coming next could just as well be good - it does happen. Take care.
 
Catriona

vopoulin <radiocorcoran@...> wrote:
Melana,
I am so sorry to hear of all the pain and suffering you have been
through! It makes me problems seem so small. I have had no injury or
surgery involving my back, and the only thing I can think of is the
three epidural attempts, since my back was fine before that. I cannot
explain the pain right, I don't have words to describe it well. The
sweating like crazy is the symptom that I don't understand. I am 41
years old, ( oldest daughter is in college, 20-then son 3.5 and my
daughter, born in November) so I thought maybe it was early
menopause...but I don't know. Guess we will find out soon enough!
Thanks again for sharing your story...and God Bless!



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Mon Jul 30, 2007 4:52 pm

catrionamfer...
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Message #1494 of 1739 |
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Hello to All, To the young mother who just had a baby. First off congratulations on having your precious baby. I completely sympathize with you of your pain...
MELANA MYERS
kaycofwa62
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Jul 28, 2007
3:57 pm

Melana, I am so sorry to hear of all the pain and suffering you have been through! It makes me problems seem so small. I have had no injury or surgery...
vopoulin
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Jul 28, 2007
9:58 pm

I'd like to add bits of my story.... First, yes congratulations on your baby. Kids make life worth living when nothing else does. There have been times when...
Catriona Ferguson
catrionamfer...
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Jul 30, 2007
5:02 pm
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