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Arachnoiditis · Looking for anyone in this area who are suffering with Arachnoiditist. Looking to start a grooup in this area maybe to get toge
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Reply | Forward Message #1473 of 1739 |
Re: [Arachnoiditis] Pain Pumps

hi jay im mike i got it to diagnosed in apr 2003 by civilian doc's i had it longer  i had a L-5 S-1 surgry in 2000 and the aparent cause  of the arachnoiditis was  the surgen nicked my spinal cord  at L-5 which is wear it originated best guess from nerosurgen  and neroligist 2 opinions any way its a debilitateing desiese its grown up my spine and as you know it chokes off nerves and nerve roots causing disfunction or no function to what ever part of the body the nerves serve for me i have lost sex function my equipt dont work just shriveled up i have urineary and fecal incontinance i wear diapers my legs are loosing function as we speak latest news is my kidneys are not functioning properly so for all those with L-5 L-4  you can expect your kidneys to loose function as well and your avrage doc or uroligist wont pick up on its relation to your arachnoiditis till its to late  and loosing  function does mean  diallisas machines  rite now eaven tho i have incontinnance my uroligist who specializes with folks whom have had spinal injuries ( he is V.A. doc and the best ive met yet )  he says im faceing having a permanant catheter sewn in my crotch cause reg 1 cause scar tissue in my uritha  besides that its all shriveled up  says my fecal incontinnance is causeing my bladder not to empty untill it is maxed out and then i pp a little at a time in my diaper plus he said the arachnoiditis is playing a roll in it screwing with the nerve function and this scar tissue from adhessive arachnoiditis keeps on growing for how long ? at what rate of debilatating  ? its all up to the individual and no 1 has figured out yet why or if diet helps or exercise but i cant exercise walking  hurts standing to long hurts when i could have sex it hurt  i thought id share that with you  i am also a desert storm veteran /stationed in korea /and germany cold war if any ones got any simalarities in places ive been e-mail me  subject places good day comrads
----- Original Message -----
From: jay
Sent: Wednesday, June 07, 2006 6:36 AM
Subject: [Arachnoiditis] Pain Pumps

I've seen some questions about pain pumps. I had a bad accident in 83, and had two spinal fusions. I went from being a workaholic to being out of work... Full body casts can test the metal of the best person....
I had my first pump in 1995. It was a morphine pain pump, and absolutely changed the quality of my life for about 5 years. As time went by, I developed a tolerance to the morphine, and had fentanyl put in. Each year he would change from one drug to the other, which actually worked quite well.
I no longer walked with a cane, could go jet skiing with my kids, deep sea fishing, etc. It was truly like a gift from God. I wouldn't trade those years for anything.
Gradually, I needed more and more medication, and got to the point of taking oral meds for "breakthrough" pain. The pain gradually increased to being very challenging again, and the dew seemed to be off the rose as far as the pump was concerned.
I have built up a good business which I can run from home. Keeping my mind busy and earning a good living keep my spirits up. I do physical therapy at home each day.
In 2001, arachnoiditis was diagnosed from an MRI. I was not told about that until 2004, when a neurosurgeon looked at me sadly and said there was nothing he could do for that, and there was no treatment that he knew of. There are no words to describe the challenges of arachnoiditis.
I am in the process of getting a spinal stimulator implanted. I have had the trial stimulator, and it worked famously.
If any of you are interested in emailing me privately, feel free.
All the best,
Jay



Sun Apr 8, 2007 3:37 pm

sgttattenn
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Message #1473 of 1739 |
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I've seen some questions about pain pumps. I had a bad accident in 83, and had two spinal fusions. I went from being a workaholic to being out of work... Full...
jay
homesavers03
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Jun 7, 2006
11:37 am

Thank you for your Email and I can understand the pain you are in. My condition was diagnosed in 1982 and I wasn't told until 1990 that was the worst time. I...
Patricia Graddon
patnoelgraddon
Offline Send Email
Jun 7, 2006
10:46 pm

hi jay im mike i got it to diagnosed in apr 2003 by civilian doc's i had it longer i had a L-5 S-1 surgry in 2000 and the aparent cause of the arachnoiditis...
michael
sgttattenn
Offline Send Email
Apr 8, 2007
3:42 pm
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