Hello Kathy S. I'm so sad to hear of someone as young as your
daughter and has to deal with medical problems at that age. They have
to many other things life. I have been dealing with arachnoiditis for
a long time. In the 80's I had Myelograms with pantopaque, Also some
discograms they put something very bad into me. But It could have
came from that. Or any of the 5 major spinal surgeries that I have
had. Including 2 spinal fusion's with hardware that never healed.
There are not very many Doctors in this state that I would recomend
at all. One I have seen and I have been to many. But, I liked him and
he is knowledgable. I don't know what you are looking for in a Doctor
if you already have a neurosurgeon in Chicago. This guy is a
neurosurgeon that I'm telling you about. His name is Ted Wagner M.D.
at the U.W. medical cntr. If you are looking for a PCP just to she
her for minor setbacks. I could give you some names. Its a very bad
state for finding doctors that are willing to treat chronic
degenerative pain in this state. If you want to contact me privately
my e-mail address is Sfusion@... and I will tell you of some
more. I hope that your daughter feels better. Sincerely Michael in
Washington State


--- In Arachnoiditis@yahoogroups.com, "CristinaKathy " <sfyelm@...>
wrote:
>
> Hi, My 18 year old daughter had adhesive arachnoiditis in her
spine
> and around parts of her brain. She's developed really severe pain
in
> her lower back over the last few months. We know that is one of
the
> bad places due to many surgeries, infections and spinal taps...
> Our local doctors are blowing it off and just telling her to
> increase pain meds without checking into matters. None of them
were
> the ones to make any of her diagnoses or even do any major
> treatments...We both feel that soemone actually needs to look into
the
> matter and make sure that nothing else is happening that can be
treated.
> So.. Does anyone know of good doctors in the western washington
> area? Specifically around Olympia/Tacoma/Seattle? We see Dr Frim
in
> Chicago to treat the neurosurgical stuff, but there is alot he
cannot
> do from so far away.
> Thanks fro the help,
> Kathy S
> mom to Cristina, www.caringbridge.org/visit/cristinas
>