Hello Jeff, thanks for your reply. I have gotten a lot of information
and read a lot about this condition from every source that I could
find it. And I still don't understand it all. I always thought that
(itis) meant inflammation of. Like in Bronchitis, Neuritis,
Cholecystitis, Meningitis, Otitis, Osteoarthritis, Arthritis, etc.
Everything with itis in the suffix such as Myocarditis means Myo =
Muscle, Card = heart, itis = inflammation of, So Myocarditis =
Inflammation of the muscles of the heart. That is how I was always
taught. But, I have to agree with you. Even though it's never been
proven that I have heard. I too believe that Adhesive Arachnoiditis
somehow is connected to our auto-immune system also. Weather it is
secondary to getting Arachnoiditis first. I knew that the spinal cord
was made up of three layers. But, I never knew that "Dura mater meant
hard mother and Pia mater meant tender Mother. I guess an old dog can
always learn new things, thanks. I'm just really disappointed in the
Medical Community and the way they mislead their patients about
everything that's going on with them and blaming the victim for what
is their responsibility. Best regards Michael in Washington State


--- In Arachnoiditis@yahoogroups.com, Jeff Johnson <aa8ve@...> wrote:
>
> It's not always scar tissue, the reason it is an "-itis" is because
it's
> an auto-immune disease meaning the body is attacking the tissues and
> causing the problem. The Arachnoid membrane is a very thin
membrane like
> a spider web, that covers the brain and spinal cord that
lies 'between'
> the dura mater (Latin for "hard mother") and pia mater (Latin for
> "tender mother"). This tissue is to allow the nerves and brain a
layer
> that will remove friction as the body moves round on the nerve
fibers.
> When it becomes sticky the nerves are agitated and it causes pain.
There
> are many things that can cause a body to go into an auto-immune
disease
> condition, doesn't need to be caused by an outside event like
injury or
> surgery. Any MD should be able to help understand this and explain
the
> pain, the differences are in which doctor will actually call it
what it
> is, it can be impossible to see on any scans so many doctors are
> reluctant to call it Arach. In short anything that has damaged this
> tissue and it can't heal properly can be called Arachnoiditis but
in it's
> true form it is an auto-immune disease since it has the "-itis" in
the
> word.
>
> Jeff
>
> On Thu, 2 Nov 2006 08:24:37 -0800 (PST) jay <homesavers03@...>
> writes:
> Thanks for the definition of having scar tissue growing through the
> spinal nerves. Is this verified?
> Regards,
> Jay
>
>
> ----- Original Message ----
> From: Michael <Sfusion@...>
> To: Arachnoiditis@yahoogroups.com
> Sent: Wednesday, November 1, 2006 10:36:51 PM
> Subject: [Arachnoiditis] Re: New to the group...
>
>
> Hello Lauren, I'm so sorry that you have to endure this pain at
such
> at such a young age. I had my first back surgery a spinal fusion at
> L5-S1. I have been in chronic pain since. I have since had 4 more
> surgeries to fix all the mistakes and misdiagnosis that the doctors
> made. I now have Arachnoiditis. I don't understand how you could
have
> gotten this condition from a hysterectomy. Have you had anything
done
> to your back. You could have gotten it from an epidural if you had
> one for your hysterectomy or if you had a child. But, Arachnoiditis
> is scar tissue that has growen through your spinal nerves. I wish
you
> the best. If you ever want to talk more please feel free to write
to
> me anytime. Sincerely Michael in Washington State
>
> --- In Arachnoiditis@ yahoogroups. com, "Lauren"
<laurenkendy3@ ...>
> wrote:
> >
> >
> > I am Lauren and I am 38 year old and was searching the internet
> for
> > more information on this illness. I have been though too much to
get
> > into but a year and a half ago, I underwent a hystromecty because
> I was
> > having severe lower back pain and Dr after Dr didn't know what to
> do or
> > what was causing the back pain. It got so bad I could no longer
> cook or
> > clean or be on my feet longer then a few minutes the pain was so
> bad.
> > They determined I had cancerous cells that were in my ovaries and
> that
> > is why I had the complete hysterectomy hoping the back pain would
go
> > away along with not getting full cancer. After the surgery, my
lower
> > back pain did go away but up until a few months ago it has
returned
> and
> > I just came back from the Dr. with my MRI results and they say I
> have
> > Arachnoiditis and now I will see a orthopedic Dr. I have never
> heard of
> > this and I am very bummed out because I have always been so
active
> just
> > a lot of energy and I guess I just need to learn more and
hopefully
> I
> > can hear from some of you suffering from this. It sucks having
this
> > pain, so I don't usually write so much but I needed to talk so
> thank you
> > for listening.
> >
> > Lauren
> >
>