It's not always scar tissue, the reason it is an "-itis" is because it's an auto-immune disease meaning the body is attacking the tissues and causing the problem. The Arachnoid membrane is a very thin membrane like a spider web, that covers the brain and spinal cord that lies 'between' the dura mater (Latin for "hard mother") and pia mater (Latin for "tender mother"). This tissue is to allow the nerves and brain a layer that will remove friction as the body moves round on the nerve fibers. When it becomes sticky the nerves are agitated and it causes pain. There are many things that can cause a body to go into an auto-immune disease condition, doesn't need to be caused by an outside event like injury or surgery. Any MD should be able to help understand this and explain the pain, the differences are in which doctor will actually call it what it is, it can be impossible to see on any scans so many doctors are reluctant to call it Arach. In short anything that has damaged this tissue and it can't heal properly can be called Arachnoiditis but in it's true form it is an auto-immune disease since it has the "-itis" in the word.
Jeff
On Thu, 2 Nov 2006 08:24:37 -0800 (PST) jay <homesavers03@...> writes:
Thanks for the definition of having scar tissue growing through the spinal nerves. Is this verified?
Regards,
Jay
----- Original Message ---- From: Michael <Sfusion@...> To: Arachnoiditis@yahoogroups.com Sent: Wednesday, November 1, 2006 10:36:51 PM Subject: [Arachnoiditis] Re: New to the group...
Hello Lauren, I'm so sorry that you have to endure this pain at such at such a young age. I had my first back surgery a spinal fusion at L5-S1. I have been in chronic pain since. I have since had 4 more surgeries to fix all the mistakes and misdiagnosis that the doctors made. I now have Arachnoiditis. I don't understand how you could have gotten this condition from a hysterectomy. Have you had anything done to your back. You could have gotten it from an epidural if you had one for your hysterectomy or if you had a child. But, Arachnoiditis is scar tissue that has growen through your spinal nerves. I wish you the best. If you ever want to talk more please feel free to write to me anytime. Sincerely Michael in Washington State
--- In Arachnoiditis@ yahoogroups. com, "Lauren" <laurenkendy3@ ...> wrote: > > > I am Lauren and I am 38 year old and was searching the internet for > more information on this illness. I have been though too much to get > into but a year and a half ago, I underwent a hystromecty because I was > having severe lower back pain and Dr after Dr didn't know what to do or > what was causing the back pain. It got so bad I could no longer cook or > clean or be on my feet longer then a few minutes the pain was so bad. > They determined I had cancerous cells that were in my ovaries and that > is why I had the complete hysterectomy hoping the back pain would go > away along with not getting full cancer. After the surgery, my lower > back pain did go away but up until a few months ago it has returned and > I just came back from the Dr. with my MRI results and they say I have > Arachnoiditis and now I will see a orthopedic Dr. I have never heard of > this and I am very bummed out because I have always been so active just > a lot of energy and I guess I just need to learn more and hopefully I > can hear from some of you suffering from this. It sucks having this > pain, so I don't usually write so much but I needed to talk so thank you > for listening. > > Lauren >
Hello Jay, I'm sorry that you have to suffer with horrible back pain yourself. If you have Arachnoiditis. I can give you plenty of sites on the web to find out...
It's not always scar tissue, the reason it is an "-itis" is because it's an auto-immune disease meaning the body is attacking the tissues and causing the...
Hello Jeff, thanks for your reply. I have gotten a lot of information and read a lot about this condition from every source that I could find it. And I still...
Hello Michael, I hope you won't mind my input! You are correct in saying Arachnoiditis is an inflammatory condition / disease, the arachnoid membrane is very...
Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Hello Micheal, I'm so pleased to hear back from you, I am so sad to hear of the state of things in the US, I have always looked to the US as being a country...
Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Yes Michael, you are right, right, right... I was not exactly correct about the "itis" as my wife pointed out just after I sent that one. Oop's sorry for that...
Hello Jeff, no need to apologize. If I apologized to everyone that I made a mistake sending something about. I would be at this computer forever. I have been...
Trying to explain this problem to the general public is an effort in futility at it's best. "So Jeff, what's the reason for your pain?" Well... and I try to...
Hey Urslua, Right, I didn't know you were a Brit... Brilliant! 8-D In all my chats with people the world over it's becoming clear that the Limeys, Yanks and...
Jeff, I live in Michigan also about 45 miles west of Detroit. I suffer from Arachnoiditis and CES. It is a very lonely world for me since this whole thing...
Hello Jeff, Thanks very much for your email, its really nice hearing all about your Range Rover, you have a good motor there, they do tend to last well, the...
You must be near Ann Arbor? I'm in Clarkston, between Flint and Pontiac. We are probably less than 50 miles apart. I spent a lot of time (years) at U of M...
Jeff, looks like we are more like 20 miles apart, I am in Highland. Ironic, my brother lives in Ann Arbor and is always asking me to go to U of M for some...
No, not heard of Freehan's site but I shall take a look. Fine on the vehicles, it seems just about all the brands are holding up well these days, since the...
Ok Highland, yep, know it well. In fact as an electrician I worked for the company that did all the electrical work in that bank and strip mall at the SE...
Michael, my son is 22 and is now an E3 petty ET Nuke going through power school right now and he completely loves it! He's been getting 3.8 on his tests so...
Hello Jeff, I'm sorry that you are not feeling to well today. But, try not to dwell and what we used to do and what you can or maybe able to do in the future....
Ursla dear, you have a lot of good help to offer. I'm not doing well not, it's a rotten rotten day here, almost can't hit the keys! Wonder if we could start...
Hello Diana, Thanks for adding your details. I will add you to the "A List", there's 3 of us so far, do you mind me asking you if you have Arachnoiditis? Will...
Hi Jeff, I'm so sorry to hear you are not too good today, it sounds like you are going through a bad flare up, you must try and rest as best you can and try ...
Hello Ursula, you can add me to your list if you want, My name is Michael in Washington State and I'm a 50 y/o man. I don't know when I picked up this...
Hello Micheal, Thanks for your email; it was nice to hear from you again. I will add your name to the "A List" I see you have gone through a hell of a lot, any...
Hello Ursula, you must be very proud of your son to be have a Doctors degree in Neuroscience. My next Doctors appointment is with a Doctor that belongs to the...
Hello, Urula I have had severe chronic back pain for 24 years. I was diagnosed with severe adhesive arachnoitis for five years. It is a truly ugly disease, and...
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