Hello Jay, I'm sorry that you have to suffer with horrible back pain
yourself. If you have Arachnoiditis. I can give you plenty of sites
on the web to find out more about the etiology of this horrible
disease. Dr. Sarah Smith of the U.K. has a lot of information about
it. She herself has this terrible condition also and has written a
lot about it. You can find most of her work at this site.
http://www.theaword.org, another is http://www.cofwa.org/AASYNDROME-
10-03.pdf. Dr.Charles Burton is also a leading Doctor in the
treatment of this disease also. You can find his web site at
http://www.burtonreport.com. I hope that you can find these there is
enough information just on those web sites that I have given you to
last you to read for months. Good luck. Michael
--- In Arachnoiditis@yahoogroups.com, jay <homesavers03@...> wrote:
>
> Thanks for the definition of having scar tissue growing through the
spinal nerves. Is this verified?
> Regards,
> Jay
>
>
> ----- Original Message ----
> From: Michael <Sfusion@...>
> To: Arachnoiditis@yahoogroups.com
> Sent: Wednesday, November 1, 2006 10:36:51 PM
> Subject: [Arachnoiditis] Re: New to the group...
>
> Hello Lauren, I'm so sorry that you have to endure this pain at
such
> at such a young age. I had my first back surgery a spinal fusion at
> L5-S1. I have been in chronic pain since. I have since had 4 more
> surgeries to fix all the mistakes and misdiagnosis that the doctors
> made. I now have Arachnoiditis. I don't understand how you could
have
> gotten this condition from a hysterectomy. Have you had anything
done
> to your back. You could have gotten it from an epidural if you had
> one for your hysterectomy or if you had a child. But, Arachnoiditis
> is scar tissue that has growen through your spinal nerves. I wish
you
> the best. If you ever want to talk more please feel free to write
to
> me anytime. Sincerely Michael in Washington State
>
> --- In Arachnoiditis@ yahoogroups. com, "Lauren"
<laurenkendy3@ ...>
> wrote:
> >
> >
> > I am Lauren and I am 38 year old and was searching the internet
> for
> > more information on this illness. I have been though too much to
get
> > into but a year and a half ago, I underwent a hystromecty because
> I was
> > having severe lower back pain and Dr after Dr didn't know what to
> do or
> > what was causing the back pain. It got so bad I could no longer
> cook or
> > clean or be on my feet longer then a few minutes the pain was so
> bad.
> > They determined I had cancerous cells that were in my ovaries and
> that
> > is why I had the complete hysterectomy hoping the back pain would
go
> > away along with not getting full cancer. After the surgery, my
lower
> > back pain did go away but up until a few months ago it has
returned
> and
> > I just came back from the Dr. with my MRI results and they say I
> have
> > Arachnoiditis and now I will see a orthopedic Dr. I have never
> heard of
> > this and I am very bummed out because I have always been so
active
> just
> > a lot of energy and I guess I just need to learn more and
hopefully
> I
> > can hear from some of you suffering from this. It sucks having
this
> > pain, so I don't usually write so much but I needed to talk so
> thank you
> > for listening.
> >
> > Lauren
> >
>