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Arachnoiditis · Looking for anyone in this area who are suffering with Arachnoiditist. Looking to start a grooup in this area maybe to get toge
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Reply | Forward Message #1351 of 1740 |
Re: New to the group...

Hello Jay, I'm sorry that you have to suffer with horrible back pain
yourself. If you have Arachnoiditis. I can give you plenty of sites
on the web to find out more about the etiology of this horrible
disease. Dr. Sarah Smith of the U.K. has a lot of information about
it. She herself has this terrible condition also and has written a
lot about it. You can find most of her work at this site.
http://www.theaword.org, another is http://www.cofwa.org/AASYNDROME-
10-03.pdf. Dr.Charles Burton is also a leading Doctor in the
treatment of this disease also. You can find his web site at
http://www.burtonreport.com. I hope that you can find these there is
enough information just on those web sites that I have given you to
last you to read for months. Good luck. Michael

--- In Arachnoiditis@yahoogroups.com, jay <homesavers03@...> wrote:
>
> Thanks for the definition of having scar tissue growing through the
spinal nerves. Is this verified?
> Regards,
> Jay
>
>
> ----- Original Message ----
> From: Michael <Sfusion@...>
> To: Arachnoiditis@yahoogroups.com
> Sent: Wednesday, November 1, 2006 10:36:51 PM
> Subject: [Arachnoiditis] Re: New to the group...
>
> Hello Lauren, I'm so sorry that you have to endure this pain at
such
> at such a young age. I had my first back surgery a spinal fusion at
> L5-S1. I have been in chronic pain since. I have since had 4 more
> surgeries to fix all the mistakes and misdiagnosis that the doctors
> made. I now have Arachnoiditis. I don't understand how you could
have
> gotten this condition from a hysterectomy. Have you had anything
done
> to your back. You could have gotten it from an epidural if you had
> one for your hysterectomy or if you had a child. But, Arachnoiditis
> is scar tissue that has growen through your spinal nerves. I wish
you
> the best. If you ever want to talk more please feel free to write
to
> me anytime. Sincerely Michael in Washington State
>
> --- In Arachnoiditis@ yahoogroups. com, "Lauren"
<laurenkendy3@ ...>
> wrote:
> >
> >
> > I am Lauren and I am 38 year old and was searching the internet
> for
> > more information on this illness. I have been though too much to
get
> > into but a year and a half ago, I underwent a hystromecty because
> I was
> > having severe lower back pain and Dr after Dr didn't know what to
> do or
> > what was causing the back pain. It got so bad I could no longer
> cook or
> > clean or be on my feet longer then a few minutes the pain was so
> bad.
> > They determined I had cancerous cells that were in my ovaries and
> that
> > is why I had the complete hysterectomy hoping the back pain would
go
> > away along with not getting full cancer. After the surgery, my
lower
> > back pain did go away but up until a few months ago it has
returned
> and
> > I just came back from the Dr. with my MRI results and they say I
> have
> > Arachnoiditis and now I will see a orthopedic Dr. I have never
> heard of
> > this and I am very bummed out because I have always been so
active
> just
> > a lot of energy and I guess I just need to learn more and
hopefully
> I
> > can hear from some of you suffering from this. It sucks having
this
> > pain, so I don't usually write so much but I needed to talk so
> thank you
> > for listening.
> >
> > Lauren
> >
>






Fri Nov 3, 2006 9:25 am

serosity101
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Forward
Message #1351 of 1740 |
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Thanks for the definition of having scar tissue growing through the spinal nerves. Is this verified? Regards, Jay ... From: Michael <Sfusion@...> To:...
jay
homesavers03
Offline Send Email
Nov 2, 2006
4:30 pm

Hello Jay, I'm sorry that you have to suffer with horrible back pain yourself. If you have Arachnoiditis. I can give you plenty of sites on the web to find out...
Michael
serosity101
Offline Send Email
Nov 3, 2006
9:25 am

It's not always scar tissue, the reason it is an "-itis" is because it's an auto-immune disease meaning the body is attacking the tissues and causing the...
Jeff Johnson
aa8ve_73
Offline Send Email
Nov 4, 2006
12:28 pm

Hello Jeff, thanks for your reply. I have gotten a lot of information and read a lot about this condition from every source that I could find it. And I still...
Michael
serosity101
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Nov 5, 2006
5:26 am

Hello Michael, I hope you won't mind my input! You are correct in saying Arachnoiditis is an inflammatory condition / disease, the arachnoid membrane is very...
Ursula Darker
ursuladarker
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Nov 6, 2006
12:31 am

Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Michael
serosity101
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Nov 6, 2006
3:05 am

Hello Micheal, I'm so pleased to hear back from you, I am so sad to hear of the state of things in the US, I have always looked to the US as being a country...
Ursula Darker
ursuladarker
Offline Send Email
Nov 6, 2006
2:47 pm

Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Michael
serosity101
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Nov 6, 2006
3:05 am

Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Michael
serosity101
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Nov 6, 2006
3:05 am

Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Michael
serosity101
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Nov 6, 2006
3:14 am

Yes Michael, you are right, right, right... I was not exactly correct about the "itis" as my wife pointed out just after I sent that one. Oop's sorry for that...
Jeff Johnson
aa8ve_73
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Nov 5, 2006
8:11 pm

Hello Jeff, no need to apologize. If I apologized to everyone that I made a mistake sending something about. I would be at this computer forever. I have been...
Michael
serosity101
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Nov 6, 2006
2:17 am

Trying to explain this problem to the general public is an effort in futility at it's best. "So Jeff, what's the reason for your pain?" Well... and I try to...
Jeff Johnson
aa8ve_73
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Nov 6, 2006
2:23 pm

Hey Urslua, Right, I didn't know you were a Brit... Brilliant! 8-D In all my chats with people the world over it's becoming clear that the Limeys, Yanks and...
Jeff Johnson
aa8ve_73
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Nov 6, 2006
5:16 pm

Jeff, I live in Michigan also about 45 miles west of Detroit. I suffer from Arachnoiditis and CES. It is a very lonely world for me since this whole thing...
Diana Albers
msladydimich
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Nov 6, 2006
6:33 pm

Hello Jeff, Thanks very much for your email, its really nice hearing all about your Range Rover, you have a good motor there, they do tend to last well, the...
Ursula Darker
ursuladarker
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Nov 6, 2006
8:37 pm

You must be near Ann Arbor? I'm in Clarkston, between Flint and Pontiac. We are probably less than 50 miles apart. I spent a lot of time (years) at U of M...
Jeff Johnson
aa8ve_73
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Nov 6, 2006
7:21 pm

Jeff, looks like we are more like 20 miles apart, I am in Highland. Ironic, my brother lives in Ann Arbor and is always asking me to go to U of M for some...
Diana Albers
msladydimich
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Nov 6, 2006
8:06 pm

No, not heard of Freehan's site but I shall take a look. Fine on the vehicles, it seems just about all the brands are holding up well these days, since the...
Jeff Johnson
aa8ve_73
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Nov 6, 2006
9:53 pm

Ok Highland, yep, know it well. In fact as an electrician I worked for the company that did all the electrical work in that bank and strip mall at the SE...
Jeff Johnson
aa8ve_73
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Nov 7, 2006
4:18 pm

Michael, my son is 22 and is now an E3 petty ET Nuke going through power school right now and he completely loves it! He's been getting 3.8 on his tests so...
Jeff Johnson
aa8ve_73
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Nov 7, 2006
8:01 pm

Hello Jeff, I'm sorry that you are not feeling to well today. But, try not to dwell and what we used to do and what you can or maybe able to do in the future....
Michael
serosity101
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Nov 9, 2006
1:29 pm

Ursla dear, you have a lot of good help to offer. I'm not doing well not, it's a rotten rotten day here, almost can't hit the keys! Wonder if we could start...
Jeff Johnson
aa8ve_73
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Nov 7, 2006
10:41 pm

2.) Diana Albers age 49, location Michigan Jeff Johnson <aa8ve@...> wrote: Ursla dear, you have a lot of good help to offer. I'm not doing...
Diana Albers
msladydimich
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Nov 7, 2006
11:09 pm

Hello Diana, Thanks for adding your details. I will add you to the "A List", there's 3 of us so far, do you mind me asking you if you have Arachnoiditis? Will...
Ursula Darker
ursuladarker
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Nov 8, 2006
12:31 am

2.) Diana Albers age 49, age when effected with Cauda Equina Syndrome and Arachnoiditis 48 location, MI Diana Albers <dlalbers19572000@...> wrote:...
Diana Albers
msladydimich
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Nov 8, 2006
3:31 am

Hi Jeff, I'm so sorry to hear you are not too good today, it sounds like you are going through a bad flare up, you must try and rest as best you can and try ...
Ursula Darker
ursuladarker
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Nov 7, 2006
11:57 pm

Hello Ursula, you can add me to your list if you want, My name is Michael in Washington State and I'm a 50 y/o man. I don't know when I picked up this...
Michael
serosity101
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Nov 9, 2006
1:06 pm

Hello Micheal, Thanks for your email; it was nice to hear from you again. I will add your name to the "A List" I see you have gone through a hell of a lot, any...
Ursula Darker
ursuladarker
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Nov 9, 2006
8:56 pm

Hello Ursula, you must be very proud of your son to be have a Doctors degree in Neuroscience. My next Doctors appointment is with a Doctor that belongs to the...
Michael
serosity101
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Nov 20, 2006
11:15 pm
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