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Arachnoiditis · Looking for anyone in this area who are suffering with Arachnoiditist. Looking to start a grooup in this area maybe to get toge
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Reply | Forward Message #1349 of 1740 |
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Thank you for all your support. In answer to some questions, I didn't get arachnoiditis from my hystromecty, I just had the back pain before the surgery, likely I had this before for awhile. I don't know how I got it I did get an epidural with one of my kids but that was along time ago and also, I had cortisone shots due to someone rear ended me 4 years ago. I have been to chiropractors for several months and finally tried acupuncture. Both Holistic Dr's referred me back to my my MD. I just found out yesterday from her but she is not an orthopedic Dr, my MRI showed L5S1 and Iam in so much pain, but I never know why.

I don't like to have to take pain pill, but at the moment I am taking vicodin extra strength and two a day, I cant work, so I am waiting to see the or-tho Dr and go from there. Regular Tylenol or whatever, over the counter meds don't help me. So Iam just new to this and never heard of it myself. But when you have so much pain and no-one knows what it is, it finally becomes a relief, it even it isn't good news.

Again, thank you all, I would like to stay in touch and hear others share,

Lauren


--- In Arachnoiditis@yahoogroups.com, "Michael" <Sfusion@...> wrote:
>
> Hello Lauren, I'm so sorry that you have to endure this pain at such
> at such a young age. I had my first back surgery a spinal fusion at
> L5-S1. I have been in chronic pain since. I have since had 4 more
> surgeries to fix all the mistakes and misdiagnosis that the doctors
> made. I now have Arachnoiditis. I don't understand how you could have
> gotten this condition from a hysterectomy. Have you had anything done
> to your back. You could have gotten it from an epidural if you had
> one for your hysterectomy or if you had a child. But, Arachnoiditis
> is scar tissue that has growen through your spinal nerves. I wish you
> the best. If you ever want to talk more please feel free to write to
> me anytime. Sincerely Michael in Washington State
>
>
>
> --- In Arachnoiditis@yahoogroups.com, "Lauren" laurenkendy3@
> wrote:
> >
> >
> > I am Lauren and I am 38 year old and was searching the internet
> for
> > more information on this illness. I have been though too much to get
> > into but a year and a half ago, I underwent a hystromecty because
> I was
> > having severe lower back pain and Dr after Dr didn't know what to
> do or
> > what was causing the back pain. It got so bad I could no longer
> cook or
> > clean or be on my feet longer then a few minutes the pain was so
> bad.
> > They determined I had cancerous cells that were in my ovaries and
> that
> > is why I had the complete hysterectomy hoping the back pain would go
> > away along with not getting full cancer. After the surgery, my lower
> > back pain did go away but up until a few months ago it has returned
> and
> > I just came back from the Dr. with my MRI results and they say I
> have
> > Arachnoiditis and now I will see a orthopedic Dr. I have never
> heard of
> > this and I am very bummed out because I have always been so active
> just
> > a lot of energy and I guess I just need to learn more and hopefully
> I
> > can hear from some of you suffering from this. It sucks having this
> > pain, so I don't usually write so much but I needed to talk so
> thank you
> > for listening.
> >
> > Lauren
> >
>



Thu Nov 2, 2006 4:48 pm

tenderagel007
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Message #1349 of 1740 |
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Hello Lauren, I'm so sorry that you have to endure this pain at such at such a young age. I had my first back surgery a spinal fusion at L5-S1. I have been in...
Michael
serosity101
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Nov 2, 2006
3:41 am

Thank you for all your support. In answer to some questions, I didn't get arachnoiditis from my hystromecty, I just had the back pain before the surgery,...
Lauren
tenderagel007
Offline Send Email
Nov 2, 2006
4:50 pm

Hi Lauren, I would say your condition has probably been caused by the Epidural you were given during your labour. Epidurals are very difficult to do,...
Ursula Darker
ursuladarker
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Nov 7, 2006
7:46 pm

Hi Lauren, I am so sorry to hear about your diagnosis. I am 39 years old, and just found out yesterday that I need to have a hysterectomy. I have had two back...
jendos@...
JenDos
Offline Send Email
Nov 2, 2006
3:54 am

Jen, Thanks for your support, have you had your blood checked to see if you have Epstein Bar? I have it and it makes you very tired, I got it years ago, and it...
Lauren
tenderagel007
Offline Send Email
Nov 3, 2006
3:08 am

Thanks for the definition of having scar tissue growing through the spinal nerves. Is this verified? Regards, Jay ... From: Michael <Sfusion@...> To:...
jay
homesavers03
Offline Send Email
Nov 2, 2006
4:30 pm

Hello Jay, I'm sorry that you have to suffer with horrible back pain yourself. If you have Arachnoiditis. I can give you plenty of sites on the web to find out...
Michael
serosity101
Offline Send Email
Nov 3, 2006
9:25 am

It's not always scar tissue, the reason it is an "-itis" is because it's an auto-immune disease meaning the body is attacking the tissues and causing the...
Jeff Johnson
aa8ve_73
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Nov 4, 2006
12:28 pm

Hello Jeff, thanks for your reply. I have gotten a lot of information and read a lot about this condition from every source that I could find it. And I still...
Michael
serosity101
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Nov 5, 2006
5:26 am

Hello Michael, I hope you won't mind my input! You are correct in saying Arachnoiditis is an inflammatory condition / disease, the arachnoid membrane is very...
Ursula Darker
ursuladarker
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Nov 6, 2006
12:31 am

Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Michael
serosity101
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Nov 6, 2006
3:05 am

Hello Micheal, I'm so pleased to hear back from you, I am so sad to hear of the state of things in the US, I have always looked to the US as being a country...
Ursula Darker
ursuladarker
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Nov 6, 2006
2:47 pm

Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Michael
serosity101
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Nov 6, 2006
3:05 am

Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Michael
serosity101
Offline Send Email
Nov 6, 2006
3:05 am

Hello Ursula, I don't mind your input at all. In fact I enjoy hearing from everyone. I think it's great that this site is getting more messages posted on it....
Michael
serosity101
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Nov 6, 2006
3:14 am

Yes Michael, you are right, right, right... I was not exactly correct about the "itis" as my wife pointed out just after I sent that one. Oop's sorry for that...
Jeff Johnson
aa8ve_73
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Nov 5, 2006
8:11 pm

Hello Jeff, no need to apologize. If I apologized to everyone that I made a mistake sending something about. I would be at this computer forever. I have been...
Michael
serosity101
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Nov 6, 2006
2:17 am

Trying to explain this problem to the general public is an effort in futility at it's best. "So Jeff, what's the reason for your pain?" Well... and I try to...
Jeff Johnson
aa8ve_73
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Nov 6, 2006
2:23 pm

Hey Urslua, Right, I didn't know you were a Brit... Brilliant! 8-D In all my chats with people the world over it's becoming clear that the Limeys, Yanks and...
Jeff Johnson
aa8ve_73
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Nov 6, 2006
5:16 pm

Jeff, I live in Michigan also about 45 miles west of Detroit. I suffer from Arachnoiditis and CES. It is a very lonely world for me since this whole thing...
Diana Albers
msladydimich
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Nov 6, 2006
6:33 pm

Hello Jeff, Thanks very much for your email, its really nice hearing all about your Range Rover, you have a good motor there, they do tend to last well, the...
Ursula Darker
ursuladarker
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Nov 6, 2006
8:37 pm

You must be near Ann Arbor? I'm in Clarkston, between Flint and Pontiac. We are probably less than 50 miles apart. I spent a lot of time (years) at U of M...
Jeff Johnson
aa8ve_73
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Nov 6, 2006
7:21 pm

Jeff, looks like we are more like 20 miles apart, I am in Highland. Ironic, my brother lives in Ann Arbor and is always asking me to go to U of M for some...
Diana Albers
msladydimich
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Nov 6, 2006
8:06 pm

No, not heard of Freehan's site but I shall take a look. Fine on the vehicles, it seems just about all the brands are holding up well these days, since the...
Jeff Johnson
aa8ve_73
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Nov 6, 2006
9:53 pm

Ok Highland, yep, know it well. In fact as an electrician I worked for the company that did all the electrical work in that bank and strip mall at the SE...
Jeff Johnson
aa8ve_73
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Nov 7, 2006
4:18 pm

Michael, my son is 22 and is now an E3 petty ET Nuke going through power school right now and he completely loves it! He's been getting 3.8 on his tests so...
Jeff Johnson
aa8ve_73
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Nov 7, 2006
8:01 pm

Hello Jeff, I'm sorry that you are not feeling to well today. But, try not to dwell and what we used to do and what you can or maybe able to do in the future....
Michael
serosity101
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Nov 9, 2006
1:29 pm

Ursla dear, you have a lot of good help to offer. I'm not doing well not, it's a rotten rotten day here, almost can't hit the keys! Wonder if we could start...
Jeff Johnson
aa8ve_73
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Nov 7, 2006
10:41 pm

2.) Diana Albers age 49, location Michigan Jeff Johnson <aa8ve@...> wrote: Ursla dear, you have a lot of good help to offer. I'm not doing...
Diana Albers
msladydimich
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Nov 7, 2006
11:09 pm

Hello Diana, Thanks for adding your details. I will add you to the "A List", there's 3 of us so far, do you mind me asking you if you have Arachnoiditis? Will...
Ursula Darker
ursuladarker
Offline Send Email
Nov 8, 2006
12:31 am
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