Dear gillian,
I live in New Mexico, USA ... sorry ... but I would like
very much to hear about any new drug that is efficacious on the symptoms of
arachnoiditis. I have not gone downhill... I did ther first year, but I am
now into this condition 3 and 1/2 years. I get electroacupuncture and
chiropractic treatments once a month and have six prescription drugs; I walk
and do yoga-type exercises and it is still tough going. Are you on
Neurontin ( gabapentin)? Please mail back.
sincerely
...... don stallman


>From: "gillian424905" <g_arach@...>
>Reply-To: Arachnoiditis@yahoogroups.com
>To: Arachnoiditis@yahoogroups.com
>Subject: [Arachnoiditis] new member
>Date: Thu, 25 May 2006 12:29:59 -0000
>
>Hello I have just joined this group and would very much like to hear
>from other people with AA who live in the UK, particularly London and
>the SE
>I had AA diagnosed about 3 years ago since when I have steadily gone
>down hill, weakness ++ walk only with crutches, spasticity, bladder and
>bowel problems and, it goes without saying, pain.
>I think I have been lucky because I had a myelogram a very long time
>ago and have had a full active working life - the AA only revealed
>itself after a failed Gynae op.
>But I am receiving a new treatment which is really helping and would
>like to discuss this with people in London and SE because it may be
>that the drug co would initiate a trial for AA people
>gillian424905
>
>
>
>