Hi Anisa! I had fusions at L4-5, L5-S1. The went through the front
and back. It's the Hynes special. LOL!! You take care too. Luanne


--- In Arachnoiditis@yahoogroups.com, Anisa Benson <anisaslollys@...>
wrote:
>
> Hi Luanne,
> My name is Anisa and I was wondering on what location did you have
your back surgery and for what? Was it a disc? Just curious. I
didn't know if I did not catch something in your email or you assumed
we would know what you are talking about.
> Sorry to hear that you have the burning pain with the surgery. I
used to work for a surgeon. I miss that type of work.
> Take Care and have a nice day,
> Anisa
> luluriedl <luannesplace2@...> wrote:
> Ok, I'm back for a few minutes.
> As for my meds, I've been taking Gabitril which is a Neurontin mix.
> This has helped greatly by reducing the burning and cattle prod
> sensations by about 90%.I take 12 mgs every 12 hours. I take
Norflex
> muscle relaxers. They don't work and the doctor won't give me
> anything else. On my last visit (I have to go monthly), I explained
> that I went to an allergy doctor because I've had issues. Long
story
> short, The Norcos 10/325, 4 x a day that I've been taking for 4
years
> has begun to become a problem. Itching like crazy. The a.. doctor
> gave me some Percocet 10/325 to take for a few days instead. The
> itching disappeared and my pain leval w/meds went down. YEAH!!! She
> told me that of course the pain level went down, and that I broke
my
> contract. She said that they wanted thier patients to come off of
> narcotics. I then told her that I have arachnoiditis, and she
said,"
> I know." In the end she gave me some Percocet 7.5, but only 3 a day
> instead of 4x. I don't get it! I also bought a cane to help me walk
a
> little easier.
> My boyfriend of 12 years helps as much as he can, but he doesn't
> really understand even though he tries. Time to get up again as my
> neck/back is burning now. Until later, Luanne
>
>
> -- In Arachnoiditis@yahoogroups.com, "luluriedl" <luannesplace2@>
> wrote:
> >
> > --- In Arachnoiditis@yahoogroups.com, jay <homesavers03@> wrote:
> > Hi, Jay! Thanks for replying. Sorry I didn't reply sooner, but
> There
> > are some days that I just can't sit here long enough to get on
the
> > computer. Usually, when I get home from work, I go right to my
bed
> > for a while. You know how it is. The only reason that I can still
> > work is because I'm a medical assistant and lots of opportunity
to
> > sit. Oh, and pain meds. I work for a surgeon who is in the office
> on
> > Monday, Tues.,and thurs. morning. That war I'm not running all of
> the
> > time.
> > I had back surgery on 4/2/03. I had been in pain for 4 years and
> > couldn't take it any longer. I was ready to stick my leg in a
wood
> > chipper, just get it off. About 6 months later, I was sent for a
CT
> > of the lumbar spine, and the radiologist found it. My Doctor said
> > that i may very well have it, but that it wasn't bad enough to
> > diagnose yet. Then a couple of months later, I went for another
CT
> > Myelogram and it was there too. The P.A. showed me on the films
> both
> > times, but the Doctor still acted like it wasn't there. When that
> > Doctor left, I was happy, hoping that I would get someone that
> would
> > help more. I was very disapointed. The next one was even worse.
And
> > I'm paying for all of this without insurance.
> > I have to get up now. I will write later on today. Luanne
> >
> >
> >
> >
> > > Hi Luanne,
> > > I'm Jay and I live in Tampa. My arc showed up on films in 2001.
I
> > was told about it in 2004, when I had another MRI and it was
known
> as
> > advanced adhesive arachnoiditis. The doctor I had seen told me to
> get
> > the pain pump removed immediately. He also said that there was no
> > cure for it/me, and he wished there was something he could do for
> > me...Fortunately, he was a neurosurgeon who I had been referred
to
> by
> > my pain doctor...He is very good and is familiar wiith the
disease,
> > and treatments for it. I'm having a spinal stimulator put in
soon.
> > >
> > > As for the cellphone ringing in my pants, I have that
constantly
> > but was too embarassed to mention it. I have the feeling that
large
> > amounts of groups of very small worms are moving in a liquid
> fashion
> > up and down my thighs to my legs and back. Talk about not having
> > something you feel comfortable bringing up around the dinner
table!
> > > My feet have swollen two sizes since the onset. I have a good
> > wardrobe, and it's expensive and saddening to have three
different
> > size shoes in my closet... I am now at the point where the only
> thing
> > I feel comfortable wearing is sandals. Any kind of dress shoe
makes
> > my feet swell. I also have my partner drive when we look at
> jobsites.
> > I'm only good on my feet for a toal of about an hour or two,
before
> > the pain is just unbearable.I've converted to a notebook, as
> sitting
> > at my desk with my desktop has become too uncomfortable. I have a
> > wonderfully supportive wife who helps me in many ways.
> > >
> > > That's way too much about me. How long have you had arc, and
what
> > are you taking for it? Do you have someone to help with your day
> to
> > day needs?
> > >
> > > Kindest regards,
> > >
> > > Jay M.
> > >
> > >
> > > ----- Original Message ----
> > > From: luluriedl <luannesplace2@>
> > > To: Arachnoiditis@yahoogroups.com
> > > Sent: Thursday, May 4, 2006 7:17:26 AM
> > > Subject: [Arachnoiditis] Ouch!!
> > >
> > > Hi, my name is Luanne and I also have Arachnoiditis. I'm glad
to
> > find a
> > > place where there are people who understand what's going on in
my
> > body.
> > > It's hard to explain to people who do not understand. They just
> > think
> > > that I'm weird. The look on thier faces when I try to explain
> that
> > I
> > > feel water running down my leg, or that I jump because I just
got
> > > shocked with an electric cattle prod. Sometimes I feel my cell
> > phone
> > > vibrate in my pocket only to find out that my phone is in my
> purse
> > and
> > > that it's the ara... My feet, neck and hands are swollen. I've
> had
> > so
> > > many blood tests to find out why different things are going on.
> My
> > > primary doctor wants to see if it could be anything else. It's
> not.
> > I
> > > know what it is, and they think that I'm nuts when I say that
> it's
> > the
> > > arachnoiditis. Is there anybody in Palm Bay or Melbourne, Fl
that
> I
> > can
> > > talk to who will believe me? Back later. Luanne
> > >
> > >
> > >
> > >
> > >
> > >
> > >
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