Ok, I'm back for a few minutes.
As for my meds, I've been taking Gabitril which is a Neurontin mix.
This has helped greatly by reducing the burning and cattle prod
sensations by about 90%.I take 12 mgs every 12 hours. I take Norflex
muscle relaxers. They don't work and the doctor won't give me
anything else. On my last visit (I have to go monthly), I explained
that I went to an allergy doctor because I've had issues. Long story
short, The Norcos 10/325, 4 x a day that I've been taking for 4 years
has begun to become a problem. Itching like crazy. The a.. doctor
gave me some Percocet 10/325 to take for a few days instead. The
itching disappeared and my pain leval w/meds went down. YEAH!!! She
told me that of course the pain level went down, and that I broke my
contract. She said that they wanted thier patients to come off of
narcotics. I then told her that I have arachnoiditis, and she said,"
I know." In the end she gave me some Percocet 7.5, but only 3 a day
instead of 4x. I don't get it! I also bought a cane to help me walk a
little easier.
My boyfriend of 12 years helps as much as he can, but he doesn't
really understand even though he tries. Time to get up again as my
neck/back is burning now.  Until later, Luanne


-- In Arachnoiditis@yahoogroups.com, "luluriedl" <luannesplace2@...>
wrote:
>
> --- In Arachnoiditis@yahoogroups.com, jay <homesavers03@> wrote:
> Hi, Jay! Thanks for replying. Sorry I didn't reply sooner, but
There
> are some days that I just can't sit here long enough to get on the
> computer. Usually, when I get home from work, I go right to my bed
> for a while. You know how it is. The only reason that I can still
> work is because I'm a medical assistant and lots of opportunity to
> sit. Oh, and pain meds. I work for a surgeon who is in the office
on
> Monday, Tues.,and thurs. morning. That war I'm not running all of
the
> time.
> I had back surgery on 4/2/03. I had been in pain for 4 years and
> couldn't take it any longer. I was ready to stick my leg in a wood
> chipper, just get it off. About 6 months later, I was sent for a CT
> of the lumbar spine, and the radiologist found it. My Doctor said
> that i may very well have it, but that it wasn't bad enough to
> diagnose yet. Then a couple of months later, I went for another CT
> Myelogram and it was there too. The P.A. showed me on the films
both
> times, but the Doctor still acted like it wasn't there. When that
> Doctor left, I was happy, hoping that I would get someone that
would
> help more. I was very disapointed. The next one was even worse. And
> I'm paying for all of this without insurance.
> I have to get up now. I will write later on today. Luanne
>
>
>
>
> > Hi Luanne,
> > I'm Jay and I live in Tampa. My arc showed up on films in 2001. I
> was told about it in 2004, when I had another MRI and it was known
as
> advanced adhesive arachnoiditis. The doctor I had seen told me to
get
> the pain pump removed immediately. He also said that there was no
> cure for it/me, and he wished there was something he could do for
> me...Fortunately, he was a neurosurgeon who I had been referred to
by
> my pain doctor...He is very good and is familiar wiith the disease,
> and treatments for it. I'm having a spinal stimulator put in soon.
> > 
> > As for the cellphone ringing in my pants, I have that constantly
> but was too embarassed to mention it. I have the feeling that large
> amounts of groups of very small worms are moving in a liquid
fashion
> up and down my thighs to my legs and back. Talk about not having
> something you feel comfortable bringing up around the dinner table!
> > My feet have swollen two sizes since the onset. I have a good
> wardrobe, and it's expensive and saddening to have three different
> size shoes in my closet... I am now at the point where the only
thing
> I feel comfortable wearing is sandals. Any kind of dress shoe makes
> my feet swell. I also have my partner drive when we look at
jobsites.
> I'm only good on my feet for a toal of about an hour or two, before
> the pain is just unbearable.I've converted to a notebook, as
sitting
> at my desk with my desktop has become too uncomfortable. I have a
> wonderfully supportive wife who helps me in many ways.
> > 
> > That's way too much about me. How long have you had arc, and what
> are you taking for it?  Do you have someone to help with your day
to
> day needs?
> > 
> > Kindest regards,
> > 
> > Jay M.
> >
> >
> > ----- Original Message ----
> > From: luluriedl <luannesplace2@>
> > To: Arachnoiditis@yahoogroups.com
> > Sent: Thursday, May 4, 2006 7:17:26 AM
> > Subject: [Arachnoiditis] Ouch!!
> >
> > Hi, my name is Luanne and I also have Arachnoiditis. I'm glad to
> find a
> > place where there are people who understand what's going on in my
> body.
> > It's hard to explain to people who do not understand. They just
> think
> > that I'm weird. The look on thier faces when I try to explain
that
> I
> > feel water running down my leg, or that I jump because I just got
> > shocked with an electric cattle prod. Sometimes I feel my cell
> phone
> > vibrate in my pocket only to find out that my phone is in my
purse
> and
> > that it's the ara... My feet, neck and hands are swollen. I've
had
> so
> > many blood tests to find out why different things are going on.
My
> > primary doctor wants to see if it could be anything else. It's
not.
> I
> > know what it is, and they think that I'm nuts when I say that
it's
> the
> > arachnoiditis. Is there anybody in Palm Bay or Melbourne, Fl that
I
> can
> > talk to who will believe me? Back later. Luanne
> >
> >
> >
> >
> >
> >
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