--- In Arachnoiditis@yahoogroups.com, jay <homesavers03@...> wrote:
Hi, Jay! Thanks for replying. Sorry I didn't reply sooner, but There
are some days that I just can't sit here long enough to get on the
computer. Usually, when I get home from work, I go right to my bed
for a while. You know how it is. The only reason that I can still
work is because I'm a medical assistant and lots of opportunity to
sit. Oh, and pain meds. I work for a surgeon who is in the office on
Monday, Tues.,and thurs. morning. That war I'm not running all of the
time.
I had back surgery on 4/2/03. I had been in pain for 4 years and
couldn't take it any longer. I was ready to stick my leg in a wood
chipper, just get it off. About 6 months later, I was sent for a CT
of the lumbar spine, and the radiologist found it. My Doctor said
that i may very well have it, but that it wasn't bad enough to
diagnose yet. Then a couple of months later, I went for another CT
Myelogram and it was there too. The P.A. showed me on the films both
times, but the Doctor still acted like it wasn't there. When that
Doctor left, I was happy, hoping that I would get someone that would
help more. I was very disapointed. The next one was even worse. And
I'm paying for all of this without insurance.
I have to get up now. I will write later on today. Luanne




> Hi Luanne,
> I'm Jay and I live in Tampa. My arc showed up on films in 2001. I
was told about it in 2004, when I had another MRI and it was known as
advanced adhesive arachnoiditis. The doctor I had seen told me to get
the pain pump removed immediately. He also said that there was no
cure for it/me, and he wished there was something he could do for
me...Fortunately, he was a neurosurgeon who I had been referred to by
my pain doctor...He is very good and is familiar wiith the disease,
and treatments for it. I'm having a spinal stimulator put in soon.
>
> As for the cellphone ringing in my pants, I have that constantly
but was too embarassed to mention it. I have the feeling that large
amounts of groups of very small worms are moving in a liquid fashion
up and down my thighs to my legs and back. Talk about not having
something you feel comfortable bringing up around the dinner table!
> My feet have swollen two sizes since the onset. I have a good
wardrobe, and it's expensive and saddening to have three different
size shoes in my closet... I am now at the point where the only thing
I feel comfortable wearing is sandals. Any kind of dress shoe makes
my feet swell. I also have my partner drive when we look at jobsites.
I'm only good on my feet for a toal of about an hour or two, before
the pain is just unbearable.I've converted to a notebook, as sitting
at my desk with my desktop has become too uncomfortable. I have a
wonderfully supportive wife who helps me in many ways.
>
> That's way too much about me. How long have you had arc, and what
are you taking for it? Do you have someone to help with your day to
day needs?
>
> Kindest regards,
>
> Jay M.
>
>
> ----- Original Message ----
> From: luluriedl <luannesplace2@...>
> To: Arachnoiditis@yahoogroups.com
> Sent: Thursday, May 4, 2006 7:17:26 AM
> Subject: [Arachnoiditis] Ouch!!
>
> Hi, my name is Luanne and I also have Arachnoiditis. I'm glad to
find a
> place where there are people who understand what's going on in my
body.
> It's hard to explain to people who do not understand. They just
think
> that I'm weird. The look on thier faces when I try to explain that
I
> feel water running down my leg, or that I jump because I just got
> shocked with an electric cattle prod. Sometimes I feel my cell
phone
> vibrate in my pocket only to find out that my phone is in my purse
and
> that it's the ara... My feet, neck and hands are swollen. I've had
so
> many blood tests to find out why different things are going on. My
> primary doctor wants to see if it could be anything else. It's not.
I
> know what it is, and they think that I'm nuts when I say that it's
the
> arachnoiditis. Is there anybody in Palm Bay or Melbourne, Fl that I
can
> talk to who will believe me? Back later. Luanne
>
>
>
>
>
>
>
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