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AmyloidosisSupportGroups · AmyloidosisSupportGroups

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Group Information

  • Members: 1371
  • Category: Support
  • Founded: Jul 10, 2007
  • Language: English
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Activity within 7 days:

116 New Messages - 5 New Photos

Description




















ASG booth at ASH (American Society of Hematology) in Atlanta GA December 2012. Courtesy of Paula Schmitt and Carole Harber.


Website www.amyloidosissupport.com

Toll Free Hot/Help Line 866-404-7539


ON LINE AMYLOIDOSIS SUPPORT www.amyloidosisonline.com
OVER 1370 HAVE JOINED OUR "FAMILY" IN 6 YEARS. This group is for patients, caregivers, friends, family and those who have lost someone to this rare disease amyloidosis.

We hope you can also attend our meetings. Details are on our website.
We have a lot to give each other as well as receive and our expert doctor
guests are so educational, supportive and helpful.

If you have the familial form of the disease we have another on line group
www.familialonline.com. We have on this group, AL, familial, localized, Wild Type TTR (Senile), CAA, ILE 122, African American Variant, AA, and
others. All are welcome.

We have on our home page www.amyloidosisonline.com
Archives of previous posts;

Click on messages and type in key words (i.e. edema, velcade, tongue)
and find all posts referring to these items of interest

Links:
Items of common interest

Polls:
Take part in these anonymous polls and be counted

Files:
Articles of interest to all

Photos:
See who you are talking to

This is your group and if you can not find what you are looking for on the website www.amyloidosissupport.com someone on this list or one of our medical advisors will be able to help. Come to a support meeting near you soon.

Our website also features the most common symptoms of
Systemic amyloidosis.

LLS and Entitlements
Contact Paula pschmitt_98@yahoo.com

Survivor Stories
See link on website www.amyloidosissupport.com





















Message History

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2013 388 518 333 441 334
2012 703 899 604 389 674 657 681 531 349 468 258 397
2011 616 538 463 488 385 300 451 380 443 588 344 320
2010 585 543 523 493 678 489 516 434 441 481 432 436
2009 536 547 911 840 644 495 427 606 499 451 444 497
2008 454 571 575 632 501 650 1004 516 592 736 720 703
2007 269 375 389 528 339 223

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