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Albinism_Fellowship_of_Australia-Online · AFA_Online

Group Information

  • Members: 152
  • Category: Support
  • Founded: Jun 29, 2005
  • Language: English
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Activity within 7 days:

13 New Messages - New Questions

Description

This support group is for anybody from the Australia, Asia & Pacific region who wish to join together to share information about albinism and enjoy fellowship with others who understand their circumstance.

What is Albinism? Albinism refers to a group of inherited conditions that result in having reduced or absent melanin pigment from an early developmental stage. This in turn leads to ocular changes that tend to result in poor vision within the legally blind range. Ocular Albinism (OA) is clinically characterised by visual aberrations only. Oculocutaneous albinism (OCA) is clinically characterised by visual aberrations combined with generalized hypopigmentation of the skin and hair, resulting in a lighter overall colouration when compared to individuals of the same familial background (King R. A., 1998)

Chat group created on 'Yahoo' (30-06-2005) by Helene Johanson, originally named “Albinism_AustraliaAsiaPacific”. Group became affiliated with Albinism Fellowship of Australia and Group name was changed to “AFA_Online” (05-10-2006). Group extended to facebook (24-08-2011).

AFA_Online also have a Facebook based chat option if you prefer that forum:https://www.facebook.com/#!/groups/123584867740071/

We also operate in affiliation with and as the official chat group for the Albinism Fellowship of Australia (AFA). Membership of this albinism support organisation is NOT mandatory for joining AFA-Online. We will run polls and distributing information related to AFA including the newsletter 'Beyond Blonde' and advertising AFA social activities.

Feature Photo: Brad Hunter from Daily Telegraph won feature photograph of the year at the annual 2011 Pacific Area Newspaper Publishers Association awards last week with this gorgeous photo of AFA_Online member Matthew.

Photograph reproduced and used on AFA_Online Homepage with permission of Brad Hunter and the Zhou Family.

http://www.dailytelegraph.com.au/news/gallery/gallery-e6frewxi-1226117993529?pag

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 62 18
2011 161 157 62 81 42 75 87 137 161 189 181 33
2010 127 77 187 64 231 129 88 63 139 66 139 74
2009 339 100 336 416 161 209 105 187 270 177 172 151
2008 562 223 155 525 319 412 152 107 116 139 60 32
2007 268 262 80 97 135 39 120 82 253 351 225 121
2006 45 47 84 40 39 29 171 280 489 587 168 90
2005 63 80 49 131 80 13 75
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