The Rockville Roadies MS Project Inc is a non-profit charity run completely by volunteers - No salaries are paid. We raise between 1-5 thousand dollars per...
I have such a hard time with the injections, I have to have my mom give them to me because I get nausious and feel like I'm gonna pass out when I look at the...
Hi everyone, I wish to bring to everyone's attention that in 2004 a form of ACTH (adrenocorticotropic hormone) called HP Acthar Gel was added to the Medicare...
I have been on Rebif since last July. At first I was very tense about the injections. I am now at the point where having to do it is still a bother but that's...
I have questions regarding a couple of things on MS. I'm seeking your assistance because my doctors claim that this will be a hit or miss until they FINALLY...
Yes to the first two questions. My lumbar puncture was normal, I have lesions both brain and spinal and have an MS diagnosis. I have had various neuropathies...
Hey there, everyone! I have had some difficult emotional things to overcome in my family, but as long as we can still draw breath, we can scrap our way out of...
What is Rebiject? I've only taken ONE tylenol, maybe I should change it? What I've been doing is taking one tylenol anywhere from 1/2 hour to five minutes...
Hi- I appreciate the info about the possibility that my problems are MS and neuropathy related. The frustrating part is that I have been under the care of a...
Glad to hear from Granny Red again. I thought she flew the coop! ... A great great grandaughter must be very special. Congratulations! The grandchildren make...
hi to all Trigeminal Neuralgia. I don't want to scare anyone, but, if you don't have it' pray that you never get it. I have had it for seven years. sigh. It...
I'm SO GLAD, glad that you're here too. I don't have that face pain disease you mentioned, life does get unbearable at times, but then it gets better at times...
Hi all Sorry for the delayed response to those newbies with anxiety over injections. I have a few suggestions that may help. I have been on Copaxone since...
Msjnich
Jul 11, 2005 7:12 pm
4282
I am a retired nurse and psychotherapist with MS....
The pain I have had has increased, I have numbness to the face now on both sides, pain to the rib cage, spine, feet, legs and hands. The top of my head if a...
I'm a therapist who is in semi-retirement due to my M.S. and my life partner is a rehabilitation nurse. It would seem that we have a few things in common. ...
I really do not know how I got on this e-mail but I am glad I did. Why are you retired? Is it because of MS? I am worried of course about my daughter's...
I have MS + TN + ibs/c + migraines + severe sleep apnea. It has taken me years to figure it all out. I had to go to a lot of doctors and have lots of test and...
I know somebody that has MS (I have it too) and she has chemo for it. Has anybody heard of this? My DH thinks that's a bad Idea, I tend to agree, I don't want...
Thanks for your time and the encouragement. Sometimes its hard to explain why I'm having a bad day when I'm not able to share what the real problem is so I...
Mitoxantrone and Cyclophosphamide are the 2 "Chemo" drugs that I have heard about used in treating MS. I believe they are used in conjuction with the ABC drugs...
My Dr put me on a course of a chemo drug called novatrone. It worked well for me -- I had no flare-ups in the 2 years I was on it. It was a quarterly...
You are not alone. Take comfort in knowing many of us are equally frustrated. Hope today will be a good one and tomorrow even better. Try to remember always...
Hi there. I suspect my attitude is different towards MS than it is from most other people with MS I've met. I've made a conscious effort to mix with and work...
Glad to hear someone is trying to get things down around here. Ruth from Bailey, MI....
zoee15
Jul 22, 2005 12:00 am
4295
My name is Angela and recently my doctor told me I probably has MS, but after an MRI has questions and is sending me to a neurologist. The problem is that I...
That's the USA spirit ! My husband used to say, "When you get knocked down in the ring, just take a deep breath and come up swinging"! He was a boxer in his...
I have almost the same I have numbness to the right side of the face, pain in the joints, nasuea and my neurologist said its possible MS after the spinal tap...
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