I am new to this chatroom and was diagnosed July 1, 2004. Since my diagnosis, I haven't done much as far as drugs. I would love to know any natural meds anyone...
I understand how you feel, I was diagnosed in September of last year and since I have multiple family members with the disease, Everyone has been through...
Yes, yes, yes. You will get people wanting to explain away your symptoms. The most common I have found is "Well I (or someone else) have that symptom and it...
I suggest that you don't hold off on starting treatment!! The current standard of care in MS suggests that you should be on one of these drugs ASAP. This is...
Hi there, I've had MS since 1989 and was on Beteaseron when it came out, also was in trials. When I moved to VA the Doc put me on Copanoxe, but last week the...
Hello, Another new member! Was given diagnosis 4-25-2005. Optic neuritis back in Dec. 2004, 3 MRI's later, have 1 active lesion on spine & 1 active on brain....
Hi Lou ~ I was diagnosed in 1989 as well. Progression was slow for the first several years but I tried Avonex for a year. I didn't respond to it very well. Had...
I don't usually post here, but I do read these posts. I've been holding off doing the shots for 9 years and I still get around albiet with a cane. According...
bubbina_1999
May 8, 2005 3:40 pm
4249
I met a lady who is going through chemo treatment for MS not for cancer. She's happy about it but I personally wouldn't want it. You can ask your Doctor if you...
Hello, Every therapy is good for different patients. I think that interferon based meds have more side effects linked to them. But if it works for you its...
I just read in the MS support group that only a 1/3 of MS patients respond to A-B-C drugs so I think treating the underlying problems is more important then...
I completely understand your skepticism about drugs; with them, the entire concern is about money! However, I have to say that my personal experience has to...
I was wondering if we would all be willing to say what drugs we are taking at this time & why that choice was made. At the moment, I'm on once-a-week beta...
I have had medical problems for the past 4 1/2 years. Much of it relating to the spine and brain. I had cervical anterior diskectomy surgery with plating 2...
nyboy1960 wrote that he read that only a 1/3 of MS patients respond to A-B-C drugs. I don't think this is right; do you have a source? There has been a lot of...
All of the information I have read as well showed a 1/3 reduction in exasterbations as well. I would also like to know that persons source of information....
The only thing I would add to the ABCs reducing exacerbations by about 1/3 is that this is an average. Some will do better, some less than the 1/3 reduction....
Hi all, In response to the statement that only one third of MSers respond to the ABC drugs: I agree with Howard. Someone misread the info from the data....
Msjnich
May 16, 2005 12:01 pm
4259
I agree, it does depend on the individual. I have tried all of the meds (Avone, Betaseron & Copaxone) and none of those worked for me. I've been on Rebif for 2...
I have been asked to give a presentation on MS at the state EMS convention for Texas in November. My audience will be several hundred EMT and Paramedics from...
I have been sick from quite some time and am having a spinal tap today to rule out MS. Keep me in your prayers. They already diagnosed me with Fibromyalgia....
How are any of you dealing with injection anxiety? Even with the modifications to the Rebiject, I still am so terribly hesitant with pressing that damned...
I ran into a little bit of that in the past few weeks. I've been on the Beta Seron injections for over 4 years. They just changed their injections. Now they...
When I give myself the injections I get everything ready, then I take a deep breath and as I push the button I slowly exhale and count to ten and it doesn't...
Once you do this a few times, you'll find that it just isn't any kind of a big deal. Think of the independence this gives you. I'm glad that I can do this...
Alot of times "air in the syringe" is there for a reason. not for SQ injections, mind you, but for IM/IV/IO/UV/ETT/ID injections it has to be removed. One...
The Rockville Roadies MS Project Inc is a non-profit charity run completely by volunteers - No salaries are paid. We raise between 1-5 thousand dollars per...
I have such a hard time with the injections, I have to have my mom give them to me because I get nausious and feel like I'm gonna pass out when I look at the...
Hi everyone, I wish to bring to everyone's attention that in 2004 a form of ACTH (adrenocorticotropic hormone) called HP Acthar Gel was added to the Medicare...
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